Special needs stroller

There are different types of "accessible" resort rooms at WDW. I think the last 2 categories would be what you need -- and yes, booking a room with the features that allow your daughter to be as independent as possible is a need for your family.
  • Hearing accessible - these have visual aids for the phone, door knock, etc. Probably won't be of need for your family.
  • Wheelchair accessible with roll-in shower - similar to the room above except this room has a shower not a tub
  • Wheelchair accessible with tub - these rooms have an accessible path through the room and into the bathroom, with hand rails at the toilet and tub/shower; to have space for the wheelchair the bathroom tends to be laid out somewhat differently than regular rooms, possibly without the split bath area; this room will have a regular bathtub with rails
  • Florida Special accessible - an odd room category that may or may not be available at all resorts (I think they may be upgrading these to fully-wheelchair accessible as they do renovations); this room has hand rails at the toilet but not in the shower/tub
I only included the regular resort bookings here; suites and DVC villas may have some different configurations.

Personally, I find working on a laptop/desktop much easier to research things like resort rooms than a phone app. If you have access to use a computer that may help.
yes i use my laptop when i can for searching and comparing etc. Should know today if its an official GO TIME lol need to approve the budget with the mrs. :) but pretty sure it is a go then i can start the booking and or setups etc it is a bit early still (anticipated vac): January 2023 and just trying to dodge that MLK day price hike if possible.

Thank you for your information and opinion on what may be better for us and the little one. This really helps as I am only aware of our EVERY day issues that need to be addressed and forget or dont know what options or assistance is available for something as big as a vacation.

This is a true THANK YOU to you and everyone that is helping me out with information and pointers and advice, direct and or indirect. Be assured this is a sincere thank you!
 
I only included the regular resort bookings here; suites and DVC villas may have some different configurations.

Personally, I find working on a laptop/desktop much easier to research things like resort rooms than a phone app. If you have access to use a computer that may help.
DVC villas have the same general categories as lanejudy mentioned.
ALL one and two bedroom and grand villas have either a soaking tub or whirlpool tub in a separate part of bathroom attached to the main bedroom. That tub is not necessary accessible and is in addition to shower or tub in the main part of the bathroom.

My husband does our bookings on his laptop, but everything I do is on my iPad. I do usually find it easier to use the browser (Safari) than the My Disney Experience app.

I agree with the others - get the type of room that will help your daughter be most independent. One thing I would add to that is the toilet rails/grab bars will help, but keep in mind that the toilets in accessible rooms (and handicapped stalls/Companion Restrooms) are higher than in ‘regular‘ rooms.
So, the toilet rails may help her feel secure, but she may still need assistance getting on and off. She may also need something else under her feet while on the toilet because of the height. Yoga blocks work well snd are easy to pack (put non slip material on the bottom). A foldable small stool might also do the trick. With either, just be careful of it slipping while she’s using it.
 
As an additionsl note- the “striker as wheelchair” tag is a courtesy and only applies inside the 4 major parks, not on Disney transportation to or from the parks. Regular strollers don’t have sufficient strength to be able to be tied down safely in the same manner as a wheelchair.
excellent note: honestly didnt know or think of that, which is fine I can hold her or have her seated if she is asleep etc.
Appreciated thank you.
 
DVC villas have the same general categories as lanejudy mentioned.
ALL one and two bedroom and grand villas have either a soaking tub or whirlpool tub in a separate part of bathroom attached to the main bedroom. That tub is not necessary accessible and is in addition to shower or tub in the main part of the bathroom.

My husband does our bookings on his laptop, but everything I do is on my iPad. I do usually find it easier to use the browser (Safari) than the My Disney Experience app.

I agree with the others - get the type of room that will help your daughter be most independent. One thing I would add to that is the toilet rails/grab bars will help, but keep in mind that the toilets in accessible rooms (and handicapped stalls/Companion Restrooms) are higher than in ‘regular‘ rooms.
So, the toilet rails may help her feel secure, but she may still need assistance getting on and off. She may also need something else under her feet while on the toilet because of the height. Yoga blocks work well snd are easy to pack (put non slip material on the bottom). A foldable small stool might also do the trick. With either, just be careful of it slipping while she’s using it.
WOW! This is my point exactly! everything you just mentioned are the issues and concerns of daily functionality for her. Tiolet hieght! Seriously I didnt even think of that but the hieght makes sense even right now on reg toilets she uses a stool some times (100% if her leg is off) I will buy a stool from the walmart with our room order water and snacks etc.

Its hard to remember she wants and needs to be independant I dont like to see her struggle and hopefully is just an automatic parent instinct to help and fix at all cost. SHes getting prety good at telling me if she needs help or assistance WHich alieviates a bit of the DAD HELP vibe i fight :)

Thank you very much for the options and solutions and or reccomendations i have added all these tips advice and pointers to a list i look over while im thinking or planning stuff so i dont forget or dont know of to account for the simple things that makes things more difficult. I know we cant plan for every situation but we can be prepared for most. I just want to be sure that She has the best experience possible...both MOM and her.... If they are Happy I am happy!
 
WOW! This is my point exactly! everything you just mentioned are the issues and concerns of daily functionality for her. Tiolet hieght! Seriously I didnt even think of that but the hieght makes sense even right now on reg toilets she uses a stool some times (100% if her leg is off) I will buy a stool from the walmart with our room order water and snacks etc.

Its hard to remember she wants and needs to be independant I dont like to see her struggle and hopefully is just an automatic parent instinct to help and fix at all cost. SHes getting prety good at telling me if she needs help or assistance WHich alieviates a bit of the DAD HELP vibe i fight :)

Thank you very much for the options and solutions and or reccomendations i have added all these tips advice and pointers to a list i look over while im thinking or planning stuff so i dont forget or dont know of to account for the simple things that makes things more difficult. I know we cant plan for every situation but we can be prepared for most. I just want to be sure that She has the best experience possible...both MOM and her.... If they are Happy I am happy!
one of the hardest things I have learned with special needs kids is to let them ask for my help and let them do for themselves. and for thinking you are taking something that others might need, you daughter needs things that help her just the same as others. sound like you are a great dad
 
excellent note: honestly didnt know or think of that, which is fine I can hold her or have her seated if she is asleep etc.
Appreciated thank you.
There are specifically marked seats on Disney on-property buses for priority use by people with disabilities. If someone happens to be sitting there and there are no other available seats, you could (and should) ask them to move, especially if it is safer for your daughter to be seated (eg, she has balance issues).

Many toilets in ”accessible” restrooms or stalls are higher, because it makes it easier for adult-sized people with disabilities.

Also note that public restrooms at Disney usually have motion sensors for flushing and a rather distinctive “whoosh” when flushing that some kids really don’t like. A pack of post—it notes can be helpful- take one and temporarily cover the sensor.

You can also note that one of your party uses a wheelchair or has mobility issues in restaurant reservations (called ADRs in Disney-speak). It won’t get you seated more quickly, but will help ensure there are no steps to the table and tends to help get seating closer to the front of the restaurant. One place you may NOT want to note it is in the SciFi Drive in, if you’re interested in sitting in a booth (looks like a 1950s car).
 
Asking people to move out of the special seating in a bus is not as straightforward as it seems as you have no idea if they need the seating too. You cannot tell by simply looking who needs it. But many people will offer to move for you. Unfortunately you can’t count on it as people seated there may need those seats too. I once made the mistake of getting on a bus with my walker at the front door and no one would or could get up and I was crowded on the bus by people behind me and had to stand balancing with the walker. That was the last time I got in the front door with it lol. I used the ramp after that which was much easier anyway
 


One can always ask. It’s a question that I have both asked and been asked. When I was able to sit (I cannot sit anywhere any more), it was safer for me to do so. However, if the person in front of me appeared to me to be at greater risk and my pain level was manageable, I usually yielded my seat, and often without being asked, as soon as I noticed the need.

One has to assess the situation in front of them, and be considerate of others.
 
ALL the toilets in thé Companion Restrooms and handicapped restroom stalls are raised seat (higher) toilets. What they do have that might be helpful to your daughter is grab bars and extra space so someone has room to assist her.
@Daddy's 'lil Princess , I didn’t see how old your daughter is, but you might want to look into a pediatric wheelchair for her. It might be easier for her to get out and she might be able to propel it herself for short distances.
Orlando Medical Rentals has some pediatric wheelchairs. K&M Rentals only lists a 16 inch pediatric wheelchair on their website, but I’ve seen some very small and more specialized kid’s wheelchairs around WDW with K&M tags on them.
You might also want to check with her specialist doctors/therapists. They may know of a local rental or loan closet where you could get one to bring with you.
 
@Daddy's 'lil Princess - I think in your post about the airport, you said she can go around 50 meters without resting.
Most guests walk at least 5 miles a day (8.5 km)! Many do more than that and most of the queues are going to involve a walk of more than 50 meters from entering the queue to getting on the ride car. And, some of the rides are only a few minutes in length, so not a lot of a rest before walking an equal length to get back out,
Using either a wheelchair or stroller as wheelchair would be a tool that would allow her to save her energy for more fun things than just getting around. having a mobility device doesn’t mean it has to be used every minute. You can park it and walk around an area, then move it to the next area
 
@Daddy's 'lil Princess - I think in your post about the airport, you said she can go around 50 meters without resting.
Most guests walk at least 5 miles a day (8.5 km)! Many do more than that and most of the queues are going to involve a walk of more than 50 meters from entering the queue to getting on the ride car. And, some of the rides are only a few minutes in length, so not a lot of a rest before walking an equal length to get back out,
Using either a wheelchair or stroller as wheelchair would be a tool that would allow her to save her energy for more fun things than just getting around. having a mobility device doesn’t mean it has to be used every minute. You can park it and walk around an area, then move it to the next area
Sorry for the delay response.
Yes my daughter just turned 6. I think when i said 50meters I was being very generous. lol. I actually watched a MK walk through tour last night to get perspective. Ummmm I feel it would take her to walk I want to say the centre ring (path break outs ) Main street? I feel if she could walk that far probably take us 20-30+ mins easy.
To be honest I dont think in my head while watching, she even made it that far. i think from the parking lot to security or entry distance she would be Soaked in sweat and tired.
The mobility is part of the concern the other part is the energy exertion she expels to ascertain it. reduced lung capacity and Heart work plus it takes so much energy to even just simply walk as her leg is her leg (limited) but her hip on the same leg is dislocated so she needs to exerts more energy just to move the leg. (BUT she is a go go go ) as I assume most kids are. And it is Very short lived and even sometimes we have to slow her down or stop her for rests. EXAMPLE. she can play for about 3mins-5mins and be soaked in sweat as exertion + lung/heart requires so much energy.

The more i dig into this trip the more i either need to re-evaluate it or look at it differently. I have a list of questions : scenarios: concerns i need to address or answer. JUST for the STAPLE.

How does the Wheelchair / stroller work for the ride? what line do we use? I saw STAIRS in some of the rides how do i know if there are stairs in the Que?

Thanks @SueM in MN
 
Asking people to move out of the special seating in a bus is not as straightforward as it seems as you have no idea if they need the seating too. You cannot tell by simply looking who needs it. But many people will offer to move for you. Unfortunately you can’t count on it as people seated there may need those seats too. I once made the mistake of getting on a bus with my walker at the front door and no one would or could get up and I was crowded on the bus by people behind me and had to stand balancing with the walker. That was the last time I got in the front door with it lol. I used the ramp after that which was much easier anyway
We have never been on public transport with her. as far as seating goes it will be what it will be. I dont need to sit at all even with a bad back. I would let my family sit before me. Asking for someone to give up their seat kind of feels like the drivers responsibiliy? Maybe just because im canadian in OTTAWA it happens that way alot not always, there is always that threshhold of entitlement, but most times people are very considerate. I get this is a whole new ball park. And honestly as I revamp the vacation would definately look at private transport to save the head ache perhaps. ( as mentioned previous posts ) our budget is for all of us And I have NO problem for the budgeted amount of DAD's spending to facilitate ease and or comfort for my wife and daughter. (which JUST by NATURE returns ease and comfort for DAD. (less stress and worry etc) which to me I can put a $ figure on lol XD.
 
.

How does the Wheelchair / stroller work for the ride? what line do we use? I saw STAIRS in some of the rides how do i know if there are stairs in the Que?

Thanks @SueM in MN
You just go into regular lines for most rides. If there are stairs, the CM will direct. Sometimes you are entering through the exit and sometimes it's just a by pass .

When you get to the ride, the CM will take the stroller/wheelchair and it will be waiting when you get off the ride.
 
You just go into regular lines for most rides. If there are stairs, the CM will direct. Sometimes you are entering through the exit and sometimes it's just a by pass .

When you get to the ride, the CM will take the stroller/wheelchair and it will be waiting when you get off the ride.
Ok same question with LL? we just go in line with the stroller? and a CM will go HEY you with the face over here? lol I may buy LL at the rate of the lines and the park sizes etc. I would be surprised if we could hit 4-5 rides for the day. (for her) then what about mom and dad i need to read more on this SWAP rider thing as well.
ADDITIONAL: I watched a ride for SOARIN because i thought she may enjoy that.... was a cute ride until I realized she will be suspended... would we have to take her leg off for that ride? as it COULD fall off hazzard? IDK see the barriers and limitations i look for in this vacation. Turning to be alot more complex in nature. I think the hardest issue would be if she wanted to do something BUT for whatever the reason (DIS) prevents her / She really doesnt like to feal different than others. and yet (at her age now) is starting to realize she is not the same as others. it is a challenge.
 
yes same, for LL or regular.

As far as soaring, I have no idea. But if you are seated on the lower level, if there are problems, there are no people below you. I'm just guessing at this.
 
yes same, for LL or regular.

As far as soaring, I have no idea. But if you are seated on the lower level, if there are problems, there are no people below you. I'm just guessing at this.
thank you very much. Dad is getting a little overwhelmed and has not even looked at Disneyland (where i went when i was her age) for some reason the flight to Florida and teh flight to California take the same time and cost roughly the same amount. I have always thought that DL vs DW was DL is more KID orientated vs DW which caters to all. 2 parks vs 4 smaller in size maybe more managable. and if i a mbeing brutally honest character interactions are very important i feel. Just seems lacking at DW vs DL i clicked DL go. and can see quite a few more meets and greets. + big + avengers campus she loves super heros. Plus (IF still there Knots berry farm or other attractions. IDK checking out DL right now LIKE i dont really care if its DL or DW i just PICKED DW as i though was closer lol and more choices etc. seems these choices are slowly sucking the life out of me. Not seeing much difference in ticket / OP resort OP resort is a bit more expensive than DW. but would consider off site hotel with a car rental. Just so much work lol
 
It’s perfectly plausible to take your daughter to Disney. When having to manage a disability, it can get more complicated, but is doable.

If exertion is an issue to be concerned about, you might want to consider a visit during some time that is NOT the summer. I grew up in Florid. The humidity on any day can be very high in general and adding summer temperatures can make it a bit harder to breathe. October through March are a bit cooler. There are also cooling vests that you can get to help better regulate body temperature.

As to a bus drivers’ involvement in reseating passengers: they will ask that passengers move from the seats that fold up when an ecv or wheelchair is loaded, They may, but sometimes don’t, help provide support when a passenger asks another passenger to move. They are more focused on people getting on the bus and the bus getting moving.

Especially for the Magic Kingdom, Disney operated park busses get you closer to the park entrance than arriving by personal car. There is no especially convenient car drop-off near the MK- there is a large lake between the car park and drop off area. You take a monorail or a ferry (or there is now a walking path, but it is long) to get around or over the lake. To me, the transfer is fun, and, when young, helped reinforce the idea of going somewhere magical.

There are three hotel/DVC complexes on the lake and are served by boats and/or monorail to transfer guests to the MK: the Contemporary, the Polynesian (Poly), and the Grand Floridian (GF). They are very popular and among Disney’s most popular resorts (location, location, location). Unfortunately, they are also among the most expensive, as well. The theming at all of Disney’s hotels is wonderful and creates an immersive, beautiful environmen.

Staying off-site may sometimes be cheaper, but can add to other complexities, especially in getting to and from the parks. Many non-Disney hotels that offer shuttles only run shuttles once or twice a day in each direction. Disney resort shuttles run about every 20 minutes from well before park opening time to when the last guest leaves the park. For the MK, Disney busses have a private drop-off area that’s a hundred and fifty meters from the MK entrance. Busses from offsite hotels use a bus loop on the other side of the lake, next to the car park.

For personal cars, if you are staying at a Disney hotel, whatever you pay for nightly parking also covers your parking at the theme parks.. if you are staying elsewhere, there is a daily parking change- if you move your car, save your receipt and you won’t have to pay a second time. Disney has been waiving parking fees at at least some hotels for people with government-issued disabled parking permits (You probably should look at getting a permit, regardless of any trip to Disney.)

happy to share more!
 
To simplify decision-making, I’d consider and focus on the options below (considering budget, park travel time, accessibility needs).

1 Value Disney resort (fully cancellable)
2 Disney vacation club private points rental (cancellation can be difficult/impossible without losing funds)
3 Stay at a Disney Good Neighbor hotel near Disney Springs (Hilton Disney Springs is physically closest to Disney Springs and is an easy walk/roll) (fully cancellable)
4. Wyndham at Bonnet Creek timeshare rental- it’s immediately next to Disney.
 
Sorry for the delay response.
Yes my daughter just turned 6. I think when i said 50meters I was being very generous. lol. I actually watched a MK walk through tour last night to get perspective. Ummmm I feel it would take her to walk I want to say the centre ring (path break outs ) Main street? I feel if she could walk that far probably take us 20-30+ mins easy.
To be honest I dont think in my head while watching, she even made it that far. i think from the parking lot to security or entry distance she would be Soaked in sweat and tired.
The mobility is part of the concern the other part is the energy exertion she expels to ascertain it. reduced lung capacity and Heart work plus it takes so much energy to even just simply walk as her leg is her leg (limited) but her hip on the same leg is dislocated so she needs to exerts more energy just to move the leg. (BUT she is a go go go ) as I assume most kids are. And it is Very short lived and even sometimes we have to slow her down or stop her for rests. EXAMPLE. she can play for about 3mins-5mins and be soaked in sweat as exertion + lung/heart requires so much energy.
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I understand the exertion part. My youngest daughter has cerebral palsy, which greatly affects her movement, balance and stamina.
She is now an adult and a full time wheelchair user.
When she was little, she used a reverse walker (goes behind instead of in front) around the house and in school. She had a gait assessment - kind of cool procedure where they put reflectors on various parts of the body to be able to film and watch the joints in action. The gait assessment showed she spent about 6 times more energy to walk a given distance than an average child her age without cerebral palsy. As she got taller, her center of gravity shifted, making it even harder to balance and she got to a point where using the walker was just not an option.

When she was about 2.5 yrs old, her therapist recommended a special needs stroller to conserve energy when outside the home/distances. We pushed for a wheelchair instead - our thought was that it would give her more independence and be less ‘babyish’ than a stroller. In our first trips to WDW after getting the wheelchair, we did bring her walker and she did sometimes use it. Just because you have a wheelchair doesn’t mean you have to use it all the time. A lot of people (mostly those without dis abilities) talk about people being « confined to a wheelchair », as if the person is chained to it.
For my daughter and many others - her wheelchair is freedom and being without it is confinement. It’s a tool that allows her to do what she wants, not something that holds her back.

One food for thought I’ve thrown out that a lot of people said helped them to think….
- think of energy as an energy checking account. Each morning, an amount is added to the account.That amount might vary, depending on how well the person slept, etc.

- each time you do something, it affects the energy account balance.

- Some things, like sitting down to take a rest or eat, are like making a deposit. Other things, like walking, transferring into or out of a ride vehicle, being out in the heat, general excitement are withdrawals. Just like a checking account, if the withdrawals are bigger than the amount in the account, you will be in trouble.

- If the withdrawals and deposits are balanced out over the day, you might not end up ‘overdrawn‘. But, if the ‘energy account’ is all used up at the beginning of the day, there will be no way to make it up and the ‘overdraw’ will happen almost immediatel.
In your example of walking in to Magic Kingdom, she would be worn out before you even do anything fun!
The attached screenshot from the My Disney Experience map shows the walk from the bus areas (light blue highlights) into the security area and where you actually scan your tickets to get into the park. Depending on where your resort bus stop is, it might be about the same distance as walking down Main Street to the castle hub.
855FA9F0-3337-4F66-AD44-5FFCAD53BED2.jpeg

A 6 yr old is old enough to start a discussion about the benefits of using a wheelchair. I don’t know if she gets an allowance, but parents have talked about the ‘energy account’ idea using their kids’ allowance - i.e. if you spend all your allowance on one thing, you won’t have any left until you get your next allowance.
Your daughter already understands the consequence of pushing herself too hard might be damage to her stump and not being able to use her prosthesis - that’s a pretty good argument to use as far as why to use a tool to help her have more fun.

Picture of my daughter‘s current manual wheelchair - well decorated. A lot of people (even adults and even rented devices) decorate their mobility device - it’s fun and makes it more personal
C7DCCA69-1ABC-4749-978D-3139EBF59020.jpeg

Picture of my daughter in her first, tiny little wheelchair521D4D3E-E929-49E2-A141-B2751684BDE0.jpeg
 
I understand the exertion part. My youngest daughter has cerebral palsy, which greatly affects her movement, balance and stamina.
She is now an adult and a full time wheelchair user.
When she was little, she used a reverse walker (goes behind instead of in front) around the house and in school. She had a gait assessment - kind of cool procedure where they put reflectors on various parts of the body to be able to film and watch the joints in action. The gait assessment showed she spent about 6 times more energy to walk a given distance than an average child her age without cerebral palsy. As she got taller, her center of gravity shifted, making it even harder to balance and she got to a point where using the walker was just not an option.

When she was about 2.5 yrs old, her therapist recommended a special needs stroller to conserve energy when outside the home/distances. We pushed for a wheelchair instead - our thought was that it would give her more independence and be less ‘babyish’ than a stroller. In our first trips to WDW after getting the wheelchair, we did bring her walker and she did sometimes use it. Just because you have a wheelchair doesn’t mean you have to use it all the time. A lot of people (mostly those without dis abilities) talk about people being « confined to a wheelchair », as if the person is chained to it.
For my daughter and many others - her wheelchair is freedom and being without it is confinement. It’s a tool that allows her to do what she wants, not something that holds her back.

One food for thought I’ve thrown out that a lot of people said helped them to think….
- think of energy as an energy checking account. Each morning, an amount is added to the account.That amount might vary, depending on how well the person slept, etc.

- each time you do something, it affects the energy account balance.

- Some things, like sitting down to take a rest or eat, are like making a deposit. Other things, like walking, transferring into or out of a ride vehicle, being out in the heat, general excitement are withdrawals. Just like a checking account, if the withdrawals are bigger than the amount in the account, you will be in trouble.

- If the withdrawals and deposits are balanced out over the day, you might not end up ‘overdrawn‘. But, if the ‘energy account’ is all used up at the beginning of the day, there will be no way to make it up and the ‘overdraw’ will happen almost immediatel.
In your example of walking in to Magic Kingdom, she would be worn out before you even do anything fun!
The attached screenshot from the My Disney Experience map shows the walk from the bus areas (light blue highlights) into the security area and where you actually scan your tickets to get into the park. Depending on where your resort bus stop is, it might be about the same distance as walking down Main Street to the castle hub.
View attachment 672384

A 6 yr old is old enough to start a discussion about the benefits of using a wheelchair. I don’t know if she gets an allowance, but parents have talked about the ‘energy account’ idea using their kids’ allowance - i.e. if you spend all your allowance on one thing, you won’t have any left until you get your next allowance.
Picture of my daughter‘s current manual wheelchair - well decorated.
View attachment 672385

Picture of my daughter in her first, tiny little wheelchairView attachment 672389

Aww yes. I see. See the 45 min wait for i think thats Meet micky? on entry to the park ? thats the first little circle thing i was saying i doubt..but she may be able get to there. and have to rest for sure, or at least be told to stop and rest etc. and if she did walk it would take a good 20-30 mins i can gaurenttee. she is NO speed walker :) All this work i have done looking into WDW now i am looking at DL as an option. over all it may just be better for her also experince side as well. IDK All i know is now matter what needs to be done and or worked on to make either trip as memorable as possible (for good) This is my goal. if it means reducing PARKS and using money to upgrade hotels DAD giving up his gift money to ensure She has an amazing experience thats what it is for me. Her smile and happiness is more valuable then dads. Just the way it is because if Mom and her arent happy dad isnt happy and stresses me to fix it so they are happy. SOunds corny or silly but this is dad its my job and this trip was my promise / deal to her. (lol whether she understood at the time or not).

Again thank you.
 

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