Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

[angel's momma]

I started a countdown chain and Jack LOVES it - so do his brother and sister. Makes it all seem so much real. I have been buying stuff at dollar tree (got idea from other post on budget board) - light up braclets, disney little stuff. I want to start packing but I know it is too early. LOL!!! =)

Yay for the countdown calender. It's never too early to start packing. We have some items that we only use on wdw trips, that just stay in the suitcase, and I've been adding things for this trip as I buy them.

So just off the phone with MAW. They are coming to our home on March 20th to re-interview Talia to make sure it is truly her wish. I am so apprehensive. Talia is non-verbal and has no motor skills. She smiles when she is really happy, cries when she is really unhappy. That's it. We were told the GKTW was a go in July, and although I'm sure anything will be nice, it will be so disappointing if they decide to take that away. Not to mention when our dates would be since we are apparently starting over. Grrr. I hate this stuff! Just nerve racking when you think things are further along then they are.

So sorry about the re-interview, and that it's so far off Praying that it goes well, and that you will be going in July as planned.

 

[taliasmom]

So sorry about the re-interview, and that it's so far off Praying that it goes well, and that you will be going in July as planned.

Thanks, I'm praying too. I wrote that wrong though, lol, July last year was when we had our first interview (after being approved in may). We were supposed to go to gktw this spring (Talia is like most of our kids, heat sensitive), but if they are re-interviewing in late march, I don't see spring happening. I don't know that waiting till fall would be wise as she has a degenerative condition. Just gonna have to pray on it and wish on some stars

 

[Jakentysmom]

I really like the people that run this site... In the past they have offered a free login for MAW families - but it has expired and I don't really see them as often now that I have been sort of out of the loop of the Disney peeps!

But, the owners of that site have expressed that they want to help the MAW families and have given us permission to share the data with you guys (for those of us that have memberships)...and I bet they would give a highly, highly discounted membership to any MAW family that would take the time to email them with their chapter info, etc - they are really great people there!

AND...it comes with an Application called "Lines" that has a chat feature that is highly addicting, too...I was in Disney with my cousin last year and "Lines" helped us find out that the New Fantasyland was opened - which was priceless info for us - and they could give you guys info like this on your trip, too. Not that a MAW family really needs to worry about Lines at Disney, though!! It does help every family to avoid the CROWDS, though!

Thanks! I will look into it and see if I can get a discount at least. That Lines app sounds fun!

 

[Jakentysmom]

I sent a message to the touring place I will post when I hear back from them.
Taliasmom good luck with everything. I hope all goes great.

awesome! Let me know what they say. I will send them a message too.

 

[Mom2M07]

OK ... so I do NOT do well with anticipation! I check my email every hour, just to see if we have dates yet! Logically, I know that we only met with them 7 days ago and that they need to get approval from the doctor before they can schedule anything, but I can't wait!!! I want to know so that I can schedule our character meals and try to get an appointment for BBB. I want to know so that I can try to contact someone at Disney to share Maddie's wish to actually be in the parade. I want to know so that I can find cute things for her to wear and start a Countdown for her. I just want to know!!!! Sorry ... vent over! Maddie, on the other hand, seems to be handling the wait just fine. She looks at youtube videos of GKTW and WDW and talks about eating ice cream for breakfast and "catching a big fish." She's excited, but patient. Me? Not so much!

 

[JWCJ]

I think that pretty much sums up how today is going. Ugh.
Could use some anti-sniffle vibes heading in this direction, please. Ja is home with a runny nose and is feeling just good enough to drive me up the wall and just bad enough to make me want to snuggle her nonstop.

 

[Oneplustwins]

Hi everyone. I didn't get a personal response back from touring plans but they sent me a link to my email with a complimentary membership! Wow! I just went to the website, hit contact us and said we were a MAW family going in April and that I was on this forum and wondered if there was still a discount on members for MAW families. So please email them too.
Mom2mo7.... Totally understand!, hope you et your dates soon.
Even having our dates I am so excited. Sometimes I think more excited than my kids because I know Disney IS and the kids don't fully get it. I can't wait to see their faces!

 

[angel's momma]

Thanks, I'm praying too. I wrote that wrong though, lol, July last year was when we had our first interview (after being approved in may). We were supposed to go to gktw this spring (Talia is like most of our kids, heat sensitive), but if they are re-interviewing in late march, I don't see spring happening. I don't know that waiting till fall would be wise as she has a degenerative condition. Just gonna have to pray on it and wish on some stars

No, you wrote it right, I just misunderstood Did you explain that to them? Maybe they would do the interview sooner? I do know that I've seen some trips happen very quickly, so it could still happen this spring.

OK ... so I do NOT do well with anticipation! I check my email every hour, just to see if we have dates yet! Logically, I know that we only met with them 7 days ago and that they need to get approval from the doctor before they can schedule anything, but I can't wait!!! I want to know so that I can schedule our character meals and try to get an appointment for BBB. I want to know so that I can try to contact someone at Disney to share Maddie's wish to actually be in the parade. I want to know so that I can find cute things for her to wear and start a Countdown for her. I just want to know!!!! Sorry ... vent over! Maddie, on the other hand, seems to be handling the wait just fine. She looks at youtube videos of GKTW and WDW and talks about eating ice cream for breakfast and "catching a big fish." She's excited, but patient. Me? Not so much!

I think most of us are this way

I think that pretty much sums up how today is going. Ugh.
Could use some anti-sniffle vibes heading in this direction, please. Ja is home with a runny nose and is feeling just good enough to drive me up the wall and just bad enough to make me want to snuggle her nonstop.

Hugs Praying she feels better.

 

[angel's momma]

Hi everyone. I didn't get a personal response back from touring plans but they sent me a link to my email with a complimentary membership! Wow! I just went to the website, hit contact us and said we were a MAW family going in April and that I was on this forum and wondered if there was still a discount on members for MAW families. So please email them too.
Mom2mo7.... Totally understand!, hope you et your dates soon.
Even having our dates I am so excited. Sometimes I think more excited than my kids because I know Disney IS and the kids don't fully get it. I can't wait to see their faces!

Wonderful!

 

[Jakentysmom]

Hi everyone. I didn't get a personal response back from touring plans but they sent me a link to my email with a complimentary membership! Wow! I just went to the website, hit contact us and said we were a MAW family going in April and that I was on this forum and wondered if there was still a discount on members for MAW families. So please email them too.
Mom2mo7.... Totally understand!, hope you et your dates soon.
Even having our dates I am so excited. Sometimes I think more excited than my kids because I know Disney IS and the kids don't fully get it. I can't wait to see their faces!

Awesome!!! I think I will do the same thing!!

I also feel the same way about going to disney. My kids just dont quite understand how awesome it is going to be. But we do...and its SO EXCITING!!! Plus I am just over the moon that we FINALLY get a vacation!!! After all the hospital stays, and sickness, and doc offices, and everything else...we get to leave that all behind and have a stress free vacation. This is our first vacation ever and its just the best kind of vacation to have!!!!

 

[LittleEsmom]

I think that pretty much sums up how today is going. Ugh.
Could use some anti-sniffle vibes heading in this direction, please. Ja is home with a runny nose and is feeling just good enough to drive me up the wall and just bad enough to make me want to snuggle her nonstop.

Sending good vibes your way
Totally understand Emma just got over Strep Throat.

 

[LittleEsmom]

Making our Disney shirts tonight
Pics to come Getting things together for our trip and my husband thinks I have gone a little bonkers....well, I have

 

[maroo]

I think I am caught up!!! At least with the lists on the first post here!

I have added a BUNCH of links to threads - so you guys visit around and post on each others so that you can all meet and hang out! I won't put the list of all that I added because there are so many new ones that you should all go check them all out.

I have answered all of my PM's and put links where people asked - and I went through this thread and tried to catch most of you guys and put your trips on the first page, too...

And I went through the Pre-Trippie reports to try to pull some off from over there, too...

So...IF I missed you (I am SOOOOOO sorry if I did!)...then PM me so that I will know to add you (I will clean out my PM box before I go to bed)...

I won't be on any social media tomorrow, but I will be back on Thursday!

 

[Jakentysmom]

I need help from those who have gone to the parks!!! Which parks are full day and which parks are half a day?? I dont know what parks are half a day and which ones are full days? I dont want to plan a full day for a park that will take us half a day! Or plan for half a day and we miss out on a bunch of stuff.

 

[Jakentysmom]

I think I am caught up!!! At least with the lists on the first post here!

I have added a BUNCH of links to threads - so you guys visit around and post on each others so that you can all meet and hang out! I won't put the list of all that I added because there are so many new ones that you should all go check them all out.

I have answered all of my PM's and put links where people asked - and I went through this thread and tried to catch most of you guys and put your trips on the first page, too...

And I went through the Pre-Trippie reports to try to pull some off from over there, too...

So...IF I missed you (I am SOOOOOO sorry if I did!)...then PM me so that I will know to add you (I will clean out my PM box before I go to bed)...

I won't be on any social media tomorrow, but I will be back on Thursday!

Looks great!! Thanks

 

[JWCJ]

I need help from those who have gone to the parks!!! Which parks are full day and which parks are half a day?? I dont know what parks are half a day and which ones are full days? I dont want to plan a full day for a park that will take us half a day! Or plan for half a day and we miss out on a bunch of stuff.

We're buying an extra day. Many people say AK is half day, but I doubt that with my nature girls. So we'll do full days Epcot (breakfast w/ Princesses, tour, back to GKTW, hopefully hop to MK for parade/fireworks), MK, and AK. HS might only be half, but then we'll hop to whatever our favourite was for the rest of the day. I should update itinerary on our PTR...

 

[JWCJ]

Thanks Maroo! You are amazing! Missed me though on the list ;-)

 

[Lilfoot93]

I think I am caught up!!! At least with the lists on the first post here!

I have added a BUNCH of links to threads - so you guys visit around and post on each others so that you can all meet and hang out! I won't put the list of all that I added because there are so many new ones that you should all go check them all out.

I have answered all of my PM's and put links where people asked - and I went through this thread and tried to catch most of you guys and put your trips on the first page, too...

And I went through the Pre-Trippie reports to try to pull some off from over there, too...

So...IF I missed you (I am SOOOOOO sorry if I did!)...then PM me so that I will know to add you (I will clean out my PM box before I go to bed)...

I won't be on any social media tomorrow, but I will be back on Thursday!

Thanks Maroo!

 

[angel's momma]

Making our Disney shirts tonight
Pics to come Getting things together for our trip and my husband thinks I have gone a little bonkers....well, I have

Looking forward to seeing the shirts. It's fun to be bonkers when getting ready for the trip




Thank you maroo. I'm praying that you find someone to hand the thread off to.

I need help from those who have gone to the parks!!! Which parks are full day and which parks are half a day?? I dont know what parks are half a day and which ones are full days? I dont want to plan a full day for a park that will take us half a day! Or plan for half a day and we miss out on a bunch of stuff.

It's really hard Britney, cause it really does depend on your family. None of the parks are half days for us, and even after several trips, there's things we still haven't done in each park. We didn't do all 4 parks on every trip though, and still had a wonderful time. You'll have a wonderful time too, just prioritize what you want to do the most.

 

[Mom2M07]

Question for those previous Wish families with wheelchairs ....

Maddie has several different adaptive chairs/strollers, due to her varying needs on any given day. We have a Convaid Cruiser (for her "I'm feeling pretty good, but need some support so that I don't crash" days), a Snug Seat Stingray (large, adaptive stroller/wheelchair with all the supports she needs for her "can't stay awake or lift my head" days) and just got a second-hand Quickie Kidz manual chair that she is beginning to learn how to self-propel. Originally, I assumed that we'd bring the Convaid, since it folds easily and has moderate support for her. But it doesn't recline at all, and she'll have times that she really does need to rest. The Quickie manual chair is out, since it doesn't have enough support to account for her tired days. So then I'm left with with Stingray, which is super supportive, tilts, reclines, and has everything that she needs. It's a bit overkill for her "good days" but perfect for her "low battery days." But it's heavy and huge and cumbersome to handle. We would definitely need to gate check it. So, I guess my question is should we bring the Stingray chair, gate check it, and just deal with the heavy, cumboersome nature of it? Should we bring the Convaid, which is much easier to handle and would be fine for anytime that she doesn't need to fully recline? Or should we rent a regular, reclining, jogging type stroller, which would probably be ok (she's small enough for a regular stroller) but that we wouldn't have available at the airport if we need it and wouldn't have all the supportive features of her adaptive chairs? For those who gate-checked wheelchairs, did they get damaged? That's one of our big concerns, since this is the chair we'll have for the next few years.

Also, I know I shouldn't worry about what people think, but would it be odd to see a child who looks relatively normal and energetic on a "good day" using a chair that obviously has a lot of supports (laterals, harness, etc.)?