The THYROID Thread

andersonsc

Mouseketeer
Joined
Jun 17, 2009
Looking for guidance/advice. My son just got labs back and TSH is 6.7 Is this that bad a result with normal being 5? PCP said she’d order antibody test and start him on thyroid med. is it ok to have this treated by pcp or do we need endocrinologist? Son is 20 and has been tired for years. Last TSH a few years ago was 2.
 

squeegee

DIS Veteran
Joined
Sep 8, 2011
Based on my experience, that’s not terrible/awfully high. It must also be looked at in conjunction with the other thyroid hormones, and other lab tests. Good that they’re checking antibodies. Has he had an ultrasound?

If your PCP is knowledgeable, they’re definitely able to manage this for you, without an endocrinologist. If you don’t think they’re up to speed, an Endo may bw useful, but finding a good doctor is trial-and-error. 👍🏻
 


andersonsc

Mouseketeer
Joined
Jun 17, 2009
thank you for your help.

QUOTE="squeegee, post: 61842395, member: 397314"]
Based on my experience, that’s not terrible/awfully high. It must also be looked at in conjunction with the other thyroid hormones, and other lab tests. Good that they’re checking antibodies. Has he had an ultrasound?

If your PCP is knowledgeable, they’re definitely able to manage this for you, without an endocrinologist. If you don’t think they’re up to speed, an Endo may bw useful, but finding a good doctor is trial-and-error. 👍🏻
[/QUOTE]
 
  • Christine

    DIS Veteran
    Joined
    Aug 31, 1999
    Hello everyone. I can't believe I haven't looked at this thread is SO long. I guess because I was teleworking so much that when I'm done, I can't bear being on so much. I usually make a few posts on the community board and then I am done. @luvmarypoppins OMG! I'm so sorry you had to go through that and glad you made it. My coworker had this and survived also. Turns out she has some genetic issue that causes it. Both her father and brother died of this. She was in the hospital visiting her brother when she collapsed and got diagnosed with the same thing.

    Just to address past posts:

    I take brand name Levoxyl and have for years. I don't know why but I like it better than Synthroid. My TSH seems even more stable where with Synthroid, I tend to get too hyper and can't control it much with dose changes.

    To @andersonsc, hope your son is doing okay. A TSH of 6.7 is definitely too high to be living life with (although you can). For a non-thyroid cancer person, one should aim for a 1-2 TSH level.

    I've been home since March 17th. I don't do much but go to grocery stores (probably too much). For the first 6 weeks I was home, I just ate what I wanted and my weight started creeping up again (fast) so I'm back on a better plan of eating and it's nice that I've lost a few pounds. Feeling better already; although eating was the highlight of my day and I don't have that anymore. :o Weather around here is still funky. Mostly cold and rainy. I can't wait to get some HEAT!!!

    My parents are down in Florida in their home at The Villages. They left right after Christmas and they generally stay through early May. They are holding off coming back because there's nothing to do here in Virginia. They have a TAD bit more freedom in Florida and the weather is better. Their restaurants are open but my parents won't go. It's kind of ridiculous anyway, my mother says. Low capacity, paper and plastic everything, masks. How do you eat a steak with a plastic knife and fork! My mom's bummed because Sweet Tomatoes is never going to reopen. It's one of her favorite places there.

    Oh well, everyone enjoy the weekend and have a happy Mother's Day.
     

    luvmarypoppins

    <font color=darkorchid>I am debating whether to pu
    Joined
    Aug 23, 2003
    Checking in. Welcome to all the new posters
    Squeegee - Sorry to hear you are dealing with these health issues
    Christine - good to see you post!!
    We haven't heard from @SingingMom
    I had a terrible reaction to that antibiotic and was practically paralyzed for 3 days. Ds said go to the hospital. I refused.
    We are locked down until at least June 6. Dh does our shopping. Getting takeout next week for my bday and our anniversary.
    Went for blood tests at 6:30 am. I was the only one there then 3 people came in.
    Mon. I am having phone visit with endo. They insisted with no sono, gheesh.
    Had phone visit with pcp. My liver and kidney are back to normal.
    I don't do the video phone just talk.
    June 9 I am finally getting the neck sono and then aorta cts. They said I am suppose to be the 1st in the machine for the day.
    Ds3 was doing covid patients. Very hard and emotional. He is doing surgical ICU now.
    We know 4 people who have died. Saddest being our church secretary's husband. Such a great guy!
    Be safe everyone.
     

    SingingMom

    DIS Veteran
    Joined
    Jul 4, 2001
    I use the name brand. My insurance only pays for the generic. With thyroid cancer I don't want generics because you don't know what fillers are in them.
    My insurance changed to "generic" and my doctor personally notified them that it was unacceptable. (been on Synthroid for almost 30 years!) They revised their ruling.
     
  • SingingMom

    DIS Veteran
    Joined
    Jul 4, 2001
    Checking in. Welcome to all the new posters
    Squeegee - Sorry to hear you are dealing with these health issues
    Christine - good to see you post!!
    We haven't heard from @SingingMom
    I had a terrible reaction to that antibiotic and was practically paralyzed for 3 days. Ds said go to the hospital. I refused.
    We are locked down until at least June 6. Dh does our shopping. Getting takeout next week for my bday and our anniversary.
    Went for blood tests at 6:30 am. I was the only one there then 3 people came in.
    Mon. I am having phone visit with endo. They insisted with no sono, gheesh.
    Had phone visit with pcp. My liver and kidney are back to normal.
    I don't do the video phone just talk.
    June 9 I am finally getting the neck sono and then aorta cts. They said I am suppose to be the 1st in the machine for the day.
    Ds3 was doing covid patients. Very hard and emotional. He is doing surgical ICU now.
    We know 4 people who have died. Saddest being our church secretary's husband. Such a great guy!
    Be safe everyone.
    I'm here! lol I haven't been on the DIS because we are living it. DD was furloughed April 19. After her being alone for over a month, DH and I flew down to check on her. Try telling this Mama Bear she couldn't go to Florida from NY/NJ/CT. I would have given Gov. DeSantis a piece of my mind.. :cutie:

    DH stayed a week, I stayed an extra week and DD & pup returned with me. She'll probably stay another week before heading back to Florida. Thank God she has the pup. I'll probably go back when she is called back to work because the dog will have a hard time adjusting!

    We have looked at some Del Webb communities and 4Seasons communities. Think we like the one in Tampa area the best. Need to get busy to sell this house and fly south!
     

    luvmarypoppins

    <font color=darkorchid>I am debating whether to pu
    Joined
    Aug 23, 2003
    I had my phone visit with the endo today. She said my tsh went from .1 up.to .6 and of course with thyroid cancer thats a big no no. So instead of an extra 50Mci I take on Sunday she now wants me to take an extra 150Mci and then have a blood test recheck in a month and she will have another phone visit with me. They only give her a 2 week schedule right now. Told her the vitamin d test was not ordered.
    She of course wanted to know about the surgery.
    Also I told her to please call after the sono.
    All this medical stuff right now makes my head spin.
     

    luvmarypoppins

    <font color=darkorchid>I am debating whether to pu
    Joined
    Aug 23, 2003
    Celebrating National Cancer Survivor Day today!!!
    It was definitely different celebrating my birthday and our anniversary this year. Nothing says romance like ds3 sitting at the table with you while blasting the tv.
    Tuesday is my neck sonogram and aortic ct's.
    The endo still hasn't sent my blood test script.Sigh. I am beginning to lose a little confidence in her. I will call I suppose to follow up with the office especially if she doesn't call with the sono results.
     

    luvmarypoppins

    <font color=darkorchid>I am debating whether to pu
    Joined
    Aug 23, 2003
    Well here are my updates. My testing was a nightmare. Sitting with a beeper in a hot van for 1 1/2 hours. Dh went in 3 times. Last time he said he wasn't leaving until they called me. They said they mixed up my testing schedule. Neck sono girl was young and unfriendly. Never going to this location again.
    Endo's nurse called. Said sono looked good. Told her I never got the blood test script. Said she would mail it. Nothing, sigh. Calling again tomorrow
    Saw surgeon tiday. They let dh come in with me hooray! Good and bad. One thing has healed but now I know why I am having stabbing pain in my back. My scoliosis is so bad it's pressing the aorta and graft right up against my ribs and it's causing a pool of blood behind my aorta. That is very bad.
    We will do a ct in sept. And maybe surgery in Oct. Yup perfect timing because my dh is suppose to go to Germany in Oct.
    Now I need to call Pcp for a follow up. Surgeon says I need to ask her for a prescription pain killer.
    I am getting weary of all this medical stuff. At least he was willing to wait until after the wedding unless it turns into an emergency and I am basically not suppose to bend, stretch etc, so basically veg out lol.
     
  • luvmarypoppins

    <font color=darkorchid>I am debating whether to pu
    Joined
    Aug 23, 2003
    I got my blood tests last week. Haven't heard from the endo yet. This Quest lab is the biggest one around here and they had 4 or 5 chairs out. The other 25 were stacked up and roped off.
    Aug. 1st is dil bridal shower. I am just so done with this already. 85 people are invited:scared1:. The mom has 2 back up plans besides this restraunt. She showed me the list. My son didn't really tell me who was invited. He actually made me uninvite people to the wedding. I know 3 people invited not including other dil who is corona virus crazy and probably won't go. I told mil I will try and go and stay until I can't take the pain anymore.
    Dil finally got called back to work. Future dil not until oct.
    Have a great holiday and check in when you can.
     





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