The THYROID Thread

[SingingMom]

Also she had to have scans every year. Glad my rad. onc said only 2 cleans and then just blood tests and sonos.

I almost fell on the floor when I read she said she had scoliosis surgery as a teenager and thought that was it. I had the same thing!!!! I also questioned the rad. onc and told her about this since I had so many xrays of my neck and spine since one of my curves was in the neck area, not counting the other 2 curves over 80 degrees of my spine. She said no, hmm. Too much of a coincidence here.

Well read it and see what you think.

Haven't read the article yet, but your rad. oncologist, I think, was misinformed. I have read in many sources that multiple xray radiation in the area could be a prelude to thyroid cancer.

 

[macraven]

Back from Orlando vacation last Thursday night
Getting ready to leave for Atlanta weekend mini vacation Friday morning

Hope all are doing fine

I'm still googling endo docs so I can get set up locally
Tired of communicating with chgo endo

So far all I can determine is to use Emory or Vanderbilt

 

[luvmarypoppins]

Haven't read the article yet, but your rad. oncologist, I think, was misinformed. I have read in many sources that multiple xray radiation in the area could be a prelude to thyroid cancer.

Yes I think she was. I even have 2 folders of my old xrays as a teen to prove it. Well she did write some chapter in a thyroid cancer book. I think she might have retired now. I dont know. I really didnt get along with her at all. It was like a love hate relationship. Loved it when I didnt have to see her and hated it when I had to see her, lol! She just lacked compassion. I am like a peach personality. I need the compassion and encouragement, especially when it involves the Big C word!!

 

[luvmarypoppins]

macraven - hope you enjoyed your trip and can find a endo who you can work with.

Well we are back from the vacation. All in all it was a good time. Poor ds3 went there with a really bad cold. He was miserable up until the 3rd day. He pushed me alot. I usually walk alot with dh but ds3 wanted to do so much that there was no way I could walk and keep up with him. He would go back and forth at the parks where dh and I would usually take it easy and do less things and make one loop or stay in one area.

It was hard changing hotels 3 times but it was necessary to get a room and that conference at the Swan and Dolphin we had to deal with. Ugh. Lots of music to wake us up. Tons of people to get by if you didnt time it right etc. But we did get to swim in storm a long bay twice.

Ate lots of stuff at food and wine. My favorite was the chocolate nitro thing and the lobster roll as usual. Eating a lobster roll and listening to Chris Cross singing Sail Away in the background - doesnt get any better than that!!

Food wise - liked the new Jungle Skippers place, ate at Ohana with perfect timing to see Hallowishes from the restaurant (not the greatest view but still great), I got sick from the food later, dont ask, the usual gastro stuff. I knew my stomach would not like the spices and I even tried to drink milk with it. Ate some pizza from the Boardwalk pizza window, first time and it was terrible! I guess we are officially NY pizza snobs! At the Yacht Club we got upgraded. I dont know if it was officially a water view or garden view, but right to the right of our balcony was the wedding area and we looked right across crescent lake, awesome room view!! The Swan rooms were ok. An inside view of their resort and the other room I didnt get a chance to look at. They gave us a semi handicapped room, didnt ask for this but it was only for one night. It had a weird bathroom sink setup and at least it didnt have a walk in shower.

Got to ride Frozen, I didnt want to do this. It was ds insistence. It broke before we got on but we waited. Its a one and done for me. They both had to help me in and out and the plastic hurt my knees. We all loved the new Soarin and ds and I did the AK at night, loved the tree but we didnt do the night safari. Seeing all the Halloween costumes was fun. My favorite was Buddy the Elf. That guy was so spot on and funny.

While we were there ds found out a boy in his elementary school class passed away. This is the 2nd boy from their school who passed away in the last two months. He unfortunately made some bad life choices as well as the first boy But this one was married with a little girl, just so sad. Oh and on the good news front - our van is finally getting fixed. The lst estimate was 3900 and now its over 6k. Guess it was much worse than we thought. This insurance company gets one star on yelp and they said all the stuff dh has had to deal with, lies, non return of phone calls, non picking up of the phone, getting cut off on purpose , etc. Thank God we werent injured. I cant begin to think what a nightmare that would have been.

Well Halloween day I am getting a big treat. I have to go see the new dr. who is holding my mammo script hostage. This should be interesting. I am having dh stick to me like glue especially since I dont do well with drs. He also needs to get a new dr. He goes to another part of the univ and I dont know if he should switch to this area since they focus more on older patients. He does like one dr. there who I saw during a sick visit.

Hope everyone is doing well.

 

[prprincess]

Haven't read the article yet, but your rad. oncologist, I think, was misinformed. I have read in many sources that multiple xray radiation in the area could be a prelude to thyroid cancer.

Is this article still up? I am curious because both my cousin and I had our tonsils taken out in the early 1970s as little girls. We both had several sets of xrays done and we are both the only people in our family with these issues--I had thyroid cancer and my thyroid removed, and she is in the process of having her right lobe removed due to cancerous nodules.

 

[luvmarypoppins]

The article was from Yahoo Health News but they said it was originally from Prevention Magazine.

Very interesting observation prprincess.

 

[luvmarypoppins]

Well Happy Halloween to all the thyroid peeps here.

I liked my treat today alot. Hmm, looks like I am really going to like this doctor for a change. She is cute, perky and full of energy and thank God not test crazy like the other dr. She does have one annoying habit, she talks pretty fast and was walking around alot.

She only ordered the cholesterol and diabetes blood test which the endo does not do. Got a flu shot and got the mammo script.

Only negative things she said was lose weight and get a pap test. Um, I think she got the message I was not thrilled to hear about going to another dr. again. I tried to tell her I avoid that dr. as much as possible and anyway the one I went to in that group left too so it would be someone who took over for her if even that person is still there. Unfortunately with the teaching hospitals I see alot of the newer drs. are just using this as a place to put on the resume and if something bigger and better comes up then they are so out of here, same with other young ones in different professions today too.

So I hope in the future I will get along with this dr. She said she will call with the blood tests results and the mammo results.

 

[prprincess]

Good afternoon, thyroid peeps! No news on my front. Just wanted to share that today marks the 6th anniversary since my cancerous thyroid was removed. My life is definitely no longer the same, but I'm grateful to still be here! Hope you're all having a great day!

 

[luvmarypoppins]

Congrats prpincess on the 6 year anniversary! That is so awesome. I called it the cancerversary (credit to Anne from the Breast Cancer Thread).

And in the newest treat department that dh got in an e mail yesterday. His work told him that in order to avoid layoffs and due to the reduced funding the place got they are all going to get a nice 1% raise next year. So it doesnt matter if you are a good or bad employee, work your tail off or not, that is what you get. It will probably be a negative number if our healthcare costs go up. I havent gotten or read that stuff yet.

 

[Imzadi]

Hi! I'm new to the thread.

 

[Christine]

Imzadi, that sounds awful. Unfortunately I have no experience with a compounding pharmacy. I thought at one point I would because I felt like I was having issues with the fillers in Synthroid. For me, it is the povidone. So I used Levoxyl for years, but then it was pulled off the market for awhile and I went through a series of T4 replacements and conversed with lots of pharmacies in order to find one without povidone in the filler. It was a nightmare. I finally did get back on Synthroid and have been absolutely fine with it. But it is stressful not to be able to get your meds when you need them. I assume you have researched all brands/generics of Cytomel to see if there is someone who makes it without the acacia?

 

[Imzadi]

I have only started to research alternatives.

 

[luvmarypoppins]

Imzadi - I hope the new pharmacy works out for you. I know there is one her by me in LI that compounds but I only had them order a special drug for me once since they had to get it from Canada and no chain around here stocked it, but it was not a compounded drug script. Wishing you all the best.

I need to work on the mammo and blood test stuff. Maybe next sat. Add to that the eye dr. and dentist too.

Our van is finally fixed and looks great again.

And since dh had the day off yest. we booked the disney trip for Dec. 12-17. We are staying at the Swan, of course our deluxe lite and money saver. The 14th was sold out so I had to use dh ff miles for that night. Glad I always keep some on hand. My new mindset is just to book the cheapest room. We dont actually stay in the room long enough to care about the view.

The dining stuff was slim pickings so I just took what we could get. Early dinner Mon. at Rose and Crown since our flight arrives at 9:30 am. Tues. 13th, tues. early dinner at LTT and then going to MVMCP, wed. we are eating at 1900 Park Fare. Did this because I want to see the christmas tree and gingerbread house and didnt want to make an extra trip here just for that. Never did the dinner so we shall see. I hope its not too kid crazy but I am sure it will be. I just wasnt liking the menu at citricos all that much. Thurs. I hope we can make it to see the new show at DHS and then we will have a late dinner at Via Napoli. Not liking this too much either but the Trattoria Al Forno times didnt work out for us and then Friday we are having an early breakfast at Captains Grille and having the candlelight package so we can see the 8:15 show. Again I picked this to save the most money. The lunch options were almost $50 each and the breakfast cheapest price is $27 so we took it. I did ask dh who he wanted to see either Meredith Viera who we saw before and was good or Jim Cavezeil who played Jesus in the Passion of the Christ. He said, lets go with Jesus this time. Also the first night we are there is Robby Bensons last night, maybe we can just go by and listen. I am sure his voice will be fantastic since he did the Beast voice. I am all about saving money these days. I got dh flight down free from Southwest points. So we shall see how all of this works out. Still need to get the christmas party tickets, renew dh annual pass and make the fp times.

 

[SingingMom]

I leave Saturday for a quick four night visit to see DD. We are going to meet up with our ABD guide from Central Europe, who will be in town from the west coast. We are planning on seeing the new Christmas show at HS and the new projection show at MK before Wishes. Since DD is working on Thanksgiving and I am returning home the night before, we are going to Liberty Tavern for an early "Thanksgiving" together. She's coming home for a week at Christmas (yippee!) and then I'll go back with her for a week. DH is very busy with work, so I don't think he'll be able to join us for the New Year's trip. Starting to think about Italy ABD for May/June. Checking when DD can take the time off to accompany us!

Echocardiogram & stress test Friday. Endocrinologist when I return from Florida. DH's insurance changes January 1 from United Healthcare to Aetna. Not looking forward to switching pharmacy and mail order Rx.

 

[luvmarypoppins]

singing mom - I would like to know how the HS new show is too. Let us know. I am also wondering where a good view would be with keeping in mind we want to high tail it out of there and get in line for the boat back to Epcot. We are with you in the LTT dinner.

We have Aetna right now too and I dont know if we will still get that in Jan. I havent read all the lovely literature that dh gave me. They are making us get the meds through cvs for 3 months. I have never done mail order with Aetna or from Cigna or any other ins. that dh had. I dont even know what ins. co.s are our choices for next year yet. The place is all about saving money too.

Have a great trip.

 

[macraven]

Hope you have better luck with Aetna than what my son has

Since his insurance changed to Aetna, past meds are not covered by them
Makes him a cash customer for it now

 

[macraven]

does anyone here have PTH issues?

 

[luvmarypoppins]

macraven - I had to look u what that meant. I know there was a young girl who posted on here quite a while ago. She lost some of her parathyroids during the cancer surgery. I know she had a lot of issues with tingling in her hands and had to take calcitrol.

Hope everyone had a nice Thanksgiving. We had ds2 gf over. She is quiet and nice. She is gluten free so she couldnt eat some of the food we had but she did ok.

Think I am getting a slight cold that I probably got from ds3. He is applying for the masters program in family nurse practitinor. I hope he gets in this time. It is just so competitive.

 

[macraven]

LMP
I looked thru this thread off and on but did not notice the mention of PTH

If you find that post, please direct me to it

I know the parathyroid glands have nothing to do with the thyroid gland

Received my lab results and my dosage of synthroid is being adjusted again
This makes it the 6 th time in the past 34 months

Since I have been unsuccessful with finding a new endo in my area, will need to stay with mine up in Chicago land until more lab tests are done

 

[luvmarypoppins]

I have been reading all your posts but have been in denial lately. Since I went back to work and things have been kind of normal it is easy to pretend like this thyroid thing never happened. And then someone asks about the scar on my neck. Back to reality.

I had my first endo visit this past week. She says the numbness I feel is due to lack of calcium. She thinks the parathyroids have basically died off and apparently they control how your body absorbs calcium. So now I am taking calcitriol (a prescription to help calcium absorbtion) along with 2,000 mg calcium every day. Additionally she changed my synthroid dosage from 150 to 188. I recently met someone taking natural thyroid. Anyone have experience with this? I asked my endo and she said it isn't controlled enough or studied enough for her to trust it. But the woman I met who takes it swears by it. I don't know much about it.

Anyway, hope you are all feeling and doing well.

macraven - here is something. As you see it goes back a bit. I miss Jenn and hope she is doing ok. She is from my neck of the woods.