Twinkle Toe Shoes cause epileptic seizures?

You are right- it could.:laughing:


FTR- I don't buy my kid cheap shoes.;):rolleyes1

thank you for seeing the humor. I wasn't commenting on the OP or her DD...just that if we are going to term an epileptic child a snowflake for wanting PC concessions we can just as easily term a child who's parent insists they get to wear light up shoes at school a snowflake.

My DS's new shoes were more than the OP's Twinkle Toes and they don't even light up...I feel ripped off.
 
Funny, I never for one moment saw this as the OP parenting a snowflake....

These posts are just completely out of line.... :sad2:

OP just spent nearly $50.00 bucks on shoes, and feels that the school might be making an unfounded and unwarranted request..... (which I agree... until there is an official 'accomodation' which is proven warranted by the other child's medical diagnosis, and agreed to by all involved with this students IEP....)

It is more about being out the money, and questioning the schools demands. 'Snowflake' never once, for one single moment, crossed my mind.
 
I don't think everyone realizes that most of us are sympathetic to those who do have epilespy however there is no proof what so ever that these shoes trigger a migrane or a seizure.



not the twinkle toes ones (honestly have'nt heard of or seen these b/f this thread), but i've had migranes triggered by one of the older styles of sketchers. the kind with the lights in the heels.

i did volunteering at the kid's school in a classroom and on a field trip. in both cases, several of the kids (primarily boys cuz it seemed like at the time those shoes were much more popular with them) had these lighting sketchers. when the kids were seated and the lights were not flashing i was fine, but if a couple of them started activating the lights (usualy by tapping the heel on the floor) or there were several walking around such that the lights were flashing i started getting ill.

as an adult volunteer it was in my scope of control to remove myself from the situation, which i did. if it were a student in the classroom becoming ill i would expect the teacher to investigate the matter and take whatever the school deems is appropriate (and in our school handbook it says that any clothing that is either determined-by the school-to be distractive or have the potential to create a health or safety issue, the school at it's discretion can impose a ban).
 

I think the biggest issue is, is her daughter being targeted or is this going to be a new school rule.

And while her daughter might be a handful of students with these shoes today, who's to say that another parent isn't going to buy these shoes half way through the school year??

Maybe some kid holds off on buy a new pair of sneakers so that way they can see what every one else has to "stay in style". Or half way through the school year, a kid outgrows one size and decides that they want the twinkle toes now. How is that parent going to feel then?? That they weren't warned those shoes were not allowed in the school?? Who's to say that every parent has the funds to plop down money for a new pair of shoes every few weeks?? Kids need good supporting shoes for their feet, and 10$ pair off a wal-mart shelf is not going to be comfortable for every child. Heck I can't even wear a pair of shoes from wal-mart anymore without causing great pain.

Maybe a phone was needed because that child got sick and her DD is the only one in the room, but I would've still expected a notice to be sent home to at least all parents in the classroom that day, and in a couple days to the whole school.
 
Until a note came home stating that those shoes were banned from the school I would let my dd wear them. I wouldn't object to her covering the lights but I would not buy her another pair of shoes unless they were specifically breaking any school rules (not ones made up by the nurse).
 
Wait a minute I am confused.... Twinkle toe shoes with the jewels on the toes?? They only "sparkle" when light hits them. Not actual flashing lights in the soles.

My DS10 has epilepsy and we let DD5 get Twinkle toes instead of the ones with flashing lights in the soles. We haven't had any trouble with our son and our neurologist said it shouldn't be a problem, at least for my DS.

Bearshouse
 
Snowflake goes both ways. Boo hoo, someone can't wear their flashy light up shoes at school....oh no they have to suffer with cheap regular shoes while in school and can only wear their special shoes on weekends and after school.

See??? Snowflake can go both ways.

I see a new Reality show...BATTLE OF THE SNOWFLAKES!

We have the epileptic w/ migraines who needs the light bulbs changed...but, wait, here comes the child who is almost legally blind and NEEDS the brighter light bulbs put back in! Meanwhile the diabetic child needs to raise their blood sugar after taking too much insulin, so they break out a granola bar made with PEANUTS, but they HAVE to eat it, but the kid next to them is allergic and doesn't care that a diabetic coma is imminent, so they make the teacher throw the granola bar away!

Who will come out on top of this week's Snowflake battle?!?! Find out on FOX!

:rotfl: NOTE: This was all meant as a little fun. ;)
 
blinking lights trigger my migranes and no, i do not watch tv in the dark, do not attend movies anymore (have'nt been to one in 3 years), do not drive at night (stuttering streetlights are more my issue-we don't have much if any blinking traffic lights in our area), don't play video games and avoid areas at disney and other entertainment venues with flashing lights/stobes (i have'nt been to a carnival or fair in close to 8 years b/c those lights realy push me over the edge). i don't put twinkle lights on my christmas tree, and generaly try to avoid going to stores around the holidays when they are prone to having them up.

ds is not quite as sensitive when it comes to some types of blinking lights, but he has his issues with it-he avoids the same venues i do, and while he will attend a movie it's never a 3-d (for some reason it definatly triggers a migraine).

these are all things within our personal scope of control. as for what goes on at school, the school as with a potential employer, is obligated under the ada to make 'reasonable' accommodations. in our case, if something is causing ds an issue triggering his migraines we first try to work it out for ourselves-when it was a sound issue (ds has very sensitive hearing and could hear the florescent bulbs starting to go out a week or two before they would start to dim or flicker) we got permission from the school to provide (at our own expense) ear protectors, when it was the scent a particular plant gave off, we just told ds to avoid being in proximity to it, when it was the scent a particular brand of marking pens the teacher required the kids to use-we just asked if ds could (again at our own expense) use a different brand, and when the class was using theirs, could he move near a window which would remain opened.

if it's something we cannot personaly control-as would be the case if ds was triggered by some lights on a pair of a classmates shoes, we would have to present this information to the school which would be legaly obligated to evaluate the situation, and attempt to make a reasonable accommodation.

i have to say, that given the restrictions some schools have placed based on the documented medical issues of their students, the concept of telling a parent that their child cannot wear a particular shoe seems to me, rather mild. i look to the school rules that ban particular foods on busses and campus, particular laundering products to be used on clothing worn on busses and campus, and other similar restrictions which seem a great deal more restrictive.

i don't perceive a child with a proven, documented medical condition whose parents are following school protocol by notifying if something is/could cause a medical episode as being a 'snowflake'. i think that term may be better suited to a child whose parents fight for them in a manner that they are taught that their personal wants and desires to wear whatever is the 'in/cool/must have' fashion item is paramount over another person's health.

Yes, I am so there with you. I have vertigo attacks that might be seizures. I have limitations on what I can do. I save a lot of money not going to the movies or playing video games. Luckily, Disney was OK but I was terrified of getting sick while I was there. I can't believe how ugly this conversation got over a silly pair of shoes...really where is the compassion anymore. :confused3
 
I see a new Reality show...BATTLE OF THE SNOWFLAKES!

We have the epileptic w/ migraines who needs the light bulbs changed...but, wait, here comes the child who is almost legally blind and NEEDS the brighter light bulbs put back in! Meanwhile the diabetic child needs to raise their blood sugar after taking too much insulin, so they break out a granola bar made with PEANUTS, but they HAVE to eat it, but the kid next to them is allergic and doesn't care that a diabetic coma is imminent, so they make the teacher throw the granola bar away!

Who will come out on top of this week's Snowflake battle?!?! Find out on FOX!

:rotfl: NOTE: This was all meant as a little fun. ;)
:lmao: :lmao: :lmao: :lmao: :lmao:

We'll all be watching!!!!!
 
I see a new Reality show...BATTLE OF THE SNOWFLAKES!

We have the epileptic w/ migraines who needs the light bulbs changed...but, wait, here comes the child who is almost legally blind and NEEDS the brighter light bulbs put back in! Meanwhile the diabetic child needs to raise their blood sugar after taking too much insulin, so they break out a granola bar made with PEANUTS, but they HAVE to eat it, but the kid next to them is allergic and doesn't care that a diabetic coma is imminent, so they make the teacher throw the granola bar away!

Who will come out on top of this week's Snowflake battle?!?! Find out on FOX!

:rotfl: NOTE: This was all meant as a little fun. ;)

All meant in fun, but exactly my point. How do you accomodate everyone's needs? Whose needs trump whose? Where do we draw the line? And FWIW, I do get the irony of "my" snowflake versus "your" snowflake. Until this is a school rule, and notice is sent home to all children, still would let my snowflake wear her new shoes.
 
I bolded. While I do kind of agree with that statement I also disagree with it as well. For some kids it is very important. You have no idea what is going in that child's life. Maybe there is something very important about those shoes to that kid. Sounds stupid to you maybe but then again I think banning light up shoes for fear of seizures is stupid. I am sympathetic to illness etc. but I do think this is over the top and beyond ridiculous.


Ok so instead let's wait until the child has a migraine or a seizure. Then we will have to tell poor Molly that she can't wear her sneakers to school. After all we don't want to hurt poor little Molly's feelings that would be just "ridiculous". So let's wait to see if a child has a seizure and hits his/her head on the floor.

It will be very interesting to see if the school stands by it's ruling.
 
You are right- it could.:laughing:


FTR- I don't buy my kid cheap shoes.;):rolleyes1

Actually, I read 50 dollar shoes and thought - cheap shoes! :lmao:

But that's because my son has flat feet AND is double jointed, so if he's not in good supportive shoes, his ankles roll right down to the ground. The orthopedic specialist told us we have to pick shoes based on the width of the sole, the firmness of the sides, ankle and arch support.

So he never wears anything less than 100 dollar sneakers. Fashion is the least of our concerns, and the kinds of sneakers we buy don't come in "blinking" varieties. (He's wearing black Nike hightops right now.)

I wish I could buy him 50 dollar sneakers... ;)
 
I see a new Reality show...BATTLE OF THE SNOWFLAKES!

We have the epileptic w/ migraines who needs the light bulbs changed...but, wait, here comes the child who is almost legally blind and NEEDS the brighter light bulbs put back in! Meanwhile the diabetic child needs to raise their blood sugar after taking too much insulin, so they break out a granola bar made with PEANUTS, but they HAVE to eat it, but the kid next to them is allergic and doesn't care that a diabetic coma is imminent, so they make the teacher throw the granola bar away!

Who will come out on top of this week's Snowflake battle?!?! Find out on FOX!

:rotfl: NOTE: This was all meant as a little fun. ;)

What I find offensive and not funny is the bolded comment a child with medical issues is not a snowflake. I hope none of your children or some one you care about has any medical problems. We don't want to have you join the ranks of snowflakes now do we?
 
I would have NO problem with this if the school determined that this was a valid and important accommodation.... Sent out info, etc....
Obviously, it sounds like the OP wouldn't either.

I have a real problem with the way the school has handled this.
For me, that is the real issue.
 
HOly cow! I had no idea these shoes lit up like this! I change my mind...they have no business being in school (like heely's...stupid fad and a total distraction in the first place) and I can TOTALLY see how they might cause a seizure.

look at this website:
http://www.skechers.com/shoes-and-clothing/brands/skechers_twinkle_toes/list

I originally thought they had one blinky light on the side or in the sole, but these things could land a 747.
 
All meant in fun, but exactly my point. How do you accomodate everyone's needs? Whose needs trump whose? Where do we draw the line? And FWIW, I do get the irony of "my" snowflake versus "your" snowflake. Until this is a school rule, and notice is sent home to all children, still would let my snowflake wear her new shoes.

I agree you can't accommodate everyone you have to go along with what benefits the most.
Like I said before mine would also wear the shoes until a written rule applying to everyone came home.
 
Even without the seizure issue, is it surprising to you that flashing lights on shoes could be a distraction?


I think this is the real issue. Almost all of my friends with school aged kids aren't allowed to send their kids to school in shoes with lights because of the distraction issue, not seizures.

My gut tells me they use the seizure excuse to preempt parents complaining. They think, probably justifiably, that less people will raise an issue if the rule is to protect kids that might have a medical condition (and from the DIS I learned almost everyone has a hidden disability or condition) instead of a rule about classroom distractions. JMO of course.
 
If it is not in the rule book then unless the school was paying for new shoes my child would continue to wear them. One of my kids has the exact pair the OP is talking about. Unless you are looking at them you don't even notice that they are lighting up. You don't even see them out of the corner of your eye as some have mentioned. After about a month half the lights die out anyway. If child cannot be around any light that turns off and on then I don't understand how they can even be in school. Also- unless every kid in that school has non light up sneakers there is also no way I would even consider it. Call me selfish I don't care. I think people are way too demanding these days.


I most certainly can see them light up out of the corner of my eye. Like I said before, it mimics part of our fire alarm. And yes, when you have three pairs of them going off at the same time, you can definitely see the lights even if you're not looking directly at them.
 












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