Behavior Challenge Thread

bookwormde, thank you.

My DH was a volunteer firefighter and EMT for many years, so I get not your story not only literally, but also in the broader sense. There are rules, there are SOP's, and every now and then you gotta "run what you brung" so to speak and even the SOP's may go out the window. The rules are there, but each encounter will be slightly different. Sometimes you'll encounter a situation you have no experience with, you have to look at previous training to see if anything can apply, but sometimes you have no choice but to create a new protocol. Interesting metaphor for life.

It is hard, because almost any "rule" has an exception.
 
Mel6197 and BeckyScott, are you sure you don't have twins...lol.... it sounds like your describing my/our life here. My DD9(almost 10) goes through the same sort of thing. She gets very anxious even in fun situations like having a family meal (we have that every night) and currently we are doing theme night for our countdown to Disney soon. I thought it would be something fun for all of us and it gave me different ideas for supper. Well she has except for 1night thrown a meltdown. Calling my husband (aka daddy) a funky donkey (those are the nicer versioned words...lol) because we've asked her to come to the table and have supper. She refused throws a WWIII meltdown shoving, screaming...you know the scene... My husband says you can sit in the corner until you are ready to calm down and joing your family. He (after a 20-25minute screaming song) carried her up to her room and explained that she needed to calm down and then she could come back to the table... 7minutes later (or so) she came downstairs apologized to us and we carried on with the nice meal.
 
Becky, why don't you just tell him the soup wasn't just for him, that there is no "your food, my food", and that he got the 'rule' that bookwormde says is so important to the logic, wrong? Or do you really have special food that no one else is allowed to eat? If that's true, that you divvy up the food, then it's time to change that rule in your house.

If having Asperger's Syndrome is all about rules and logic, then work with the rules and logic. Of course we all have rules, we all have our own logic, and it seems the big hurdle here every time this issue is brought up is that someone with Asperger's Syndrome just believes his/her logic and rules are the only ones that work. How do you get them to realize they are not the only ones with logic, not the only ones with a set of rules on how things should be? By asking them 'why' (like you have been doing), by showing them other scenarios, by role playing, by putting them in your shoes. By pointing out that we are all here on this planet, that it is not all about him/her, and that it won't be all about him/her, ever. We all have to work together, and there are consequences when you don't. (When I had this talk with my daughter, she told me 'RATS!')
 
Thank you everyone! I spent about 4 hours at Madelyn's school yesterday and talked with her teacher and aide, observed her in the classroom.... Madelyn has been using chewy tubes since age 3 but lately at school they haven't been using regularly them regularly so I brought one of her brand new green nubby ones for her to use during social times. I really think it may be communication frustration because I know that is what her biting is from at the times when she is angry. Before the bus, the children are sitting at tables in the cafeteria chatting with each other and I am sure Madelyn is frustrated about not being able to join their social conversation. I also gave the teacher and aide the idea about diverting the biting to hand clapping or something less dangerous to others.... I think they plan to use that idea. Maybe a squeeze ball would work too?

Thank you again!!!!!
 

Disneylvr, we will be there on the 14th too... We arestaying off-site this time and hope it goes well... Either way we are going to WDW...YAHOOOOOOOOOO
 
Disneylvr, we will be there on the 14th too... We arestaying off-site this time and hope it goes well... Either way we are going to WDW...YAHOOOOOOOOOO

Is your child's birthday on the 19th??!!!! Madelyn's is on the 19th and she'll be 6 years old. We are having a birthday breakfast (her favorite meal) at Chef Mickey's. Look for us in the parks. We'll have a Maclaren Major Elite pushchair and Miss Madelyn has red curly hair. We can't wait to get there! :banana:
 
Coping skills learned here, thanks.

I ate some chocolate and then saw soy as an ingredient and not a bit of soy lecithin, just soy. i was a bit revved up when I went into Lone Star restaurant and ws getting antsy so i finally remembered what I learned here.

I wrapped a plastic straw around a couple of fingers and tugged hard then kept working it. It is on my desk now and rather beat up. I got a work out, kept busy, and had the sensory pleasures of the pressure on my fingers. I did the same thing at Rosewood when I got dinner for mom.

It worked though i was a bit agitaged over the liquid spewing from my meat but I had an extra knife so I could drain the meat, sigh, no liquids on my food. Honestly I do not know how I could have gotten through the waiting without the straw.:cloud9:
 
/
Hey All, Haven't had time to check in lately. DD has been dealing with racist little children at school. Lovely. DD is in 3rd grade at one of the better schools in the district. When we first came to school last year, she was upset because black kids at school teased her ("whitey", etc). The girl that defended her has become her best friend, and now all of DD's friends are black. They are lovely girls, do Brownies with us, very sweet. Some of our best family friends are black, and we are more integrated than lots of people around us because of the nature of horse farms and the people who work there.

So for the last few months, DD has said off and on that some black boys are being mean to her and telling her black friends not to play with her. Thursday, DD gets in car in tears because boys called her a "burned biscuit" and when her friend defended her, they called her a "dirtbag from Africa". Bad, right?

No, it gets worse, because DS, ever the literal one and VERY interested in Geography, says, "Wow, Takaiya is from Africa!". So now we have to explain what this all means, why calling someone a biscuit is bad, why we don't say mean things about things people can't help like handicap, skin color, stuttering, etc.

So I ended up calling DS's Special Ed teacher, who is black, and telling her that it is possible that this topic could come up and to please tell DS's (black) homeroom teacher, just in case he tries to impress someone with a zinger line. Because he really doesn't get the whole racial sensitivity issue. (Sp.Ed teacher told me he recently wondered why she was called "black" when she was really light brown, and why she was an African American when she was really a Kentucky American. She then told me how much she loved the fact that my son spent so much time trying to figure this all out and would actually talk to her about it-i.e. Are there black people in Paris, are there Asian people who speak French, etc.).

Flashback: When DS was in Pre-K, I got call from teacher that DS was "racist". How could he be? His best friend out of school is black, etc. Turns out he was going through a stuttering period, and in the carpool line, two black kids were teasing him. Instead of saying, "I don't want to stand next to those two children". DS says, "I don't want to stand next to those black kids" and so teacher thought he was racist. See how this gets out of hand? His teacher's assistant had to defend DS and explain what happened.

Yesterday, after lots of talks to teachers and parents, we all agreed that it was wonderful that we COULD talk to each other about this. Funny thing, we all reached the same conclusion that the problem with MLK Day and Black History Month is that somehow the take home message to some children was that White people are bad and Black people are all struggling. The ball got dropped and some children (I"m guessing the ones whose parents say things like the N word and "biscuit") are missing the fact that their generation is now supposed to move on and stop seeing color as the primary indentifier.

SO I am so happy that no one freaked out when I tried to talk to them about it, that my kids learned a great lesson, and that My generation has learned something. I can't change the kids that are mean to DD, but at least I ripped the band-aid off so the infection can dry up. I ain't no stinkin' coward, Mr. Holder.

P.S. DS did his Black history project as Debbie Allen. He was wonderful at reading his lines (too bad he read them so only he could hear, but I can't be too rough- he did it in front of about 40 people). I was the only white parent who showed up to watch the performance. Half the class wasn't even prepared. I felt so awful for the teacher, but the kids who did do the work did a great job.

Becky, honey, it never was your soup. Don't eat the kid's soup. Or eat it and make DH replace it. What is it with canned soup and these kids? My son keeps Campbell' s soup in business. Soup is good food. But if he "called" it, then just stay away from it. If you got it for him, then leave it alone. It's radioactive. I could have told you that. (Sorry you felt bad. You deserve soup. Yuck. Life stinks. Hope you are better).

Disneylvr, my DS used to pinch kids, which is not as bad as biting, but had the same motivation- he couldn't think of a way to get someone's attention. So I had teachers make him carry a favorite toy. Two things accomplished: 1. DS had a thing to show other kids to get them to pay attention to him if he didn't have words to engage, and 2. His hands were full and you can't pinch and hold a toy. Worked like a charm.

Mechurchlady, great shopping. Did you read Temple Grandin when she explains how all animals have a "novelty" seeking gene which in human children is for toys, but also combines with the hunting gene as an adult to make bargain hunting great sport. You animal, you.

Yes, my Charter School model is interstate. If I accept Federal dollars, then I will have a fair and balanced faculty of equal numbers unionized teachers and visiting professionals from the science and business fields. We will examine the benefits of communism (our farming business) and capitalism (our clothing line and the effect our fabulous school will have on the enrollments at local schools that aren't as cool as we are). WDW is a mandatory field trip. In fact, all parents must be able to pass the WDW test before any applications will be processed. I just can't have non-Disney loving riff-raff in my school. I only deal with people with Character(s).:rotfl2:

I wonder, do I have to be some teacher-ish person to actually apply for a Charter? We don't have any Charter Schools here,and the one they had in my old FL town was shut down for incompetence, which is hard for a school to do. :lmao:
 
P.S. DS did his Black history project as Debbie Allen. He was wonderful at reading his lines (too bad he read them so only he could hear, but I can't be too rough- he did it in front of about 40 people). I was the only white parent who showed up to watch the performance. Half the class wasn't even prepared. I felt so awful for the teacher, but the kids who did do the work did a great job.


Yes, my Charter School model is interstate. If I accept Federal dollars, then I will have a fair and balanced faculty of equal numbers unionized teachers and visiting professionals from the science and business fields. We will examine the benefits of communism (our farming business) and capitalism (our clothing line and the effect our fabulous school will have on the enrollments at local schools that aren't as cool as we are). WDW is a mandatory field trip. In fact, all parents must be able to pass the WDW test before any applications will be processed. I just can't have non-Disney loving riff-raff in my school. I only deal with people with Character(s).:rotfl2:

I wonder, do I have to be some teacher-ish person to actually apply for a Charter? We don't have any Charter Schools here,and the one they had in my old FL town was shut down for incompetence, which is hard for a school to do. :lmao:

Glad he did well on his presentation.

You'd have to see how charters work in your state, and is your state one that has charters? There are still some states that don't. The incompetence comes from not keeping up standards equal to or better than the home district. That happened to 2 charter schools here and gave charters here a bad name. Fortunately others, like ours, have come along and are suceeding compared to the home district (did I mention our District's graduation rate is 38%). These were elementary schools but the NYS test scores for ES in our district are pretty low, so the schools had to be pretty bad to be functioning lower than the district.

So we have the "United Charter School for ASD Kids with Disney Loving Familes" I like the idea of a test on Disney to get in.
 
I had a good day and now am crying. Mom just went onto fits. Where was I for three hours. Why didn't i do all the shopping. I AM DISABLED. Wait hat does not get into her brain.

I am crying because I stoic like and stone faced stood there as she had had it. Why. Mom dropped a little secret that a social worker was coming next week. LYING .. cussing andcrying.l Mom is selling the house LYING .. cussing and crying but have to stand there solid and not let her have one tear, not one fear and not one reaction. I WANT KIDS, GIVE ME KIDS. I had to do what you moms do with bratty kids.

I am going to DLR tomorrow and now have to do the monthly shopping the day before a big trip. I cannot do both but must bring home stuff. HOW DARE I GET STUFF FOR ME AND NOT GET HER (insert cuss words) PRINGLES? She is up for trade and i am taking any kids and spouses and rabid dogs. I was so happy today.:cheer2: :grouphug:
 
Meanie, meanie old lady. Soooo sorry, Mechurchlady. Remember, you had a good day. Mathematically, what part of the day did she take? Divide it out and forget it. I used to do a thing with my DD and DS when they were really angry and upset. I'd grab a bucket and tell them they had too much "angry" in them and they needed to "spit it out". I would make them pretend spit into my bucket until they had no anger left anymore. It totally works on people. It's like burning picture of people or things that make you sad. It's the effigy concept. You need to "pull" your Mom's rant out of your mind and leave it in the trashcan. (symbolically, please! you need your pretty head to ENJOY YOUR DAY AT DLR!!!) (Full disclosure: I used to do this when my mom would have a bipolar-ish ranting day- take all the bad thoughts and put them in the trash can and then turn it over).:idea:

My DS would totally hug you and be sad that someone yelled at you. We're huggers. (forging the chain of love...):grouphug:

To quote Lily and the Purple Plastic Purse by Kevin Henkes, "Today was a difficult day, tomorrow will be better" (Maybe not verbatim, I'm too tired to get book from shelf, but it's a great line, nonetheless).

(and now, because humor is my weapon for all bad times, ponder the following, How do you know if the dog is rabid or had just eaten the tube of toothpaste?:confused3 :rotfl2: )
 
Well I figured out what was going on. I have gallstones. Big fun. 'Cause I didn't have anything else to deal with, let's throw this on top.

Schmeck, I understand the whole his-yours-mine thing with the food is confusing. I guess how it happened at first, was just like many houses, I would buy food that was specifically for lunches, for the kids or for DH, "lunch food" things. And it would make me mad when I whipped open the fridge on Tuesday and saw that somebody had gotten into the lunch meat, or that there wasn't anything left but the bread heels. Last week DH wanted some ice cream sandwiches, and he ended up with one out of the whole box.

Then it sort of graduated from there. Next it was that DH works a lot of hours, works his butt off, and he'd buy something at the store he really liked. Not anything major. Like a bag of pretzels. He'd be at the store with me and say "wow we haven't bought pretzels in a long time. Tasty." and we'd buy a bag. And he'd open them later that day maybe and eat some. And then about two days later he'd want more and look and the bag would be gone.

And then youngest DS got diagnosed with all his food allergies so yes I was buying special food for him. Most of the time it's fine because oldest DS thinks things like rice pasta are disgusting (they smell bad, he says) but for example, I buy lemon wafer cookies for DS's lunch. Two a day, box lasts 2 weeks, box costs $6. Youngest DS can't do school lunch, and he can't just randomly pull a meal out of the pantry. I'm very protective of his food, because #1 it's expensive and #2 there aren't a lot of things he can eat. Oldest DS, if he decides he wants a cookie, will take the lemon wafer cookies, and he doesn't eat just two. (and yes yes yes, I buy regular cookies too)

So there is some yours-mine-ours going on with the food. It's not like I am buying 4 different sets of food. But some things are up for grabs and some aren't. The other problem is that the kids will access the kitchen whenever they want, I think that's the over-riding problem really, the thing that needs to be fixed. But I'm also teaching oldest DS how to cook (how to feed himself, if you will) because he's 11 and he should be able to do some basics, and on days like this past week when I've been feeling so bad he will take care of himself food-wise. Between all the food allergies and the sensory stuff, I do end up really making 3 seperate dinners (DH isn't home) so if DS can contribute to his own cooking that is helpful.

And I broke my own rule. We get on the kids for eating up all of DH's pretzels, but then I ate the chicken noodle soup that DS requested. The odd thing is... DS has a long history of "taking" other people's food and this is about the first time someone has "taken" his. While he has no problem eating "other people's" food, when the tables turned, he wasn't able to see the other side of the situation. Sort of like "okay, now you know how it feels to be on the other side of the fence", that didn't happen. And it hurts me personally, because I can understand that there's a difference between taking someone's pretzels 'cause you just want to, and eating a can of soup because you're sick, but he doesn't get it.

I have had one heck of a weekend, and this week looks to be much fun too. It's really hard, neither kid is very good at the empathy thing, and I feel like I've been ran over by a bus. We had a very scientific explanation of gallstones. I have been mobile enough to supervise but not much else, and to pick them up from school. But even yesterday, DS wanted his friend to come over to play and got upset when I said no. And his friend understood, no problem, but DS didn't.

In the meantime, I am supposed to be in charge of a parent's breakfast Friday at school, the clinic "lost" our FMLA paperwork that DH has to take to work today or else, and youngest DS's IEP meeting is today. Can somebody here please throw me a little empathy?
 
Oh Becky, gallstones, ugh!!:hug: Mom went into the hospital with a fever and intense abdominal pain. This was the only time she'd been to teh hospital, other than childbirth. It wound up being her gallbladder, which they took out. She has to watch not to eat too much fatty food, but is otherwise fine. Have they given you anything for the pain?

I'm very guilty of making different meals for our picky 10 yr old, so we have food issues here too. She's always been underweight and was very sick until she was about 4. So when she was healthy, I'd try to pack weight on her, and make her favorite foods. I've created a total monster now. She will eat about 5 foods.

I realize the empathy issue is the real issue for you, but just wanted to let you know you're not alone with making different meals for everyone, etc.

Can someone else help you with the breakfast Friday? I think you have a very legitimate reason to ask someone else to take it over. It sounds like you stay busy, and you really need some time to just recover and get well.
 
Oh Becky, I guess you won't read this until after some of your appointments today, but I'm sending you lots of support. But no coffee, because of the gallstones. Maybe all our virtual coffee we send you on here has kicked in and given you gall stones:lmao: (not laughing at you, laughing with you, but apologizing in case your sense of humor hurts, too:sick: )

I think it's time you ask for some outside help for a little while, so as to not completely wreck your health. I don't know if that's possible, but it looks like your camel is getting close to the last straw. It's only Tuesday. Can't you get someone to help some with the breakfast? Maybe if you got the stuff, then someone could do onsite set-up and actual hosting? I don't know how ambulatory you are, but you need to holler uncle on this one today!!!

I know it's hard having 2 kids with ASD, but is it possible for someone besides you to have a frank talk with them about cutting mom some slack and helping more? :sick:

My big question is who supports the cheerleaders?:cheer2: I know I need someone to tell me how much they appreciate me and all the hard work I do to keep things running smoothly. So here is a virtual:hug: from one mom to another who knows how much you bust your chops to make everyone around you have the best life possible.

Have you ever thought of giving everyone in the house a cabinet and a key and letting them put their stuff in it? I did a not so drastic version of that in regards to snack food for my DH and it has been a resounding success. He has "his" food, DS and DD have their own stuff and never the twain shall meet.

And rest as much as possible. Let the little stuff go and try to get better. This too shall pass...:)
 
Sorry about the gall stones. I went through that many years ago (I had 50 removed) and it was EXTREMELY painful. I hope you feel better soon. Ask for drugs if they have not given you any.

I know the issue is not the food but the empathy. DS looks at me like I am an alien sometimes when I cry. He just does not understand it. Someone once explained it to me that you can teach empathy to a certain extent. It will always be like speaking a foreign language to them. It will never be their native language. They may understand the foreign lanugage to a certain extent and speak it fluently but when they think it is still in their native tongue and they are continually translating in their heads to that langauge. So it will never become "natural" to them.

Big hugs to you. Hope you feel better very soon! :hug:
 
Sorry about the gall stones. I went through that many years ago (I had 50 removed) and it was EXTREMELY painful. I hope you feel better soon. Ask for drugs if they have not given you any.

I know the issue is not the food but the empathy. DS looks at me like I am an alien sometimes when I cry. He just does not understand it. Someone once explained it to me that you can teach empathy to a certain extent. It will always be like speaking a foreign language to them. It will never be their native language. They may understand the foreign lanugage to a certain extent and speak it fluently but when they think it is still in their native tongue and they are continually translating in their heads to that langauge. So it will never become "natural" to them.

Big hugs to you. Hope you feel better very soon! :hug:
No empathy in neurovariants is part of living with them. They have empathy but just cannot get the wires to work.

I puked while making mom breakfast. I get up to the mom song of LAURIE ever 10 to 20 seconds and getting louder and more demanding. I have a major bruise below the knee, did DLR on Sunday, other bruises and I drag myself out of bed. Still screaming while I pee. She has to have the car moved NOW. It does not matter that I am pukish, dehydrated, hurting, MOVE THE CAR NOW. I move the car and puke in the bushes. TAKE THE TRASH OUT. I puked and I have to poop NOW but no it is TAKE THE TRASH OUT NOW. I try to explain the need for rolaids and to poop but it is TAKE THE TRASH OUT NOW. IU come back from pooping and she cannot get it in her head that I am sick. TRAH, OUT, NOW IS ALL she says and that she is deaf. The good news isi it is food related but not wheat, yes oh happy dance.

Later mom will feel sorry for me or even suggest we get food from Rosewood restaurant. The person who cannot hear me at 8 am will feel sorry for me and then be all nice and empathic.

You are now on the neurovariant Roller Coaster. There are not seat belts and you have to hang on tight as you are in for one long ride.

:surfweb: :surfweb: :surfweb: :surfweb: :cloud9: :hug: :hug:
 
Oh, Mechurchlady, :grouphug: :sick: :sad1: I'm sorry you feel bad. Hope it get's it's 24 hour bugness out in 12...


50 gallstones? OUCH! Ask for the meds: ditto
 
The problem with the pain meds (and the nausea meds I got) is that I am such a light-weight when it comes to that stuff. Cheap date. ;) So I've been trying to avoid it, because they knock me out cold, and around here that's not a good idea.

The pain, at this point, is like bad menstrual cramps, or maybe early labor, and I can handle that. And it comes and goes. I made it thru the IEP meeting fine, but then I stood up. :eek: Hold out for 1/2 hour and pick the kids up from school, then I can hide in my room for the evening. Hopefully.

I am going to hunt down the Queen Bee Mom and call in the troops for Friday. I already gave her a warning on it. And if my appt w/ the surgeon is on Thursday, it is possible I will be totally out of the picture on Friday anyway.
 
Mine is stress and food so I will survive if mom backs off. I am tired of explaining and am going hunting for books on handling ODD kids as that works. Stop them before they start the fight theory.

Poor becky I hope you get better soon. I do not do pain stuff as then I cannot feel pain in other areas which is important for me. I wish I could make us all better.

sending you hugs and prayers
laurie
 
oh yeah, a little menstrual cramping and early labor never hurt anybody :rotfl2: :lmao:

This is the part where I would say, knock me over the head and call me when you're sure I'm done hurting...You're a tough bird Miss Becky. I bet Queen Bee School Mom would be hosting breakfast from hospital room, with a local anesthesia so she doesn't miss out on anything:lmao: (See, I know that lady, too!)

DS was really agitated today. Like out of control hyper when I picked him up from school. I took kids to the mall so we could buy Beverly Hills Chihuahua from my Disney Store. DS was babbling in "french" and "spanish" to my managers. Luckily they are very nice, understanding people with a good sense of humor. Poor DD was trying to hide. By the time we were walking out of the mall, she was walking by herself saying, "I don't know either one of you!" under her breath. :happytv:
 





New Posts









Receive up to $1,000 in Onboard Credit and a Gift Basket!
That’s right — when you book your Disney Cruise with Dreams Unlimited Travel, you’ll receive incredible shipboard credits to spend during your vacation!
CLICK HERE













DIS Facebook DIS youtube DIS Instagram DIS Pinterest

Back
Top