I am terribly behind, but I will go back and read and catch up. While I am sitting here at my desktop for a few minutes, I want to post. I will read on my phone when I have a few minutes here and there today. I went back a couple of pages, and want you to know that I am praying that all goes well for you today. Precious Emile remains in my prayers, too. I didn't go back far enough to see the VJ pics, but it sounds amazing and I would LOVE for my family to do something like that!
It's been a rough couple of months around here. Catherine had a cath up at CHOP in September. Our cardiologist here really thought we were headed up for surgery, but Dr. R was able to crack open Catherine's PA stents a bit more and buy some more time before surgery happens. He thinks it will be a while, so that is worth smiling about.
![smile :) :)](http://www.wdwinfo.com/images/smilies/smile.gif)
On to other problems though, she has been pretty hypertensive, and her MRA shows severe narrowing of her renal artery (remember she only has one kidney) and multiple oddities of other blood vessels. The nephrology dept at CHOP has a wonderful program for kids with high BP, so we are continuing care up there. She's on hefty doses of labetalol twice a day now, and we are headed back up to CHOP for an angiogram/angioplasty on 11/21. If all goes well, it's a pretty definitive fix...so that's what we're praying for! Then we'll go back at some point and do further work up of her vascular issues, look at carotids, SMA, etc. They've done a whole slew of new genetic tests as well, thinking she must have an abnormality in her vessels causing all of this. THings have been so stable for so long, it's hard to deal with this "new" problem. YOu know, it's been there forever, but it is only now causing her issues. It's a bit scary...aneurysms, blood pressure problems, etc.
Whoops--I think I just hijacked your thread a bit! I will try to keep up a little better, but wanted you to know what was going on here, and that I'm continuing to keep you and your family in my prayers...as well as all others in need of prayers on your thread.