Susan's Quest for Good Health After a Celiac Diagnosis (comments greatly appreciated)

Susan, all i can say is WOW!! I read your whole journal today from beginning to end,and i feel like i know you already! I am so proud of you and how far you have come considering the obstacles you are dealing with.. you should be proud of yourself!!
As for the 5k -- i know what you mean, i think i am crazy sometimes too, but i am determined to be able to do it.. I know the people here on WISH are huge supporters and very inspiring to me - including you!

Hope you are doing well, keep up the great work!!
 
Hi Susan!

Just wanted to stop in and wish you well on that back pain. I have dealt with my own version of it and kind of know how painful it can be. Strengthening the muscles around the spine is the best remedy IMO. I hope you can get it under control and move forward with your 5k plan :) How exciting!! Awesome goal and plenty of time to get out there and ease into it...I'll have to throw out "journaling sisters" and rename you two "running sisters" before too long :)

Have a great weekend!
 
Thanks to everyone for your kind words. I am REALLY hating this back injury thing. I mean, I'm sure anyone who has a back injury hates it, but I REALLY hate it for two reasons:

1. The only thing I have ever done that hurt worse than this was have a baby without any pain meds. That only took 4 hours - this has been going on for 8 days (and shows no signs of going away quickly).

2. I am leaving for WDW in ONE WEEK and my chiropractor has given me my instructions, none of which I am happy about. Here's what he said yesterday:

I can't ride any roller coasters or anything that will jerk or bounce me around (think Expedition Everest, Dinosaur, Primeval Whirl, Rock 'n Roller Coaster, Tower of Terror, Test Track, Splash Mountain, Space Mountain, Big Thunder Mountain Railroad (if it were going to be open) - yeah, all the really good stuff). Okay, I'm bummed about that, but I kind of expected it. I mean, no one in this much pain is going to be able to ride that stuff without suffering for it, so I can accept that. But THEN he said I won't be able to do all the walking in the parks, so I have to RENT A SCOOTER!!! Now, I have fought against this idea many times in the past when I have been fighting fibromyalgia pain or other health issues because it felt like giving up to me. I know it's not, it just feels that way to me. And now - I DON'T HAVE A CHOICE. I HATE it!! If it was just going to be the three of us, it wouldn't be so bad - we are DVC members, so we go a lot and I know I will be going back. That's not what's bothering me. But we have family coming from North Carolina (on my DH's side) who haven't been to WDW in 20 years. They have had some really tough personal issues in the last couple of years and I SO wanted to be able to give them a PERFECT trip (or as close to perfect as I could make it) and now THIS. Oh, I was so upset last night - I cried for almost an hour and had great difficulty sleeping just from thinking about all this.

So today, I e-mailed Stacie and told her all about this stuff. While she was sympathetic, she reminded me that I was STILL going on this trip and it was GOING TO BE FUN no matter what, so I should stop stressing. Easy for her to say, huh? Except she's right. Once I stopped being all emotional and thinking about what I couldn't do on this trip, I realized that maybe this is one of those life lessons we get every once in awhile. See, I have a tendency to take care of everybody else before I think about myself (does this sound familiar to any of you out there????) and I am particularly bad about it when I have extended family staying with us at WDW. It is my escape and my favorite place in the world, so when someone who doesn't go as often is there with me, I want to make sure they have an awesome trip and I do everything possible to make that happen. Well, this trip I'm going to have to think about myself and what I need and let everybody else take care of themselves. That's something I said I had to do in my very first post on this journal, and now I'm being reminded (extremely painfully, but reminded nonetheless) that I HAVE to listen to my body and look out for me or I can't do anything for anyone else. SO - I called and ordered the scooter rental this morning. I have resigned myself to not riding almost all of my favorite rides (they'll be there when I go back again) and I'm trying REALLY HARD to just be VERY GLAD I am getting to go on this trip at all.

I am also struggling with my eating plan right now. Not only am I not able to cook and having to eat out a lot, but I find myself wanting to do lots of emotional eating which is a BIG obstacle for me. I haven't been perfect this week, I'll admit it, but I HAVE resisted the urge to just lose all control and eat everything that comes my way. When I decided I wanted to have a treat this week, I have shared it with someone else so I'm not eating as much of it as I once would have. Since I need to practice with a scooter this weekend (me trying to back that thing onto a WDW bus is going to be a trip), I am planning to go to the grocery store with my DH's help, get in a little scooter practice and buy groceries. Of course, COOKING them will be extremely difficult, but I am planning to do my best to cajole my DH or DD (or both) into helping me. Wish me luck!

I have another chiropractor's appointment this afternoon and one tomorrow morning (that will make four adjustments this week), so here's hoping by next week I will start to feel some benefit that lasts for more than a couple of hours. I am really thinking my back doc is a nut to tell me I can run a 5K race in May when I can barely walk now, but he is confident it can be done so I am going to trust him and hope for the best. I hope you all have a great weekend!:goodvibes

P.S. Scott, the "running sisters" has me :rotfl: - I don't believe anyone has ever put me and running in the same sentence before. I think it will be as much mental training as physical training. There is no way someone like ME should be referred to in any way, shape or form as a runner. I am so heavy now I can barely walk. But hopefully, as I make what attempts I can at training for this thing, the pounds will start to go and I will gain more confidence in this endeavor. Thanks again to everyone for your support!
 
Susan - First off - (((((HUGS))))) :grouphug:

Second -- don't let this get you down and off track! You are such an inspiration to me, and i could really feel your pain in your post, and it brought me to tears.. Please, be thankful in the good thing you are blessed with, and the ability to be able to at least travel to WDW. Take time to enjoy the things there that you might normally overlook if you were too busy going on all those rides.. In other words, take time to stop and smell the Disney flowers!!

Chin up, and take care of yourself!!! :goodvibes
 

HI SUSAN SO SORRY TO HEAR ABOUT YOUR BACK. WHEN YOU GO TO DISNEY PLEASE TRY TO HAVE A GOOD TIME AND NOT WORRY ABOUT ANYBODY ELSE, I'M SURE THEY WOULD UNDERSTAND AND ENJOY THEMSELVES.IT IS IMPORTANT TO TAKE CARE OF YOURSELF AND GET BETTER.SO SORRY FOR THIS MAJOR SET BACK. BUT TRY TO STAY POSITIVE AND THINK OF HOW MUCH BETTER YOU WILL FEEL WHEN YOU HEAL.WELL HANG IN THERE,TRY TO RELAX AND TAKE IT EASY THIS WEEKEND, OH AND TRY NOT TO RUN ANYBODY OVER WITH THAT SCOOTER I KNOW THATS WHAT I WOULD WIND UP DOING!BYE!:flower3:
 
Hey there!!! I just want to re-state that I am very sympathetic to what you are going through. I know it's hard not to get all caught up in the emotional part of it. I'm one of the first to get emotional, (think sunburned, blisted face in Mexico where I thought I would have scars the rest of my life!), but WE are BOTH THINKERS too. I want you to realize I feel you pain and disappointment about your back and your Disney trip. I know how much you love Disney and you've always made our trips FANTASTIC! DH's family will have a FANTASTIC time too--you walking or on a scooter--they will have a great time. Think "Disney Scooter Adventure" I just wanted to throw the "thinking" stuff out there to help you not completely freak out (although, i can't really picture you freaking out! you are always so calm!) Maybe I should have been more sympathetic in my e-mail... Sorry! :guilty: Sometimes I tend to be more matter of fact/drill seargent like dad!

I hope your Dr's visit went well this afternoon and goes well tomorrow morning!

Love you lots!!! Feel better soon!!! :love:
Stacie
 
I want you to realize I feel you pain and disappointment about your back and your Disney trip. I know how much you love Disney and you've always made our trips FANTASTIC! DH's family will have a FANTASTIC time too--you walking or on a scooter--they will have a great time. Think "Disney Scooter Adventure"

Aha! I think you just named her Trip Report title for her!! :lmao:

Susan, hope all goes well with the dr. - i will be thinking about you! Just concentrate on taking care of YOU til your trip! :goodvibes
 
:hug: Susan,

I understand where you are coming from. Right before our Disney vacation a few weeks ago, I was in the hospital with an infection. After lots of antibiotics, they sent me home the day before we were supposed to leave. That night, I firmly decided that we weren't going to go to WDW because it wouldn't be the "perfect" trip I had been planning. I might have to rest more than usual...I might have to take meds that would make me sleepy...I might spend a lot of time resting, e.t.c. Long story short, I woke up the next morning and decided we would go. We went and had a great time! Yes, I did move slowly and yes, I did have some pain and yes, the meds made me sleepy and I had to rest a lot, but it was a great trip! You will have a great trip too and like Caitsmama, I think Stacie gave you a great title for your trip report!:woohoo:

Take each day as it comes and know that very soon, you'll be hanging out in WDW with your favorite mouse. ;)

Have a great weekend!:hug:
 
Hi Susan!

Hang in there! Back pain is a nasty thing to deal with and I'm sorry that you are going through the aggrivation and frustration associated with it...but you are visiting the dr and you'll be back on track soon. You are right in thinking that you have to take care of your health..take care of YOU...you've got some great goals and things you want to share with others, so following dr orders is a good idea right now.

You know, when I get back from a vacation at Disney it's not really the rides that I think about first. It's the company I've shared with others and just the overall good vibe and feeling that WDW brings forth. Not riding some of those attractions may also allow you to stop and appreicate everything else that WDW can be. It's SOO MUCH more than a ride park. Don't worry about the scooter....I bet the trip will end up awesome in it's own right.

Hang in there and have a good weekend!
 
JUST STOPPING BYE TO SAY HI.WAS THINKING ABOUT YOU LAST NIGHT WITH THE SCOOTER AND WAS WONDERING HOW YOU WERE DOING. I WAS THINKING ABOUT WHAT YO SAID ABOUT NOT GOING ON ANY OF YOUR FAVORITE RIDES AND I KNOW YOU ENJOY THEM AND WILL MISS THEM BUT I NEVER GO ON THE RIDES (THEY MAKE ME SICK) AND THAT IS MY CHANCE TO STOP AND ENJOY MY SURROUNDINGS I ALWAYS WIND UP TALKING TO PEOPLE (WHICH I SELDOM EVER GET A CHANCE TO )TAKE PICTURES FOR PEOPLE,I ALWAYS GET A FAST PASS AND GIVE IT TO SOMEBODY.SO HANGING AROUND WAITING FOR OTHERS TO GET OFF THE RIDES IS NOT THAT BAD I ENJOY THE BREAK.:flower3: YOU ARE STILL GOING TO HAVE A WONDERFUL TIME.
 
Hey there! Just checking in to see how the weekend went... Did you test out a scooter??? :goodvibes
 
First, I want to thank ALL of you for your good wishes and compassion. It helps - it helps a lot.

Stacie: You were completely sympathetic in your e-mail last week - I never felt like you didn't understand or weren't feeling my pain. You were absolutely right - and you helped me get to the point that I am okay with however the trip goes. It will still be a WDW trip and that HAS to be a good thing! No worries, sweetie - everything's cool.

Stacy: Thank you for your kind words. I am genuinely awed by people like you who take the time to stop in and post a reply because they care about someone they have never met! I am planning to enjoy this trip and not stress about what I can't do, and you helped me get there in my head. Thank you!

Tracy: Thank you for sharing your story. It helped me SO MUCH to hear from someone who has been in a similar situation and still enjoyed the trip - and had their family enjoy the trip! Now I am finding I am not as stressed about what won't happen - I am more looking forward to the good stuff that WILL happen. I appreciate you taking the time to post that for me - it was a great help.

Scott: Thanks for the suggestion to strengthen the muscles supporting the spine to avoid further injury later down the road. How does one go about doing that? My DH insists that sex is the best exercise for the back that exists, but I think he has ulterior motives!!:rolleyes1 Seriously, any suggestions you would have for specific exercises would be greatly appreciated. And you're right - it is the good feelings that a trip to WDW creates and spending time with family that are important. I am planning to enjoy every minute there - thanks for the reminder!

BigMama: Thank you for checking in on me. I am going to take the scooter thing slow and easy and hopefully I'll get the hang of it quickly. I am looking forward to "smelling the roses" at Disney. I have always been a "ride everything as much as you can" type of person, so this will be a new experience for me. Thanks for sharing how much you enjoy down time in the parks.

Thanks to everyone else I might have missed who posted encouraging thoughts for me - I appreciate it greatly!

So, here's how my weekend went:

Went to the chiropractor on Saturday morning. He tried to adjust my back as much as he could, but he said there was so much swelling and inflammation that it was hard to get anything to move that he wanted to move, so he finally stopped (and I was glad - that was not a fun session!!). He said for me to go home, ice the back as much as possible and drink lots of water (because that's what makes the joints move). So I had to abort the trip to the grocery store and scooter practice because it was so incredibly painful to get in and out of the car that it was all I could do to get from his office back home. My DH went to Walgreen's and bought me a larger ice pack, so I would have one that covered the entire low back area. Spent the rest of the weekend resting, icing, drinking water and watching TV. There are worse ways to spend a weekend, I guess.

My DH and DD went to the grocery store yesterday and, with my list, bought items that could be fixed quickly (like microwaveable vegetables and meats that could be heated up without much fuss). Still not as good as my ediets stuff, but better than take out food. I am just trying to maintain. I would love to get to the point that I can shop, cook and exercise again without gaining back anything that I lost already, but if I do, I'll just take it off again. Still, I don't want to lose too much ground, so I am trying to take a moderate approach to my eating until I can be in full control of what's available again.

So I'm back at work with my new ice pack on my back, still drinking water and trying to get through my bus ride and work day. I have another chiropractor's appointment this evening - hopefully this one will go a little better than Saturday did. Thanks again to all of you for your concern and well wishes. I'll keep you posted on how the week goes. Have a great day!:grouphug:
 
Susan -- Take care of yourself.. I think about you everyday, and check in to see how you are doing, b/c it's people like you - who are in pain more than i can imagine, and you STILL find time to come on the DIS and update us and inspire and encourage us all.. Thank you!!
Hope your dr. appt today goes well..
 
:hug: Susan...I've been thinking about you! How are you feeling today. I'm so sorry you are having to deal with that excruciating back pain. I know that it must be so disappointing to not have certain rides to look forward to at WDW...but I totally agree with Scott. Just try to enjoy the pleasant atmosphere and all the little things that make Disney so special to us here on the dis ;). I know you will have a great time...I just wish that things could be different for you! It just totally stinks that you are trying so hard to make this positive change in your life and yet you are faced with these obstacles. Stay strong Susan! I know you can get through this!!!

As for back exercises...once you are healthy enough and pain free enough to go back to exercising (with your Chiropractor and Doctors approvals)....I'd love for you to try some core work. If you can find yourself a good Pilates instructor...and I will help you locate one if you would like me to....It would be so beneficial to spend some one on one time with an instructor. I know it will cost a bit more but it will be worth it for you to take a few personal classes...from there you can do mat classes in a group setting. The idea behind core muscle strength is that you strengthen the muscles of the transverse abdominals, the obliques and the lateral back muscles. This creates a corset of stability that allows your back to be stabilized and hopefully prevent further injury to a sensitive area. Stronger abdominals and hips will definitely help to keep you injury free in the future!

Good luck Susan. Keep us updated when you can! I know you can get through this...it seems bleak right now but I know things will get better for you soon! :sunny:
 
Hey there!!! Just checking in! So, is DH and DD cooking for you? How's that going??? How's your pain level???

Stay positive! Once you get this back thing under contol you'll back to eating healthy and training for the 5K!!! :woohoo:

Take good care of yourself! Don't overdo it getting ready for WDW!

Amy is right... If you can find time, working on strengthening your core is very important. It will help you in general since you've had this injury, but also as you start training for the 5K. That is why I'm adding it into my schedule. It is also something you can do at home...

Hope you're feeling better! Love ya!
Stacie
 
:hug: Susan,

I hope your back is feeling better today. Did the ice help? I think once your back is healed adding core exercises in to your workouts will help a lot. I haven't done any core in awhile and my back feels the difference.

Remember, take things day by day and know that you will soon be hanging out with our favorite mouse!:banana:

Have a great Tuesday!:hug:
 
Hey, everybody. Chiropractor's visit yesterday went a little better. He said he got everything to line up like it was supposed to, but of course it won't hold yet. I am still in pain, but it is not quite as bad. When this started, it was 10+ on a scale of 1 to 10. Now I'm at about a 7, so that's not too bad considering I've only been to see him five times. He says if the adjustments go as well on Wednesday and Friday as they did yesterday, I should be able to make the trip without being in acute pain. I will still have "discomfort," but not acute pain. I guess that's the best I can hope for at this point, so I am cautiously optimistic about the vacation.

Yes, DH is cooking - in a fashion. It's not like what I would make, but it's better than take out, so I'm not complaining.

Amy, I will PM you for suggestions about Pilates when I reach the point that I can physically consider it. Don't know if I will have the $$$ for it, but would like to check it out. Might have to go the route of a DVD at home, but we'll see. Thanks for being concerned for me and offering your expertise - I appreciate it!

Looks to be a busy day, so I'd best get to it. Hope you all have a good one!:grouphug:
 
:hug: susan,

I just read your journal. You are a truly amazing woman.

I hope your back is feeling better. I understand your frustration. I was on bedrest with my pregnancy. It is hard having to rely on others when you'd rather do it yourself. As for WDW, taking a relaxing trip may be what you need. Your friends will understand, and they will have a great time. They are in the happiest place on earth with good friends.

Feel better,
Beth
 
Susan, glad to hear you are doing a bit better!! :) At any rate, you must be getting excited to be going to WDW! Just to be there and soak in that magical atmosphere is awesome!! I am going in 5 1/2 weeks myself, and can hardly wait!
Have a great day!
 
HI SUSAN JUST CHECKING IN ON YOU WONDERING HOW YOUR BACK IS DOING. HOPEFULLY YOU ARE FINDING EACH DAY TO BE AN IMPROVEMENT. HANG IN THERE.:flower3:
 














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