So, I made another plan. The previous one i'm calling my "healthy disney plan" and this one is the "sick disney plan." I saw my doctor today, and he is really hesitant to let me go to florida. I'll
try to explain my disease so it makes a little bit more sense. Basically, my liver doesn't make heme the right way. My liver skips a step in the heme biosynthesis, and I get excess porphyrins in my blood, which is toxic to my body. It caused my stomach to be partially paralyzed, which is why i'm tube fed. SO, when my body makes more blood, I get even more excess porphyrins. There's things that trigger this, which puts me into a porphyria attack. everyone with this disease has different triggers. Mine are the sun, UV lights, a bunch of foods, a bunch of meds and a whole bunch of other things. My porphyrin levels this week are already elevated, so if i'm in the sun without being super protected, or if anything else triggers me in florida, i'll have more porphyrins in my blood, which could attack my heart or lungs. Have I lost you yet?
aw sweetie! First off,
s to you. I'm so sorry that you are struggling right now. I'm happy to say that you did not lose me in the medical talk. I guess that is one of the benefits of a being a parent of a special needs child (and there are many more as well). I know you are really looking forward to this trip, but I hope that you would not put your health in jeapordy for it. I am certain that it can be rescheduled if necessary. That said, if you think going would be the best thing for you at this time, I am glad that you are being smart about it and adjusting your touring plans. You certainly don't want to over do it and spend half of your vacation in the hospital! A slow and steady pace will still allow you to see almost everything and still remain healthy. Do you have, or have access to, a wheelchair? If not, make sure you get one for your trip!
So anyways, i needed to seriously cut back on the amount of things on my list, just incase. so now i have 2 lists. this is the second one:
Wednesday, December 2nd
Leave our airport @ 3:40 PM
Arrive in Toronto @ 5:08 PM
Leave Toronto @ 8:10 PM
Arrive in Orlando @ 10:55 PM
Take a nap during your layover - bring a blanket and travel pillow and spread out on some chairs.
Thursday, December 3rd
Mom goes to orientation
Breakfast @ GKTW 8:00 AM
Try to sleep in this morning! You won't likely get to GKTW until nearly midnight! Add jet lag and a time change to that and you need to get some more sleep! I have heard the rope drop at Epcot isn't as spectacular as others.Epcot Future World (hours: 9am-7pm)
Soarin>> Nemo>> Honey, I shrunk the audience>> shortcut through Rose Garden to World Showcase (hours: 11am- 9:30pm) Japan for pick a pearl>> Princess Dinner @ Norway Pavilion- Akershus Royal Hall @ 3:20 pm
Leave Epcot @ 6:00 pm
Christmas @ GKTW 6:30 pm
There is a Wish Room at Epcot where you can take a break/nap during the day. Your mom will get info on this at orientation.
Friday, December 4th
Breakfast @ GKTW 8:00 AM
Animal Kingdom (hours: 9am- 6pm)
Camp Minnie Mickey>>Kilimanjaro Safari
Lunch- Pizzafari in Animal Kingdom
Downtown Disney (open until 11:30)
Don't stay out too late at DTD! Image Capture>> Pooh Corner>> World of Disney
OR West side (open until midnight)
remember that almost everything at AK is outdoors. The Nemo show and Festival of the Lion King are indoors however and can get you out of the sun for a while.
Saturday, December 5
Breakfast @ GKTW 8:00 AM
Sea World (park hours: 9 am- 9 pm)
Dolphin Nursery>> Dolphin Cove>> Believe show (show times: 12:30, 2:30, 5:00)
Lunch: Mango Joe's Café
Shamu: close-up>>penguin encounter
Late Supper @ GKTW (gingerbread house open until 9PM)
Lots of walking at this park - take it easy!
Sunday, December 6th
Breakfast @ GKTW 8:00 AM
Universal Studios (park hours: 9 am 6 pm)
Shrek 4D
Islands of Adventure (park hours: 9 am 6 pm)
Explore seussville>> Grinchmas (show times: 12p, 1p, 2p, 3:30p, 4:30p, 5:30p)
Lunch @ Circus McGurkus Cafe in seussville
Explore toon lagoon, eat supper at comic strip cafe?? or GKTW
GKTW usually has the World's Largest Candyland game on this evening.
Monday, December 7th
Breakfast @ GKTW 8:00 am
Leave for Magic Kingdom @ 8:30 am
Magic Kingdom (park hours: 9am- 8pm)
Monsters Inc.>> Toontown
Hollywood Studios (park hours: 9am-7pm)
Muppet Vision
Back to Magic Kingdom for Spectro (7pm) & Wishes (8pm)
Tuesday, December 8th
Hang out at GKTW and Downtown Disney/ West Side
OR back to Islands of adventure to eat lunch at comic strip cafe/ explore toon lagoon if we didn't have time.
Wednesday, December 9th
Leave GKTW at 11am
Leave Orlando Airport @ 1:45 pm
Arrive in Toronto @ 4:30 pm
Leave Toronto Airport @ 8:00 pm
Arrive in our airport @ 11:00 pm