No GF Pirate Cruise For You*! *If you have a nut allergy, that is!

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OK, the OP is angry because Disney is not being consistent - wake up and greet the world, as the world is not consistent! Yes, it is frustrating, but Disney has the right to offer peanut butter sandwiches on the Pirate cruise, and it doesn't have to change the policy for anyone.

Disney does not even have to be consistent about it's policies - it can change it's mind today about something, and change it again tomorrow. All they have to do is offer a refund if you don't like the change.

When I worked in a kindergarten classroom, there was a special needs student who would only eat peanut butter and crackers. There was another student in a different classroom that was severely allergic to peanuts. Quite a dilemma! They will be in school together for 13 years - and they will have to learn to deal with it.
 
You know, the issues of food allergies goes well beyond the pirate cruise. And I know that for me, my disapointment in my kids not going on the cruise is more because its ANOTHER thing that they cannot do, not because its so awful that they miss one event.

Having a nut or peanut allergy is a life changing event. It truly changes how your life works. Sending my son to school each day is a leap of faith- I put my son's life in someone else's hands, because exposure to tree nuts will be extremely dangerous for him. His got a great teacher, he's 5 and well aware of the rules (ie: we dont eat anything unless Mommy tells him it is ok or Mrs S- his teacher- checks it). DS will turn down bday cake everywhere because he's worried. This allergy sets him apart, makes him different than other children. And its a noticeable difference. DS cannot just go to soccer, we have to make sure that we are in charge of snacks. Birthday parties are the same, it requires checking the cake, the snacks, the child next to him. We cannot just go to a movie, we have to check whats offered for food without him to make sure that there are no major allergy foods that could be airborne. We cant walk past a candy store in the mall. We cant eat out whereever we want, we have to check the menus, talk to the kitchen, look at ingredient lists. There are so many things that we cannot do and so many things that my son misses.

I know for us that part of what makes WDW a vacation is the ability to eat out, to not worry quite as much, to not have to keep DS away from events. Is there a risk involved? Absolutely- and we pay attention to everything every where. We check his skin if he begins to cough, because it could be the beginning of an allergy. But overall, its a little easier and its worth the $$ because of this. Its nice to watch DS be a child, not a child who is aware of how severely he would react if he eats a brownie with nuts in it.

Besides the obvious, another huge problem is the many people with an opinon on nut/peanut/other food allergies. I've heard so many comments from people who do not have food allergies and whose children do not. Many along the lines of "my child/I have the right to eat XXX and its not fair that since a child might die from it I have to be denied". I hear the "my kid only eats peanut butter" (which prompted me once to hand out the number to a feeding therapist as PB is not that healthy a food). I've heard "it cant be that big a deal, I'll give that kid a pb sandwich and see what happens". And Iv'e heard "that mom just overreacts, it cant be as bad as they say". I'm very disapointed in society that they value a food over another person's life- and that this is an acceptable behavior.

The thing about nut alleriges that make them unique is the food itself. Nut protein (the part that the allergy is to) is a very sticky, very light protein. It floats in the air and sticks to things much longer than things like milk do. As a result, the allergen can last for quite a while. Nut protein is also known to provoke a much more serious reaction than other foods, requiring much less protein for a severe reaction.

RE: peanut allergy, according to the FDA, the amount of children with PA has doubled between 1997 and 2002. 1 person in 25 has a food allergy at some degree. Shellfish allergies are the top allergy provoking life threatening reactions, with nuts (tree and peanut) as the 2nd. Tree nuts and peanuts provoke the most severe reaction through all methods- airborne, contact, digestion.

In the end, this is a life threating problem for many people. Food allergies change people's lives and unlike lactose intolerance, motion sickness etc, a person's life is at stake. In addition, we live in a society that is not tolerant of this fact and places desire for a food over others lives. Many companies do not label products with allergen warnings, though its gettings better.

Is this stressful? Amazingly stressful. Do we deal with it? Of course, my child is worth everything to me and I'll do whatevere I need to to protect him. But it would be nice if I had some support- and that's one thing I love Disney for. Am I sad that I had to cancel the pirate cruise? Yes. Its just not worth the risk though it would've been nice for DS to do something without the spector of this food allergy over his head. A parent with a child with a severe food allergy, of any type, lives in a state of stress and fear. And if we're angry, so be it. Unless you live with it, you dont understand.

Bri
 
That's right, BriNJ...unless someone lives with it, they really can't understand the magnitude and scope of this medical condition. Just like I'm sure I can't understand all the implications of Cerebral Palsy or some other condition that I don't deal with on a daily basis. However, I fortunately have sense enough not to make ignorant and insensitive comments about a condition that I don't have a true understanding of...unlike some of the posters on this thread. :furious:
 
I'm very disapointed in society that they value a food over another person's life- and that this is an acceptable behavior.

So what do you want exactly? All nut products banned from the country? Because that's what it sounds like..."My son is deadly allergic, so everyone else should stop doing what they're doing".
 

yes it seems to be going on both sides, etc. and I just don't think its "healthy" to this bored. Anyone for locking this thread? I think many different opinoins/views/information has been presented and I tend to think we are now getting to a point of repeating, etc.
 
I dont think I ever said that nut products should be banned. But I think that there has to be a way to protect those who are allergic. For instance, my son's classroom is peanut free. But you know what? Someone sent in peanuts for a snack- because their child wanted them. The mom knew that the school didn't allow it, and she choose to break the rules so that her child was happy. The classroom is nut free, the cafeteria is not, there is no reason why this child couldn't wait until lunch time for the snack. The child had her snack taken away and another one substituted. The mom was angry and felt this wasn't fair to her DD. This is the type of behavior I abhor. Is this really fair, that a child's life is at risk over a silly snack? The school is doing thier part, but I see such a backlash against kids with nut allergies and its just not fair nor right. We had an issue last year in PreK where a parent brought in two foods that contained nuts (20 kids, 4 of them had nut/peanut allergies). On the other hand, there are quite a few parents who take this seriously and will even make sure that thier child's bday cake is safe for the nut allergic kids.

We also have a little girl in the class who cannot tolerate soy and corn. She can be near them, touch them etc. But she cant eat them. I've gone crazy making sure I send in things for her that she can eat, a little work is worth making sure that this little girl can eat what the others are eating.

What I want is actually pretty simple. I want my child to be treated respectfully and not as a second class citizen. I want others to understand that this is a real issue, not my child being "hysterical". I want them to realize that its thier choice if these items are part of thier diet but that its not fair of them to eat them in a situation that puts other children in danger. And I want companies to label thier food items ACCURATELY (its amazing how many companies are not accurate in thier labeling).

Is this really too much to ask?

Bri
 
What should they serve? :confused3 If you can't have peanut butter, someone mentioned that their child can't be on the boat with dairy products, so no cheese sandwiches. Are you going to have just jelly? How about children that are allergic to things like strawberries and other things like that? What about children with wheat and gluton allergies? If you start changing and substituting it just makes problems for someone else.

You don't think Disney would drop the cruise if it got enough complains? Yeah right. It would also go real quick if a child gets a severe reaction out on the lake and the parents sue. In a way I am already surprised they take the risk with 30 kids that young on a boat.
 
DeeCeeSW said:
I really just want them to think about changing the peanut butter uncrustables! After I calm down, I will write something.

Thanks for your understanding.

P.S. Unfortunately, a lot of posts end up "getting ugly" around here (or it least it seems that way as of late). I was just looking for a place to vent.

Yet you had nasty words for the lawyer who made good sense in saying that in this litigious world, Disney needs to protect itself. You can not be blamed for wanting your son to do everything that other kids do but he does have special needs and frankly all special needs can not be accomodated. As a child I was unable to participate in some activities for health reasons. I lived with it and had fun and became a stronger person for it. And if I might not be able to do something, my parents didn't tell me about it before they knew I could be involved.
A few lawsuits and Disney will stop being as accomodating as they are about allergies, they will simply say "we fill the hotels and restaurants and it is not worth it for us to take the chance". I'm sorry for your son but you are disregarding the fact that the chef (AND YES, HE DID SOUND RUDE) was not able to accomodate your son but remember this was not a personal affront to you - they were protecting themselves and your son.
 
RE: what should they serve? I have no idea. I do not think though, that they should serve one of the top allergens and the one with the most risk for airborne reactions. For us, I'm disapointed that my kids cant go. I'm not angry, just disapointed, especially as I talked to a few different people all of which said we'd be ok (and this is all recent). When I called again, after reading the opening post, I got mixed messages. So I cancelled.

One of the things that I think would help would be to have the kids eat on the beach. Or to not eat at all- its an early event and really doesn't require a lunch.

But again, I'm not angry with Disney, just sad. I would never have told my kids about it had I not been told by 3 different people in Disney that it would be fine.

Bri
 
dizcrazee said:
And here we have a prime example of my comments in my previous post...nice job! :thumbsup2

Very nice, but I'm seriously asking. BriNJ posted about how people were more concerned with food than with children's lives, so I'm asking, what does she want done about it? If the only way to keep her child safe is to keep everyone else from having nut products, then what is her answer for making that happen?
 
BriNJ said:
I dont think I ever said that nut products should be banned. But I think that there has to be a way to protect those who are allergic. For instance, my son's classroom is peanut free. But you know what? Someone sent in peanuts for a snack- because their child wanted them. The mom knew that the school didn't allow it, and she choose to break the rules so that her child was happy. The classroom is nut free, the cafeteria is not, there is no reason why this child couldn't wait until lunch time for the snack. The child had her snack taken away and another one substituted. The mom was angry and felt this wasn't fair to her DD. This is the type of behavior I abhor. Is this really fair, that a child's life is at risk over a silly snack? The school is doing thier part, but I see such a backlash against kids with nut allergies and its just not fair nor right. We had an issue last year in PreK where a parent brought in two foods that contained nuts (20 kids, 4 of them had nut/peanut allergies). On the other hand, there are quite a few parents who take this seriously and will even make sure that thier child's bday cake is safe for the nut allergic kids.

We also have a little girl in the class who cannot tolerate soy and corn. She can be near them, touch them etc. But she cant eat them. I've gone crazy making sure I send in things for her that she can eat, a little work is worth making sure that this little girl can eat what the others are eating.

What I want is actually pretty simple. I want my child to be treated respectfully and not as a second class citizen. I want others to understand that this is a real issue, not my child being "hysterical". I want them to realize that its thier choice if these items are part of thier diet but that its not fair of them to eat them in a situation that puts other children in danger. And I want companies to label thier food items ACCURATELY (its amazing how many companies are not accurate in thier labeling).

Is this really too much to ask?

Bri

Yes, I think it is a bit much to expect everyone around your child to have their children do without something they like simply because your child can't have it. Not to mention the fact that as your own example shows, you can't count on people to do what is best for your child.

We're at a small private school, and a few years ago the issue came up because there were 3 children in the school with peanut allergies. One family wanted all peanut products banned from the school, but the administration said no. The kids eat in the classrooms (no cafeteria), and the allergic kids sit at a separate table with one or two other classmates whose lunches have been checked by the teacher. This accomodation was fine for two of the families, but not for the third family. They continued to press the issue, and finally ended up because the school wouldn't change the policy.

I do feel badly for kids that have these type of allergy issues, but I think it's unreasonable to expect other people to live as though they have a peanut allergy in the family just because you do.
 
There is also one big piece of practical evidence as to the uncrustables as the lunch choice. There are far more children who are not allergic to peanuts that are. That is not to belittle the peanut allergy - I am shellfish allergic so I totally understand the situation - but let's face it:
Get a bunch of little kids together for an event where lunch will be served and needs to be easy to prepare - the logical choice is peanut butter sandwiches. That's the one lunch that most (non peanut allergic) kids will eat without complaint.
And even if they ate lunch off the boat, without parents there to make sure the little hands were well washed, I would never be comfortable sending a nut allergic child.
It can be so hard for those of us with food allergies (my brother and I dealt with it in the 70s long before anything resembling accurate labeling and when people thought allergies simply meant sneezing) but I figure, better safe than sorry. And since Disney is usually so great about dealing with food allergies, if they tell me no, I don't even question it.
 
I think in Canada all nut products are banned from daycares, and parents are asked not to send them to public schools too - what's the big deal? When one in 100-150 children suffers from this protentially fatal illness today, why wouldn't you want that for your children's friends? Why be so intolerant of people's differences? Imagine having to explain to your little one why his or her best friend died because of something he or she brought to school. I really hope this post gets locked soon - too nasty. Have a little empathy for those around you!
 
Alysa said:
Imagine having to explain to your little one why his or her best friend died because of something he or she brought to school.

I don't have to imagine it, because I would never in a million years try to make my child feel guilty about a child dying from an allergy that had nothing to do with my child. Why would any parent do that? :confused3
 
BuckNaked, why can't you see our side of it? Our children can DIE from peanuts. It's it that hard to not bring peanuts into a school , playgroup situation, is a child's life not worth it? Is anyone's life not worth it? My child can die just from being around someone after they have eaten peanut butter (I know this from first hand experience because it happened to him after I ate a PB sandwich one day - this was before we knew the extent of his allergy). Yes I do expect family members, close friends, and any group of people we associate with to not serve peanut products to their children when we are around. If they do , we simply leave, it's not worth the risk to my child's life. If they don't want to accomadate this simple request then we find other people to deal with. Thankfully we have great friends and the family is starting to get it (it's taking them awhile but they are getting it ). No one seems to mind this simple request from us to keep our child safe. We are also homeschooling because I just don't trust schools to deal with my child's allergies properly and there is always that one parent that makes things difficult as DS needs a totally peanut free environment to be safe.

Like I said before these cruises are out my comfort zone because the only adults on board the boats are CM's that probably aren't trained in the proper way to care for my child if a reaction happens. But just because something is out of my comfort zone doesn't mean it's not in someone elses (that's the thing about allergic families - we all have comfort levels/zones for our kids and no one level / zone is right or wrong).

Bri - thanks for your post, I couldn't of said it better then you did.
 
BuckNaked, I didn't say make them feel guilty about it - I said imagine trying to explain it to them. And I am pretty sure that despite it being a terrible tragedy, that you and your child would both feel incredibly awful if (God-forbid) it were ever to happen.
 
Bucknaked, I'm sorry if I misinterpreted your motives. One thing I'd like to remind everyone of is that a peanut allergic person can have a deadly reaction from smelling or touching peanuts as well as inhaling peanut debris. That makes the problem even more pervasive and dangerous than most other food allergies. If you read my first post in this thread, you saw that I do not expect a business (including WDW) to change their policies or menus because of my child's allergies. We deal with the situation the best we can and make substitutes and alternate plans when necessary. We do not get angry when we can't participate in an activity because it is unsafe for our child.

However, I do think that in light of the fact that this condition is so deadly and it seems to be increasing in young children, it would behoove us all as a society to make reasonable concessions and accomodations to ensure their safety as much as possible. I believe that we will eventually see a ban on peanuts in public schools here in the U.S. just as the PP described in Canada.
 
cara76 said:
BuckNaked, why can't you see our side of it? Our children can DIE from peanuts. It's it that hard to not bring peanuts into a school , playgroup situation, is a child's life not worth it? Is anyone's life not worth it?

No, it's not that hard. But that isn't what you want, as evidenced in your next sentence.

My child can die just from being around someone after they have eaten peanut butter (I know this from first hand experience because it happened to him after I ate a PB sandwich one day - this was before we knew the extent of his allergy).

So, not only can I not send peanut products to school, I can't let my kids have them at home anytime they might come into contact with your son. And oh, BTW, I'd better make sure that I don't buy anything for my family that might be cross-contaminated or have peanut products in it, because my kid might breathe on your kid and kill him. Sorry, but that just isn't reasonable by any stretch, IMO.


We are also homeschooling because I just don't trust schools to deal with my child's allergies properly and there is always that one parent that makes things difficult as DS needs a totally peanut free environment to be safe.

I think that's probably the best thing for you, because if you are expecting other people to change their lives around in their own home to keep your son safe, then he probably is better off staying at home.

dizcrazee said:
However, I do think that in light of the fact that this condition is so deadly and it seems to be increasing in young children, it would behoove us all as a society to make reasonable concessions and accomodations to ensure their safety as much as possible.

Reasonable accomodations I would absolutely agree with. But I don't feel that expecting other people to maintain peanut free homes is reasonable (I know you aren't saying that).

I believe that we will eventually see a ban on peanuts in public schools here in the U.S. just as the PP described in Canada.

And with the very small percentage of kids that suffer this type of allergy, I don't consider such a ban to be reasonable.
 
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