Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

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I want to say hello to the newest wish families here! I have been away for a bit. Eva was in the hospital again! I look forward to reading about all the new Wish Trippers!
 
I'm glad they are coming..... definitiely a little pick me up during a difficult time!:dance3::dance3::dance3:



Thank you!

DD and I were working on filling out some of the pre-interview paperwork today while we were at clinic for her chemo appointment and her answers to some of the questions already had me bawling. I'm sure at our actual meeting with the granters I won't be able to hold it together.
 
Hi - we are new here.
My daughter Holly (16) has just made her wish and we are waiting to see if it will be accepted. We are very nervous. Hollys wish was to go to Florida and become a princess - she wanted to do the complete bibidi bobidi boo thing. As she is in a wheelchair she very rarely gets to wear a dress as it just isnt practical, especially with feeding tubes etc, she also rarely gets make up or hair done because of the oxygen.
Hopefully I will be back soon to let you know if the wish was granted.
Hope I am in the right place!!
Here’s a picture of my youngest daughter in her fairy costume. It looks like a whole dress, but was actually an apron. Very much easier to put on than a dress!
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Here’s a picture of the Fairy costume by itself:
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and a picture of her wings:
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I would like to publicly apologize for asking about the disboutiquers. I was referred but now that i know a little better how it works I will just wait and see if my daughter is one of the lucky princesses that gets chosen as a recipient. I really didn't mean to cause an issue by asking and I hope noone automatically discards her because of my curiosity. Sorry :( Our family like most has fallen on hard times with the economy so my first thought when we got the call from Make a Wish was " Were getting this once in a lifetime trip, and Im going to have to get Mackenzie and the others new clothes" Here in cincinnati a swimsuit is usually what you keep on most of the summer :) I really do hope to meet and make relationships with you guys. It makes me tear up just to know about this board not only because of the awesome make a wish but also because there are moms that know what i am going through> :)
 

BLESSEDMAMA4


Your daughter is just lovely. I was so exicted for her when she went up on stage in the video. My daughter just stared in awe and said "is that what make a wish is about" and i told her soon enough she would find out what her make a wish had in store for her. :)
 
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Ok here we go thats better. This picture was taken of Mackenzie a few years ago but now since i know how to do the pictures ill proceed :) with a better picture filled post
 
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Mackenzie(Wish Child) and Caitlyn a few years ago :)



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OU family photo at disney in 2009 our son was not yet in the picture i actually found her was coming 2 weeks after we returned from the Magical Disney. After 4 girls maybe it really was magical. :)

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Chase our lil stud muffin as my girls call him has definitely brought some flavor to our household

oh and sorry about the pics on this page i plan on moving to my post trip report . Im just so excited i figured how to put pictures on here :)
 
BLESSEDMAMA4


Your daughter is just lovely. I was so exicted for her when she went up on stage in the video. My daughter just stared in awe and said "is that what make a wish is about" and i told her soon enough she would find out what her make a wish had in store for her. :)

Thank you, this trip has been a LONG time coming and I am happy to share the magic. Praying your daughter makes the wish she wants and you all have a MAGICAL time planning.

Sue, I LOVED the Pics of your DD and her outift. How clever to put wings on her wheelchair, she looks so happy. :goodvibes
 
SueM

Thank you so much for the picture - I was finding it quite hard to work out how to get a Disney Princess dress on!! It can be so difficult sometimes, especially when arms dont bend to well.

You daughter looks very similar to Holly in size etc - thank you so much for sharing.
 
SueM

Thank you so much for the picture - I was finding it quite hard to work out how to get a Disney Princess dress on!! It can be so difficult sometimes, especially when arms dont bend to well.

You daughter looks very similar to Holly in size etc - thank you so much for sharing.
The apron idea worked very well because she could have her regular clothes underneath and was not sitting on a bulky skirt. She also could wear a long sleeved shirt underneath or a short sleeved shirt, depending on how warm it was.
We are going back in October and she will wear the same costume for Mickeys Not So Scary Halloween Party. I am going to add some longer flower petals to the underneath part to make it longer. She was wearing Capri pants because it was too cool for shorts and the Capri pants stuck out.

I have also altered dresses for her. She was in a dance recital where the young ladies were supposed to wear ball type gown (song was Phantom of the Opera).
I bought a long one piece dress at Goodwill and altered it to become a 2 piece dress with a skirt and a top. She wore a black camisole and black capris underneath it and then we put the dress on just when we needed to for the dance. The top went over her head and we leaned her forward to pull the top into place. I put Velcro on one side seam of the skirt for ease in getting it on and off.

I have also made Halloween costumes with velcro on both side seams of the skirt - the back of the skirt was already in place in her wheelchair when I lifted her in. Just had to do a little adjusting, then place the front of her skirt on top and Velcro the side seams together.
She has also had some dresses where one whole side was closed with Velcro from the underarm seam down to the hem. You can do most of the placing while she's sitting in the wheelchair, move her a bit for getting the skirt underneath and then do final adjustments before velcroing up the side seam. That might work well for G tube access, if you make the side seam on the side you need more access on. Minimal arm bending is needed because you can slide the first arm on and the other armhole is completely open.
If you use Velcro, make sure you get the extra soft, flexible kind. The regular kind is scratchy, but the extra soft is not.

I'll try to post a picture of her dance costume today. That was pretty involved sewing, because I completely remade the dress. But for some outfits, it would be fairly simple to just take out the side seam and replace it with Velcro to close it back up again.
 
It's surgery week for Madison! She has pre-op tomorrow and surgery on Tuesday so if everyone could say a little prayer, send good vibes, whatever it is you do, we would GREATLY appreciate it!!!
 
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