Make a Wish (and other organizations!) - Wish Trippers...UNITE!! Volume 2!

[MomTo4+more]

This precious boy has beaten the odds no less than 4 times since I have "known" them last year. Christmas, January, February and on the way home from his Wish trip.

I know he must be really tired. He does not seem to be responding to the things he normally responds to.

Here is the last update in the words of his Mom and then his Dad...


Things are rough here...we are living hour to hour...things are still critical. The night was very rocky with worsening blood gases. Noah is proving to be very difficult to ventilate. His asthmatic issues really complicate things, causing these long, forced expirations, that do battle with the breathes the ventilator is trying to give him. Ketamine has been added to his ever growing list of drugs to help with the asthmatic issues, as well as lots of ventolin. Many ventilator changes to try and find a happy place for Noah, but we still don't seem to be there yet. Gases are still bad, but not worsening this evening. Noah's blood pressure has begun to drop...he recieved more albumin and a dopamine infusion was started. He is still spiking crazy high fevers and his kidneys are not functioning well. Nothing has grown so far on any of the cultures and H1N1 results won't be back until tomorrow. So really, not definative diagnoses yet other than ARDS (acute respiratory distress syndrome).

Line access, as always, has been a major issue again, as Noah is needing more and more meds. Since our central line is only a single lumen and Noah needs that for his TPN, more access was quickly needed. The docs managed to get a double lumen PICC line in his femoral vein, but because of so much scarring, were unable to thread it much. Hopefully it will at least buy us some time.

Praying once again for another miracle.

(Update: 2:00 am July 29 ... Nichole called me (Brad) in early this morning because Noah was going downhill very fast. The Doctors were not sure if he would make it through the night. Noah is currently on medication to sustain his blood pressure and effective heart beat, he is also on the oscillating ventilator and kidneys have shut down. More updates to come as there are any.)

This just makes me cry. That poor family. I can just imagine how the must feel. My children and I are praying and hoping for a miracle.

 

[Mickydees]

Our prayers are with Noah & family also. We are praying for recovery for Noah and strength for the family.

Also Collin had a great birthday this past Saturday. All the details are on his PTR: http://www.disboards.com/showthread.php?t=2227779&page=2

Best wishes to everyone!

 

[MomTo4+more]

I was just over on Noah's blog. He passed away shortly after 2 today. Be praying for his family to be comforted in this time.

 

[Corrine 1973]

There is a very special new angel in Heaven today.

My deepest sympathys and prayers go out to Noah's family.

 

[wkualum]

Mikaela and myself are praying for the family. Yes, a special angel is in heaven today.

 

[maroo]

Noah was a precious, precious boy...

Who touched hearts literally across the world.

I can't wait to get to heaven to find out just how many lives that little 3 yr old boy touched and made better.

I don't think he ever really talked? I never heard him say words when I met him.

But what a fighter. He spoke volumes to me.

Nichole - we love you. And we will continue to pray.

 

[jessica52877]

Well said Maroo.

We are all praying here and know that Noah is at peace now.

 

[LindaBabe]

My deepest sympathy to little Noah's family. The words seem so - so useless, when what I want to do is wrap my arms around them and protect them from this pain.

Noah, I hope you are well and happy and dancing in the sunshine where you are now.

 

[StefaniLyn]

Noah was a precious, precious boy...

Who touched hearts literally across the world.

I can't wait to get to heaven to find out just how many lives that little 3 yr old boy touched and made better.

I don't think he ever really talked? I never heard him say words when I met him.

But what a fighter. He spoke volumes to me.

Nichole - we love you. And we will continue to pray.

Angel Noah and his family is in our prayers. May he rest in peace in the arms of our Lord. His body is now healed and no longer is he in pain. Our thoughts are with the family as they endure this difficult time.

 

[SueM in MN]

Sorry to hear about little Noah and sending prayers to his family.

I hope they are comforted to know that people who had never met Noah were touched by him and saddened by his death.

 

[Eeyores Butterfly]

That poor family. Prayers being said for everybody. Thank you for letting us know.

 

[Mickydees]

Collins family is praying for Noah's family. This is so devestating and our hearts go out to them. May God's grace be sufficient during their loss.

 

[Matt1026]

My heart is just breaking this morning. I wish I could find the words to express my deep sorrow for this precious family. You are all in my prayers today!

 

[keetmommy]

I am sad to read of this....I hope Noah is at peace now.

 

[maroo]

First of all...

I want to call your attention to a new angel on the DIS today...

Did you see it? In the smilies today?



Webmaster Corey added this in honor of Noah.



Also...and this is separate because it is completely voluntary....

There are some of us that are planning on coordinating a few things to honor Noah and his courageous fight...feel free to join us over here and chime in ideas and such to honor Noah.

Honoring Noah

 

[alizesmom]

Praying for Noah's family to have peace in their hearts. Losing a child is impossible to describe but be assured that he is now playing happily in the presence of God. Karen

 

[maroo]

Praying for Noah's family to have peace in their hearts. Losing a child is impossible to describe but be assured that he is now playing happily in the presence of God. Karen

How are you???? I thought of Alize and Jonah this morning when I saw that angel on the DIS...



I am still praying for you guys!!!!

 

[jenb1023]

Hey all -

I hate to be the the bearer of more bad news but Shardai just posted and Mya has had a bad week.

Here is a link to her PTR/TR. . .
http://www.disboards.com/showthread.php?t=2176919&page=13

They could use some prayers too!
Jen

 

[tastycollector]

prayers for all the little angels that have joined heaven!

for Noah's family.

 

[tastycollector]

Started Devon's trip report. Day 1 is finished. Still can't make the pictures work. I will work on it.