Twinkle Toe Shoes cause epileptic seizures?

There is evidence that blinking lights can trigger seizures.

As for nurses, our schools have them. Who administers prescription medication to the students while they're at school?

Are you saying that the nurse made this up?

At certain frequencies, yes. As has been stated these frequencies are 5-30 cycles per second. That is the frequency that a strobe light flashes. If you have seen these shoes, they blink at a frequency that is far below that threshold. They are more in line with the blinking of a Christmas light, or a "sale" sign on a store.
 
I just called & talked with the Sketchers customer service.

There is no way to disable the lights.

This is the 1st that they have heard about a school banning the shoes & it's the 1st they have heard about someone saying the lights could cause a seizure.
She contacted the lab & called me back to let me know that Strobe lights cause seizures & have to have a frequency of 20-50 cycles per second. Sketchers are blinking lights & not strobe lights & the shoe cycles are way below that. The lab is preparing paperwork to e-mail me the frequency rating of the shoes.

I asked if any cases had been reported to them about seizures & she said there have been none.

Did you ask about Migranes?

Denise in MI
 
I would not be buying new shoes because of the school now. Light up shoes have been around for ages. And I don't think the OP's daughter is entering kindergarten either, so if a particular child has an issue, a notice should've been sent home a long time ago saying "for the safety of the children in the classroom, please do not purchase light up shoes."
Because if they went through this last year, they could've made it easier on parents this year.

Maybe the student is new to the building or recently developed epilepsy or migraines.

The light up shoes that were around in the past are much different than these.
 
At certain frequencies, yes. As has been stated these frequencies are 5-30 cycles per second. That is the frequency that a strobe light flashes. If you have seen these shoes, they blink at a frequency that is far below that threshold. They are more in line with the blinking of a Christmas light, or a "sale" sign on a store.



In order to be safe, the consensus recommends that photosensitive individuals should not be exposed to flashes greater than three per second.

http://www.epilepsy.com/articles/ar_1141663451
 


I have very close friends who have a dd who has epilepsy. She can have a seizure by just looking at a striped shirt. I don't understand why this is such a big deal and why anyone would want to make this a battle. If another child might be in danger than my child would not wear the shoes to school. I would feel absolutely awful about hurting another child. I am so glad my kid's school only allows white or black sneakers. I am also blessed to have two healthy girls. It is just my opinion but I think this is being blown way out of proportion. I don't think you will win the argument in the long run anyhow. The school has a right to determine that these shoes are not appropriate for school. Let her wear them after school and on weekends.
 
If it is not in the rule book then unless the school was paying for new shoes my child would continue to wear them. One of my kids has the exact pair the OP is talking about. Unless you are looking at them you don't even notice that they are lighting up. You don't even see them out of the corner of your eye as some have mentioned. After about a month half the lights die out anyway. If child cannot be around any light that turns off and on then I don't understand how they can even be in school. Also- unless every kid in that school has non light up sneakers there is also no way I would even consider it. Call me selfish I don't care. I think people are way too demanding these days.

I agree and My child would wear them until everyone in that school was not allowed to wear them.
 
I agree and My child would wear them until everyone in that school was not allowed to wear them.

Maybe the parents of other students wearing them have been contacted as well.. We won't know that until the OP speaks to someone at the school and updates this thread..
 
Sorry, I would follow-up with the school. If they want to say it's a distraction, that's fine, but I don't believe it's because of seizures. I have to admit, I'm so sick and tired of the PC world and everyone being special and having special circumstances. So if there is a child who has issues, do they never watch TV in the dark, go to movies, drive in a car because a blinking traffic light could trigger a seizure? I'm also assuming they never play video games or go to Disney because we all know how many different strobes/lights, etc. there are there. I'm just incredulous at how people think the world is going to remove all the obstacles from their lives. What are we teaching our children? Even if you can remove all these obstacles on a school level, do you think an office is going to change all their lightbulbs for you? Or you'll never ride in a car at night because of the flashing headlights as you drive by? I know I'm obviously a heartless, mean, nasty person, but enough already. :mad: And we wonder why everyone is a snowflake with thier own special set of circumstances. :rolleyes:
 
Even without the seizure issue, is it surprising to you that flashing lights on shoes could be a distraction?

They are a major distraction-whole lines of kids staring at the shoes in the hallways and not paying attention to where they are going. Heck-I'm even distracted! It's hard not to look when they are flashing!

Most likely, your school will either have to make a policy where these shoes are not allowed, or your daughter should be able to where them. They can't isolate one person not to wear them and let the others slide.

The epilepsy thing is real.
 
There is evidence that blinking lights can trigger seizures.

As for nurses, our schools have them. Who administers prescription medication to the students while they're at school?




Are you saying that the nurse made this up
?

Not at all, and I have no idea how you got that from my statement. I was wondering "out loud" if an actual incident had occurred with a child or teacher or staff member, where the lights caused a medical issue (migraine, seizure etc...) or if perhaps a parent of a child with a medical issue, or a staff member with a medical issue, saw the lights and went to the school pre-emptively/proactively to try to have the twinkle shoes "banned" as a precaution.
 
I agree 100%

Seizures are triggered by rapidly firing lights like a strobe, video games, not the minor flashing from shoes!! There is no way I'd buy other shoes. Those shoes have been around for a very long time, my DD who is in college had them when she was little, if it was a real problem don't you think our media who sensationalizes everything wouldn't have had them banned by now?

The only flash when she walks and not the sustained rapidly flashing bright intensity needed for a seizure. If someone in that schools seizures are that fragile I have no idea how they are getting to school with any lights.

Before I would have her stop wearing them I would want documentation showing these shoes cause seizures.

Parents need to stop rolling over to all these unsubstantiated "rules" and requests from the schools. My DD would be wearing them as long as they fit.

Absolutely correct! Unless she's in a dark room, repeatedly kicking her feet so the flashing stays on, and sitting right in front of the eyes of an affected person, her shoes are not going to cause a problem. I would definitely not buy new shoes. Ask for the scientific proof.
My daughter has the same exact shoes, she loves him. I almost killed DH for buying them, told him I usually go for the walmart $10 sneakers. Lasted all year for both kids last year... :)
 
Warning- this is a vent! :headache:

This is our 1st week back to school (5th grade)
I received a phone call yesterday from our school nurse asking me to bring another pair of shoes to school for my daughter because there was a complaint about her Twinkle Toe Shoes bothering them.
She said the lights on her shoes could cause migraines or epileptic seizures in a a child that has epilepsy
.
I said, I wish I knew that before I bought them. These are the shoes that my daughter wanted for the new school year & they cost $43.
The more I thought about it, the more upset I was because she's worn them several times, I don't have my receipt to return them, and I now have to buy a new pair of shoes.]

. Students were wearing the Twinkle Toe shoes last year to school, so I did let her pick them out for this school year.

That would irritate me as well, especially with the way the situation was handled. The nurse is not an authority on whether the lights could cause seizures. IMO, they could have let your daughter wear the shoes home instead of calling you up to bring her another pair.

I would hope your daughter is not the only one that can not wear the shoes to school. It sounds like maybe they should be banned due to distraction, but not medical reasons. Maybe they can amend the dress code by sending a note home in the kids' take home folders? In any case, I would contact the school with the info from Skechers about no seizures being reported, and also to voice my complaint about how the situation was handled by the nurse.
 
It would be a rare school system that has time the first weeks of school to engage in a long drawn out battle about the appropriateness of footwear. If the parent fights this school rule, what is that teaching the kid?

It seems to smack of the I am the center of this classroom, and I don't need to follow the rules of the group mentality.

It's the families like that that give me a headache. Just follow the rules. New or old. Just do it.
 
Sorry, I would follow-up with the school. If they want to say it's a distraction, that's fine, but I don't believe it's because of seizures. I have to admit, I'm so sick and tired of the PC world and everyone being special and having special circumstances. So if there is a child who has issues, do they never watch TV in the dark, go to movies, drive in a car because a blinking traffic light could trigger a seizure? I'm also assuming they never play video games or go to Disney because we all know how many different strobes/lights, etc. there are there. I'm just incredulous at how people think the world is going to remove all the obstacles from their lives. What are we teaching our children? Even if you can remove all these obstacles on a school level, do you think an office is going to change all their lightbulbs for you? Or you'll never ride in a car at night because of the flashing headlights as you drive by? I know I'm obviously a heartless, mean, nasty person, but enough already. :mad: And we wonder why everyone is a snowflake with thier own special set of circumstances. :rolleyes:


all I can say is wow. Spend a day in the shoes of my friends and see if you still think having a child that has epilepsy is just a matter of being a snow flake or political correctness. Actually I think fighting the school over this because you want your child to wear her favorite shoes is more in line with creating a snowflake. By the way her school did change the light bulbs. They have gone to Disney and do not go on any rides that have lights that would effect her. Their lives are completely different and they understand that but school should be a safe zone for all children.
 
I have very close friends who have a dd who has epilepsy. She can have a seizure by just looking at a striped shirt. I don't understand why this is such a big deal and why anyone would want to make this a battle. If another child might be in danger than my child would not wear the shoes to school. I would feel absolutely awful about hurting another child. I am so glad my kid's school only allows white or black sneakers. I am also blessed to have two healthy girls. It is just my opinion but I think this is being blown way out of proportion. I don't think you will win the argument in the long run anyhow. The school has a right to determine that these shoes are not appropriate for school. Let her wear them after school and on weekends.

While I am sorry your friends dd has medical issues should striped shirts be banned? Where does this end?
 
all I can say is wow. Spend a day in the shoes of my friends and see if you still think having a child that has epilepsy is just a matter of being a snow flake or political correctness. Actually I think fighting the school over this because you want your child to wear her favorite shoes is more in line with creating a snowflake. By the way her school did change the light bulbs.

And to each his own. I am entitled to my opinion as are you. I believe you also mentioned your friend's child can possibly have seizures by looking at someone is a striped shirt? How can they avoid the possibility of running into someone with a striped shirt, or should everyone stop wearing them? And maybe her school did change the lightbulbs, but if this child ever gets a job in McDonalds or an office or a restaurant, will she then have been taught to expect the same accomodation? Everybody in the world has a story. You do the best you can to have accomodations for yourself and your children, but again, don't expect the whole world to change because of it.
 
Sorry, I would follow-up with the school. If they want to say it's a distraction, that's fine, but I don't believe it's because of seizures. I have to admit, I'm so sick and tired of the PC world and everyone being special and having special circumstances. So if there is a child who has issues, do they never watch TV in the dark, go to movies, drive in a car because a blinking traffic light could trigger a seizure? I'm also assuming they never play video games or go to Disney because we all know how many different strobes/lights, etc. there are there. I'm just incredulous at how people think the world is going to remove all the obstacles from their lives. What are we teaching our children? Even if you can remove all these obstacles on a school level, do you think an office is going to change all their lightbulbs for you? Or you'll never ride in a car at night because of the flashing headlights as you drive by? I know I'm obviously a heartless, mean, nasty person, but enough already. :mad: And we wonder why everyone is a snowflake with thier own special set of circumstances. :rolleyes:

Wow, I don't get offended easily, but as a mom to a child with Epilepsy, I'm speechless. This is the reason why the stigma still exists and the reason why as a parent I'm supposed to advocate and educate, but where do I begin. :headache:
 
While I am sorry your friends dd has medical issues should striped shirts be banned? Where does this end?

They don't ask for that she has to just move to be away from the shirt. Sometimes her mom has to stand in front of her to block a person with a shirt that will impact her. But something as unnecessary as light up shoes can be. Do you think that peanuts should be allowed in school and the heck with any child who has a severe allergy to them?

Really who cares about light shoes? Is that a necessity? They not only can affect another child's wellness they can also cause distraction to many other children. They are at school.
 
Sorry, I would follow-up with the school. If they want to say it's a distraction, that's fine, but I don't believe it's because of seizures. I have to admit, I'm so sick and tired of the PC world and everyone being special and having special circumstances. So if there is a child who has issues, do they never watch TV in the dark, go to movies, drive in a car because a blinking traffic light could trigger a seizure? I'm also assuming they never play video games or go to Disney because we all know how many different strobes/lights, etc. there are there. I'm just incredulous at how people think the world is going to remove all the obstacles from their lives. What are we teaching our children? Even if you can remove all these obstacles on a school level, do you think an office is going to change all their lightbulbs for you? Or you'll never ride in a car at night because of the flashing headlights as you drive by? I know I'm obviously a heartless, mean, nasty person, but enough already. :mad: And we wonder why everyone is a snowflake with thier own special set of circumstances. :rolleyes:


blinking lights trigger my migranes and no, i do not watch tv in the dark, do not attend movies anymore (have'nt been to one in 3 years), do not drive at night (stuttering streetlights are more my issue-we don't have much if any blinking traffic lights in our area), don't play video games and avoid areas at disney and other entertainment venues with flashing lights/stobes (i have'nt been to a carnival or fair in close to 8 years b/c those lights realy push me over the edge). i don't put twinkle lights on my christmas tree, and generaly try to avoid going to stores around the holidays when they are prone to having them up.

ds is not quite as sensitive when it comes to some types of blinking lights, but he has his issues with it-he avoids the same venues i do, and while he will attend a movie it's never a 3-d (for some reason it definatly triggers a migraine).

these are all things within our personal scope of control. as for what goes on at school, the school as with a potential employer, is obligated under the ada to make 'reasonable' accommodations. in our case, if something is causing ds an issue triggering his migraines we first try to work it out for ourselves-when it was a sound issue (ds has very sensitive hearing and could hear the florescent bulbs starting to go out a week or two before they would start to dim or flicker) we got permission from the school to provide (at our own expense) ear protectors, when it was the scent a particular plant gave off, we just told ds to avoid being in proximity to it, when it was the scent a particular brand of marking pens the teacher required the kids to use-we just asked if ds could (again at our own expense) use a different brand, and when the class was using theirs, could he move near a window which would remain opened.

if it's something we cannot personaly control-as would be the case if ds was triggered by some lights on a pair of a classmates shoes, we would have to present this information to the school which would be legaly obligated to evaluate the situation, and attempt to make a reasonable accommodation.

i have to say, that given the restrictions some schools have placed based on the documented medical issues of their students, the concept of telling a parent that their child cannot wear a particular shoe seems to me, rather mild. i look to the school rules that ban particular foods on busses and campus, particular laundering products to be used on clothing worn on busses and campus, and other similar restrictions which seem a great deal more restrictive.

i don't perceive a child with a proven, documented medical condition whose parents are following school protocol by notifying if something is/could cause a medical episode as being a 'snowflake'. i think that term may be better suited to a child whose parents fight for them in a manner that they are taught that their personal wants and desires to wear whatever is the 'in/cool/must have' fashion item is paramount over another person's health.
 












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