Updates on AVERY. (good news update pg 33 post 489!)

[NHAnn]

I have had computer problems today, but seem to be back up and running.

Avery continues to hold his own, and all the prayers and positive thoughts continue to aide him and support his family. He was able to resume some chemo treatments and today was a good "quiet" day.

I did not post the link to Caringbridge earlier out of repect for his immedate family's personal privacy (his parents had asked that I not give any of their personal data on this large public site)...several of you have sent things for him, via me, and many of you have sent prayers and good wishes, and many of you been such personal support to me...I cannot express how deeply we appreciate it all. And I hope I did not offend any of you by not sharing that site earlier. In any event, since the newspaper article, it is all very public out there anyway . DSS and DIL are getting calls and e-mails from their former high school and college classmates.

thanks!!

 

[snappy]

Good news, Ann.

I really love reading Avery's story. Your son and daughter are two awesome people, two awesome parents.

Reflects well on you and your DH.

Hope you all are having a bit of fun this week.

Thinking of you all.

 

[NHAnn]

Your son and daughter are two awesome people, two awesome parents.

Reflects well on you and your DH.

Well, I can't take a lot of credit on DS...he is actually my stepson and DH and I married when he was in his late teens But the apple doesn't fall far from t he tree, for sure and DIL...I just adore her.

Avery is holding his own these days....he is an amazing fighter for sure.

 

[Belle1997]

checking on the updates. Glad to hear Avery is holding his own. What a little fighter he is. But the way I would love to read the article. Can you pm me with it. I did not find the link in these post. Thanks.

And thank you for keeping us informed on Avery I know I really care and hope and pray for his continue recovery and health.

 

[Jake & Crew]

Ann

No offense taken, please do not even go there. Our prayers, thoughts, positive energy are for all of you, most of all Avery. There is no Emily Post in the world of cancer, just love and support.

Praying for Avery to sleep well tonight. Hopepfully the Pats kept his spirits up today.

 

[Mackey Mouse]

Hoping Avery had a good night and enjoyed the game with his Dad... I hope.

Take care of one another.. and more prayers..

 

[Blueeyes101817]

Hope Avery is having a good day today!

 

[TruBlu]

Just checking-in. Hope each day is getting better and better for little Avery!

 

[NHAnn]

Hello...back on after a couple days of computer issues. again...
Thanking you all for continued prayers....Avery had chemo the other day and his white blood count has dropped again ....and there seems to be some disagreement on t e medical team as to whether this is attributable to the chemo or not...but we shall see, and we continue to stand by Avery in this battle!! He is such a champ!

 

[Jake & Crew]

, he is a champ.......this is the worst roller coaster in the world......more prayers and positives Avery's way.

Does his hospital ever consult with Dana Farber or Childrens???

 

[Mackey Mouse]

I would think that it was related to the chemo, but then again I am a lay person..

Tom's platelets are low, that is due to chemo, as far as I know. I sometimes wonder if they truly know how debilitating this chemo is.

Ok.. enough of that, praying for the little guy and hoping he is doing well today..

 

[Belle1997]

Thanks for the update. Avery is still in my prayers. What a little trouper. Praying for strength for the family.

 

[TruBlu]

Ann,
I hope you are all doing well today. Avery is constantly in my thoughts and prayers. My boys and I check for an update every night before bedtime prayers and always say special prayers for him.

I hope you are all taking care of yourselves so that you will be stronger for him!

How is the new house? Are you completely moved in yet?

 

[NHAnn]

Jake-no consults that I am aware of at this point
Trublu- we are hoping to be actually living there within 10 days. Keep your fingers crossed!
Marsha-there are so many times his parents and the rest of us predict or speculate accurately about the ripple effects of all these treatmetns and procedures and side effects....the different specialities (radiology, oncology, infectious disease....all seem to want to sort of fingerpoint at others or claim ignorance on the negatives and self-congratulate ont he positive. But enough of that, as you say, I'm convinced it is Avery himself and his army of warriors and pray-ers that are getting him through this and will bring him out to victory at some point!!!

If you can, at 3 PM today.....send a prayer and/or positive energy/thoughts for Avery....

He's having a spinal tap IF they are successful again like last week in finding a safe entry point amidst the swelling. They will inject chemo at the same time. This would prevent (or at least put off) the need for an ommaya port (which basically is permanent hole in his skull). Last week it (the spinal entry worked.successfully..DSS asked for focused prayers at 3 when Avery goes down to surgery.

thank you my friends!!!

 

[safetymom]

Prayers will be said at 3. I hope everything goes well.

 

[Saphire]

If you can, at 3 PM today.....send a prayer and/or positive energy/thoughts for Avery....

Absolutely. I will lift him up in prayer this afternoon, especially at 3:00.

 

[TruBlu]

We'll be praying here, too. I just called my Mom, and she and my boys will be praying for our sweet little friend!!!

 

[TruBlu]

We're praying. Let us know how it goes.

 

[Mickeyfaniam]

hugs & prayers continued Ann.....

 

[Mackey Mouse]

How did the little guy do?? I hope ok, I hate the sounds of the port in his head, but I know they do this.....Tom had one in his clavicle went into the main vein in the heart for his chemo first time around.

I hope he can manage without it... God love him.. praying for him and you Ann and the family... Please let us know how he is..