My 6 Year Old Nephew is in ICU at Children's Hospital**Good News 12/17-Pg. 12 :-) **

So glad to hear he is doing better. Bet he'll be back to normal long before the holidays at this rate. Prayers for your family continue.
 
Beth, I just saw this thread for the first time, and I want you to know that your nephew is in my prayers. I hope he makes a complete and speedy recovery very soon.
 
I'm so glad that Bryan is not in ICU anymore. I'm sure he is much more comfortable in a regular room.

Continuing my prayers for this young man. Thanks for keeping us posted, Beth.
 

I just got a call from my dad. Bryan's blood pressure is low again. He was moved back to Intermediate Intensive Care. :( Michael told my dad that perhaps they moved Bryan into a regular room a little too quickly. :confused:

That is all the information that was passed along. And I share this with you.

Please continue those good thoughts and prayers...please.
 
I am continuing to keep him in my thoughts and prayers!
 
Bless his heart. I hope his blood pressure stablizes and he gets well soon, Beth.
 
Still saying Prayers for your nephew Beth.
 
Sorry to hear that update, Beth. :( The good thoughts and prayers are still headed his way. ~*~*~*~*~*~*~*
 
I hope this message goes on only once.
Hi, I hope your nephew gets better soon. Angela got Kawasaki Syndrom when she was 3 months shy of turning 5 years old. She wasn't feeling well while we were having our last day of pre-school before kindergarten started in September. We were at a park. The next day I took her to Kaiser in Los Angeles and they treated her for strep throat. The next day she was feeling worse and she got a goiter of some type on her neck. The doctor gave her some other medication. The following day I called the doctor and the nurse answered the phone. I was telling her that she had a rash and as we were speaking, it travelled to her fingers and her feet. Also, her eyes were very bloodshot and her lips were puffy and blistering. Her fingernails were peeling. She was also getting high fevers. The nurse said just a minute and then she got right back on and told me that the doctor wanted me to bring her right to the hospital. The next day the doctor called me at home and said that at the Children's Hospital in Los Angeles they were doing a study of that very syndrom. All of the children were given doses of aspirn every 4 hours around the clock for a few days and gamogloblin(sp) IV got rid of the symtoms right away. My husband is a doctor and when Angela's doctor mentioned that there had been no negative reactions from the treatment , he insisted that Angela be given the treatment. The treatment worked, although, I had to take her to the hospital fairly often at first. She had to get tested for possible toxic levels of the aspirin. She also had to get electric cardiograms to make sure the illness hadn't affected her heart. She kept getting rechecks for about a year and then she was given a complete bill of health. I never told her school about Kawasaki, because I didn't want her to be treated as though she were ill. It is in her health records at the hospital. If you want anymore information about it, let me know. Harriet
 
Thanks for this information Harriet. I read about the Kawasaki's Disease on-line last night and it included all of the symptoms that you mentioned that your DD had.

From what I have been told, it sounds like Bryan has many of the symptoms mentioned - high fever, rash (I don't know if it is characteristic of Kawasaki's though), sore throat, and blood shot eyes, and cracked lips.

The on-line article also included the information about the aspirin therapy. I don't know what to think - I know that Bryan began to feel sick last week and was only started to be treated (with antibiotics) earlier this week. So I doubt that he was treated early. I don't know if they have given him aspirin since he has been admitted.

My other brother told me about an 11 year old that they knew who had Kawasaki's and about the blood vessel and heart problems. But he told me that it is supposed to be "easier" on younger children.

But we still have no conclusive diagnosis and right now I guess we just have to worry about getting his BP to stablize. :(

My heart aches for my brother and SIL...
 
Continued prayers Beth. I hope they find out what he has and that he gets well soon.
 
More prayers coming for little Bryan, Beth.
Hugs to you too,
CC
 
BETH, wishing you and your family the very best. I KNOW how hard it can be to have a child who is so sick. Let's be hopeful that he'll respond.........
 
Bryan and the rest of your family are in my thoughts & prayers.
 












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