Behavior Challenge Thread

[DisDreaminMom]

Bookwormde, my kids have an agreement to lie to me so it won't make me sad. I hear them talking about it on the way to WDW this summer. My DD said it would make me cry if DS told me he knew Mickey was just a guy in a suit.

Hope everyone had a good Holiday. We did. DS got his saxophone. I fake him out and hid it until all the presents were opened. he was walking around the living room with giant tears welling up in his eyes. "But Santa was going to bring me a saxophone. Or some kind of instrument. I just know it." It was priceless to see the look on his face when he got it.

He also got 2 recorders (the instrument), an accordion, and some other toys that he has not touched at all.

We went to the book store today. DS picked out France tour book, Israel tour book ("cause it's the only place in the Middle East without mean people"-?), a video tour of France, and a book about farm animals for 3 year olds. He's reading the Israeli tour book in bed.

Oh, anyone know if wearing magnifying reading glasses (just 1+) will hurt his eyes? He has perfect vision but desperately wants to wear glasses like Dad and his drum teacher. He conned me into getting him "reader" glasses today and I say they are harmless but DH thinks I'm going to ruin his vision. Any thoughts?

This is an improvement over him taking the lenses out of sunglasses and wearing them to school. Big black heavy rimmed sunglasses. Help!

 

[bookwormde]

DDM

Just get him a set of the (good) self adjusting sun glasses, It will have the benefit of protecting his eyes in the bright sunshine.

bookwormde

 

[C&G'sMama]

DDM.

You need to write a book. "The Real Guide to Aspergers" from the parent perspective. You crack me up. Our kids tend to do that without even trying. I love the glasses thing.

DS believes again, at least for now. We had been in SC for Christmas visiting DP's family. So Uncle T put all the presents under the tree and filled the stockings for us while we were gone. We got home yesterday. DS came in and said something about the presents and DP said "They weren't here when we left". DS: "I do believe, I do believe". It was priceless.

As on our trip to Florida he spent most of the time in the car sans clothes. He even took the cover off the booster seat at one point. I would think the seat would be cold on his bare little body but he preferred it that way.

 

[saveaquarter]

Hi everybody! I hope you all had WONDERFUL holidays! We had a tremendous Christmas and Hanukkah in our little mixed household. I just wanted to drop in and tell you guys about one of the things DH received, that he literally will only put down if he needs to shower, change, or sleep.

http://www.amazon.com/Tangle-300-Therapy-by/dp/B000F8I5AE
It was a couple dollars cheaper when we got it, but seriously, after seeing how perfect it is for him, I'd pay a small fortune for it. If you have fidgety habits, or kiddos, and don't own one yet, hurry up and get one! I've never seen something so simple calm him down so quickly or easily. He also won't put it down long enough for me to give it a try, I've been sneaking turns while he showers. I might need to get one for myself!

Do any of you guys who have sensory issues, or children with sensory issues, have one of these? Did it bowl you over as much as it has us?

 

[DisDreaminMom]

Thanks Saveaquarter! I'll look into getting those. I know a few people right off the top of my head that could use those.

C&G's Mama, I have often thought, "I could just cull my posts from this thread and it would be enough material for a book." We could do a thread book, in fact. 'Cause you guys are just as funny, if not funnier than I am.

And yeah, I'm up at 5 am because my chest hurts from the lovely chest infection DH gave me and I'm tired of laying in bed coughing. Blech.

C&G's Mama, I love the story about re-believing in Santa. I love these kids because they constantly analyze and RE analyze the data. It's frustrating now, but what a gift for an adult!!!

Bookwormde, I'll look around for the self adjusting glasses. I think that might be a good idea. He wears sunglasses anyway. Well, you probably already know that...

 

[Marina Del Rey]

Hi everybody! I hope you all had WONDERFUL holidays! We had a tremendous Christmas and Hanukkah in our little mixed household. I just wanted to drop in and tell you guys about one of the things DH received, that he literally will only put down if he needs to shower, change, or sleep.

http://www.amazon.com/Tangle-300-Therapy-by/dp/B000F8I5AE
It was a couple dollars cheaper when we got it, but seriously, after seeing how perfect it is for him, I'd pay a small fortune for it. If you have fidgety habits, or kiddos, and don't own one yet, hurry up and get one! I've never seen something so simple calm him down so quickly or easily. He also won't put it down long enough for me to give it a try, I've been sneaking turns while he showers. I might need to get one for myself!

Do any of you guys who have sensory issues, or children with sensory issues, have one of these? Did it bowl you over as much as it has us?

Ha ha... My hands itched just looking at that.

 

[koolaidmoms]

Happy New Year to you all! Hope this new year brings all of us some joy, love and peace into our lives.

I am now at the only 3 more days chant. I can survive three more days with DS and DD both home. Honest I can.

On our trip to Myrtle Beach my family got to witness DS become a Raven. I could hear him in the bathroom start and they looked at me. He's a Raven I told them. Don't tell him he is not. He is a Raven. Ahhh, yes. Good times with the family.

There is a commercial for Family Guy that runs from time to time.
Stewie, the little boy, "Mommy, Mama, Mommy, Ma, Ma, Mommy, Mommy, Ma, Ma.."
The mom: "What?"
Stewie: "Hi!"
I wonder when they broke into my house to film this.

 

[GraceLuvsWDW]

Happy New Year!!!!

New Years Eve = an all night wii and junk food extravaganza with my 6 yo dd! This = a whole new hangover experience!

DD is doing SO WELL with no school (knock on wood). She stayed up til 12:30am. The ball in NYC on TV was confusing to her but finally I can say yes that IS live TV. She is fascinated with "Live" TV!

She loves the wii (almost as much as I do...that's why I haven't logged onto DIS in a week ) eventhough it does create massive frustration tantrums periodically. Last night we played Toy Story Mania for about 3+ hours straight. Gotta love that game!

DD does have MANY sensory issues. That fidget looks great. Hopefully I can order it while it's still cheap(ish). She loves silly putty, she always has putty in her hands (I have to pry her away from it at bath time) and then the chewy necklaces are a staple at our home. I order food grade tubing by the boxload from plumbing supply company.

Hope the holidays treated everyone well. Things are great here! I'm dreading back to school-imagine that!

Happy New Year to all of you. I've already had the obligatory Black Eyed Peas for good luck!

 

[GraceLuvsWDW]

Oh, I almost forgot!!!! DD lost her first tooth last night! It's been a bit of an adjustment. Losing a tooth for a sensory sensitive person is not an easy adjustment. Here's a pic:

Notice the rest of her teeth are all ground down? The totth that came out was microscopic!


Also, along the lines of the raven, dd shouts things at all times. It's hard to describe but we'll be somewhere, she'll look off into space and say something like "Josie, you stop that!". People look at me like she's crazy. My mom wants her to stop, she thinks it's too weird, but I know she's just working things out by this imaginative "play". It's very funny in public places. I think people think she schitzophrenic (sp?). What's confusing is I've read Aspies frequently have less imaginative play so dd definitely doesn't fit that stereotype.

 

[koolaidmoms]

Also, along the lines of the raven, dd shouts things at all times. It's hard to describe but we'll be somewhere, she'll look off into space and say something like "Josie, you stop that!". People look at me like she's crazy. My mom wants her to stop, she thinks it's too weird, but I know she's just working things out by this imaginative "play". It's very funny in public places. I think people think she schitzophrenic (sp?). What's confusing is I've read Aspies frequently have less imaginative play so dd definitely doesn't fit that stereotype.

DS has 100's of imaginary friends that live in our attic. The funniest thing is to watch him play football with them. They all have individual names and traits that never change. He will take the ball and say, "George hikes the ball to Crooked Man. Crooked man throws it to Jim. Jim runs down the field to be tackled by ..." All the time he is running around the backyard holding the football.

I know he too is working out things. He told me today that Crooked Man wanted him to quit doing something he knew he had to finish but DS was able to tell Crooked that he was wrong and needed to get this done first. I told DS how proud I was of him for ignoring Crooked and making the right choice. DS looked at me and said, "You know Crooked is imaginary don't you?"

Grace - she is beautiful. DS wants to lose his teeth. He is driven by money. If he could pull all of his teeth out for the tooth fairy I think he would.

 

[disneymom3]

http://www.amazon.com/Tangle-300-Therapy-by/dp/B000F8I5AE
It was a couple dollars cheaper when we got it, but seriously, after seeing how perfect it is for him, I'd pay a small fortune for it. If you have fidgety habits, or kiddos, and don't own one yet, hurry up and get one! I've never seen something so simple calm him down so quickly or easily. He also won't put it down long enough for me to give it a try, I've been sneaking turns while he showers. I might need to get one for myself!

Do any of you guys who have sensory issues, or children with sensory issues, have one of these? Did it bowl you over as much as it has us?

Do the pieces come apart? We had one of those without the shiny aspect but the pieces come apart. After repeated click, click, click click, back and forth, it stopped sticking together very well.

Along the fidget lines, have you all found anything that is sturdy for fidgetting with? I have gotten several of those rubbery balls filled with various things but DS always gets a hole in them within a day or two. It's not on purpose as he is heartbroken when it happens, but I think he is just really intense with them and they are not made for it. I have several items stashed away as we are taking a plane home from WDW at the end of the month. (Driving there and he does much better in the car.) I know they will probably last the trip home and that's it. I'd really like something that would last as he gets really down on himself when they break.

 

[bookwormde]

There are several types of imaginative play, for individual and parallel imaginative play aspies are way beyond the capabilities of NTs, for cooperative imaginative play it much harder for us to stay in sync with NTs. Now get 2 or more aspies with similar special areas of interest together and the discussions and imagination lead to amazing insights and possibilities.

bookwormde

 

[GraceLuvsWDW]

Do the pieces come apart? We had one of those without the shiny aspect but the pieces come apart. After repeated click, click, click click, back and forth, it stopped sticking together very well.

Along the fidget lines, have you all found anything that is sturdy for fidgetting with? I have gotten several of those rubbery balls filled with various things but DS always gets a hole in them within a day or two. It's not on purpose as he is heartbroken when it happens, but I think he is just really intense with them and they are not made for it. I have several items stashed away as we are taking a plane home from WDW at the end of the month. (Driving there and he does much better in the car.) I know they will probably last the trip home and that's it. I'd really like something that would last as he gets really down on himself when they break.

The ones dd likes are:

Rubik's Cube
knobby silicone balls
Silly Putty
Mind puzzles (wooden boxes, etc)
Food Grade Tubing
She has a plastic horse she carries around
And she likes the Silly putty containers
Sqush balls (hand exercisers)
There's a toy called Whirl-O she likes a lot too http://www.amazon.com/Whirl-O-Whirl-o-Individual-Unit/dp/B000LIZQ28 I have to limit her time with this one, I don't think it's productive and it is not a fidget per se as it takes a lot of attention. DD's OT says it's not really a fidget if you are focused on it, so if she focuses on one thing too much we try to limit the fixation on them.

I don't get anything with liquid inside, that would be a mess!

 

[saveaquarter]

She loves the wii (almost as much as I do...that's why I haven't logged onto DIS in a week ) eventhough it does create massive frustration tantrums periodically. Last night we played Toy Story Mania for about 3+ hours straight. Gotta love that game!

DD does have MANY sensory issues. That fidget looks great. Hopefully I can order it while it's still cheap(ish). She loves silly putty, she always has putty in her hands (I have to pry her away from it at bath time) and then the chewy necklaces are a staple at our home. I order food grade tubing by the boxload from plumbing supply company.

DH got a wii for Christmas, and is absolutely loving it. It's been great for his hand-eye coordination, which has suffered from a lack of stimulation lately. His motor skills are beginning to suffer from the MS, I'm hoping that it will help stave off that deterioration as much as possible.

He's been falling asleep with that tangle wrapped around his fingers, he wont even put it down when we go to bed!

Do the pieces come apart? We had one of those without the shiny aspect but the pieces come apart. After repeated click, click, click click, back and forth, it stopped sticking together very well.

I think I know which toy you mean, and this one is a bit different. The motion between the pieces is smooth, instead of clicking into place. Some of the reviews I read said the pieces can come apart with heavy abuse, but it's not meant to come apart at all. It's pretty darn sturdy, DH has been twisting the ever loving crap out of it with no sign of fragility.

 

[GraceLuvsWDW]

Oh, and a good game for traveling I think would be "sticky mosaics" which dd got for Christmas. It's more a craft than a fidget but she can become intensely focused for a long time:

http://www.funbabytoys.com/the-orb-factory-sticky-mosaics-jewels.html

 

[DisDreaminMom]

C&G's mama, see? Your last post was as funny as anything I've ever done.I can see your son with his football. And just to remind you that our sons were seperated at birth, my son will sit in the living room or his room and have an intelligent conversation with SOMEONE that I have yet to see. He'll talk to the air, explain his instruments, make jokes, talk so nicely. As soon as he sees or hears a real person, he quits. He can play alone for hours, but I don't think he's really alone.

We had a big night last night. We went to a party at my husband's boss' house. DS was screeching right before we were leaving the house to go to the party. I warned him several times and he was getting louder. Oh boy, this is not the place for the screeching! So I finally told him that if he screeched even one time at the party, that I would put him in the car and go home and Dad and sister would get a ride home.

Proud to report that DS did not ever screech and at one point there were 7 boys there and 4 little girls. Luckily, DD is the oldest child in the group and she had a herd of children following her around. DS plays super well with the smallest kids. He is very comfortable and the boys his age just ignore him. Most of the 8 and 8 year old boys sat on the sofa playing Game Boys or Play Stations. Who says Aspie kids are socially poor? My son was chatting it up with all the adults, saying hi to everyone, etc.

The worst thing he did was give a few of the moms a gaint hug. We gotta stop the hugging thing. He's half bear now. He's really strong.

Oh, and he figured out how to play Ode to Joy from ear on his sister's violin yeasterday. Today he was in his room trying to figure out how to play the repeat melody from UP. He had the first few bars of it by mid-afternoon. So that's a big thing. Playing by ear is a giant thing. His sister was visibly jealous.

His percussion teacher told me I needed to get DS in our Performing Arts school. He'll be eligible in another school year (4th) and DD will be eligible in 6th, so if I work extra hard, I can get them in the same school at the same time. I hate to make it sound like I'm the one doing the work, but it's a lot of lessons and applications to get our foot in the door. And DS will start taking violin lessons after DD's lesson, too. Two instruments at the same time? He'll be in hog heaven. At least it's not soccer.

Grace, your daughter is beautiful. She's a treasure. You're a great mom.

I want a Wii. Me and my stupid house rules of no video games.

 

[pudge the fish]

I want a Wii. Me and my stupid house rules of no video games.

well you could bypass the no video games rule for the Wii as it has Educational "games" it has fitness "games" and even music, sing along etc...
so if you don't buy GAMES but EDUCATIONAL discs...
Ok I am stretching here Trying to be helpful


and I like the tangles. they are very good to pass time.
everyone in my family has PSP's ,cells that play games and I touches ( even the kids) I have tangles.....I found some off brand at a local store. They are nice to tangle with while DH is driving and I am trying to not have a panic attack..

 

[DisDreaminMom]

Hey Pudge, how are you doing? Haven't heard from you in a while.

I am considering the Wii. My kids have been DVR'ing the bellydance and Bollywood fitness shows on FiTV. Can I just tell you how insanely funny it is to watch both kids shimmying and doing the indian style dances? Especially DS, since he has insane rythmic ability from the arms down, but ZERO from the neck down. I have cried watching those two dance for me. I love the shows they put on for me, the concerts, the plays. I don't know if I want to ruin that...

 

[disneymom3]

DH got a wii for Christmas, and is absolutely loving it. It's been great for his hand-eye coordination, which has suffered from a lack of stimulation lately. His motor skills are beginning to suffer from the MS, I'm hoping that it will help stave off that deterioration as much as possible.

He's been falling asleep with that tangle wrapped around his fingers, he wont even put it down when we go to bed!



I think I know which toy you mean, and this one is a bit different. The motion between the pieces is smooth, instead of clicking into place. Some of the reviews I read said the pieces can come apart with heavy abuse, but it's not meant to come apart at all. It's pretty darn sturdy, DH has been twisting the ever loving crap out of it with no sign of fragility.

I have MS too and one of the games for Wii that was recommended to me was Mercury Meltdown. (Or Madness, not sure.) You have to guide mercury through these puzzle things. It's really fun and does help with focus and concentration. Plus it is less expensive than a lot of Wii games.

I will have to look at that toy if it doesn't come apart.

 

[C&G'sMama]

Hey all. If you haven't had a chance to check out latest trip report, it's located on the "regular" disabilities board (vs the disabilities community board)

It's from our trip in December. We're up to towards the end where DP ends up in a wheel chair with me pushing her through EPCOT. Of course DS insists on pushing at one point. It's made for some great stories.

- A