WDWJonasGirl
Mouseketeer/Directioner
- Joined
- May 1, 2011
- Messages
- 3,379
Great job Kaitlin!!!!
The twins: Michayla has Pierre Robin Sequence (her jaw didn't grow out while in the womb, which caused the tongue to stay in the roof of her mouth, which caused a cleft palate...it also causes hearing, vision & cardiac issues) Luckily she didn't get it as bad as a lot of the babies.....a good number of them need a trach done & jaw distraction surgery. She didn't need either.
She's g-tube fed (tube in the belly)....doesn't eat anything orally.
She's on the autism spectrum. She doesn't say words or sign so knowing her needs is almost impossible.
She's mentally delayed. Cognatively a 9month old.
Shyann didn't get the Pierre Robin, but has cardiac issues.
She's delayed, cognatively around a 2 yr old.
She's on the fence for being on the spectrum....but the day she was tested was a VERY good day for her & not the "norm".
Both girls also have an un-named genetic disorder which is visable in their facial features & ears. If they ever need glasses, I'm not sure how they'll stay on....they don't have that area (space) above their ears to hold glasses on.
Thank you. I was about your twins age when I was diagnosed.