Precious 4-yr-old needs your prayers - great news! pg 7/post 99

[staci]

I just saw this thread. How scary for his parents and for him. I cant imagine..... we are all thinking of him. Please keep us updated on how he is doing.

 

[mannasn]

How very scary for this little boy and his family! Will certainly be keeping them in my prayers! Keep us posted.

Peds onc is such a tough area.... takes special docs and nurses to do those jobs. We visited St Jude recently and I was AMAZED by that place!

 

[clh2]

Wow-chemo treatments for 48 weeks. That seems like so far off, albeit a great present for Christmas when he will be done with the chemo. How often will he be getting treatments?

My prayers for the family - and yours too!

 

[Planogirl]

My heart goes out to this little fellow. I will keep him and his family in my thoughts.

 

[Sleeping~Beauty]

Sending my prayers and pixie dust to Dylan and his family and friends.

 

[mom2boys]

So sad. I will definitely keep Dylan in my prayers.

 

[minnie56]

and his family...
I pray that God keeps his arms wrapped tightly around this little guy in the weeks to come and that all will turn out fine..
Sending much love, many hugs and all the prayers in the world.

 

[luvthatduke]

Thanks for the update, the 75% rate gives great hope!
Keeping Dylan & family in prayer, bless them!

 

[kbkids]

Again, thanks everyone for all of your prayers and good wishes!!

A BIG THANK YOU to Feralpeg!!! Peggy, Dylan got his gift from Mickey today, and he was thrilled! His mom said he was so excited. She was floored that you were so generous. Thank you again!! You definitely brought a smile to a sweet little boy's face.

I'm going to try to answer some of the posts - if I miss one, please forgive me. I'm so greatful to all who have posted for their support and concern. You guys are truly awesome!!

Wow-chemo treatments for 48 weeks. That seems like so far off, albeit a great present for Christmas when he will be done with the chemo. How often will he be getting treatments?

My prayers for the family - and yours too!

The chemo is done once a week for I thought 48 weeks (I think now it's actually 42), but still - for a long time!! He's also having radiation done 5 days a week for 28 days. Not sure after the 28 days are up how they will proceed from that point.

I haven't been able to get this off my mind since I first read it. I know what the days ahead will be like for this family, and I pray to God that the treatment not only cures his cancer, but that it works as fast as possible with as little side effects as possible.

My dd was diagonsed with a horrible malignant cancer when she was 2 months old. They gave us like a 3% chance that she would live until her 2nd birthday.3%!
She had both chemo and radiation along with a few surgeries, and that alone almost did her in. But as someone else posted, it's amazing how strong these little ones are!
By the grace of God, my "baby" just turned 14 years old and she is doing great!

What a great friend you are to be there for them at a time like this. It's VERY hard, and a lot of people can't do it. You're a good friend.

Brier Rose - your DD is beautiful!! I know you are so proud of her and all that she overcame.
Both of my children were preemies, so I've spent many long days in NICU. Both of mine were pretty healthy considering, but some of the others that I saw - it was just truly amazing the circumstances they would overcome!! God is just amazing!! Dylan's going through a tough time right now, but I know He's got him in His arms.

Has this family considered St. Judes? We have had a family member treated there and it is the most wonderful place in the world for children with cancer. They will not take a patient after treatment somewhere else. They also do not charge for treatment and even with insurance the co-pay can be tremendous. Please be sure his parents have this information if they do not already. We will keep him in our prayers. Please keep us up-dated.

St. Jude's has been mentioned to them. I heard one of their friends discussing it with them earlier last week. They considered all of their options and have decided to stay here for the radiation and chemo treatments. The pathologists at the other hospitals that were consulted felt that he would be fine here, and I think it was important for them to have him at home and keep as normal of a life as possible.

Prayers for Baby Dylan. Does the name Pontine Glioma sound like what they said?

It started with a R followed by about 78 letters. Just kidding. It was a really long word though. My DS was whining in my ear at the time, so I didn't hear the doctor clearly on that one - just know that I wouldn't have been able to repeat it anyway, even if it I had of heard it.

Prayers from PA are being sent. I will have my kindergarten class say prayers for this liitle guy and his family.

He thought that was so cool that kids that far away were praying for him!


And again, thanks to all for your emails and good wishes! His mom commented today on how many local churches had him on their prayer lists, and I couldn't help but think how many of you had him in your prayers as well. His parents are definitely concerned about all of the side effects and possible other problems all the radiation can cause, but they're trying to just focus on today right now. They are holding up amazingly well, and I'm so proud of them, as Dylan really needs those encouraging words right now.

Don't forget to hug your babies tight tonight!!

 

[Feralpeg]

Please continue to keep us updated. I know this must be so hard on you as well. Take care of yourself as well.

 

[tiggersmom2]

So good to hear the updates and I hope this sweet little guy comes through with flying colors! It was very heartwarming to hear about the surprise Peggy sent, I'm sure that is something the family will cherish.

 

[alliecats]

It started with a R followed by about 78 letters. Just kidding. It was a really long word though. My DS was whining in my ear at the time, so I didn't hear the doctor clearly on that one - just know that I wouldn't have been able to repeat it anyway, even if it I had of heard it.

Is it Rhabdomyosarcoma?

 

[kbkids]

Is it Rhabdomyosarcoma?

Maybe ??

Oh, the power of a whining child in your ear. Tend to miss what you're straining so hard to hear.

 

[petchie]

Glad to hear they are upbeat, attitude can mean everything. I am thinking it sounds like a Rhabdomyosarcoma, which actually has a pretty good outcome in pediatric patients when caught early I will say a prayer for them

 

[kbkids]

Hi all! Had a couple of PMs asking about Dylan and thought I'd update everyone. He's doing pretty well. He was back in the hospital Sunday before last because his white cell count dropped. I can't remember the name of the test, but your number should never be below 500, and his was 64. He was running a fever and spent 3 days in the hospital before he was able to go home. They said it was caused from the chemo and to expect it every three weeks when he has that particular kind of chemo. He gets chemo every week, but I'm guessing it's something different in that 3rd week. I've heard so many terms and new words in the past few weeks, can't keep up with them, and I do medical transcription for a living - alot of it still sounds foreign to me. All in all, he's doing okay and hanging in there. Mom and Dad are being real troopers, and I'm really proud of them.

We've all spent the last two weeks organizing fund raisers, and it's been quite successful. I've got 140 boxes of Krispy Kreme doughnuts to deliver at 7:00 in the morning - - my van is going to be smelling good!! And it's all going to teachers at the schools in my area. Wow!! There's going to be some hyper kids tomorrow!!

And I just had to share this. It really brought me to tears. We got a thank you card from his Mom the other day, and Dylan had written a note to my son at the top.

Alot has been happening, and I'm truly amazed at how wonderful people really can be. We have a local hockey team here, the Ice Pilots, and they have "adopted" him.

And just the kindness and generosity from total strangers when they hear about what's going on - it's really amazing! I think you hear about so much evil and hatefulness all the time, that it's great to be reminded that there are still ALOT of people out there who are really awesome, wonderful human beings!

 

[lecach]

That thank you note made me cry. I just cant imagine what that family is going through.

 

[kbkids]

That thank you note made me cry. I just cant imagine what that family is going through.

Makes me cry too every time I look it. My little boy has it on his night stand, "so I don't forget Mommy! It's very important!!" And he doesn't.

 

[MsSpinShady]

Thank you for the update! It's heartwarming to know there are so many people out there willing to take a few minutes out of their day to help him and his family. Please let Dylan (and his parents) know that there are people all over the country praying still for him every night!

Prayers and PD

MsSpinShady

 

[kbkids]

Just wanted to update you guys on Dylan. We had great news last week. On his MRI last week, they could no longer see the tumor!! There's still a gray area there (fluid, tissue, ? ? ?), and they are still continuing with treatment as normal at this point, but they are definitely seeing good results. The little guy seems to be hanging in there well from all the treatment. He's lost a lot of weight, and of course, he's lost his hair, but he still gets in there and plays with the other kids as much as he can. He just gets tired very easily. Please continue to keep him in your prayers. We are so pleased with last week's results!!

 

[Maleficent13]

I can't believe I missed this thread for so long, but Dylan!! Great news!