Princess Peanut's WISH Trip CWF/GKTW Pre-Trip Report! *We're HOME - Pg.37*

[cogero]

I am glad peanut is home and I hope things continue to improve.

Love the pictures

 

[blessedmom4]

Peanut looks so cute in her bows, that is amazing!!! LOVE those clothes, the dress and wall-e shirt are too cute and your children are simply PRECIOUS!!! Praying Peanut stays strong..you are so right, you and I are always fighting for our kiddos...we are two tough mommy's!!!

 

[petals]

Luvin the pic of her with all the bows in and the one of her and Monkey looking at each other to cute. Great big gives. I hope Peanut stays well enough for the trip. It will be amazing for her

 

[aboveH20]

Just a quick note to let you know that your family is in my thoghts and prayers.

With all the Peanut's been through lately it reminds me of reading about a woman who had been having a long stretch of "unluck" as well. Finally she got to the point where she'd start each morning saying, "Please, God. choose someone else today."

 

[teresajoy]

I'm glad you are home! I am loving that bow picture!!!! What a little cutie!!! And, the picture of the two of them looking at each other is PRICELESS!!!!

I'm drawing a blank on who sent you the outfits though! I'll have to look and see

 

[sheridee32]

We finally got home Yea she left the hospital at 1145pm she is still on iv antibotics and coumidan but thank goodness she is home

 

[blessedmom4]

we finally got home yea she left the hospital at 1145pm she is still on iv antibotics and coumidan but thank goodness she is home

sooooooo happy for you all!!!

 

[blessedmom4]

Kristy, Hoping you feel all the LOVE and Prayers!!!!

 

[Mom2Miracles]

Another update on Peanut!!

Peanut sees part of her medical team weekly, and this morning she was admitted, and will be having surgery late late tonight, or tomorrow. We found out that Peanut needs to have her port removed as the IV antibiotics just aren't working. The second IV med they wanted to get in from the US isn't in and even if it was, it would require a 14 day hospital stay (at minimum), and there are no guarantees it would work. The end result of needing to remove the port, could still be the same. The infection is still rampant, and the only way to fully get rid of it is to remove the source of infection, which for her is the port. This is worst case scenario as we wanted/needed to save it. She NEEDS to have constant access via a central line, and since she went septic last September so quickly from a PICC line, they would rather not go that route again unless under an emergency situation (especially since the life of a PICC line is only about 6 months, where a port can be 3-5 years). After the port is removed, she'll be on very strong antibiotics for 7 days I believe, and we will keep everything crossed that she will be feeling much better. In a couple of weeks when she has healed and hopefully regained some strength, she'll undergo another surgery (at another children's hospital, with her surgeon), to have a new port placed. They were able to find a surgeon at our hospital, willing to do the surgery for Peanut. Being a long weekend makes things a bit more difficult to organize. Surgery is tricky with her, because they have no way of knowing just how strong she, and how she will handle it. There is also a family history on my husbands side, of malignant hypothermia, so while they take precautions with the anesthetic, there are still risks. Then you add in her other medical issues, and it becomes a very stressful time. Any good thoughts you can spare for Peanut over the next 48 hours, would be greatly appreciated.

I feel like I am going to throw up. I just don't understand how one thing after another keeps happening to her. Its not fair, it just doesn't make any sense. Hasn't she been through enough already?

I am glad peanut is home and I hope things continue to improve.

Love the pictures

Her mini stay at home was wonderful. Thanks, they are hams when I get the camera out. Sometimes its work to get pics, but general they are great about it.

Peanut looks so cute in her bows, that is amazing!!! LOVE those clothes, the dress and wall-e shirt are too cute and your children are simply PRECIOUS!!! Praying Peanut stays strong..you are so right, you and I are always fighting for our kiddos...we are two tough mommy's!!!

She was lovin' the bows, thats for sure. I hope your kids are doing well, this is the first time i've been home today and i'm only home to pick up a few things. I'll try and check in on your PTR soon.

Luvin the pic of her with all the bows in and the one of her and Monkey looking at each other to cute. Great big gives. I hope Peanut stays well enough for the trip. It will be amazing for her

I actually got an even better one of them looking at eachother yesterday. You can just see how much they love eachother.

Just a quick note to let you know that your family is in my thoghts and prayers.

With all the Peanut's been through lately it reminds me of reading about a woman who had been having a long stretch of "unluck" as well. Finally she got to the point where she'd start each morning saying, "Please, God. choose someone else today."

Thank you, I will take all the thoughts and prayers we can get. We need them over the next 48 hours. I love the quote, LOVE IT!!

I'm glad you are home! I am loving that bow picture!!!! What a little cutie!!! And, the picture of the two of them looking at each other is PRICELESS!!!!

I'm drawing a blank on who sent you the outfits though! I'll have to look and see

If you figure out who sent them, please send them over so they can see my thanks.

We finally got home Yea she left the hospital at 1145pm she is still on iv antibotics and coumidan but thank goodness she is home

GREAT news!!! Does she have a PICC line, since shes on home IV meds? How long does she need that for? I'm so happy she is home, and I hope her recovery now will be much smoother. They say kids do much better at home, so i'm hoping that goes for your daughter.

Kristy, Hoping you feel all the LOVE and Prayers!!!!

Thank you, I DO!! Especially today, I need them.

 

[tinytreasures]

Ohh Kristy this is not the update I wanted to see. I am sending so many prayers that once they get it out she will bounce right back. Huge bear hugs and prayers

 

[jj0plin]

I was really hoping I wouldn't read that you all had to go that route I hope everything goes perfectly from here on out. We had a friend while Elliot was hospitalized that ended up with a port infection and had his replaced. Once they got the infected one out, he recovered quickly. Hope to hear the same news from you soon. ::hugs::

 

[cogero]

Kristy sending prayers your way.

 

[blessedmom4]

Oh My gracious Kristy, I am truly sorry. This SHOULD clear things up, I am just sorry she will be without the port for a while.


Hugs!!!

Prayers

Pixie Dust and

TONs of LOVE coming your way!!!

 

[petals]

Thinking of Peanut and praying things will get better for her soon

 

[Blyssfull]

Thinking of you and your family.

Praying that your precious Peanut stays strong and you guys find the comfort and strength to keep each other positive.

 

[ellenbenny]

Thinking of you.

 

[mommy2mrb]

Oh Kristy, I am praying so hard for you sweet girl and your family...wish there was something we could do for you all, I know the power of prayers and there are so many being said for her. We are here for you anytime you need us!

 

[sheridee32]

Saying prayers for Peanut. Morgan is our daughter that works for disney. Yes she has a picc line for the ivs we spent another 2 hours at the hospital getting one of the lines to open up. She is only suppose to be on the iv meds for a week hopefully. We had come down to Florida to see her to work on the final details of the wedding and then on may 5th my middle daughter and her family are going to met us here so we can take the granbabies to disney before the wedding since June will be Morgans month. I now understand what you all go thru with sick babies my baby is 26 and I am so thankful we could be here with her since she has been so sick I would have gone nuts if I had been in Texas and they put her in ICU and we hadnt been here. Sending good vibes I just know peanut is going to do good yall have had your share of things just keep you head up God will not give you anymore than you can handle I promise you this i learned that a long time ago just put it all in his hands and he will take care of you.

 

[kayrosek]

Awwww, I'm so sorry to see this recent update. Sending lots and lots of prayers your way.

 

[blessedmom4]

Kristy, On my heart this morning. Asking God for another miracle for your family on this Holy Day of

I will continue to lift you all up in prayer!