NOBODY IS MORE SURPRISED THAN US! GKTW alumni return! 10/21 MOVING DAY!!

[lovethattink]

I called my doctor of 18 years for an appt Friday. It seems I haven't been seen in a couple years (I know she called me in a RX last year) and they purged me from the system, records and all! I have always felt she was in it for the money more than the patients, so my only regret is she wouldn't see me until October 17! I have picked a new MD based on online reviews and will be seen October 10, the soonest I could find....My OB-GYN has probably dropped me too...Oh well, I need a tune up and I am sure they will have some wonderful tests they want me to have. Now to get Pete off his duff to do the same...

I'm so sorry to hear you are sick and even more so to hear about the doctor. I thought they were required by law to hold onto records more than 2 years?

Dh and I have both been sick. I've had a cough since the Friday after we saw you. Now dh has it. Thankfully JJ had it and his came and went quickly. Mine is just lingering, and I don't feel a bit sick.

For those who like to see videos of the girls performing:

Lisa's best performance since her meds were adjusted.

Rachel playing Blue Sky (Allman Brothers)

Rachel playing Hey Joe (Jimi Hendrix) This was a concussion fogged performance.

Enjoyed the video. At first I couldn't figure out how to get sound, but after playing around for a bit, I figured it out. Where the speaker thing is with an x, I clicked the x and then a sound bar showed up where I could adjust the sound.

Michelle: We have a comfort/fidgit box with some fun stuff inside. Many things you said, some playdoh, putty, musical balls with a tingly touch, a sound machine to make crazy sound effects (it is quiet), a scalp massager, balancing bird, little wood figures you push and collapse, or just change shapes and so much more...it has helped on many occasion and I even like to fiddle in the box sometimes. Praying things are continuing to improve.

Thanks for mentioning about David's box. I forgot about putty. That therapeutic putty was always something JJ loves to squeeze. He's been telling me for days he needs to squeeze something. I'll have to ask next time he has therapy if they have any of that putty. I know it comes in different "strengths".

Please tell me about these musical balls, balancing bird, and the wood figures.

We've always carried his ear phones, brush for Walbarger Brushing Protocol, light, etc in my back pack. But his therapist is trying to get the calming to be his responsibility and not mine to get him calm.

There's a notebook in there with pages of relaxation techniques to choose from, there's a place to record what he did and when he did it. (Maybe there is a pattern we'll notice?) There is writing paper to record things. He has a sock we made filled with rice and beans for bean bag tapping and a "poor man's lava lamp" to watch glitter like a snow globe for relaxation. Straws to work on breathing techniques and to use for calming games and the other items needed to play those games.

That back pack sounds interesting, I hope it helps JJ a great deal. Keep everyone updated please.

So far so good. There is even a sheet in there to record when he's used something out of his back pack. Not only is it giving him something to be responsible for, but now he's remembering what the day is since he's writing something down each day. He's always been oblivious to time, and this is helping.

Great news about JJ! That backpack sounds like such a creative idea for him, and I love how it gives him some control over his environment by giving him the choice of what he wants to use. I hope he continues to have many, many more good days!

Thanks! It's been really nice that his good days are outnumbering the bad!!!! Having control over his environment should help to get rid of some of the anxiety.

Hi Judy. For some reason I can't hear the videos. I'm sure it's probably just my computer. I'll try again later. Retirement is wonderful and it gives me the time to help my dad out when he needs it. I am asking for prayers for him as he took a nasty fall off a ladder last Wed. and dislocated his shoulder. He had surgery on Thurs. but is still not feeling well and very weak. He is 84 and was trying to remove a storm door. I know your trip report is the place to ask for prayers for him.
Robyn

Robyn, It's not just your computer. I had trouble too. There is a speaker thing under the video screen. Click that or the x beside it. A speaker volume thing should show up. Adjust that bar and you should hear.

Praying for your father.



Andrea, So sorry to hear about the piano. Praying for your root canal and your boss.

 

[courtneybelle]

Judy, you never ever have to apologize...I understand how busy your life is, and your health and family should come before everything!

The girls look amazing and performed so well! Lisa does not sing like a 10-year-old, she sounds so mature...she reminds me of Adele in a way (that is a compliment because I LOVE Adele) and her boa is awesome!

I hope your appointment goes well and you feel better soon. I am going home for the long weekend, so I'm very excited to see my family. My mom found one of my grandmother's WDW trip journals while cleaning out her house so I am excited to look at that.

 

[kayrosek]

Judy, what a kind sefless wish for David to make. I hope he had a wonderful Birthday. Jonnie had a wonderful time celebrating this weekend and truly seemed close to his old self so we were very greatful. He kept worrying that I was doing too much, spending too much money or that it was taking too much effort for me to do the things I did for his birthday. Hes such a sweet little guy and doesnt want anyone to go to any trouble. Thats very much just part of his personality. We did have one disapointment in regards too his birthday though. Jonnie wanted a family weekend but he also wanted this one friend to spend the night. I talked to the friends mom and we agreed to wait until the middle of the month for the sleepover since the friends little brother was having a sleep over with six yearolds and this would give the older boy an escape and fullfill Jonnies wish. Yesterday Jonnie went over to see if his friend could play and came home very upset telling me just to cancel his sleepover. Apparently the kid has came up with 50 million excuses why he no longer wants to spend the night These were silly things like Jonnie owns one game he isnt allowed to play (though he has 20 the kid can play along with a brand new one the kid has been wanting to play) and he doesn't like the type of carpet I have. Mostly he just said hed rather go to this other friendshouse. I feel so hurt for Jonnie.

 

[kayrosek]

I'm going to finish my post here as my nook apparently does not like long posts. I am so sorry to here your still feeling sick and about the DR troubles. I hope the new dr is good. How's Rachel doing. I've been thinking of her a lot lately as Jonnie has struggled with his concussion. These strange similarities make it hard to forget to think of and pray for your family which is a good thing. Please don't feel the need to apologize. I think I speak for everyone here when I say we understand when you cant be around. Praying everyone feels better and that Pete is able to get a car soon.

 

[gopherdame]

Robyn, It's not just your computer. I had trouble too. There is a speaker thing under the video screen. Click that or the x beside it. A speaker volume thing should show up. Adjust that bar and you should hear.

Praying for your father.



Thanks so much for the help. The videos are much better when I can hear them too.Also thanks for the prayers. When I talked to him today he said it was the first day he felt better.

 

[cantwaittoseemickey]

Oh Judy I'm so sorry you have to go through Dr. troubles while you aren't feeling very well. That has to be frustrating. Hopefully this new dr is much better then the previous. I trully hope you all feel better soon. I also continue to pray that Pete finds a car.

I just love seeing your family perform. They are phenominal!

Michelle-Ty does self calming and I'm not sure if I have mentioned it here or not but he usually has an eraser with him at all times. It's the standard pink erasers (not the kind that goes on the pencil end) and he keeps it in his pocket and smooths the edges with his fingers. He always has them when we go to Disney and also everyday at school. It is something he began doing on his own to self calm.

Judy-You are so very right. It has taken some time to get used to the word Mito. Every day he struggles I try not to say to myself "I hate Mito" because in my heart I am sort of still in denial but then I think it makes so much more sense now. We are continuing to talk to him as well as he is continuing to ask questions. Next week we will be talking to the school and I am not looking forward to that meeting. I am so thankful my husband is off for this meeting as he has never been off for one. I think God worked that one out perfectly!

 

[Restrasz]

Both Rachel and Lisa gave wonderful performances! I hope one day to see them play.
Judy, I hope you feel better very soon! Sometimes we need a little push to get the health care we need! Ruth

 

[DisNorth]

For

To my sweet dear friend who I HOPE is celebrating HER special day today I say:



​

Awn, thank you Judy. This seriously made my day!! I can't believe you remembered

I was late for work today but I figure my birthday is one day I can get away with it
My Dad woke me up at 6:30am txting me happy birthday and I must have shut my alarm off. (The man doesn't think that despite the fact he goes to work at 7am I don't until 8:30) I fell back asleep and didn't wake up till 8!

Hope you are feeling better, Judy and your apt goes well. I hate dr. apts., so although they're free I rarely go (I know I'm bad) but my mom did guilt me into going recently to have a general checkup.

I will have to sit down and watch the videos latter tonight - looking forward to it.

Happy birthday to Tracy!

Thanks!
Glad to hear that Billy's eyesight is improving!

 

[thebeesknees]

Just saw the videos of the girls' (and Pete's) performances and can I just say "WOW!" They are fantastic!

Judy, so sorry to hear you are still not feeling well and need to find a new doctor! Maybe this will turn out to be a blessing in disguise and you will find one you really click with and love. I hope your appointment yields some positive results for you and you are feeling better soon.

Poor Jonnie about the sleepover - kids can be downright cruel and rude sometimes. I hope he finds another way to celebrate that will make his heart happy.

Michele, hopefully you are almost ready to move into your new house. So happy for you!

Andrea, how is your shoulder? I thought of you this weekend when a friend showed up at church in a sling - she and her husband were moving a couch and she wound up tearing a bunch of ligaments and breaking her collar bone!

Benjamin leaves tomorrow for his 3-day class field trip up to Winter Park for Outdoor Ed (survival skills, zipline, hiking, etc.) Parents were told that roommates could not be requested, however, in light of events last year and this year, I had a talk with the teacher who will be assigning rooms and put in a request for who he will NOT room with. She was very understanding and said she knew exactly which group of kids I was talking about and she would be sure to keep Benjamin with, in her words, "some of the nicest kids in the class." I don't know yet who those children will be, but I trust her judgment to know this far into the year who will be safe to put him with. She is really sharp and on the ball and has been terrific this year so far. I am praying he has a wonderful few days away with his friends and teachers. We are now, however, the proud new owners of a couple of Epi-pens due to an escalating nut allergy, so Benjamin got to spend yesterday afternoon practicing how to give himself the shot, much to Elisabeth's distaste. I know it will probably never be himself administering it, as the school nurse and I are both the keepers of the syringes, but I wanted him to be comfortable with how it worked, etc. So that is the update here. Hope everyone is doing well!

 

[kaoden39]

Hi all!

There were a few problems with the rebuild. When they walked with the local building inspector early on he found code problems with the original build. When our home was built they made walls that should not have been weight baring walls into weight baring walls. So our contractor had to completely demolish the upstairs rather than just take out the damaged wood and replace it. So we have a completely knew house. There were four walls left for the rebuild and that was downstairs. Then the lumber company sent the wrong trusses and they had to completely reorder them. They are about a month behind. Which is fine. I didn't pick out my dishwasher until yesterday. If anyone is interested in seeing the progress on the house I post pictures at least every Friday on my pre trip report. The link is in my signature.


Thoughts and prayers to all!

 

[happybelle]

Judy, your graciousness to all never fails to amaze me. Your family must always come first and anyone who doesn't understand that has problems. I am in awe of the talent each member of your family has. Those videos are simply WOW! Prayers continue for everyone who has asked. Tracy.

 

[ladylyons]

I hope your on the mend. We all understand how busy you are and will be here while you can. How sweet of David to wish of something for you and not himself. Your kids are just so generous!! Haven't had a chance to watch the video yet but I will once I can.

Just an update baby and I are doing fine. Just more tired than usual and my Dr. said that's to be expected. I'm chasing after 3 kids and growing a baby!! I got for the dreaded glucose test on Friday. I'm already borderline diabetic and I hope like crazy that being pregnant did not push me over. I hate needles with a passion and just don't know if I could do it if I am. Please pray that it all comes back good!!

 

[mickeystoontown]

David is such a sweetheart for using his birthday wish on you. Just another confirmation that you and Pete are raising those kids of your's right.

I watched all three videos this morning. All I can say is WOW! Lisa, Rachel and Pete are such great performers. As you know, Hunter's a self-taught guitar player and I'm sure that he'll get a kick out of watching the videos when I show them to him this evening.

I'm sorry to read that you are still feeling poorly. It's a pain in the rear-end that you have to change doctors but, like someone else said, it may be a blessing in disguise. Sometimes, you need a new doctor who can look at your history with a new perspective. I know when we had to change John's neurologist, we were scared spitless but it ended up being the best thing ever because this doctor reworked things and John has way less side effect problems than he had in the past.

I hope that you have a great day and that it's not too terribly busy.

 

[blessedmom4]

INJUSTICE: David and I were on our way to the Neuro-opthalmologist this AM (you all know how we love that one:NOT). Exited Interstate and there was 2 left turn lanes on the ramp. I'm in the right lane approaching light to go left, 2 cars in front of me. Car in left lane has 6-8 cars in front of him, he decides he doesn't want to wait, pulls into my lane and hits me damaging my bumper and who knows what else. He pulls back in the left lane, attempting to leave, even though I have stopped my van and exited the car. He finally gets out because I am yelling for him not to leave, he hit me. He says no, I ALMOST hit you, but really didn't. Then why is my bumper broken, with white paint on it? State trooper FINALLY shows up, can't be certain where the collision occurred on the other man's car "He has lots of dings and damage." Tells me the insurance companies will have to sort it out, he didn't give him a ticket or violation of any sort and actually let him leave before me...seriously. I have already notified my insurance carrier, I am just so sick to my stomach. We have a high deductible and I have NO idea how much this is going to cost, my car was making weird noises after the MD appt. I feel sick I had to cancel my other appt, I just can't do it today. I value honesty, I am always a straight shooter and own up to my mistakes...I am tired of people in this world who try to get over. I feel so ill and upset, partly due in part to the man's lies. AFTER he denied hitting me, he called his boss (their vehicle) and told me the boss said they would pay for it and didn't want to wait on the State Highway Patrol. I insisted I was not leaving the scene, that never goes well. Neither did this. David put it all in perspective as he hugged me. "At least we weren't going 60 mies an hour when he hit us." I agree. Praise God.

Thank you for understanding about my crazy life, that seems to always get just a little bit nuttier. UNBELIEVABLE is the word...Thank you for your kind words about the girls performances (and Pete, I think they are amazing). A little extra prayer for me today would be nice. Thank you. Forgive me, I really can't think right now.

 

[cantwaittoseemickey]

Oh Judy!! I am so so very sorry!! Did any witnesses stop? I really wish I could say there are no dishonest people out there but... I am glad you are both ok. I really hope his company comes through and pays for the damage. Huge Hugs sweetie!!

 

[lovethattink]

Praying. Maybe that delay somehow kept you safe from another bigger problem? I know you believe, like me, that everything happens for a reason. I'm glad you weren't hurt. Hope the van is ok, concerns me that it wasn't sounding right. Praying Pete finds a car soon.

 

[mickeystoontown]

Oh Judy, I'm so sorry that this happened to you. There are so many people out there who don't give a flying fig about what they do, who they hurt or the outcome so long as they can continue on as if nothing happened. I hope that you get the whole thing straightened out without too much of a headache. Definitely will say an extra prayer or two for you my dear!

 

[scdak]

What a horrible morning for you, I am happy that none of you were hurt although the nurse in me knows that tomorrow your body will tell you that you were in an accident today, as I tell all my pts when I discharge them, "the next day you will be sore and it lasts for 10 -14 days"..............so in your case DON'T try to be a super hero and push yourself too hard, get as much rest as you can (ha ha, like that happens), use ice and heat, keep yourself doses with appropriate meds and give your poor, already sick body a little break! Hopefully the company will take responsibility for the actions of their mean, stupid employee and the van will be repaired quickly and with no cost to you!

 

[kayrosek]

Judy, Ugh! How horrible. I am praying the insurance sees through this guy. David is right. It could of been worse. Our truck is in the shop today after breaking down but now I am feeling greatful it wasen't an accident. Sending lots of hugs and prayers your way.

 

[p00h4me]

s and prayers for you Judy! So glad that you and David are fine and that the company will work with your insurance to fix the damage to your van. Praying for your doctor's appointment tomorrow too and for you to feel better soon!