Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[Em'swish]

Aww I hope you get to go for her birthday that would really neat. Sorry to hear about the MRSA. That is no fun Ty had a pretty bad run in with MRSA as well. Hugs

The MRSA was for sure no fun, the meds are just killing her aready sensitive tummy! Sorry he had to go through it to! I really hope she gets her birthday. It will make things much easier for her. The birthday party she wanted we can't do becasue of her Chiari and she actually can't eat birthday cake. So this would be a perfect treat!!

Melissa
Mom to Emily 4.5 (wish kiddo) and Abby 3 ( best little sister)

 

[Em'swish]

I updated Em's Pre-TRP with pic from the wish granters!!!

http://www.disboards.com/showthread.php?t=2743297

Melissa
Mom to Emily 4.5 (wish kiddo) and Abigail 3 (best little sister)

 

[SueM in MN]

Here’s the dress picture I promised.

This is my DD’s dance dress for her dance recital. The color isn’t really great - she was on stage. It’s actually a teal color that is very dark teal, depending on how the light hits. This started out as a one piece dress. I converted it into a top and skirt and added a black fluffy necklace (with lots of bling). The skirt opens down one side for ease in getting it on with the wheelchair.

This dress had no waist, which made it more challenging to make into a top and skirt. If it had a waistline, I could have just taken it apart along the waist and made it into 2 pieces. Since it didn’t, I had to decide just where to cut it to make the top so it would be long enough to cover the top of the skirt and DD’s wheelchair seatbelt. The top has slits in the side seams to hide the seatbelt.
I also had to remake the top to some extent because it came down too low (one of the reasons for adding the ‘neckpiece’ with bling).

I also had a challenge to make it the right length - hard when the person who is going to wear it can’t stand up. Her sister tried it on for me, but older sis is about 5 foot 6 and younger DD is only 5 feet tall. That led to some figuring out.

 

[livndisney]

Here’s the dress picture I promised.

This is my DD’s dance dress for her dance recital. The color isn’t really great - she was on stage. It’s actually a teal color that is very dark teal, depending on how the light hits. This started out as a one piece dress. I converted it into a top and skirt and added a black fluffy necklace (with lots of bling). The skirt opens down one side for ease in getting it on with the wheelchair.

This dress had no waist, which made it more challenging to make into a top and skirt. If it had a waistline, I could have just taken it apart along the waist and made it into 2 pieces. Since it didn’t, I had to decide just where to cut it to make the top so it would be long enough to cover the top of the skirt and DD’s wheelchair seatbelt. The top has slits in the side seams to hide the seatbelt.
I also had to remake the top to some extent because it came down too low (one of the reasons for adding the ‘neckpiece’ with bling).

I also had a challenge to make it the right length - hard when the person who is going to wear it can’t stand up. Her sister tried it on for me, but older sis is about 5 foot 6 and younger DD is only 5 feet tall. That led to some figuring out.

Sue that is awesome!!!! I have to ask, did the length of the skirt affect the wheel motion? I am working on several things right now where I am concerned the items can get tangled in the wheels. I reall want to avoid that especially for the younger children. Any suggestions for wheel clearance measurements?

 

[scottiedogz]

You are so clever - I dont think I have the needlework skills to do anything like that.
My DD has her school prom in 4 weeks and I have bought her a cotton maxi dress with a smocking type elasticated top - it has butterflies all over it. It is a gorgeous dress but I hope it looks good in the wheelchair. We will just have to struggle to get it on.

 

[chelleydi77]

Here’s the dress picture I promised.

This is my DD’s dance dress for her dance recital. The color isn’t really great - she was on stage. It’s actually a teal color that is very dark teal, depending on how the light hits. This started out as a one piece dress. I converted it into a top and skirt and added a black fluffy necklace (with lots of bling). The skirt opens down one side for ease in getting it on with the wheelchair.

This dress had no waist, which made it more challenging to make into a top and skirt. If it had a waistline, I could have just taken it apart along the waist and made it into 2 pieces. Since it didn’t, I had to decide just where to cut it to make the top so it would be long enough to cover the top of the skirt and DD’s wheelchair seatbelt. The top has slits in the side seams to hide the seatbelt.
I also had to remake the top to some extent because it came down too low (one of the reasons for adding the ‘neckpiece’ with bling).

I also had a challenge to make it the right length - hard when the person who is going to wear it can’t stand up. Her sister tried it on for me, but older sis is about 5 foot 6 and younger DD is only 5 feet tall. That led to some figuring out.

That is amazing! you are very talented!

 

[danut]

HI everyone! I am so excited to meet others that have gone to Disney through a child's wish! My 10 year old found out he was eligible for MAW back in April. Due to some medical issues he was waiting to decide on a wish, but now that things are more predictable, he decided that he wants to help set off the fireworks at Disney and we are waiting on final confirmation of the wish and dates. The trip is supposed to be in October. We are hoping we will be there for my dd's 6th birthday. Anyway, I did post a pre-trip report here. I hope I did it right......

Brendan's Big Boom MAW Trip to Disney

I can't wait to go back and read about everyone else's magical times!

 

[SueM in MN]

HI everyone! I am so excited to meet others that have gone to Disney through a child's wish! My 10 year old found out he was eligible for MAW back in April. Due to some medical issues he was waiting to decide on a wish, but now that things are more predictable, he decided that he wants to help set off the fireworks at Disney and we are waiting on final confirmation of the wish and dates. The trip is supposed to be in October. We are hoping we will be there for my dd's 6th birthday. Anyway, I did post a pre-trip report here. I hope I did it right......

http://www.disboards.com/showthread.php?t=2750046

I can't wait to go back and read about everyone else's magical times!

Setting off the Disney fireworks is a pretty cool wish

Sue that is awesome!!!! I have to ask, did the length of the skirt affect the wheel motion? I am working on several things right now where I am concerned the items can get tangled in the wheels. I reall want to avoid that especially for the younger children. Any suggestions for wheel clearance measurements?

I was concerned about the skirt getting caught in the wheels, but not that much since it was her power wheelchair. The front wheels are small and I knew would be out of the way. The power wheelchair also has fairly substantial armrests, which I knew could help contain any skirt parts away from the rear wheels. The rear wheels are als fairly small, but if anything got caught in them, it would be reaaaalllly bad. That skirt was actually pretty poofy, so I did have to smooth it out a bit to keep it down. It's actually a lot farther away from the back tires than it looks in the picture.

For the manual wheelchair, it's best to have more of an A line skirt. You don't want too much fullness underneath, especially if the person can't shift their weight. Wrinkles can cause pressure points. Fullness in the middle works best because you won't have puffy parts coming out and getting into the wheels.

If the wheelchair has substantial armrests with a sort of shield part that goes down the side, you can get away with a little more because the armrest will contain the material away from the wheels.

Hope this makes sense.

 

[chelleydi77]

More, more and more mail from the Big Give!! Come on over!

 

[starienite]

We got a call from our wish grantors!! They will be here next weekend to see Dev and he can't wait to tell them what he wants to do. Saturday at 1:30.

I think my dad is more excited. He asked me to let them know that he wanted to go and they were happy to note it and do their best.

We are thinking of going in April, March or February. The heat can sometimes give Dev a headache and that is something I want to avoid with his AVM.

Color me excited!! I haven't been to WDW in ten years and that was in high school. It will be great to see my kids experience it.

 

[disneymommy78]

We got a call from our wish grantors!! They will be here next weekend to see Dev and he can't wait to tell them what he wants to do. Saturday at 1:30.

I think my dad is more excited. He asked me to let them know that he wanted to go and they were happy to note it and do their best.

We are thinking of going in April, March or February. The heat can sometimes give Dev a headache and that is something I want to avoid with his AVM.

Color me excited!! I haven't been to WDW in ten years and that was in high school. It will be great to see my kids experience it.

Yeah! That is awesome news!

Leann is meeting with her wish granters tomorrow at 1 pm!!!

We are all beyond excited! She has had a horrific road so far on treatment with many many bumps and complications. She is on treatment for her leukemia until April of 2013, so we still have quite a long road ahead of us.

Her wish is to go on a Disney cruise on the Fantasy or the Dream. We have never been cruising before and we're hoping to make that happen. Her backup wish is to go to NYC to see a performance of the NYC Ballet Company and to maybe get to go to one of their rehearsals/meet some company members. She was an avid dancer prior to diagnosis and hopes to get back on stage one day.

We are so excited and will update afterwards!

 

[Synovial]

Preston's wait for the big date. MAW PTR
Preston's wait for the big date. MAW PTR

 

[Synovial]

I amPreston's wait for the big date. MAW PTR trying to link this pre trip report to my post and can't make it work. I will try again later. Synovial

 

[maroo]

I amPreston's wait for the big date. MAW PTR trying to link this pre trip report to my post and can't make it work. I will try again later. Synovial

Have you, by chance, seen the instructions on the 2nd post of this thread?

It is on the first page under the long list of pre-trip and post-trip reports - there is a whole post with a bunch of frequently asked questions and there is a link to post about how to put a link to your pre-trip report in your signature.

 

[danut]

Setting off the Disney fireworks is a pretty cool wish

Thanks! I can't wait to see what it entails! My dh and older son are firework fanatics too, so they are especially excited about Brendan's wish!

 

[SueM in MN]

I amPreston's wait for the big date. MAW PTR trying to link this pre trip report to my post and can't make it work. I will try again later. Synovial

Your link in this post is missing the address to tell it where to go. That’s why it won’t work.
I am going to post a link that has all the formatting, so all you have to do is copy the whole thing and then paste it where ever you want the link to go.
To get the link so you can copy it, look at the bottom right side of my post.
You should see a Quote button. Hit that to copy my post and start a new post.

Then copy everything between the brackets that look like this [] that are in the next paragraph. Make sure you get the brackets and everything between them, without any spaces. That will be your link, ready to paste where ever you want it.


Preston's wait for the big date. MAW PTR


Then, follow the instructions that maroo pointed you toward. Many people have some difficulty figuring things out at first, so there is a whole board where you can post as many times as you want in order to make sure it works. Here is a link to that board:
http://www.disboards.com/forumdisplay.php?f=88

 

[danut]

I updated Em's Pre-TRP with pic from the wish granters!!!

http://www.disboards.com/showthread.php?t=2743297

How Sweet of the Wish Granters to come to the hospital. I bet your dd will have a wonderful time! We may be there around the same time. We asked to go in October. Our first choice is around the 10th since my youngest will be turning 6 and we thought it would be neat to be there on her birthday too!

Here’s the dress picture I promised.

Gorgeous!

We got a call from our wish grantors!! They will be here next weekend to see Dev and he can't wait to tell them what he wants to do. Saturday at 1:30.

I think my dad is more excited. He asked me to let them know that he wanted to go and they were happy to note it and do their best.

We are thinking of going in April, March or February. The heat can sometimes give Dev a headache and that is something I want to avoid with his AVM.

Color me excited!! I haven't been to WDW in ten years and that was in high school. It will be great to see my kids experience it.

how fun! I hope your Dad gets to go!

Yeah! That is awesome news!

Leann is meeting with her wish granters tomorrow at 1 pm!!!

We are all beyond excited! She has had a horrific road so far on treatment with many many bumps and complications. She is on treatment for her leukemia until April of 2013, so we still have quite a long road ahead of us.

Her wish is to go on a Disney cruise on the Fantasy or the Dream. We have never been cruising before and we're hoping to make that happen. Her backup wish is to go to NYC to see a performance of the NYC Ballet Company and to maybe get to go to one of their rehearsals/meet some company members. She was an avid dancer prior to diagnosis and hopes to get back on stage one day.

We are so excited and will update afterwards!

Can't wait to hear about it. I hear the Dream is fantastic!

 

[Em'swish]

How long does it take to find out if Em got the wish she asked for and when we go? The wish granters came to the hospital last Wednesday. Sorry, Em is looking forward to this so much. We want to start planning!!

Thanks
Melissa
Mom to Emily (wish kiddo) and Abby (best little sister)

 

[danut]

How long does it take to find out if Em got the wish she asked for and when we go? The wish granters came to the hospital last Wednesday. Sorry, Em is looking forward to this so much. We want to start planning!!

Our wish granters told us that it would take about a week after Brendan told them his wish. We had all our paperwork completed prior, though. At that time, we gave dates that would work for us and then they sent all of Brendan's paperwork that they had to provide down to the main office. Hope its quick for you!

 

[chelleydi77]

We received another Big Give today!!! Ahoy maties!