I don't think I posted an update after Brendan's (my BIL) last set of appointments. His transplant doctor was not pleased with the current status of his fatigue and other benchmarks of health. They are waiting to get some blood work numbers back, but he wasn't expecting them to be great. Between those aspects and his added diagnosis of colitis (ulcerative, I think) and one other thing, it looks like he will probably be going on this transplant list sometime next year. He also wants Brendan to cut out one of his jobs after the new year. He currently works part-time over night at UPS and part-time at Cabella's. The doctor wants Cabella's to go as soon as possible after the holidays in order to allow more rest and less stress. (As it is, Brendan often sleeps 2-4 hours at a time a couple of times a day.) The loss of one job will make money a little tight, but then they can also take Kaylin out of her daycare/school, or cut back on days, as he would be home with her.
In addition, he has 3 new medicines that he has to take. Two were recommended in the past, but the doctor said he didn't recommend them strongly enough to justify the $300+/month (after insurance) cost. Now with the added diagnoses they are imperative (one diagnosis ups the chance of colon cancer by 70% and this medicine can be extremely helpful in preventing it). Luckily, my advice proved true - by calling around to difference pharmacies, they were able to bring the total cost of the three meds down from $378 to something like $86. How there can be that much disparity, I don't know, but I'm glad they worked it out!
Now we're getting ready to do the Liver Walk St. Louis in a few weeks. Erin's Chick fil A has been able to raise some money over several fundraiser nights. The rest of us are now doing the same so hopefully we'll have some luck since only a few of us can actually walk that day.
Okay, I'm getting rambly. Sorry. Just wanted to post the latest update, even though it's not the best of news.