Dis Breast Cancer Survivors Part III - GAGWTA!

[snappy]

Sorry you are feeling twitchy, Patsmom. I think I can relate and the word twitchy really nails the feeling you describe. Keeping really busy is the nest idea I think. Please know we are praying for the best result possible and are here for whatever the result is.

Do update us and keep thinking about food and wine if you can.

 

[PatsMom]

Sorry you are feeling twitchy, Patsmom. I think I can relate and the word twitchy really nails the feeling you describe. Keeping really busy is the nest idea I think. Please know we are praying for the best result possible and are here for whatever the result is.

Do update us and keep thinking about food and wine if you can.

Thanks Laurie - I'll get through it! At least I have Food and Wine to look forward to!

 

[luvmarypoppins]

Good afternoon ladies

Lisa - so glad you had a wonderful time in the world and got to spend time with Meg. Hope you are resting up and can share with us about the trip when you can.

Barbara - that is disheartening about your scary dreams and the meds. Can you susbsitute something else with less harmful side effects?

Laurie - what does that fish taste like?

Candy - I am glad you made the best of your week end. I know what you mean about letting them go. I always joke to the ds that I am not your mother, I am your smother. I am getting better about it, but when dh is gone I like to know there schedules down to a tee, because if something happens and I need help, I need to know which one I can reach etc.

PatsMom - I know exactly what you mean about the twitchy stuff. I find I get it more when I had the surgeons visits. I am trying to control it with this new eye dr. tomm. Of course, 1000 things are going around in my mind etc.and my upcoming blood test too.

smiley - that is such a beautiful picture of you and Ken.

Sha - hope all is well

Cheryl - sure you are getting exicied anticipating your upcoming trip.

Another week end that makes me go hmmm. Dh was feeling ill when I wanted to go to the movies. Sun. was our church picnic. We left early (dh and I) as someone threw a water balloon and it scared me, I freaked out and got wet on my shoulder, Not a good feeling. Waited for dh to say something about going to the movies, never did, so I took a huge nap. I did get to hear about ds23 new girl/friend. The other 2 ds said she was blonde and nice looking and he took her bowling. Then sun. I met ds23 god son. First time. This little boy has some serious learning disabilities. Not quite autistic as the other little boy we have worked with at church, but has speech delay, autistic tendancies etc. At least he is not a screamer or flapper etc. What upset me the most was the mom, ds friend, who commented to people, oh, he is just in his own little world. She barely interacted with him etc. One of the teachers was surprised that she had a little one etc. He is 3, doesnt interact with other kids etc.

Dh is getting a mac. He is not too thrilled. He had no choice. He was assured all his programs will run on it so we shall see. Hope so as we are talking about over 16K in software etc.

Then ds19 tells me he tells his a and p prof that he is falling asleep in the class as he has heard all of this before.. I told him, you should have said I really need an a in this class etc.

Tomm. is my eye dr. appt. so we shall see what her opinion is, whether or not the radiation has ruined my eyes etc.

GTAGWTA.

 

[luvmarypoppins]

Good afternoon ladies

Well I am back from the eye dr./surgeon and it was not good news.

I had to have about 6 needles in my eyes, 3 on each side. Well I think it was one needle, but she kept jabbing it around alot. After about the 3rd jab and her telling me to hold still, I asked if dh could hold my hand. Later dh told me I had a vise grip on his hand.

This dr. says my L tear duct is scarred and blocked due to the radiation I had. She says I need an operation that will be about 1 hour long and they will create a new pathway and put about 6 stents in it, that will come out in about 6 weeks. I have to verify this with dh as my head was spinning as usual.

Only good thing was that she is pregnant and going on maternity leave, so I cant have the surgery to April, but she said if it gets infected before that I have to call the other surgeon, who has operated on Miss A. and another guy from my church.

I think I will wait till april anyway. She said its o.k. because you have had this for such a while anyway.

So I hope this does not interfere with our May trip. If it does I will see about scheduling it for June.

She said if I need radiation again, then since I already had this problem she will operate on me before and put the stents in ahead of time etc.

Also I told dh that what bothered me was our reg. eye dr. said there was absolutely nothing wrong with my tear duct. This is the dr. who has ovarian cancer, so I really didnt want to press the issue. all the reg. eye dr. did was just push on my skin by the tear duct etc. but my endo kept saying she thought something was really wrong and saw the tears when I had my check up with her, so I am glad m endo kept pushing for it. Also I feel disheartened that it seems that only the univ. drs. seem to diagnose things properly with me. It really doesnt give me confidence in my regular drs. etc.

Dh is taking me out to dinner tonight.

GTAGWTA.

 

[wdw4us2]

MaryAnn - Ouch! I can't imagine needles anywhere near my eyes. I hope you are able to get this worked out sometime soon.

Candy - Happy that you survived your weekend with relatives.

PatsMom - I understand the twitchy feeling, too. I try not to think about it anymore - it just causes too much anxiety.

I am still recuperating from my trip. The pin celebration was a lot of fun, mainly because I was able to spend time with our old pin friends as well as making some new ones. The people at WDW Event Services were very good to me. They allowed me to wait inside the World Showplace while everyone was outside in the heat waiting for the start of the event. I would have never made it waiting outside for 30 minutes each day in that humidity. I didn't make that many trades, but Meg was able to get quite a few Splash Mountain pins to add to her pin collection.

Our room at Beach Club was in a great location - right near the bridge to Epcot, so we didn't have to lug our pins very far. One of my new experiences was Stormalong Bay. I had never experienced that before since I wouldn't go out in public in a bathing suit during my beached whale phase. The kids and I rented tubes and spent time in the lazy river and I even let them talk me into the slide! Lots of fun and the pool wasn't too crowded. I also made a short trip over to Animal Kingdom so I could finally go on Expedition Everest. I used to be too large to fit in the seat and since I lost all this weight, I have been follicly challenged. Meg and I went on first and I liked it so much we went right back on it and took DH with us. DS is not a fan of EE, so he stayed at BC and took a walk to check out the Boardwalk.

On Saturday, we learned that Meg's Godmother and her family were at WDW so we were able to meet up with them for dinner that night at Captain's Grille. We all had a great time and the meal was excellent. They live 3 hours away from us, so we don't get to see them too often.

The parks were not very crowded and the weather was nice aside from the usual afternoon rainshowers. It was very hot on Sunday, so we cut our trip short and headed home. One thing had changed since the last pin celebration that I wasn't happy about. Now that Le Cellier is a signature dining location, they no longer do take out. Meg would always go there and pick up pretzel bread and Cheddar Bacon soup for our lunch every year, but they no longer allow that. We really used to enjoy that, especially since it's so hard to get ADRs there.

I went to the oncologist's office yesterday to have my labs done since I was feeling so weak after the weekend. Still no Prokrit shot because my counts weren't low enough. I still don't feel good though. I have to come up with some energy before tomorrow evening. One of our friends asked me to drive their daughter in the high school Homecoming parade in the Vette. DH is going to get the car ready for me tonight when he gets home from work. I have done this five other times in the past 35 years, but not since 1999. I'm hoping it's not too hot out by 6 p.m. when the parade begins.

Chemo again on Friday, so hoping to feel better before then when the feeling really crappy begins again.

 

[Candy30]

LMP- I am not sure I could do that. I think they would have to put me out for that. You poor thing. At least now you know what it going on with your eye and have a plan of action. I sincerely hope the surgery does not interfere with your trip. I like Smother. That describes me.

Lisa- It sounds like you had a great time!!! It was nice you could have dinner with your friends. The parade sounds fun. I pray you have enough energy.

Snappy, Sha, Pats,Cheryl, Ann, Smiley-

Hope everyone has a good weekend. I have to waitress Friday after work and Saturday afternoon. So Sunday will be my Sabbath!!!. What's everyone else's plans?

GTAGWTA

 

[luvmarypoppins]

Good almost afternoon sistas

PatsMom - thinking of you today and hope your visit goes well and that you get a good report.

Linda - I am sure you are emotionally and physically drained from all that you have been through. My thoughts and prayers are with you.

Lisa - So glad you had a great time at the pin celebration and that you enjoyed the Beach Club. I love Stormalong Bay too as does dh. I hope our weather is good on our trip so we can enjoy it too. We have never done the slide though. You are brave. I have never done EE, but dh has with the ds. The homecoming sounds great and I hope it works out. You are sweet to drive your car for your friends dd. Wishing you all the best with your treatmet tomm. too.

Candy - you sure are one busy sista. I dont think I could keep up with you for sure!!

Grumpy - hope your onc. visit goes well

Laurie - how goes the diet? I went nuts doing that special diet I had to do before the radiation and then the other years testing.

Sha - how are you sista?

smiley - how is your healing going?

Cheryl - hope all is well and I am sure you are so looking forward to your trip.

To answer your question Candy - hmm what I want the week end plans to be would be to get the blood test, go to the bank, and get the shopping done, We need a new microwave, alarm clock,dh needs a new cellphone, yup he lost the one he just bought and a new suitcase.

Dh is planning on going to the city for 2 days next week to do some volunteer work. So he needs the cell phone and suitcase. Oh and I would love to go to the movies, like that is going to happen

GTAGWTA.

 

[DisneySarah80]

Hey all

We are going to Disney in late October with my mother who has breast cancer. Well... she had breast cancer, then had a double mastectomy... but it had already metasticized (sp?) to her bones... So I guess she still has breast cancer, just no breasts.... Anyway, sorry to go off topic there a bit!

I'm wondering if there are any Disney logo products for breast cancer? I had seen a Tink breast cancer pin on ebay, but it was really expencive. Plus now, its not listed anymore. Is there anything inside the parks that I can order before our trip?


TIA guys!

 

[wdw4us2]

DisneySarah80 - I don't think Disney has anything specifically branded for breast cancer awareness. The closest thing they have are pink Tinker Bell T-shirts and hoodies.

Off to chemo again today. Number two with the Gemzar/Taxol combo. Talk to you about mid week when I start feeling human again.

 

[luvmarypoppins]

Good afternoon ladies

Lisa - I hope you are resting and that the chemo wasnt too harsh on you. Thinking of you.

The eye dr. said besides the radiation I had the other one that really messes up the tear ducts is taxoterate(?) I think she said, something like that.

Please say a prayer for us. DH was involved in an accident this morning. Our van is totalled. He said his knee is sore. A younger girl went through a red light while talking on her cell phone when dh had a green light and was going about 45 miles an hour. There was a witness and he told the police she was talking on her cell phone. So later today dh is calling about the rent a car. Has to go clean out the van at the garage on Monday. The tow truck guy says he is going to a birthday party. That is nice, That leaves the whole week end to steal anything out of the van they want. Dh says not too much valuable in it etc. Oh and the other girl is fine as dh only clipped her L back side and she had a huge chevy suburban.

My head is spinning right now. I guess our only shopping will be for a new vehicle.

GTAGWTA.

 

[Sha]

Hi ladies. Sorry to have left you all hanging, and I will have to do that for a bit longer. I have been really stressed and almost lost my job (partly because of hauling my sister to and from work and lack of sleep! Thankfully, she has a car now.) I will get back and update you soon but am really behind on paperwork and HAVE to get that done.

Laurie... here is the link for the team. I am sorry that it took so long to get to you. It may also be below where it says RFTC Orlando. I dont know honestly right now.

http://centralflorida.info-komen.org/site/TR/RacefortheCure/DAB_CentralFloridaAffiliate?team_id=171289&pg=team&fr_id=2261

 

[snappy]

Thanks for posting the link Sha. Hope things improve with your sister getting wheels. Good to hear from you.


Lisa , hope your infusion was kinder to you this time.

Maryann, sorry your DH was hit. Hope he is not seriously injured. This was not in your plans, guess it never is. Hope you find a replacement vehicle soon. Important thing is if your DH is ok.

On our way to New Orleans to meet DD21 and take her to the aquarium and dinner. Kind of my birthday celebration since DH was duck hunting on my birthday.

GAGWTA

 

[luvmarypoppins]

Good afternoon ladies

Lisa - hope you are recovering post chemo. I am sure it takes a toll on you. Hang in there sista!

smiley - how are you doing? Healing from the surgery?

Cheryl - I am sure the trip cant come fast enough for you.

PatsMom - how was your drs. visit?

Sha - I am glad your sis has finally gotten a car. Alot less stress for you for sure, and maybe you can get back to your normal you.

Laurie - hope you had a nice day yest.

Candy - how did the week end go? Know you were super busy.

Barbara - thanks for the message. You're a sweetie.

Well things are head spinning here. I hate the rent a car dh has. Its a crown victoria. I call it the Dragnet car, based on the old tv show . I told him, he can be Friday and I will be Gannon. Worse, it had Indiana plates on it. We got it from the airport place. They had the best deal and we get mles and the ins. co. is only giving us $400 or $20 a day anyway no matter what. They said the ins. adjuster is coming tomm. Ds21 looked it up and the Kelly Blue Book is like $6,000. So we shall see.

I guess my own car will never happen now. We will see something we both can use. But with him using it all day I am trapped at home again. Sigh, sigh. I guess after the ds are done with college will my own vehicle start to become a reality these days. I dont even know what to look at. He wants something new.

Ds19 is going for the hospital volunteer interview today. Just heard 90 nurses from a local hospital here were let go, hmm glad ds will be in school for a while for sure.

I did get a new microwave and a clock radio, but we havent really checked them out yet. I have to read the manuals I guess.

GTAGWTA

 

[Candy30]

Lisa- I hope you are feeling human soon!
Snappy- I hope you have a good trip with your DD.
Sha- You poor honey! I am glad she has her own car now. She may need to invest in public transportation if she has any future problems. I can't wait on the update!
Smiley and PatsMom- How are you guys feeling? Hope recouping.
Disney Sarah- If you go to the design page on this forum, there are a lot of talented people that can customize whatever you need.
LMP- I am glad you DH wasn't injured. These kids and phones. I hope they make it a law not to use while driving. I hope you are able to find a car you both like! I liked the Dragnet comparison!!! LOL

So this weekend was horrible! We were robbed Saturday night! I am shook because usually we leave my DD home alone and this time she went to a picnic. I worked, my hubby worked and my DS went out with friends. They broke the window and stole all of our electronics, game consoles, games, cameras, and my needles for my diabetes. They touched my meters which made me squeemish (they probably thought they were electronic devices).
Window is broken. That is how they got in and out. They did the most damage in my DD's room. She is so afraid now. She doesn't want to be home alone (I don't want her to be either) and doesn't want to go in the basement by herself.

They drugged my dog. My daughter and husband found him on my DS bed knocked out. He is such an energetic dog and friendly. He loves everyone that comes through the door. He was sick the next day and we took him to emergency vet that just gave him fluids. He was back eating by Sunday night.

The detectives came the next day and were able to lift a hand and finger prints on the windows. I haven't slept through the night at all. Every sound I jumped at.

I feel it was someone in the neighborhood that knew us and the dog. Or a young kid. It's weird because every time you look at someone, it's like was it you. Then it creeped me out because they were watching us. Because My car was out front because I rode with someone to work. So the only way the could've known we were'nt home if they were watching. Makes my skin crawl.

I hope everyone's weekend was better than mine and LMP's!

 

[Pea-n-Me]

We are going through a rough period here I see! Hugs all around.

Candy my jaw is literally on the floor reading your post. I think especially about the dog. He could have died. It is hard to fathom the scumbags that live among us sometimes. I hope they catch whoever did it. (There was a poster here last year whose dog was killed during a robbery, IIR, when they ran him over with their car. It also made me so mad.)

We had my aunt's services. The whole situation has also made me a little sad.

 

[wdw4us2]

Sha - It's no fun playing taxi, especially if it's interfering with your job.

Laurie - Hope you had a nice time at the aquarium with DD.

MaryAnn - Good news that your husband wasn't hurt in the wreck. Sorry you are dealing with replacing a vehicle yet again.

Candy - How awful about your break-in. Thank goodness your DD wasn't home when it happened. I don't blame her for not wanting to be in the house alone anymore. I hope the police catch them and get them off the streets!

Pea - I hope you can start healing now.

Went for hydration today. Slept a lot this weekend. Even though I'm only having two drugs during chemo, it still takes five hours. They are worried about reaction issues. I swear, sometimes it feels as though I spend most of my time at the oncologist. Would love to find something better to do with my time.

 

[luvmarypoppins]

Good afternoon ladies

Candy - I am so sorry that your family had to experience this terrible incident. I know its more than just the material things, its someone invading your privacy, threatening your safety etc. I also think its so sad about your dog. I wonder if they knew you had one or do they just carry that stuff on them etc? Our house was broken into but our renters were here so the guy just left. I hope they catch these people too. I am sure you are all uneasy. But glad you are all safe. Things can be replaced, people cant.

Linda - wishing you peace. I am sure this has all been so hard for you.

Lisa - I know what you mean about spending so much time at the onc. Hmm, maybe an ipad or kindle could help pass the time?

Laurie - I love aquariums too. I think they are peaceful. I love the living seas at epcot.

PatsMom,Cheryl,smiley,Sha,Barbara,Anne, - thinking of you all

Well all these different ins. people keep calling the house. I dont know if dh is suppose to talk to the other ins. co. I will have him call ours lst etc. Tomm. the adjuster is suppose to look at the van. Dh did get to clean it out. He has to go back again and take the plates off after the adjuster is done.

Someone from my endos office called and said my recent blood test was good. I told her I really wanted to talk to the dr. about my other surgery and why I am so tired etc. So she said she would give her a message. Usually the dr. calls, not an office person. She didnt even say she was a nurse??? She just said "I dont normally do this". ?? So confused.

Then Cheryl, in honor of you, I got the reclast runaround again. She said, oh get your med. I said, last time they told me you (the office) were getting it for me.). She said, oh I think we only do that for medicare patients. I said I have called 6 pharmacies etc. after she told me to call some which I had already done again. So I just gave her my ins. co. number. She said she would call me back, right. Then I totally forgot to reschedule my visit which they cancelled. My head is spinning lately with everything.

Ds did well at the volunteer interview. Now he is going to orientation soon.

GTAGWTA. Thinking of you all.

 

[Sha]

OMG Candy!! I am sorry that you have to go through that ordeal. And that your dog is doing better. I can understand not wanting to be alone in the house after that. Hugs! I hope that there is some good news soon about your items and the person(s) who did this.

I will try to update soon. Stress isnt over yet, as I am trying to get my work caught up so I don't loose my job.

Looking for anyone else who wants to participate in the teams for my 2 walks. You dont have to be there to participate, you can sleep in for the cure too! See link in my previous post or the links below in my signature.

Mel, R's cousin did another blog. Here is the link:
http://www.warringtonguardian.co.uk/yoursay/blogs/melanie_oneill/9261493.Taking_time_for_me_has_become_a_priority/?ref=fbrec

enjoy! and talk to you soon my friends!

 

[luvmarypoppins]

Good afternoon ladies

Sha - read R.'s cousins blog post. I totally agree with her about taking time for yourself. Well I actually like to spend time with dh when he can get some off from work. The ds say, are you going again, I said yes. They still dont get it, but who cares. They are big boys. Guess they will figure it all out someday. Life is definetly too short and how well I know that.

Candy - I hope you dont have to deal with police, insurance co. etc. like we do, or I should say dh does. The phone never stops ringing. I dont pick it up. Just let them leave a message. I dont even know if my dh is suppose to talk to the other ins. co. I told him to ask ours lst what to do. I am sure you are overwhelmed with everything too.

Well my endo called and we went over the blood tests, talked about the surgery, talked about the reclast. She is talking to the office about it and she rescheduled my visit herself into her little black book, hmm even my oncologist has a little black book with the appts. I guess it must be something they do at the hosp. etc. I felt better talking to her. Told her I was so tired. She does not know why??? She says that I should take some over the counter calcium like tums each day for my bones too.

I really like her. She communicates so well, is compassionate etc. I wish I could find a regular doctor like that. Hmm, maybe I should ask her about one etc.

Today is ds hosp. orientation for volunteers. I hope he likes it.

I saw pictures of the van that dh took. Gee, the whole drivers side of the van front part is sheered/peeled back. Windshield broke, hood smashed up etc. Its a miracle he was not hurt worse.

Dh wants to take off friday and look at cars etc. Great I dont know where to start. He says, pick out something. I am clueless. Also its going to rain, so I am not happy about that either. My head spins.

GTAGWTA.

 

[Sha]

quick note... R's cousin has stopped responding to chemo and her mastectomy has been moved up from 17th November to 6th October. Please keep her in prayers.