Hello all. I am what you would probably refer to as a lurker. My name is Terry. I have been reading about all the sadness of late and feel almost like I am intruding on your board at a bad time. But since I have been having a difficult time pulling myself away from this board, I figured I should just dive in and introduce myself while also offering my thoughts and prayers to those who are living thru such dark times.
As I said before, my name is Terry, and my nine year old son Richard has been granted his wish to go to Disney from Make-A-Wish. Richard has cystic fibrosis which was previously very manageable. However, the last year has been incredibly difficult for him with frequent hospitalizations and various medical procedures. Richard also has had many surgeries to correct abdominal abnormalities which were unrelated to the CF. Well, like I said, its been a tough year. He missed most of the school year due to illness and has struggled to keep his spirits up. One of his home-care nurses nominated him for a wish and before we knew it, we were booked to depart on September 26th.
My husband and I are incredibly humbled by the generosity of strangers and are frankly overwhelmed. We are also having a difficult time trying to reconcile the needs of our son with that of our four year old daughter Katie. You see, Katie has autism. She is only beginning to speak words and has many sensory and transition issues. Fortunately, my parents and sisters have agreed to meet up with us and help with Katie so as not to ruin Richard's wish trip. My family is staying at GKTW and my parents/sisters are going to stay at the Contemporary. I have my fingers crossed that this will work for us. My greatest fear is Katie needs will overshadow Richard's wants. He is such a great kid, a sweet and wonderfully doting brother and I just want this to be perfect for him. Despite his disease, he has had to sacrafice so much for his sister and he does it without hesitation.
I know there are so many more deserving people than our family, but if you could keep good thoughts for us, I would genuinely appreciate it.
I also wanted to thank you all on behalf of all the lurkers out there. The information, guidance and support you provide is simply priceless. And forgive me if I posted this in the wrong place, as a newbie who is not very computer savy, I did the best I could.
I would love to have meet another family out at GKTW. Especially one who knows a bit about what my family is going through. 
I thought you could use one.
Hello all. I am what you would probably refer to as a lurker. My name is Terry. I have been reading about all the sadness of late and feel almost like I am intruding on your board at a bad time. But since I have been having a difficult time pulling myself away from this board, I figured I should just dive in and introduce myself while also offering my thoughts and prayers to those who are living thru such dark times.
As I said before, my name is Terry, and my nine year old son Richard has been granted his wish to go to Disney from Make-A-Wish. Richard has cystic fibrosis which was previously very manageable. However, the last year has been incredibly difficult for him with frequent hospitalizations and various medical procedures. Richard also has had many surgeries to correct abdominal abnormalities which were unrelated to the CF. Well, like I said, its been a tough year. He missed most of the school year due to illness and has struggled to keep his spirits up. One of his home-care nurses nominated him for a wish and before we knew it, we were booked to depart on September 26th.
My husband and I are incredibly humbled by the generosity of strangers and are frankly overwhelmed. We are also having a difficult time trying to reconcile the needs of our son with that of our four year old daughter Katie. You see, Katie has autism. She is only beginning to speak words and has many sensory and transition issues. Fortunately, my parents and sisters have agreed to meet up with us and help with Katie so as not to ruin Richard's wish trip. My family is staying at GKTW and my parents/sisters are going to stay at the Contemporary. I have my fingers crossed that this will work for us. My greatest fear is Katie needs will overshadow Richard's wants. He is such a great kid, a sweet and wonderfully doting brother and I just want this to be perfect for him. Despite his disease, he has had to sacrafice so much for his sister and he does it without hesitation.
I know there are so many more deserving people than our family, but if you could keep good thoughts for us, I would genuinely appreciate it.
I also wanted to thank you all on behalf of all the lurkers out there. The information, guidance and support you provide is simply priceless. And forgive me if I posted this in the wrong place, as a newbie who is not very computer savy, I did the best I could.
to the boards!! 
(only on day 2) my TR, and I'm sure it will help with my scrapbooking later!
I have more snack ideas...
At some point I can repost them on here...but really can't today (someone please remind me)...but you can go to the "strangers" TR linked in my siggie...and you will find a LOT of really yummy snacks on there that we have talked about. Complete with lots of pictures!
And that pre-trip report is very, very funny...I am going on the trip, too, so I have contributed some to the banter...but it really will make you smile if you are having a bad day.
Stay way far away from it if you are on any kind of diet!
Here is one picture to tide you over...then you can head over there and see the rest...
And really remind me and I can copy and post them all over here...
