Wish Trip for Miss Haylee

[Haybuggsmom]

OH MY GOODNESS!!!
It hit me this morning.. WE HAVE 28 DAYS!!
The past few have gone by so slowly.

Bad day for Haylee yesterday. Two major seizures that completely knocked her out. One of them was while in the Va Beach traffic with a police officer 2 lanes over so Amber was afraid to jump over the seat to help her. I finally turned on the hazards so she would get in the back. Thank goodness we have the car harness for her so she didn't fall out of the seat. This is becoming a regular occurance for her. I almost get scared to ride in the car alone with her. PLEASE WORK SOON NEW MED!!!!

Amber was super excited yesterday when our custom disney maps arrived. She agreed they should be laminated and stay at home for the memory. But she really loved the envelope also.

Also been working on our schedule as my dad gets his prelimanaty conference schedule so we can do as much a possible with him!!

Saturday 18th-
Arrive at GKTW
MNSSHP- with G-pa!!!!

Sunday 19th-
Tusker House Breakfast
Hollywood Studios

Monday 20th-
Ohana Breakfast
Island of Adventure

Tuesday 21st-
Park Fare (w/ G-ma)
Sea World

Wednesday 22nd-
Universal Studios
Grandpa to play at village (?)

Thursday 23rd-
Animal Kingdom
Christmas @ GKTW

Friday 24th-
Epcot
Flight out

 

[rcq925]

That sounds like a great plan! You have lots of fun ADR's planned! 28 days will fly by!!! MSNNP should be so fun! Can't wait to hear all about it and see pictures!

 

[Mom2mitokids]

OH MY GOODNESS!!!
It hit me this morning.. WE HAVE 28 DAYS!!
The past few have gone by so slowly.

Bad day for Haylee yesterday. Two major seizures that completely knocked her out. One of them was while in the Va Beach traffic with a police officer 2 lanes over so Amber was afraid to jump over the seat to help her. I finally turned on the hazards so she would get in the back. Thank goodness we have the car harness for her so she didn't fall out of the seat. This is becoming a regular occurance for her. I almost get scared to ride in the car alone with her. PLEASE WORK SOON NEW MED!!!!

Amber was super excited yesterday when our custom disney maps arrived. She agreed they should be laminated and stay at home for the memory. But she really loved the envelope also.

Also been working on our schedule as my dad gets his prelimanaty conference schedule so we can do as much a possible with him!!

Saturday 18th-
Arrive at GKTW
MNSSHP- with G-pa!!!!

Sunday 19th-
Tusker House Breakfast
Hollywood Studios

Monday 20th-
Ohana Breakfast
Island of Adventure

Tuesday 21st-
Park Fare (w/ G-ma)
Sea World

Wednesday 22nd-
Universal Studios
Grandpa to play at village (?)

Thursday 23rd-
Animal Kingdom
Christmas @ GKTW

Friday 24th-
Epcot
Flight out

Sorry to hear about the seizures. Hopefully the meds will kick in soon. Your plans sound great. Can't wait to hear all about it.

 

[Haybuggsmom]

The planning continues....
My dad got his finalized conference schedule. So we are doing a litttle tweeking because he has a couple of days where he gets a couple of hours in a park. We are going to put those parks on those days so he can do some things with the kids.

Seizures are still coming full swing. three yesterday and already one this morning (it's only 9am .

I'm thinking we will go to the park since all the kids are off today (a very rare occasion at our house) they have a semi accessable playground there. The swings aare her fav. She can actually use the ones there!!! I'll take some pics too!!

 

[rcq925]

Hope you had a fun day at the park!! So sorry the seizures are still coming full swing! Hoping that they can find a new med or something to stop them!!

 

[J'sMum]

The planning continues....
My dad got his finalized conference schedule. So we are doing a litttle tweeking because he has a couple of days where he gets a couple of hours in a park. We are going to put those parks on those days so he can do some things with the kids.

Seizures are still coming full swing. three yesterday and already one this morning (it's only 9am .

I'm thinking we will go to the park since all the kids are off today (a very rare occasion at our house) they have a semi accessable playground there. The swings aare her fav. She can actually use the ones there!!! I'll take some pics too!!

Aww I have you in my prayers Hope the seizures ease up very soon! I think it;s so great still that you get to include your parents in on this even if he does have to be at a conference

 

[yinyanggirls]

Darn it about the seizures! It's so hard on them, and they are left wiped out. I hope the new med works soon! (Yay for 28 days!!!)

 

[Haybuggsmom]

Hope you had a fun day at the park!! So sorry the seizures are still coming full swing! Hoping that they can find a new med or something to stop them!!

Thanks!! The park was really fun!!

Aww I have you in my prayers Hope the seizures ease up very soon! I think it;s so great still that you get to include your parents in on this even if he does have to be at a conference

Thanks for the prayers. We are so excited to spend some FUN time with my parents!!

Darn it about the seizures! It's so hard on them, and they are left wiped out. I hope the new med works soon! (Yay for 28 days!!!)

The wiped out time is the WORST!! She's so big and heavy that it's hard to do anything but keep her where she is after. She usually doesn't toally wipe out but these big ones kill her!

 

[Haybuggsmom]

We had fun at the park yesterday. We also added in a small farm that Haylee enjoys walking through. Here are a couple of pics from the park.

Everytime Jonathan would stop her for a pic she would look at him like this. Not sure it ment "tell her to stop" or "please continue to push me"

Jonathan found his new fav place to hang.

Amber keeps missing her senior pic because she keeps getting hurt at cheer so..
we did a little "photo shoot"" while Jonathan and Haylee played!!

Knock on wood NO SEIZURES YET TODAY!!!!
AND this is one of Haylee's favorite days of the year. After a long summer she got to be a bus trainer. So the bus comes and they teach each of the new aids how to load and strap her in. This year was extra good as she has been homebound since spring break. My girl love riding the bus

 

[Mom2mitokids]

I love all the pictures. Haylee is such a cutie pie. I will be hoping and praying that the seizures stay away.

 

[yinyanggirls]

That park is beautiful! I wish we had an accessible one near us. Amber's pics turned out great! (Why does she keep getting hurt at cheer? That's my one fear of putting Tessa in tumbling or cheer) How funny that Haylee loves to ride the bus. Phoebe doesn't mind the ride, but she hates the lift. Three years now and she still cries going up.

 

[Haybuggsmom]

That park is beautiful! I wish we had an accessible one near us. Amber's pics turned out great! (Why does she keep getting hurt at cheer? That's my one fear of putting Tessa in tumbling or cheer) How funny that Haylee loves to ride the bus. Phoebe doesn't mind the ride, but she hates the lift. Three years now and she still cries going up.

We just remembered it was there. We stumbled upon it about 3 years ago and just remembered when we were telling Haylee how she could swing every night if she wants at GKTW. We are blessed to also have one at Va Beach. It's about 45 min from us but 5 min from where Amber cheers so I take Haylee there sometimes while we wait.

Amber is on a level 5 team. Which is the highest level she can be on. THey are the ones you see on TV throwing girls everywhere. This time of year is hard for her level because of learning the new stunts. The first time she got punched in the nose by a girl she was putting up. The next time she was in the air and hit her face on a guys shoulder. It would have been ok but he was really thin. So the bone caught her in the nose. I think cheerleading (competitive) is a fantastic sport. There are injuries in ever sport but if the coaches know what they are doing it shouldn't be injuries. Amber's injuries were fewer when she was a lowe level.

Bless Phoebe's heart. I don't think I would like the lift either!!!! Haylee likes anything bumpy or with movement. She will even ride the rollercoasters in the kids part. And she loves the log flume!!!

 

[Haybuggsmom]

Well..
Look what the mailman brought yesterday!! Of course she showed up about 5 minutes after Jonathan left for a closing shift. It was almost like waiting for Christmas morning waiting. But this morning everyone got up early before Jonathan left for work again and look what came...

A WONDERFUL NOTE!!!

And a BEAUTIFUL BAG!!!

And Haylee's "This is MINE" face

[B][COLOR="royalblue"]Thank you so much for this wonderful gift Melissa! (MomtoAlexnWilliam)
The girls both love zebra print and Haylee loves pink!!![/COLOR][/B]

 

[yinyanggirls]

We just remembered it was there. We stumbled upon it about 3 years ago and just remembered when we were telling Haylee how she could swing every night if she wants at GKTW. We are blessed to also have one at Va Beach. It's about 45 min from us but 5 min from where Amber cheers so I take Haylee there sometimes while we wait.

Amber is on a level 5 team. Which is the highest level she can be on. THey are the ones you see on TV throwing girls everywhere. This time of year is hard for her level because of learning the new stunts. The first time she got punched in the nose by a girl she was putting up. The next time she was in the air and hit her face on a guys shoulder. It would have been ok but he was really thin. So the bone caught her in the nose. I think cheerleading (competitive) is a fantastic sport. There are injuries in ever sport but if the coaches know what they are doing it shouldn't be injuries. Amber's injuries were fewer when she was a lowe level.

Bless Phoebe's heart. I don't think I would like the lift either!!!! Haylee likes anything bumpy or with movement. She will even ride the rollercoasters in the kids part. And she loves the log flume!!!

I guess we would have time to get accustomed to the more daring stunts. I know this little bundle of energy if going to excel in some sport so I'm just going to be trying to help her find which one. She loves doing cartwheels and flips off the couch. I know she would love it but mom has to get over her fear!


That is an adorable bag! I love when Big Givers make stuff that can be used any time any where so we can enjoy it longer! This definitely qualifies!

 

[J'sMum]

Awww, ty for sharing pics , I need to learn how to make pics smaller myself when I add mine they are giant ! you have such a beautiful family

 

[Haybuggsmom]

I guess we would have time to get accustomed to the more daring stunts. I know this little bundle of energy if going to excel in some sport so I'm just going to be trying to help her find which one. She loves doing cartwheels and flips off the couch. I know she would love it but mom has to get over her fear!


That is an adorable bag! I love when Big Givers make stuff that can be used any time any where so we can enjoy it longer! This definitely qualifies!

I think you should let her try cheer or tumbling. Just hold your breath and try to learn about what she is learning. That does help I think.

I am so excited to use her bag. We put it away in the packing bags.

Awww, ty for sharing pics , I need to learn how to make pics smaller myself when I add mine they are giant ! you have such a beautiful family

I think I made them too small now. Do you use photobucket? I can tell you how to do it there.
Thanks. I think they are pretty cute but I'm a little partial!!

 

[Mom2mitokids]

Well..
Look what the mailman brought yesterday!! Of course she showed up about 5 minutes after Jonathan left for a closing shift. It was almost like waiting for Christmas morning waiting. But this morning everyone got up early before Jonathan left for work again and look what came...

A WONDERFUL NOTE!!!

And a BEAUTIFUL BAG!!!

And Haylee's "This is MINE" face

Thank you so much for this wonderful gift Melissa! (MomtoAlexnWilliam)
The girls both love zebra print and Haylee loves pink!!!

Awww!!!! So cute. You need to have your pics just a bit bigger. I'm blind How cool you got your first Big Give.

 

[rcq925]

Awww!!!! So cute. You need to have your pics just a bit bigger. I'm blind How cool you got your first Big Give.

Cute Bag! I agree, try bigger pics next time! I am blind too and can't wait to see the rest of your Big Gives!!

 

[J'sMum]

yes, I am useing photobucket hehe i did squint a bit to see pics but was able to see

 

[Haybuggsmom]

yes, I am useing photobucket hehe i did squint a bit to see pics but was able to see

To add them just click the share and copy and paste the link onto disboards.
I'm going back to make mine bigger now.