Updates on AVERY. (good news update pg 33 post 489!)

[NHAnn]

A quick update to tell you he is holding his own, still steady improvement in his numbers...I had the most wonderful Xmas "gift" and got to see him yesterday morning.

No time for details ...sorry...I am in between houses and computerless at the new house...insanely busy and tired...but happy

thank you for the Christams Miracle prayers I think they are working !

 

[Mackey Mouse]

Ann.. I am so glad you got to see him... we are keeping him in our prayers..

You take care of yourselves too.. Hugs

 

[snappy]

What a present, Ann.

I hope you are able to enjoy more time in your new house soon. I know you are looking forward to it, well that is an understatement.

This is not time to let up on prayers for Avery. I continue to have him and his family on my mind and in my prayers.

Thanks for posting about your visit.

 

[rie'smom]

Hugs and prayers to you Ann and to Avery and your whole family.

 

[Blueeyes101817]

Glad you got to see Avery!
You guys are still in my prayers

 

[NHAnn]

I typed out an update earlier...I don't know what happened to it

Avery's blood counts are continuing to be positive. He has had both chest tubes removed in t he last couple of days and he is "peeing" a lot of fluid so some of his overall swelling is lessening. But he is having a lot of discomfort from a lot of distention in his belly...gas basically. They have put a tube all the way down his throat to his belly to try to relieve this so that in itself in uncomfortable. But he is increasingly alert and communicative .
ALso he had a bone marrow aspiration today. The fact that they even felt they could do this is a good sign, as it has a potential risk of introducing infection ot the marrow which would be very very bad. But his numbers have so steadily moved inthe right direction these last few days, they decided they could do this....which means they are beginning to think about the next step in battling the leukemia if his immunity strengthens at the same rate .....which means they attack it and wipe it out again....scarey thought....but I am so in awe of the power of prayers and positive thoughts now....
hard to believe it's a month since diagnosis....

 

[Jake & Crew]

Ann

Been off the boards the past week, could not wait to get on and get to the last page.....missed what has happened since the 19th but am thrilled he is in such a positive position he can attack it so aggressively! ( Been aggressively attacking my own this week which why I have been off line, but think and pray for Avery often.)

The pain must killing all of you to watch, know how much you want to make it your own and take it away. Focus on the positive, he is so comforted by your love and we all will keep praying he gets as much comfort as possible. Most of all, we will keep focused on beating the monster forever so he can go back to be a little boy with a long, happy life!!

Stay strong, stay sane, laugh and love everyday!!! You are so needed by your family, you are so loved by your Dis family...we will keep praying for your strength!

 

[Mickeyfaniam]

checking in Ann.. sounding positive.....thats good
Continued hugs & prayers for you and the family

 

[Shellie722]

Glad to see some positive results here!!! Continues thoughts and prayers for Avery and your whole family, Ann.

 

[madaboutMickey]

Great to hear he is improving! Will continue to keep him and your family in my prayers.

 

[Saphire]

I am so in awe of the power of prayers and positive thoughts now....

Me too. Continued prayers for Avery.

 

[Mackey Mouse]

Came on tonight and had to check.....I am so glad to hear that the numbers are going in the right direction and he is so alert. God love him.. and I am still praying here.

Hugs to Avery and to NHAnn for keeping us in the loop here, I can only imagine how your life is upside down right now and yet you still make the time to let us know what is going on with Avery.

 

[pumba]

NHANN.......you and your family are never far from my thoughts even if I am not here.......Please know that I am praying and keeping those prayers going for Avery .......Just know they will be great.....

And Marsha......same goes for MY TOMMY........he has a special place in my heart that is reserved for him......

 

[NHAnn]

Marie!! I know you are with me in spirit and I appreciate it

Avery's white blood counts have continued to show very positive encouraging results and the yeast infection seems to be conquered. The last 36 hours or so though, he has been having fevers off and on. A lot of things cultured and scanned and analyzed today...they are not sure the source. I am thinking myself that this is the the result of the revived umune system reacting to all the tubes and meds and such. (That's my story and I'm stickin' to it!!!) Which they talked about a week or so ago (that once his WBC went up he'd be sicker when the WBCs attacked the infection(s) ----but now feel they need to scan this and culture that and talk about potential new infections Sigh
Also...Avery has always had allergies and sensitivities to "stuff" dust,pollen...had skin sensitivities like eczema...so can you imagine this little body reacting to chemo and then VERY strong antifungals and antibiotics and tubes everywhere?? Apparently today the place where the chest tube was removed was itchy and inflamed--and the little bugger stuck his figner right INTO the hole to scratch it...until they taped it all up with layers of plastic and gauze...good grief!! He totally grossed out his mom!!
One very very good piece of news today was that the preliminary results of yesterdays' bone marrow aspiration showed no leukemic cells. This is preliminary and doesn't mean there are none there...it does mean though that in the last couple of weeks while battling the infections, the leukemia has been kept at bay by the steroids. And when he is able to resume chemo treatment for the leukemia, it will be at the "consolidation" phase rather than have to repeat or extend the "induction" phase he was in when he had the setback.
So we are all trying to keep up the prayers and psoitive thoughts for his continued progress!! Thanks!!!

 

[Mackey Mouse]

I loved reading that this morning..

Way to go Avery, keep up the good work.. we will keep up the praying and who knows we may just pray you right out of that hospital.

Hugs to you Ann....

 

[Mickeyfaniam]

more praying Ann

and too funny about the scratching

 

[TruBlu]

Fantastic report Ann! Just reading it brought tears to my eyes. There is no stopping your little man!!!! I can't wait to read that he is home with his family.

Isn't the power of prayer amazing???

 

[NHAnn]

Avery had another quiet day...quiet is good, and more chocolate for the doctors! is temp has fluctuated but not spiking as high as yesterday, a good thing too.
He actually had some PT today, work a little on those muscles as he has been in bed for three weeks straight now. He's complaining of some pain in his right shoulder, and also where they took out his chest tube on the left. But they are trying to ease up on narcotic painkillers, so as to let his digestive system work a little better, which would lessen the abdominal swelling and allow his lungs to expand better, which would hasten removal of the respirator..... and the hip bone's connected to the thigh bone and the thigh bone's connected to the knee bone, and so on and so forth

Keeping those prayers and positive thoughts going !!

 

[Blueeyes101817]

prayers still being said for avery and your family!

 

[NHAnn]

We had a nice visit with Avery and DS and DIL this morning! He had been given some pain med while we were there but he did recognize us and apparently early in the day he had some wonderful really lucid "Avery" moments with his daddy before the days poking and prodding began. eE is such a trooper!

He is doing well tho still in ICU...things are much more quiet and boring...we like quiet and boring! Only 3 "tubes" remaining...the respirator one, the catheter and the PIC line.

THANK YOU again for the prayers and support!