The THYROID Thread

[macraven]

Oh my goodness!

Dearly pray that tomorrow testing will turn out good and no more surgery needed


Hope you are not in pain and have a quick healing

 

[SingingMom]

Jan 19 I almost died.
Had an aortic dissection
Surgeon operatedt and fixed the top
Tomm I am having a ct scan see if I need more surgery

How terrible!!!!! Please know you are in my prayers and if you can update us, we want to know how you are doing!

 

[Haimia]

OMG, Luvmarypoppins, that is awful and wonderful that you made it to surgery! Aortic dissection usually results in the big "D"! I hope the CT reveals no need for more surgery. Hope you heal well! I have an aneurysm in my upper thoractic area that is being watched.

 

[luvmarypoppins]

Hi everyone! Trying to heal, recover and get back to the land of the living.
God is so good and I am so thankful to be alive!
One nurse told dh it was very bad and they all needed to come say goodbye.
I remember everyone crying, ds3 asking my wishes. Told him what cemetery and what to dress me in. But God had other plans.
No one ever saw someone live like me. My body made all these blood clots around my aorta to protect it
They had to put a special spinal catheter in me so I wouldn't get a spinal stroke and be paralyzed. They had to call in the head of pain management to do it 9pm. No one wanted to touch me because of all my surgical scar tissue. Right then the pastor of our church was on speaker phone praying and the dr.said, yeah we can use all the help we can get.
Only met the surgeon before the surgery. Head of the vascular surgery dept. Very nice. It was ds2 bday and I prayed I wouldn't die on his bday.
They had this huge hybrid operating room for me with 4 surgeons, head of cardiothoracic surgery, giant tv screens.
The surgeon told dh he operated on 2 people with as much damage as me and they both died. He said I was "very impressive" . He never saw anything like this before! Only God!
The ct showed extensive damage. He most likely will repair the bottom in the future. It's less risky and no spinal drain.
They normally do follow up ct's every 6 months but mine is so bad they have to do it every 3 months.
Ds3 has FMLA and had been taking care of me. Tomm. going back to reg. dr. and wed. last day of home pt.
I feel like I am on the low iodine diet at times with the salt restrictions etc.
And in other news ds1 is going to the basketball playoffs
Future dil got her wedding dress. It's ok. A modern style. Got it here not in NYC.
D's 2 visits alot.
Ds3 is getting a job in the intensive care float pool. He had so many people visit my room.
Now they think this could be a connective tissue disease and want the d's checked out. Ds3 is good so far.

 

[Haimia]

Get well soon! Really scary stuff you mentioned above!

 

[luvmarypoppins]

Just checking in. Hope everyone is well.
Christine - Haven't seen you post in a while. Hope everything is ok.
Well corona virus is alive and well here. 1 person positive in our county. Ds3 has gotten his rules. He can wear hospital assigned scrubs, leave them there and take a shower before leaving there. Right now he is training through the ICU's but I am sure he would be assigned to that in the future.
Dh has been sick for 2 weeks but slowly getting better. Ds3 is amazed I haven't caught it. Mostly a bad cough etc.
I always feel weak and tired. Sometimes I feel nauseous and feel like I can't eat alot. When I do some of the pt exercises I feel out of breath. I don't know if this is my new normal. Also I get pain by my heart and left shoulder where the graft was implanted. It is annoying.
Will be getting a blood test and sono for the cancer checkup in the next 2 weeks.
Ds1 has his last playoff friday. There was a little video online from the local news. Got future dil her bridal shower gifts just in case. She said the shower list is 90 ladies. Omg! This overwhelms me.
Got some insurance benefits statements. I am so thankful for dh working so we have good insurance. So far it's about $200k.
Check in when you can.

 

[MamaBelle4]

Really glad I found this thread, I'm going to take my time and read through it. After literal months of complete exhaustion, I was just diagnosed with hypothyroidism. I don't really know what that means yet. I've been put on levothyroxine and I have to take a multi vitamin because I'm anemic. I wish I would have thought to look here when I was checking out my labs! The antibodies one terrified me! The value is supposed to be under 9, but mine was >1,000.

I'm hoping this stuff works quickly and I get some energy back. I'm tired of being tired all the time!!

 

[luvmarypoppins]

How is everyone doing?
We are on lockdown here in NY until May 15
Dh working from home
Ds1 survived a 10 person lay off so far Still wondering if the wedding will happen.
Ds2 working from home. Dil on unemployment until company reopens
Ds3 in corona central. He gets to wear a special 1500 mask because of his big nose. Everyone is jealous. It's like an astronaut helmet with battery pack.
Future dil now has 12 bridesmaids and dh is the best man.
I am sick with the bad cough. Getting meds. Phone visit with np. No video.
Need aortic ct In 2 weeks and they moved the visit to June
Haven't called endo yet

 

[macraven]

Do many here take synthroid or do you use the generic?

(I had issues with the generic before.)

 

[luvmarypoppins]

I use the name brand. My insurance only pays for the generic. With thyroid cancer I don't want generics because you don't know what fillers are in them.

 

[squeegee]

How is everyone doing?
We are on lockdown here in NY until May 15
Dh working from home
Ds1 survived a 10 person lay off so far Still wondering if the wedding will happen.
Ds2 working from home. Dil on unemployment until company reopens
Ds3 in corona central. He gets to wear a special 1500 mask because of his big nose. Everyone is jealous. It's like an astronaut helmet with battery pack.
Future dil now has 12 bridesmaids and dh is the best man.
I am sick with the bad cough. Getting meds. Phone visit with np. No video.
Need aortic ct In 2 weeks and they moved the visit to June
Haven't called endo yet

Doing alright here, all things considered. Received new diagnosis in November, of Lambert-Eaton myasthenic syndrome, which helps explain the fatigue and weakness I’d been struggling with since the thyroid cancer. Went on FMLA in August and was let go in January. So, I guess it was good timing. LOL. Have been quarantined with my daughter for weeks. Only hubs goes out for work and groceries.

 

[squeegee]

Do many here take synthroid or do you use the generic?

(I had issues with the generic before.)

I use name brand Tirosint. There’s a coupon on their website that works with my insurance and brings my cost to $25/mo.

 

[crazylady]

Do many here take synthroid or do you use the generic?

(I had issues with the generic before.)

I take the generic with no issues.

 

[macraven]

Thanks everyone for your answers.
I’ve been on synthroid 36 years but had a two year time period of on its generic due the doctor I had at the time.

I had a dreadful time those two years so switched docs and stayed with brand name.

My insurance only knocks off $20 of the cost, rest is on me.

Guess I was hoping others were able to switch to generic without ill effects.

 

[SamFaniam]

Thanks everyone for your answers.
I’ve been on synthroid 36 years but had a two year time period of on its generic due the doctor I had at the time.

I had a dreadful time those two years so switched docs and stayed with brand name.

My insurance only knocks off $20 of the cost, rest is on me.

Guess I was hoping others were able to switch to generic without ill effects.

I had a total thyroidectomy 10 years ago, so take Synthroid daily. I did try the generics, but the challenge was that they sometimes reacted a little bit differently, the Synthroid make sure my level stays steady. Abbvie does have a coupon for Synthroid that makes it $25 a month with my insurance.

 

[Dan Murphy]

How is everyone doing?
We are on lockdown here in NY until May 15
Dh working from home
Ds1 survived a 10 person lay off so far Still wondering if the wedding will happen.
Ds2 working from home. Dil on unemployment until company reopens
Ds3 in corona central. He gets to wear a special 1500 mask because of his big nose. Everyone is jealous. It's like an astronaut helmet with battery pack.
Future dil now has 12 bridesmaids and dh is the best man.
I am sick with the bad cough. Getting meds. Phone visit with np. No video.
Need aortic ct In 2 weeks and they moved the visit to June
Haven't called endo yet

You have a lot on your palte there, LMP. 's Hang in there.

Do many here take synthroid or do you use the generic?

(I had issues with the generic before.)

My endo prescribes that generic is fine but mail order (CVS/Caremark) always ships brand Synthroid, priced at generic. I've taken for about 36 years also, Mac.

 

[Haimia]

I had a total thyroidectomy 10 years ago, so take Synthroid daily. I did try the generics, but the challenge was that they sometimes reacted a little bit differently, the Synthroid make sure my level stays steady. Abbvie does have a coupon for Synthroid that makes it $25 a month with my insurance.

How did you get that coupon? Was it on their website or ??

 

[MamaBelle4]

I was diagnosed with Hashimoto's but haven't been able to get my blood work tested again because of covid-19. The Dr prescribed 50mcg of levothyroxine. That was about a month and a half ago. I'm feeling a lot better though I'm still cold a lot and have periods of exhaustion, but I feel much more like myself than I have in recent memories.

 

[SamFaniam]

How did you get that coupon? Was it on their website or ??

I think originally the information was on a sample that my physician had given me. But the information is on their website also.

www.synthroid.com/support/before-breakfast-club

 

[Haimia]

Thanks!