Christmas all year long!

[dizneeat]

Cute purchases!

I love the dress and shoes for Zoe - and if it is really too cold, couldn't she just wear a T-shirt underneath? And those shoes are too cute.

Can't wait to see you in your new shirt!

 

[OhioDisneyLover]

I'm glad to hear that you are home and almost back to a routine.

Love your purchases. Very cute.

 

[momabaarjo]

Sounds like you have a good plan for some time to yourself. I think I need to plan something like that. I was able to meet with a friend for dinner tonight. IT WAS AWESOME! Thing is.. Steve and I don't really fight either... but he does definitely deal with stress differently. I calmly talked with him last night about how I was feeling. He mentioned to me that he just could not do what I am doing. I told him I don't have a choice. I think in a nutshell that is the difference between moms and dads when it comes to the care giving. Moms don't' have a choice... we don't think "hmm... maybe I will just leave my child in the hospital". I think it isn't so much that dads think that they should.. they just don't think that they shouldn't.

That was the phrase that I was trying to get across and did not know how to put it in words!

Glad you got some time to slip away and have dinner with a friend. Love the dress for Zoe! I am in such a dilema on what to buy and pack for December...knowing that last year Orlando had a VERY cold December!

 

[Monknmom]

I like the purchases! I am going to go with short sleeve shirts and bring long sleeves to throw under them if it is too cold- this way we can add and minus layers as we need to! Maybe you can add a nice sweater and woolly tights to the dress ad shoes that you have just in case it's cold and then take away as you need to? But they are cute- Steve's shirt is funny! My son loves phineas and ferb!

 

[KatMark]

Cute purchases, Ann. That dress is adorable (she could always wear a little sweater over it if it is too chilly). And the shirts --

 

[swwake]

I've been following along but haven't had time to post. So sorry for all that you and Zoe had to go through but I'm really glad she got to go home without the PICC line surgery.

Love the dress and especially the shirt you got yourself!

 

[flamestarrdust]

I'm glad you and Zoe are finally home again. I hope she continues to get better and doesn't have any more issues.

On another note, they closed by TR before I was finished so I went ahead and started my new PTR so I could finish the TR there. The link to it is in my signature.

 

[annmarieda]

I am in such a dilema on what to buy and pack for December...knowing that last year Orlando had a VERY cold December!

I know... that is me too. I think once I stop stressing about airfare... I will start stalking the weather forecast sites. I know that last year was horribly cold... but there have been years that have seen warmer temps. I would like to be able to swim. Especially since this is our first trip where we do not plan to go commando and would actually like to kick back a bit by the pool. However, if it is too cold...

Cute purchases!

I love the dress and shoes for Zoe - and if it is really too cold, couldn't she just wear a T-shirt underneath? And those shoes are too cute.

Can't wait to see you in your new shirt!

Thanks! I am not sure if I want to save it for the trip or wear it early. I let Zoe start wearing the shoes already so those are definitely no longer going to be for the trip.

I'm glad to hear that you are home and almost back to a routine.

Love your purchases. Very cute.

Thanks

I am going to go with short sleeve shirts and bring long sleeves to throw under them if it is too cold- this way we can add and minus layers as we need to! Maybe you can add a nice sweater and woolly tights to the dress ad shoes that you have just in case it's cold and then take away as you need to? But they are cute- Steve's shirt is funny! My son loves phineas and ferb!

I think this is a wise plan. I will still watch the forecast. I have each trip and it has helped so that I knew what to pack. Last September was easy cause it was so hot.. didn't have to pack sweaters and sweatshirts etc... Even if we get warmer December weather, I am sure I will still need to pack some things to layer for the cooler nights... makes for a full suitcase. Then there is all the "stuff" in my red bin that I have been stashing. Not sure how to pack all that too.

We love Phineas and Ferb... it makes us laugh

Cute purchases, Ann. That dress is adorable (she could always wear a little sweater over it if it is too chilly). And the shirts --

Thanks... I think I will definitely bring some layers for it. That is unless the forecast is for 70 and 80 degree days.

I'm really glad she got to go home without the PICC line surgery.

You and me both!

I'm glad you and Zoe are finally home again. I hope she continues to get better and doesn't have any more issues.

Thank you!

On another note, they closed by TR before I was finished so I went ahead and started my new PTR so I could finish the TR there. The link to it is in my signature.

Sorry you had to start a new PTR... and I have to get over there..but a cruise????? I am on my way there now.

 

[Monknmom]

Yep I will have a close eye on the forecast too, although they are not always that accurate!
I love that Phineas and ferb is funny, but not in a bad funny way- hard to explain!

 

[flamestarrdust]

Sorry you had to start a new PTR... and I have to get over there..but a cruise????? I am on my way there now.

We decided on a cruise since none of us had ever been on one and the price was a bit lower when taking an extra person. We really wanted to be able to take DFi's mom with us. We are planning to go back to WDW October 2013 and stay onsite. Not sure where yet. I have ideas but no definites. 2013 ended up being a better option for us because Alleyah was really bummed on our last trip because they had closed down Ariel's Grotto and she wants to go there once they open the new Ariel ride. We picked October because of weather, MNSSHP and the Halloween Festivities at Universal. DFi has always wanted to Universal's Halloween so this was a great opportunity to fit that in.

 

[KatMark]

Ann, just popping in to see how you and Zoe are doing, and to say I hope you have a nice, relaxing weekend.

 

[annmarieda]

Kathy (and everyone else), Zoe is dong well. She is a tad fussy... and we have some struggles with taking medicine and irrigating her bladder. Her tubes can not come out soon enough! As a part of the routine, I take a syringe and "draw back" out of the tube. I know it causes her pain because her bladder will spasm so hard it causes the syringe to jolt. I feel bad for her.

I finally got some clarification on discharge instructions. Originally when she was first discharged there was one set. The second time a different set. The morning of the second discharge a verbal from the resident who was tending to her.

In the end, there was a fourth and final set. See... this infection sets back the process of allowing her bladder to fill and then empty. While it is "dirty" we don't want her "new" bladder to hold all of the yucky urine. But the tubes need to come out 4 weeks from surgery (just 2 more to go ) Anyway... the original plan would have been to allow the cycling process to happen for an hour at a time for a week... then 2 hours at a time for a week and finally 3 hours at a time for a week to get to the 4 weeks past surgery. Since we can not start until monday...we will be speeding up the process to 4 day marks instead of 7 day. So 7/28 we should be pretty close to "normal" since she will be completely cycling and her tubes will come out.

Despite the tubes and what not... it is super nice that she is dry. I think the hardest part is now behind us.

 

[KatMark]

Kathy (and everyone else), Zoe is dong well. She is a tad fussy... and we have some struggles with taking medicine and irrigating her bladder. Her tubes can not come out soon enough! As a part of the routine, I take a syringe and "draw back" out of the tube. I know it causes her pain because her bladder will spasm so hard it causes the syringe to jolt. I feel bad for her.

I finally got some clarification on discharge instructions. Originally when she was first discharged there was one set. The second time a different set. The morning of the second discharge a verbal from the resident who was tending to her.

In the end, there was a fourth and final set. See... this infection sets back the process of allowing her bladder to fill and then empty. While it is "dirty" we don't want her "new" bladder to hold all of the yucky urine. But the tubes need to come out 4 weeks from surgery (just 2 more to go ) Anyway... the original plan would have been to allow the cycling process to happen for an hour at a time for a week... then 2 hours at a time for a week and finally 3 hours at a time for a week to get to the 4 weeks past surgery. Since we can not start until monday...we will be speeding up the process to 4 day marks instead of 7 day. So 7/28 we should be pretty close to "normal" since she will be completely cycling and her tubes will come out.

Despite the tubes and what not... it is super nice that she is dry. I think the hardest part is now behind us.

Ann, so sorry that she is having pain when you have to draw back out of the tube. Glad you finally got some clarification on the discharge.

Here's hoping that everything continues to go smoothly and only 13 more days until the tubes come out.

Try and get some rest this weekend (tell Steve to give you a break!).

 

[dizneeat]

Ann, I am glad to read that things are looking better. I really really really hope that sweet little Zoe will soon be free from everything and most of all painfree!

Try to kick back a little and relax (if you can!)

 

[momabaarjo]

Despite the tubes and what not... it is super nice that she is dry. I think the hardest part is now behind us.

 

[annmarieda]

Ann, so sorry that she is having pain when you have to draw back out of the tube. Glad you finally got some clarification on the discharge.

Here's hoping that everything continues to go smoothly and only 13 more days until the tubes come out.

Try and get some rest this weekend (tell Steve to give you a break!).

Steve is aware that this weekend is his "shift" with her. (finally) Course... it is because I have ad change at work. I will be busy busy with work this week. So... no rest... but other people are going to be helping with her.

Ann, I am glad to read that things are looking better. I really really really hope that sweet little Zoe will soon be free from everything and most of all painfree!

I pray that she has little pain.. but it is likely that she will remain on antispasmodics the rest of her life. However, it should settle down as the different tissues start to "forget" what they were once.. and start becoming familiar with their new surroundings.

 

[Monknmom]

Hey, I hope that you got to take a little "coffee" break to yourself this weekend! And I am glad that she's feeling a little better, but upset that she's in pain when you need to do something that's necessary!

 

[veggiemama]

Hi Ann,

I know things are crazy busy right now. Just want you to know I'm thinking and praying still over here for you guys. Glad that Zoe is home and I hope that all is getting better and better every day.

What a wonderful mommy and strong strong woman you are!

 

[annmarieda]

Hey, I hope that you got to take a little "coffee" break to yourself this weekend! And I am glad that she's feeling a little better, but upset that she's in pain when you need to do something that's necessary!

Hi Ann,

I know things are crazy busy right now. Just want you to know I'm thinking and praying still over here for you guys. Glad that Zoe is home and I hope that all is getting better and better every day.

What a wonderful mommy and strong strong woman you are!

You gals are the best!!!

 

[annmarieda]

So it has been a bit of time since we have played... and I wanted to keep this game going till close to the time of my trip. However, this break has made me realize it might be time to change it a bit.

For one, I think you all pretty much recognize each of my family (and since Zoe is often the subject of the pictures) it seems a bit pointless to have the subject part of the answer each day. So lets do away with that. Now we will just figure out where the picture is taken and bonus points can be added for extra information. Does that sound fair? I still want to give something special for the winner...and maybe a little something for each participant.. so I will eventually need a snail mail addy from those who want to play/win..etc. Just send me a pm. I promise that I am not a total crazy person. (just mildly so when it comes to disney. )

So without further ado... the next picture is.....