Note to Spectro;for someone that isn't posting you babble an awfull lot. Maybe take a few lessons from Robo? He's got it down perfectly.
Robo; haven't come up with a good joke about
ecv's in the bathrooms yet? I've been waiting too long allready for that, can't stand the tension, put me out of my misery will you?
Michigan, you probably don't mean it this way (or at least not the way I read your posting), but watch out not to judge a book on it's cover or in this case a rented aid. You know what it feels like to be judged or worse. It's human nature to have thoughts but it's also the human to be able to think about that first thought and correct themselves where needed. Why be upset with 1st row being filled with rented chairs? Everybody is in title to the best spot, nobody of us is any more "worthy" than the other. A rented aid isn't a sign for "less disabled person than me/my kid/my partner etc.". You know one can't judge a book by it's cover. You must have run into those unknowing people saying "but your child looks so cute, such a shame", as if a disability would "pick" a person by the way they look. You know from first hand experience how untrue such a way of thinking is.
Let me tell you a story about renting aids. I've had my own chairs for over 7 years now (how time flies). I had to make the switch to a pwc last year. Did that, have my own pwc (second actually), but it "just" isn't ordered proparely and therefor I can't use it. At home I can't manage without it, and at the World it'll only be a lot worse. For a long time it looked like there was no change of getting at least the work needed to go to WDW done. That would mean me having to rent an ecv and spend about 25% of the time I can spend at the parks etc compared to when I were to use a pwc. For some weird (it shocked me anyway) reason the standard ecv for rent works better for my body than a rented pwc, go figure! It's only 17 more days before I get on the plane to Orlando,
but still the chair is no way near done. It's been promissed, but that has been done about a dozen times before and none of those promisses have been kept. There still is a change of me having to go without my pwc and renting an ecv. You would see me in a rented ecv if that were to happen and you are at the world in september. You would feel upset if I were in the first row in that rented ecv, but you wouldn't if you run into me, same show, same first row but in my own pwc. See where I'm getting at? The book can't be judged by it's cover and getting upset over such a thing doesn't make your day any better. See how silly it is for you to get all upset over me in the rented ecv on first row, while in "normall" life you wouldn't be upset about me? Might just be there are more of those folks out there and you getting upset over nothing, also in your book. Save yourself the pain, just shrug your shoulder over it and that's it. Getting upset over these things can ruin your day. Don't let it have that power. Even if it were a faker, you know what? They definately aren't worth you getting upset over and giving them the power to ruin your day. We'll deal with the fakers in another way, don't let these things affect your stay at the world.
We all want/need the best seat in the house. We're only human after all. But it's the same for us as for those "TAB"s (love that term!) out there. If you want a certain spot; get in early. You need a specific seat or no deal? Get an GAC and still get there early (because there can be somebody with the same needs there before you, and if there's only one of that very specific needed spots........)
If I'm sitting there, I'm sitting there and won't be giving up my place for someone else. If the places I can get into are full; too bad for me, I'll have to come back another time. If I see a small child in his/her manual chair behind me in my powerchair? I'm all for switching my place with them, after all; I can look over them and no way a 6 year old will be able to look over an adult pwc. Just don't expect me to be too accomodating if I find out this switching will mean a whole big family getting in front of me with a very large dad, mom, uncle, who-ever standing right in front of me. I'll be one of the first to switch with the kids, I can understand parents not wanting (or medically allways being able) to leave a younger child alone, even if it is one row between but I would also like some of the same consideration. Let one adult get upfront with them, the rest around/behind them. It might not be the most accomodating, but it would be VERY appreciated if that adult has the empathy to sit or chrunch down/ position themselves in such a way I can look over them/they don't block my view. Hack, I'm even known for my habit of taking a little one onto my lap even if it does hurt like hell to give them a change to also see things.
We can't judge eachothers disability. For you it might seem like a breeze to make a transfer if the "only" cost of it is pain. For others it might seem like a breeze to make a transfer if one is paralized from the waist down (as in "just" take a transferboard with you, and there you go"). Neither means it's a fact that either is a breeze. And even if someone were to have a "lesser" disability than me when we look at it from a medical point of few, that doesn't give me the right to judge them on that. For that person, their "lesser" disability may just be like the world is going to stop. Sure, some good realistic views on life are great for living a live with peace of mind and I might just start a conversation with them about the different ways of dealing with and looking at these life-changing things, but it's not op to me to judge. In a way, I am the lucky one of these two. I might be "more" disabled, but at least I'm in a place where my world hasn't come to a stop. I much rather have a "worse" disability and be able to deal with it, than have a "lesser" disability and fighting it.
. We post, that we are not posting to make the point. Sorry you got caught up in it but that is OK. No hard feelings?
to you and your DD's.
