luvmarypoppins
<font color=darkorchid>I am debating whether to pu
- Joined
- Aug 23, 2003
- Messages
- 12,079
THANKS Laura and Happy Easter To All the Sistas!!
Hope everyone is enjoying their day. Its so cold here. I cant go out. It stinks not having a thyroid to control your body temperature. I am always freezing. At least its sunny. I went to church today and cried. (at least not out loud)Well it felt like someone hit me in the neck with a baseball bat. Not good. I am glad I am going to the dr. tomm. We will discuss stuff, like why I cant sing, dont have a voice, the pain lately etc. I Know he is putting the camera down my nose to the vocal chords.
Tues. I am going to the surgeon for the stomach/bowel. The belly button wound has opened up again. I called friday. Of course the dr. was not there, I think they transferred me to the np in the hosp. who knew me. He said its common and should take 7-10 days to close since it reopened. Hmm, I hope the radiation will not be put off again, I will pray. The diet is bearable but boring, hard work, cooking, planning and looking at what everyone else can have and I cant, cooking 2 meals all the time etc. Using too many dishes for sure. Friday night we had the communion service at c hurch. I, of course, cant have that, so I just sat their quietely with my hands folded. Later I had to tell the guy the story of the diet etc.
I am cooking the easter dinner for the family tonight. I will have something boring to eat, some meat, only 4 ounces allowed, some rice and vegetables and fruit as usual for dessert.
Linda - My son said he loved Boston. He didnt tell me everything, I know he said he stopped at UCon on the way up, went to MIT, Had 3rd base tickets for a Red Sox Game, (It, unfortunately, was not televised here), I know he visited a friend at Gordon College too and did other stuff, went to that restraunt that was on the food channel. He didnt get the $30 burger but had another kind. He said the only thing he didnt like was there was no parking!!
Blessings to you all!!
Hope everyone is enjoying their day. Its so cold here. I cant go out. It stinks not having a thyroid to control your body temperature. I am always freezing. At least its sunny. I went to church today and cried. (at least not out loud)Well it felt like someone hit me in the neck with a baseball bat. Not good. I am glad I am going to the dr. tomm. We will discuss stuff, like why I cant sing, dont have a voice, the pain lately etc. I Know he is putting the camera down my nose to the vocal chords.
Tues. I am going to the surgeon for the stomach/bowel. The belly button wound has opened up again. I called friday. Of course the dr. was not there, I think they transferred me to the np in the hosp. who knew me. He said its common and should take 7-10 days to close since it reopened. Hmm, I hope the radiation will not be put off again, I will pray. The diet is bearable but boring, hard work, cooking, planning and looking at what everyone else can have and I cant, cooking 2 meals all the time etc. Using too many dishes for sure. Friday night we had the communion service at c hurch. I, of course, cant have that, so I just sat their quietely with my hands folded. Later I had to tell the guy the story of the diet etc.
I am cooking the easter dinner for the family tonight. I will have something boring to eat, some meat, only 4 ounces allowed, some rice and vegetables and fruit as usual for dessert.
Linda - My son said he loved Boston. He didnt tell me everything, I know he said he stopped at UCon on the way up, went to MIT, Had 3rd base tickets for a Red Sox Game, (It, unfortunately, was not televised here), I know he visited a friend at Gordon College too and did other stuff, went to that restraunt that was on the food channel. He didnt get the $30 burger but had another kind. He said the only thing he didnt like was there was no parking!!
Blessings to you all!!
Most of the time I talked with the NP. I love that lady. Very knowledgeable, plus she does double duty with my lovely hernia surgeon on alternate days. She told me my neck is very tight, O.K. I know that already, told me some other lady waited like 6 months for the radiation, the healing of the most recent surgery is 4-6 weeks. That would be exactly april 18 at the 6 week level, I told her it opened back up again. Not looking so good today. Told her I am on the diet. They said only the rad. onc. will make the decision and I told her she is on vacation until 4/20, the lst day of my shot prep, great. She also said which helped me feel ALOT better that although I have the agressive variant they dont see any difference in reoccurence as they do with just the regular form of the cancer, which I do also have, just the agreesive variant added to it. So that is good. I have read somewhere women with this do a little better than the men who have this variant. I told her I am being the rad onc. guinea pig since she only has 1 patient a year with this cancer. The NP said YOU ARE THE STATISTIC. Hmm, maybe the rad. on. should write a paper on me since this cancer variant is just so rare. 
while I vent to you all
~~~***GAGWTA sistas***~~~
I cannot wait!!! 
