Thanks for posting an update, Kathy. I was pretty tapped when I got home. Then... I just wanted to get some laundry done yesterday.
So not sure what Kira posted. (have yet to get over there)
But... this is how monday went.
I was instructed to be ready around 4 to 5 am. Things would likely start to move quickly at that point.
I woke at 5 am with Zoe needing help with one of her tubes. I took care of that and found it to be great timing since I could then get ready.
I got ready and some time around 7 the residents finally came in and discussed some of the plan with me.
Zoe was to get a pic line. From there we would see how long it would take to set up all the at home stuff and teach me how to administer the medication. They were a bit vague beyond that. In talking with the nurse, she tried to prepare me that often they like to see the parent give a couple of doses. (this would mean another night at best)
Zoe was on a "nothing by mouth" diet since she was going to be going under for the placement. The nurse was doing a great job keeping me up to date on anything happening so I could prepare. I was told that the hospital was having meetings regarding Zoe since there did not seem to be agreement on what to do with her. See... when admitted, she had a fever and white blood cell count was up to 17. Within 12 hours of getting back on iv antibiotics, she perked up and her wbc count was back to normal. While the UA was dirty, they were waiting for the culture of her urine and blood. Guess what? Urine and blood were both clean. So... what was the cause of infection???? This is where and why the different teams were having a hard time agreeing.
In the 9'oclock hour the infectious disease doc came in flustered. She told me they would have a decision in 5 minutes. Her recommendation was to do an ultrasound and then do the pic. She acknowledged that the uro team did not want to do the US... and that if they chose not to then she would not sign off on the pic.. but would send Zoe home on augmentin.
Shortly after noon one of the residents finally came in to give us the verdict. Zoe was being released with augmentin. No US... NO pic. Zoe was allowed to finally eat something and we were allowed to pack to go home. Just as the nurse came in to give us the same news... a gal came in from IV team to get Zoe ready for the pic. So... obviously this was an 11th hour type decision. They really must have gone back and forth. It was good timing too since Zoe blew yet another vein. We were told that we might end back in the hospital... but that they hoped not.
So we got all packed up got her prescription and headed home. It took forever to get home. I think we were home by 8 or so.
Yesterday went well... other than there seem to be some confusion regarding when to come back to have tubes removed and what our discharge instructions are. I will get that squared away. The resident said she would have her tubes in for 4 more weeks. (instead of the 2 that were originally remaining) If that is the case... Zoe won't be able to go swimming or really play for most of the summer. I feel bad for her...
Now I am just trying to get back into a routine. I have to work some today or tomorrow.... and then the big push comes this weekend. I really hope that I can rely on my family to help watch Zoe. I didn't get a ton of support from them while Zoe was in hospital. (Kira tried... but she doesn't drive on freeways...so had to wait for her dad or husband to drive up.) So.. get my house back in order... get the rest of the laundry done (I almost got it all done yesterday) and I will be on my way back to a routine.
Thank you all so much for hanging with me through all of this. I spent many many lonely hours at the hospital and without your posts, I would have had an even harder time trying to get through it all.
