Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[CeraMomof3]

How Exciting! It will be nice to meet you!!!

I will be making ( several ) late night runs to Walmart... Let me know if you're in for that, LOL.

 

[luvmygrlz3]

How Exciting! It will be nice to meet you!!!

I will be making ( several ) late night runs to Walmart... Let me know if you're in for that, LOL.

My favorite place to go!! I foresee a party in Walmart in about 3 weeks!

 

[shruley]

I at one time had found a website for GKTW that was for families that were going there...not the main fundraising one for the public. I evidently lost the website, can anyone direct me to the right link? PLEASE?

 

[blessedmom4]

I at one time had found a website for GKTW that was for families that were going there...not the main fundraising one for the public. I evidently lost the website, can anyone direct me to the right link? PLEASE?

Is this what you are looking for? Or something different?
http://www.gktw.org/pre/Village/before.asp?p=village

 

[blessedmom4]

Does anyone know if the transportation trains around the GKTW Village are wheelchair accessible? Thank you!

 

[jj0plin]

I at one time had found a website for GKTW that was for families that were going there...not the main fundraising one for the public. I evidently lost the website, can anyone direct me to the right link? PLEASE?

Try WWW.givekidstheworld.org. I am on my phone and can't get it to load but I think you click the about us tab, then families on the left. Then there is a link in the paragraph to all the big info

 

[kailatilear]

Oh how I have missed these boards the past 3 days. Tilear ended up in emergency surgery yesterday for his gallbladder. We went for the tests on Thursday, with the results of your doctor will have the report in 1 to 2 days, but he wasn't having to wait. So, Thurs. night he was in extreme pain and back in the ER by 1:30 am. He was admitted by 6 am and in surgery by 1:30 pm.

And to top if all off, I was leaving the hospital yesterday to come home and take a shower when hubby was up there and I got a stupid speeding ticket. ugggggggggggg

We came home today!!!!! There is the whole story on my ptr, but just wanted to give an update here.

I want to thank everyone for all the prayers through this whole process.

Going to catch up on the boards now.

 

[maroo]

Oh how I have missed these boards the past 3 days. Tilear ended up in emergency surgery yesterday for his gallbladder. We went for the tests on Thursday, with the results of your doctor will have the report in 1 to 2 days, but he wasn't having to wait. So, Thurs. night he was in extreme pain and back in the ER by 1:30 am. He was admitted by 6 am and in surgery by 1:30 pm.

And to top if all off, I was leaving the hospital yesterday to come home and take a shower when hubby was up there and I got a stupid speeding ticket. ugggggggggggg

We came home today!!!!! There is the whole story on my ptr, but just wanted to give an update here.

I want to thank everyone for all the prayers through this whole process.

Going to catch up on the boards now.

Oh no!! So glad they caught it and took care of it, though. Best news I ever got at a dr office was that I needed gallbladder surgery. Quick surgery that totally took away horrible pain!

And what is with the cop giving you a ticket for speeding?? Going to and from the hospital?!

 

[CeraMomof3]

Poor Tilear! And poor you for the speeding ticket! ARGH!

 

[Mom2mitokids]

My 1,000 post on 1 month to go!!!!!. I can't believe all the support I have received from board. Thank you

 

[MitoDadMO]

We were at Borders last night and looking at Disney travel books. I was looking at the 2011 Frommers guide and it said you had to pay to park in the park lots to the tune of 14/day. Is the true? If so I need to let my parents/inlaws know this.

 

[jj0plin]

We were at Borders last night and looking at Disney travel books. I was looking at the 2011 Frommers guide and it said you had to pay to park in the park lots to the tune of 14/day. Is the true? If so I need to let my parents/inlaws know this.

That is true, but Wish families get free parking. Could you and your parents ride together to the parks?

 

[kellyw8863]

We were at Borders last night and looking at Disney travel books. I was looking at the 2011 Frommers guide and it said you had to pay to park in the park lots to the tune of 14/day. Is the true? If so I need to let my parents/inlaws know this.

It is true. There are a couple of things that you can do. You can talk to MAW about renting you an 8 person van (both Toyota Siennas and Honda Odysseys come with an 8th seat option) so that you can all ride together, though I don't know about availability. If they won't pay for the upgrade because the grandparents aren't officially part of the wish, you can ask about paying for the upgrade yourself (similar to MAW booking extra travel tickets for non-wish members and then sending you the bill - they did this for us). Or, once you get your travel packet with the name of the car rental company they used, you can contact them directly. Explain your situation, and maybe they will help you out. And if none of that works, you could always try having them follow you into the park and explain to the park attendant that the car behind you is traveling with you. Maybe the CM will cut them a break.

 

[MitoDadMO]

we are getting a wheelchair lift van, therefore some of the seats are removed to accomidate the lift etc. we could strap them down to the luggage rack i guess!

 

[syammt]

Update on Madison. We were at a birthday party last evening for Madison's "Grandma Shirl" and she fell and broke her arm and hurt her ankle. This is the worse break she has ever had. It is broke in 2 different places and was out of place. The bigger bone in arm was broke and the bone was beside each other instead of a straight line. Then the other break was on her little bone in the arm as close to the wrist as she could get without it being the wrist and it was out of place also. We were an hour away from our Children's Hospital, but I made it there in 30 minutes. They had a really hard time getting both the bones set. He said when he would get one set and move to the other one to fix it the first one would come out of place again. He finally got it without her having to have surgery. Her ankle was not broke and ended up only being a bad bruise. She came home with a cast on her arm upto her armpit and an air cast on her ankle. She is in a lot of pain, but the meds they gave her are working pretty good.
I just don't know how parents do it everyday. I am so done with all the stuff she has to go through and deal with. It is so frustrating and just not fair. I mean what did our children ever do to deserve the pain they have to endure? Yes as you can tell I am extremely pissed off to put it bluntly. I have given up on faith, trust and believing in GOD.
On a better note I hope everyone has a great Valentines Day.

 

[kailatilear]

Update on Madison. We were at a birthday party last evening for Madison's "Grandma Shirl" and she fell and broke her arm and hurt her ankle. This is the worse break she has ever had. It is broke in 2 different places and was out of place. The bigger bone in arm was broke and the bone was beside each other instead of a straight line. Then the other break was on her little bone in the arm as close to the wrist as she could get without it being the wrist and it was out of place also. We were an hour away from our Children's Hospital, but I made it there in 30 minutes. They had a really hard time getting both the bones set. He said when he would get one set and move to the other one to fix it the first one would come out of place again. He finally got it without her having to have surgery. Her ankle was not broke and ended up only being a bad bruise. She came home with a cast on her arm upto her armpit and an air cast on her ankle. She is in a lot of pain, but the meds they gave her are working pretty good.
I just don't know how parents do it everyday. I am so done with all the stuff she has to go through and deal with. It is so frustrating and just not fair. I mean what did our children ever do to deserve the pain they have to endure? Yes as you can tell I am extremely pissed off to put it bluntly. I have given up on faith, trust and believing in GOD.
On a better note I hope everyone has a great Valentines Day.

Hugs to Madison and you too!!! I am glad the pain meds are working. I know from experience how painful a break is, let alone a displaced break. We go through it almost daily, the pain of breaks and the pain after the breaks healed. I am praying that things look up for you.

I know that it is so easy to get upset with God and just life in general, with what we face on a daily basis, but please don't give up on your faith, sometimes that is all we have, with what we deal with.

Just know, we are all here for you.

 

[kailatilear]

I am really praying for an uneventful week, after the past two weeks, I really need one. I can't believe that 11 days from right now we will be at GKTW!!!!!!!!

 

[syammt]

I am really praying for an uneventful week, after the past two weeks, I really need one. I can't believe that 11 days from right now we will be at GKTW!!!!!!!!

Hoping for an uneventful week for you as well and what I would do to be back at GKTW even if for just a day. Have a great time (which I know you will) and relax. Thanks for the message on my post.

 

[brookerene]

Update on Madison. We were at a birthday party last evening for Madison's "Grandma Shirl" and she fell and broke her arm and hurt her ankle. This is the worse break she has ever had. It is broke in 2 different places and was out of place. The bigger bone in arm was broke and the bone was beside each other instead of a straight line. Then the other break was on her little bone in the arm as close to the wrist as she could get without it being the wrist and it was out of place also. We were an hour away from our Children's Hospital, but I made it there in 30 minutes. They had a really hard time getting both the bones set. He said when he would get one set and move to the other one to fix it the first one would come out of place again. He finally got it without her having to have surgery. Her ankle was not broke and ended up only being a bad bruise. She came home with a cast on her arm upto her armpit and an air cast on her ankle. She is in a lot of pain, but the meds they gave her are working pretty good.
I just don't know how parents do it everyday. I am so done with all the stuff she has to go through and deal with. It is so frustrating and just not fair. I mean what did our children ever do to deserve the pain they have to endure? Yes as you can tell I am extremely pissed off to put it bluntly. I have given up on faith, trust and believing in GOD.
On a better note I hope everyone has a great Valentines Day.

I'm sorryFirst, Madison and the other kids did not to deserve these problems...but they were allowed to face them...why? I don't know, but I also cannot see the big picture. We live in a fallen world where we have told God to get out, but He has stayed because He loves us. It doesn't mean He heals us of every trial or sickness, but He does give us the strength to face it if we DEPEND on HIM...He didn't spare His OWN Son, but gave HIM up for us all. Don't give up on God, give in to Him. It's tough because our expectations are often not met and we think we are not getting a fair shake in life. But maybe we need to change our expectations. It's okay to be angry... to be frustrated... to vent...to cry...but you also need to focus on the good things... you have a beautiful daughter and even though she has to face a plethora of broken bones (and other things), you can prepare for it and put precautions in place. Having a daughter with special needs can be exhausting....because ultimately you are the one who has to carry her and sometimes you need someone to carry you. We on the boards can lend an ear, give encouragement because each of us in our own way has faced difficulties with an ill child, but ultimately it is God who can and will carry you, and I'll pray that He will show you that He has a plan for you and Madison and this illness, and that it is meant for good not bad.

 

[Glo's wish]

I'm sorryFirst, Madison and the other kids did not to deserve these problems...but they were allowed to face them...why? I don't know, but I also cannot see the big picture. We live in a fallen world where we have told God to get out, but He has stayed because He loves us. It doesn't mean He heals us of every trial or sickness, but He does give us the strength to face it if we DEPEND on HIM...He didn't spare His OWN Son, but gave HIM up for us all. Don't give up on God, give in to Him. It's tough because our expectations are often not met and we think we are not getting a fair shake in life. But maybe we need to change our expectations. It's okay to be angry... to be frustrated... to vent...to cry...but you also need to focus on the good things... you have a beautiful daughter and even though she has to face a plethora of broken bones (and other things), you can prepare for it and put precautions in place. Having a daughter with special needs can be exhausting....because ultimately you are the one who has to carry her and sometimes you need someone to carry you. We on the boards can lend an ear, give encouragement because each of us in our own way has faced difficulties with an ill child, but ultimately it is God who can and will carry you, and I'll pray that He will show you that He has a plan for you and Madison and this illness, and that it is meant for good not bad.

Okay, I wish the Disboards had a like button!