Allergy report from the Kingdom

mummajea

Mouseketeer
Joined
Feb 23, 2001
Messages
107
Hi- Got back this week from WDW and I thought I would report on our experince in dealing with our DD's nut allergy. She would not eat anywhere until we had mentioned her nut allergy, so everywhere we went we were asking about it.

We ate at many differnt places from sit down restuarnts to counter services. At any sit down, all we had to do was mentione the word "allergy" to our server or hostess and they immediately got the chef to discuss the menu with us. At the counter service restuarnts we had to be a little more careful. Most (ok all) of the places we went to had PBJ's as a kids meal on there menu. At first we avoided these areas, but then I talked to one of the chef managers and he assured me that the PBJ's were not prepared by the other food. At some of the restuarants they are already brought in packaged and bagged into the "kiddie meal" bags.

The only place we almost had a complete diasater at was at the AK. Compared to the other parks there choices of where to eat are few and far between. We were told that the restuarant in Africa (cant' remember it's name) was "safe", but on thatday their special was "peanut encrusted fried chicken" YIKES!!!! That would have been a guarenteed emergency room trip. Luckily DH saw it right before we ordered. we ended up going to the Pizza place, though I had heard not so good things about it. We got the Pasta dish. Came with a salad and bread stick. It was very good actually.

The other issue that we dealt with at the counter service places were "sticky tables". Ther again all we had to do was approach one of the CM's that were bussing the table and explain that we wanted to be careful about contaimination. They always were very polite and accomadating. I think it helps to be very gracious and polite to them. We always offered to do it ourselves, and we would have, but they would refuse and immediately help us out. They always did an extra special job for us. More then just the swipe with the rag. They would get a clean rag, wipe the top and edges of the table and also wipe the chairs. We never asked them to do this, it was just part of the WDW treatment.

We did avoid all deserts and baked goods. Those are just to easily cross contaminated. The chefs always recommended this to us, and always offered to accomadate us with ice cream or italian ice or whatever, but we just declined.

I hope that we were not just lucky in encountering very considerate cast memebers, and that everyone with special requests are treated the same. It may have helped that my 6 yr old DD would be standing there saying, "Momma did you ask, did you ask??? I don't want to get sick!!!" By the end of the trip I was going nuts (no pun intended) with her asking that. But I am thankful that she is so conscious of her allergy and is aware of being safe.
 
Glad to read all went well food wise on your trip. I don't know how old your daughter is, but I'm glad she is aware of her allergy & the fact that she does not want to get sick. Hope all continues to go well.
 
We had the same great experience with Disney! The cruise people were great too!
 
I am so glad to hear you had a positive experience. I was getting a little worried after reading some discussions from last month. We are fairly new to the food allergy club. Our 2 year old was just diagnosed in March and we haven't been away since then. We are planning on a two week Disney trip in January so any advice and hints we can pick up are greatly appreciated. Which restaurants were most helpful dealing with the food allergy, and did you do any character breakfasts? My son is still a little scared of the characters so we may end up doing a "girls only" breakfast at Cindy's and I'll let my husband walk our son around. (We have a four year old daughter with no food allergies).

Once again, glad to hear Disney was so accomodating and you were able to enjoy it.

Gina
 

Glad to hear your trip went well. It's nice to hear that they went the extra steps to accomidate your DD.
 
GOLFCHICK....

What allergies does your son have??? This can make a big difference in what you need to avoid.

Here are some of the places we ate.
Cindy's for breakfast Which I think your 2 yr old would love regardless!!! Didn't have the muffins brought to the table since that day they had both blueberry and banana walnut muffins.

1900 Park Fare Stay clear of the desserts they mix them up and you never know who has handled what. They did offer to make up a special plate in the kitchen but since nothing on the main course buffet had nuts we didn't feel it was neccessary. DD ended up eatig Broccolii, carrots, some roast pork and spaghetti.

Liberty tree Tavern (dinner) Once again just avoided the desserts.

Brown dergy (excellent meal..kids menu actually was healthy...nothing deep fried offered at all!!)

Hoop Dee Doo...Be very careful!!!! The Strawberry short cake is not safe!!!! Our waitress said that there is almond in the shortcake. She wasn't sure if it was just flavoring or actual nuts, but we didn't risk it. They brough us a plate of fruit that was HUGE!!!!! We ate tons of it that night, got a to go box and had it for breakfasy the next morning and as an afternoon snack!!

Whispering Canyon Cafe...avid the bread pudding everyning else was safe. Our waiter Stephen also had a nut allergy and his son has a milk egg soy allergy. He was very good!! He can't even serve a nut dish so we felt good with him.

Various counter service places, we just avoided the kids menu with PBJ's

Hope this helps
:pinkbounc :pinkbounc :pinkbounc :pinkbounc
 
Thanks for the reply. Our son has multiple allergies-peanuts, tree nuts, wheat,milk, egg, soy, and corn which to a 2 year old is almost everything! He had his first reaction (hives) when his sister used the same spreader to put jelly on a cracker (she was eating peanut butter). His second reaction was when my friends husband gave him a kiss after eating a walnut cookie (which I had made). When we had him tested the allergist ran all the common allergens and came up with the rest which were a total surprise to us since he shows no reaction to wheat, egg, milk or soy. When we're home I try to cook once and just adjust using his ingredients so it will be a challenge to eat out constantly. We are staying in our timeshare outside the park so I'll have a kitchen, but who wants to cook when you're on vacation!!!

As many times as I've been to Disney (17), I've never done the Hop-De-Do. I appreciate your suggestions. I guess the rule of thumb we should follow would be to dine out in the sit down restaurants since they would be more accomodating.

Gina
 
gflochik

Ok I know I am starting a controversy here, but since your son has had no signs of reacting to the other allergens except the nuts he really may not be allergic to them. Skin testing for food allergies is NOT always accurate, and most of the time (I believe I was told over 80%) gives false positives.

Remember everyone this is just my experince:
1. I have two older sisters who have nut allergies, and the "common" seasonal allergies are all over my family.

2. My mom worked for an allergist as a nurse for over 25 years before she died.

3. These allergist doctors were some of the best in their field in my opinion. They are affliated with some of the top research and teaching hospitals in Chicago. They were and still are the doctors that we went to most of our lives. (we personally no longer due since we are in MI)

4. They have always been very conservative in diagnosing food allergies by "scratch tests" or skin tests.

When we went to the allergist here in MI he wanted to do skin tests for foods. I already knew that DD was allergic to nuts...a few trips to the hospital kind of clues you in!! I wasn't thrilled about this since the tests were going to be a truama as it was (DD does not like needles). But since it was part of the "work up" the following was tested. Milks, soy, wheat, shellfish. Well it comes back that DD is allergic HIGHLY to milk products and to Wheat products!! Which is hogwash since DD drinks at least four 8 oz glasses of milk a day (her choice ) and we very rarely have anything except whole wheat bread in our house.

Needless to say I called our old Docs and asked their opinion. That is when I was told that it was not accurate and had high false positives. We changed docs up here in MI!!

NOW ALL THAT SAID AND DONE THIS IS MY OPINION AND EXPERIENCE!!!! I AM NOT A DOCTOR OR PLAY ONE ON TV!!! EVERYONE NEEDS TO TAKE IN ACCOUNT THEIR OWN CHILDS HEALTH AND THEIR TRUST IN THEIR DOCTORS. I DID NOT LIKE THE FIRST DOC WE WENT TO, SO I GOT A SECOND AND THIRD OPINION. THE OTHER DOC WE ENDED UP WITH DOES NOT TEST FOR FOOD ALLERGIES AS A ROUTINUE AND FEELS THAT SINCE DD HAS NEVER HAD A REACTION TO MILK PRODUCTS THAT THE READING WAS FALSE. I AM GLAD I WAS WELL INFORMED AND THAT WE PURSUED OTHER OPTIONS.

I am now off my soap box.
 
Well I'm back from a short 3 day trip with the family and I am happy to report that we did not experience any problems with dining out. We did 2 amusement parks in PA and my son ate well and without incidence.

Thanks for your advice regarding the skin testing, however in OUR case, his allergies were detected by the blood test. We're hoping that he'll outgrow the "non-life threatening" ones; milk, soy, egg, and wheat and be left with the nut ones since everything we're reading says he has at best a 20% chance of outgrowing the nut allergies. The more people we talk to have differing opinions on whether he's really allergic to the others since he shows no signs. Our allergist told us we can recheck him at the end of the summer since we have him on a close to total elimination diet.

On a positive note on traveling, the restaurants we visited were not surprised when asked about cooking oils and methods of food preparation, I think, and this is just my opinion, that thay are becoming more aware and informed about the allergies, especially nuts.

We are still planning for 2 weeks at Disney with a possible 3 or 4 day cruise in there someplace. Hubby and I took the 7 day in April and loved it and promised to bring the kids soon. We want to do it before our 4 year old outgrows her "princess" obsession and after 5 years old the kids club seems to get more lab-inspired instead of fantasy.
 
hello, gfolchick!

We have a 5 year old with wheat, egg, milk, corn, latex, etc. allergies.
It is amazing the lack of understanding we run into, eh?

If you are interested in chatting about the uniqueness of parenting a severly allergic child, go
ahead and pull our e-mail from the members section.

M & Bob
 
We also have kids with food allergies (DD (almost 5) to peanuts and DS (3) has celiac disease (gluten allergy) as well as dairy and probably soy.) My DD is fairly easy to dine with, as she understands the issue, and so won't even touch peanut-laden foods. My DS, however, is also autistic, and so does not understand why he can't eat what everyone else eats. When I called the executieve chef's office at WDW, they were wonderful - they said that they'll try and make sure that DS has foods he likes, and will even make things which I generally don't get a chance to (such as gluten-free/casein-free pizza.) Now I just need to get on the ball and do some planning, so I can make those PSes (we're going in mid-Sept.)

In case anyone wants to chat with the executive chef's office about their families food issues, the number is (407) 824-5967.

MB
 
MB
Thanks for the phone number. We're planning a trip for early next year and I'm already looking at menus for restaurants we can take our son to. I know we can make special requests, and the pizza would be great. Any other ideas? Part of the planning of this trip has to be where to eat, and then what suggestions to give the chef while there. I don't want him to burn out on eating a plain hamburgers. We've always dined out spur of the moment depending what we are in the mood for, but it is harder to do now if we have special requests. I know he would love a plate of pasta and meatballs but the pasta would have to be rice and the meatballs can't have egg, cheese, milk, or wheat in them.

Can anyone suggest restaurants that have been extra accomodating for this type of situation?
 
I was told Tony's on Main Street was particularly good for kids with food allergies, and so we've already made our PSs. Also, Chef Mickey's and Crystal Palace, although buffet style, the chefs are very happy to accomodate with special foods. The executive chef said to stay away from most of the World Showcase restaurants, with the exception of Canada, as they weren't as accomodating as other areas. At MGM, she recommended both the '50's Prime Time and Sci-Fi restaurants, as long as we give them 3 days notice. All the resort restaurants were highly recommended, as long as you give them some notice, as well. Wheat and dairy allergies are pretty common these days, and the executive chef said that restaurants around WDW have gotten used to preparing foods w/o many high allergen ingredients.

Good luck, let us know how it goes. It would be great to keep a thread going which describes the success/failures of dining at WDW w/ food allergies. Even on Deb's "Taking your autistic child to WDW" page, food issues weren't addressed (many autistic kids are on gf/cf diets.)

MB
 



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