maroo
DIS Veteran
- Joined
- Aug 3, 2008
- Messages
- 8,036
Any of you that become recipients of the Big Give might want to hold off on autograph cards/books for the time being. Don't want to say too much.![]()
ha ha ha
That was subtle.


Any of you that become recipients of the Big Give might want to hold off on autograph cards/books for the time being. Don't want to say too much.![]()
I thought it would be fun if we shared creative ideas for making the waiting to leave time pass faster. I know different ideas have been mentioned on the PTR's, but I thought it would be fun to gather them here.
Can't wait to hear more of your creative ideas!
"We are aiming for November 1 - 7." These were the words from MAW today!![]()
They have all they need and are just waiting on GKTW to confirm these dates.
I think I am more excited than my kids right now, but they will grasp it all when we get there!
![]()
![]()
"We are aiming for November 1 - 7." These were the words from MAW today!![]()
They have all they need and are just waiting on GKTW to confirm these dates.
I think I am more excited than my kids right now, but they will grasp it all when we get there!
![]()
![]()
Awwww shucks, .... I was secretly keeping fingers crossed for December dates and a DIS Wish meet up. Just kidding - selfish motives aside, I'm so happy you guys *almost* have DATES!!!![]()
"We are aiming for November 1 - 7." These were the words from MAW today!![]()
They have all they need and are just waiting on GKTW to confirm these dates.
I think I am more excited than my kids right now, but they will grasp it all when we get there!
![]()
![]()
We are back and I am starting on the trip report. We had a great time.
We are back and I am starting on the trip report. We had a great time.
In the midst of the fun of planning this trip, life with sickle cell goes on. I just got off the phone with the doctor in the ER. Tomorrow I will be trying to get Deyki into the sickle cell clinic this week or heading into the emergency room. Deyki has been having tummy pains for a few weeks now on a daily basis. Tonight it is worse and his energy level has been dropping. The tip of his liver is palpable indicating that it is enlarged or being displaced by something. It could be his gallbladder because kids with sickle cell are prone to gallstones. We had his chemo labs drawn last week, and his liver markers looked okay. His hemaglobin was down to 8.8, but that's not too bad for him. I will spare you all the details.
To summarize, Deyki doesn't look sick enough to run to the ER tonight. But he will need to be seen soon. I am hoping for a clinic appointment Tuesday and a simple solution to all of this.
Hello fellow wishtrippers!! I am so so happy that so many of you came to say hello on my TR! Thank yuo so much! I am also extremely excited to have been pointed over to this board! I am looking forward to meeting other wish families! I know I should introduce myself properly so...
My name is Jessica. I am 25 years old and a mother and wife. I love my children and my husband more than I ever knew it possible to love other human beings. They are my everything!
My DH is John and he is 23 years old. He has always been my rock. He is an amazing husband and father.
My wish child is 4 years old. He was born with Tetralogy of Fallot with Pulmoary Atresia. He had his first surgery at 3 days old, his second at 6 months old and his third at 14 months old. The ToF part of his heart defect is fully corrected. Unfortunately the Pulm.Atresia part is the worrisome part, as his valve continuously has to be changed as his body begins to reject it, and each surgery means more scar tissue which means more strain on his heart. He should be having another surgery within the next year or so. Other than his defect.. He is smart and funny. He has a memory like nobody I have ever met. He keeps me laughing. He learned to roller blade in 3 days and wants to join a hockey team when he turns five!
Reid is my youngest son. He is 2. He was born at 28 week at only 2lbs 14 oz and 14 inches. He faced a lot of challenges and didnt come home until he was exactly four months old. I mention a lot in my TR how miserable he was constantly in WDW. I would like to mention here that we just found out that he might have Sensory Processing Disorder, hence his exteme frustration in a place as busy and as loud as WDW.
Im sorry if I wrote too much or if this was not the place to tell our story, but as you can tell I am knew here and haven't really learned the ins and outs yet. If I should be posting else where please send me in the right direction!
I would love to get to know everybody and hear about your amazing wish children as well!!
I will definitely be praying for you guys!
I am writing this from a hospital room tonight with my friend Rachel. She is here tonight hopefully for a "quick" fix of a very scary problem. She went from fully functioning speech/cognition to talking in random phrases and crying or laughing.
They think it may be something simple...(Na+ is really low) or it could be a brain infection (obviously more serious). But right now she is resting...for the first time in days.
Thank you all for your prayers for Rachel and her Mom.
That sounds scary! I hope that everything gets figured out soon and that it is simple so you can all go home. I am praying here! Keep us posted.