Behavior Challenge Thread

Disneymom3,

I can relate to the "sick" thing, when DS is significantly sick we have learned to remove all other "stressors" and just let him relax (with his areas of special interest).

GraceluvsWDW,

My dentist did not do xrays until DS was "ready" she did a careful inspection and a gentle cleaning and worked up over the years to a more standard "visit". She said that for most comon dental needs xrays are not needed it the clinician take the extra time to do a complete observational check (they are only baby teeth).

bookwormde
 
I must report that we went to dentist on Friday. Last time we went to dentist (and really every time before that) they had a super hard time doing x-rays on DS. Seems to have a trigger happy gag reflex. Yum. Anyway, this time, at the grand old age of 7, I must report that he was just fine with the x-rays and cleaning (he's almost puked on the tech while having his teeth cleaned). Not only that, but after years of rotten teeth and multiple fillings per year, I am happy to declare that all my toothbrushing OCD and nagging has FINALLY paid off and DS (and sister!) are CAVITY FREE!!!!:banana::banana::banana:

So dear Grace, there is hope. I, too, wonder if it not a possibility to skip the x-rays, unless of course there is some kind of underlying concern that warrants them. If so, then go ahead and knock the poor thing out.

I think you should reconsider how you see your daughter's fear of normal things and horses. It is wonderful that she has no fear of the riding. This is a great thing. When she realizes what a gift she has with the horses, the confidence she gains on horseback will carry over to the rest of her life. Let her make this connection. It'll happen. Just keep your mouth shut and smile as this process takes place. Under responsible leadership, horse riding is one of the safer activities your child could be doing. Of course, there is always a danger when working with live animals, but when I see the injuries happening with soccer, cheerleading, football, etc, I think horses aren't a bad way to go! Let her enjoy this and be proud of her ability. This just might be her "thing" that gets her through the rest of her life. If not, then it's a good stepping stone to another passion. Good for her.

Everything OK here. My son said, "I'm dying for a saxophone. Not dying-put-me-in-a-grave-dying, but really-want-it-dying". The literal thing just cracks me up sometimes.

No answers about a support group, either. I've only heard horror stories about support groups for ASD from others. A couple of years ago, I went to a meeting sponsored by the local autism department at a university in Florida and I cried the whole way home. I thought I had it bad, but those folks there made me want to jump off a cliff. Our little group here serves the support purpose well for me because we all seem to be pretty positive. :grouphug:

Hope C&G's Mama and Koolaid Mom are having a blast.pirate:
 
I haven't read through everyone's post ---the whole 71 pages was a bit daunting for me! But it is comforting to see that there are others who have some of the same struggles and their kids live to tell about it!;) I can so relate to the dentist visits --luckily they are much better now at 11, although braces are coming up once more teeth erupt and I'm dreading that day.

Before Thanksgiving I was ready to go nuts bec of my 11 yo ds (gifted/LD/ADHD/SPD w/ OCD/AUSPIE tendancies--need I say more?). The upcoming holidays, planning for WDW, house being re-painted, and neighbor's moving were enough to send him into over-drive melt-down city. Then the painter took 2 weeks off - the moving of the neighbor was over and I thought we were working things out ---oh no though. This week the painter is back and we leave Sat. for WDW ---ds is going to either drive himself or me over the edge. Today he announced he doesn't want to go to Disney --never did want to go and never will want to go ---EVER. Is mad at me for booking the trip> UGH! We got through school (we homeschool) and now he's in his room reading and playing w/ Legos. I had thought we were moving past these hurdles --meds have made such a huge difference in daily life and school ---but I guess he's just not up to facing "new challenges" still.

I'm hoping that he can settle down for the tip --there is no canceling it esp. w/ our other 3 dc looking forward to it. We'll request a GAC and do lot's of praying I guess. I had thought my 6 yo would be the challenge this time (SPD and severe asthma/allergies) ---but right now he's looking like a walk-in-the-park! One thing I can always count on ---life is never dull.;)
 
Well, everyone, just back from the dental appt.

UUUGGGGGHHHHHHH!!! If they had a smilie for screaming I'd use it!!!!!


First, both the OT and play therapist worked w/dd yesterday. Both exclaimed she was ready and seems fine for the appt. Well, we get there and she begins to ramp up. Won't take the putty, won't chew, just ramping up, obsessing and crying "no no no". So we go back and immediately she goes into fight or flight. She tries to run out the door. They hold her down. Eventually they put her on a papoose board and do the xrays. I was shocked and horrified! And relieved that they were able to do the xrays. She frothed at mouth and screamed during the strapping down. It was horrible. But I understand why they had to do it. If they didn't do it there would just be prolonging and reinforcement of her evasion. So afterwards she wasn't traumatized, she had very little memory of the event. I know there are some on here that may say I shouldn't have let them do it. Please don't tell me that, I did what I did in the moment (and I can't change that now).

The reason we needed Xrays is because they could see visually areas that looked like decay. And the Xrays confirmed 4 small cavities (in between her 10-12 yr molars).

So, after traumatizing the entire dental office (not to mention ME), they state they must do the fillings under general and made me sign several pages that I understand the risks involved. Date is Jan 15th. Anesthesiologist will put her under with gas mask, then insert IV while she is already asleep. She will be out for 1.5 hrs. The dentist recommends I go ahead and cap 4 teeth so they don't have to do this again (the 4 teeth that she will keep until 10-12). I am considering it (this is in lieu of fillings). While I don't want a mouth full of silver for her I also don't want to EVER go through this again!!!!


Thanks for letting me vent!
 

GraceLuvsWDW, that sounds just like some dental and doctor appointments we've had. :grouphug: to you, I think it's harder on Mom than it is the child, because they don't remember it.
I won't be flaming you, because that is close to how we got the last set of shots. It was a last ditch effort on the nurses part for them to hold him down and give the shots. I didn't like it, but didn't know what else to do. You're a good mom looking after the best interests of your child, which isn't always easy with our bundles of joy!!!;)
 
Grace, I'm really sorry it came to that. I can't imagine. At least it's over for now. I don't know anything about the capping, but maybe someone else does? Sounds like it's worth investigating.
 
I am so sorry Grace. Sounds like you had a bad day. A no-good-horrible--very-bad day. I think I get your point about not letting DD avoid something she knew was coming. No flames here. Gotta do whatcha gotta do, bidness must be done. Will insurance pay for the caps? It's terrible to debt in hock up to your eyeballs over dental bills. I don't know if they'd work with you as it's a medical necessity or not.

Hey, you might have been traumatized, but chances are your DD isn't and the people at the dentist office at least had something to talk about last night at dinner.

It'll get better. I do, however, have a tiny hope that you brought your video camera to catch your daughter in her full blown mode, so as to introduce it as evidence for all the nimwits in your life. I know it's childish of me, but wouldn't that be fun to walk into the next meeting and go, "Movie Time!!!"

TKBBmom, nice to meet you! I swear I've read on this site about other ASD kids doing the same thing your son is doing- the whole "I don't want to go" bit is really upsetting because you wonder if they are going to ruin a very expensive, highly anticipated trip for everyone else. I have no answers. And we all feel your pain about the fact that every little life change is a reason to completely lose it for these kids. That whole Extreme Home makeover thing seems so attractive on some levels. We go to WDW for the week- and some team of people does painting, housework, etc.

Good luck and let us know how it goes and how you cope with the reluctant vacationer. Tell him my 7 year old son will gladly go in his place. He could live in WDW and be perfectly happy.
 
DDM, I SO wish I had been able to video tape it and send it to the principal at dd's school. I took her to school this am and dropped the note off in the office and principal had the AUDACITY after I told her what happened to say that her dd had issues with the dentist too so she "totally understands". Ok, I am not a violent person but if I ever had a free pass to punch someone's lights out I would have redeemed it RIGHT THEN!!!!!

I hugged and kissed and snuggled with dd for the rest of the day/evening yesterday. She was SO exhausted from the meltdown she was very sedated for the rest of the day. I can't tell you how many time tears welled up and I had to push them back so as to not let on how traumatized I was from the event. The minute she fell asleep I broke down and cried and cried. I don't know what I could have done but I am second guessing myself-could I find a different dentist? could I just not do the dentist at all?

Now I am secong guessing the appt for the general anesthesia. Should I call around and find a dentist that would take a less drastic approach? Should I insist on valium/vicodin cocktail instead? Should I just take my chances and not repair the cavities? Three were not bad-one was into the dentin (nearing the nerve). These are teeth she will lose at 10 and 12 years old. Should I just fill the bad one? I just don't know what to do!?!?!?!

You hear lots of horror stories about drugs and ASD kids. They either don't work or the kids can have adverse reactions. I guess I have a lot of research to do to find out what I am comfortable with. This dentist told me she would not doing anything without the general. And she recommended the capping so that we wouldn't have to deal with those teeth again til they fall out.

Thanks guys for your support. It maks me feel better just to have somewhere to vent!
:grouphug:
 
BTW, medical insurance will pay 100% for the entire procedure, both in hospital or in dental office. Dentist said with dd's dx, she will be totally covered.

So cost is not an issue.
 
GraceLuvsWDW,

As usual I will be direct, I certanly would do nothing more than is medically necessary at this point, quite honestly just suggesting capping at this point would disqualify this clinician from my consideration.

bookwormde
 
Bookwormde, your directness never offends...I always appreciate your input.

The dentist states the capping is necessary because

1) baby teeth decay faster than permanent. Where a cavity might decay slowly on a much more dense permanenet tooth the baby teeth will decay to the nerve far faster (I don't know if this is true)

2) baby teth that decay will most likely affect the permanent teeth behind them. If decay that is started in baby teeth isn't addressed it will cause permanent teeth to be afftected (I don't know if this is true)

So she says, due to start of decay on these 4 teeth (3 minor, one major) she recommends capping to halt the progression of the decay. According to her, the cap with completely halt the decay and prevent any future progression of decay (I don't kow if this is true)

My friend is a hygienist. She agrees with dentist to cap. She states she would do it in the hospital in case of problems.

1) hospital setting would be far more upsetting to dd in my opinion

2) dentist states they can administer less aenesthesia in her office (by an aenesthesiologist) than they would administer in the hospital

I spoke with my neighbor who is an RN, she states you can bring someone out of general quickly and easily if needed (I don't know if this is true). So, she states it is safe.

All of these things are the issues bouncing around in my head.

All suggestions, opinions, and information is appreciated!
:goodvibes
 
Bookwormde, your directness never offends...I always appreciate your input.

The dentist states the capping is necessary because

1) baby teeth decay faster than permanent. Where a cavity might decay slowly on a much more dense permanenet tooth the baby teeth will decay to the nerve far faster (I don't know if this is true)

2) baby teth that decay will most likely affect the permanent teeth behind them. If decay that is started in baby teeth isn't addressed it will cause permanent teeth to be afftected (I don't know if this is true)

So she says, due to start of decay on these 4 teeth (3 minor, one major) she recommends capping to halt the progression of the decay. According to her, the cap with completely halt the decay and prevent any future progression of decay (I don't kow if this is true)

My friend is a hygienist. She agrees with dentist to cap. She states she would do it in the hospital in case of problems.

1) hospital setting would be far more upsetting to dd in my opinion

2) dentist states they can administer less aenesthesia in her office (by an aenesthesiologist) than they would administer in the hospital

I spoke with my neighbor who is an RN, she states you can bring someone out of general quickly and easily if needed (I don't know if this is true). So, she states it is safe.

All of these things are the issues bouncing around in my head.

All suggestions, opinions, and information is appreciated!
:goodvibes

Hi, I was lurking on this thread because my son is having some issues in school/day care right now (he has eosinophilic esophagitis and the holidays are really hard...he's angry at the world and having some problems with impulse control and appropriately expressing his anger)

Anyway, he's been under general anesthesia 8 times already (he's 5) 7 for endoscopies and once for tubes. The tubes were done in a doctor's office, but the rest were in the hospital. He comes out quickly and easily. My only worry about a doctor's office is that if this is the first time she's been put under you can't be sure how she'll respond. My guess is that if it's in the office they'll just "twilight" her and do a very light anesthesia. One question I'd ask them is what processes they have in place for emergencies.

Anyway, my two cents...
 
Grace, think you're doing the right thing. Teeth are pretty important and we underestimate how the health of them can cause problems. My sister is a family law attorney and she says one of the biggest issues she sees is horrible dental decay and kids with major issues. A lot of them are in pain and can't express it correctly. You are also correct that baby teeth can rot the adult ones behind them. If you mess with the root, then she'll have problems with that the rest of her life. So green means go for me on this one.:thumbsup2

Haven't we all sat there in the dark and mourned the circumstances of our lives? Every time I get like that lately, I think of how it would be to have a child like ours in a developing country, or for that matter, ANY child in a Third World country. I was telling my daughter yesterday that there are little girls that can't even walk to get water from the village well in some places for fear of what will happen to them. Or what if you needed a doctor and all you had was some crazy witch doctor bleeding chickens over your sick child? So any problems she has are totally solvable. She has great people skills and is very mature for her age. I don't worry much about her. It'll all be OK.

My mom always used to say that kind of stuff to me, and it really drove me crazy growing up. The older I get, the more I see her point. I am so grateful that I can be a parent here and now. The old, "This, too, shall pass thing" is something to embrace right about now.

That being said, I'll share my "nightmare" scenario. I'm getting a little worried about the whole puberty thing for my DS. He's only 7, but he reads everything. When we were at the doctor's office last week, they had a brochure on the wall about puberty. My son said, "Mom, what's Pub-erty?" Uh, how do we talk about that without Mr. Literal going on some tangent? He's already all boy about "parts". I get worried about his lack of social skills getting him in trouble in this department. Or I worry about someone taking advantage of a child like him. I'm almost afraid to send him into a men's room by himself. I don't know that he'd understand if someone were to do something inappropriate.

He has such a big "wall" up because of the kids at school teasing him. He tends to just laugh things off, but as he gets older, that's going to get much harder. I want him to be aware and fight for himself. He's already had another boy at school make fun of him at school for sitting down to pee. My question was, what in the world was that kid doing looking at DS? I know for sure they have stall doors in the boys room at school (uh-huh, I checked when we were there one night for Brownie meeting).

I don't want to freak him out, but he needs to get more aggressive about telling other kids to knock it off. He's already bigger than most of the kids in his class, and Dad's 6'5". All it would take is one good punch and everyone would leave him alone. Some kid purposely stepped on his leg in the carpool line and my daughter said that same kid makes fun of my child all the time. I said, "Just one big punch. I'll back you up at school in the meeting. Just knock that kid's lights out next time." I know, I shouldn't advocate violence. But boys don't do well with "group counseling" and warm fuzzies. I'm just realistic.

See, now here I go crying in my soup. Uggghhhh.

LaraK, nice to meet you, too. I am interested in your story. It's tough for me to cry in my soup too much when by all accounts my son is healthy. I'm not familiar with your son's condition, but I offer my support and compassion for him and you.

Here, I'll throw some of these around:grouphug::grouphug::grouphug::grouphug:. Don't know what else to do...
 
LaraK, nice to meet you, too. I am interested in your story. It's tough for me to cry in my soup too much when by all accounts my son is healthy. I'm not familiar with your son's condition, but I offer my support and compassion for him and you.

Here, I'll throw some of these around:grouphug::grouphug::grouphug::grouphug:. Don't know what else to do...

Eosinophilic Esophagitis is an auto-immune disorder that is primarily connected to a different kind of food allergy. Eosinophils are white blood cells that attack parasites. Kids with this disease have bodies that think that food is a parasite, so the eosinophils attack the body inappropriately. My son's occurs in his esophagus. Many kids with this disease can not eat anything and are fed through a feeding tube. We still have some food my son can eat and he gets a lot of his nutrients by drinking a special amino acid formula that tastes horrible (we call it juice puke). Connor is allergic to beef, turkey, chicken, milk, eggs, peanuts, tree nuts, peas, pears, bananas and chocolate. Eating is challenging in my house.
 
LaraK, we have several folks here with kids with food allergies and from my dealings with it, I know what a challenge you face. It must be super hard to keep him happy with such a small range of safe foods. I get it now about the whole Christmas foods being a problem. Add to that making him consume something that tastes horrible and I can only imagine the struggle he has.:hug:

I saw Princess and the Frog at the first local showing yesterday. Spoiler Alert*******If you have a child scared of ghosts, skeletons, shadows, etc OR your child is particularly affected by depictions of death OR forcibly being stuck with a sharp object to collect blood BE WARNED. I thought there were scenes that were not appropriate for sensitive kids.

It was beautifully drawn, and full of eye candy, plenty of shout outs to Disneyland, and the music was great. The animal characters were fun. But I just wasn't so impressed with the human issues as they were depicted in the movie. I'll keep my mouth shut about my concerns in that department until I see it again.

I did want to warn those of you with kids who tend to fixate on scary stuff. This movie would have made me upset when I was little. The Shadowman and his henchmen were over the top, especially if you have an overactive imagination. Lot's of lights will be on all night in kids' rooms after viewing this, IMO.
 
Eosinophilic Esophagitis is an auto-immune disorder that is primarily connected to a different kind of food allergy. Eosinophils are white blood cells that attack parasites. Kids with this disease have bodies that think that food is a parasite, so the eosinophils attack the body inappropriately. My son's occurs in his esophagus. Many kids with this disease can not eat anything and are fed through a feeding tube. We still have some food my son can eat and he gets a lot of his nutrients by drinking a special amino acid formula that tastes horrible (we call it juice puke). Connor is allergic to beef, turkey, chicken, milk, eggs, peanuts, tree nuts, peas, pears, bananas and chocolate. Eating is challenging in my house.

Lara, have you ever considered a g-tube so your son won't have to taste the "juice puke"? It may seem drastic but it can't be seen by others and Connor would have a bit more control over what he does and doesn't have to taste. Karen
 
Lara, have you ever considered a g-tube so your son won't have to taste the "juice puke"? It may seem drastic but it can't be seen by others and Connor would have a bit more control over what he does and doesn't have to taste. Karen

If we loose more food we may have to go with a G tube...right now he only has to drink two "juice boxes" a day of formula because he's still getting some calories via solids. We're trying to make things as "normal" as possible....but it's hard. I had to make calls today to psychologists because my five year old is making suicidal statements. I'm pretty sure he just doesn't know how to express himself and his anger, but I'm not willing to take any chances. It's a very hard disease to deal with.
 
Hi All.

We're back and it's cold. We left Disney on Sunday and got back to Rochester last night. Rather than getting up Sunday morning and just leaving as we usually do, we decided to spend the day at Epcot. Glad we did.

I'll report more later. Short story is we rented the Special needs stroller from OSR again and are so glad we did. DP sprained her ankle on Saturday so one of our new experiences was the Reedy Creek rescue squad and one of us using a wheel chair in the parks. Overall DS did pretty well. Hope everyone is well and will try to catch up soon.

-A
 












Save Up to 30% on Rooms at Walt Disney World!

Save up to 30% on rooms at select Disney Resorts Collection hotels when you stay 5 consecutive nights or longer in late summer and early fall. Plus, enjoy other savings for shorter stays.This offer is valid for stays most nights from August 1 to October 11, 2025.
CLICK HERE













DIS Facebook DIS youtube DIS Instagram DIS Pinterest

Back
Top