Is autism the illness du jour ?

BUT, more and more articles ARE coming out now that are saying kids are being misclassified as autistic. Two things affect this: The actual DSM-V criteria has changed, and IN MANY STATES, SCHOOLS CAN DIAGNOSE or "ASSESS." And the schools seem to find it easiest to deal with anyone who's different by the broad category of ASD. Schools often get more $$$$ if they check the autism box, another huge financial incentive for them.

............

Autism has become big, big business. But it most cases, it's NOT PARENTS who are defrauding people. First, it's unqualifed screeners sending parents into a panic, searching for help.

THEN, it's quacks hawking all the UNPROVEN TREATMENTS that cost MAJOR MONEY, literally bankrupting desperate parents.

The first part about the schools is really a double edged sword in the US though (I'm in Canada so the schools don't do that here) because you have a public education system that has to deal with a medical problem but the medical system is private and not everyone is covered. What are they supposed to do there? If somebody has no medical coverage and can't afford the diagnostic process but clearly needs the support the schools would be screwed if they couldn't do something....they can't deny the child education. I can totally see how this could be abused though. Nobody that has a vested interest in the diagnosis should be doing the assessment.

Second I totally agree that there are a lot of unscrupulous people making money off of this. It happens with every disease that has no clear cause and no cure. People get desperate, especially when it involves their children.
 
I can also vouch that the testing is both intensive, long, and expensive.

It is not easy.

But see I think that is the issue I have as a casual observer with the upswing in the number of cases. If you test someone long enough you will discover an issue.

Sometimes, when the tool you have is a hammer you treat every problem as a nail.
 
::yes:: I would be THRILLED with "average" (and so would my son) !

He would Looove to never have to deal with the "brain storms" (as he calls them) ever again. ( We're just thrilled that he's finally able to express what he's experiencing. )


I know what you're going through and my one son who was diagnosed at age 3 with autism, couldn't express what he felt for years. He's been in special programs since then and has made a lot of progress, but if Micheal Savage was to know my son for even a short while, he would realise how wrong he is. Still to this day at age 11 it hard to know what bothers my son at times. He talks to us in his own special way, but it's almost like my wife and I have to be detectives to figure out what is going on. I know his mood patterns quite well by now and can somewhat anticipate what going to happen, but it can still be frustrating at times. He's in his own world and I worry about him and wonder what his life be like when I'm no longer alive.
 
I know. Parents with average, regular, happy-go-lucky kids sometimes don't know how lucky they are. They have to pile on this pressure. I was talking to a mom 2 nights ago about her son's freshman year in high school. She says, "We are not happy with him at all. He got some C's. His GPA is a 3.2. We just don't know what's going on with him."

So I say, "Oh, were you hoping to send him to Harvard?"

She says, "Well, no, but I mean he got some C's" and I'm just looking at her and she pauses and starts laughing. "You know," she says softly, "he's a really good kid."

I said "That's great" and we parted ways.



What's wrong with wanting our kids to reach their full potential? Shouldn't every parent want that?

I really do not see what she said that is so wrong.
 

What's wrong with wanting our kids to reach their full potential? Shouldn't every parent want that?

I really do not see what she said that is so wrong.

I agree. While I am so far very fortunate not to have to deal with what parent's of autistic kids do, I don't like being told I'm on Easy Street and I shouldn't fight for my kid's right to an education.

As for Savage, why give him any attention by protesting?
 
But see I think that is the issue I have as a casual observer with the upswing in the number of cases. If you test someone long enough you will discover an issue.

Sometimes, when the tool you have is a hammer you treat every problem as a nail.

No, no, no. It's not about testing them "long enough". I don't get that at all. If you actually had the life experience of going through the testing process - you'd understand what I meant by "long". I was able to sit through his testing (in a separate room with a one way mirrored window), and they test different "areas". He had 2 separate 3 hr. long testing sessions (with specialized psychs), as well as booklets (tests) that his teachers (special ed pre-k), daytime caregiver, and I had to fill out (each of us had our own to complete) - he was given the non-verbal testing because even though he could talk some, his expressive language skills were poor (he could say chicken, but couldn't tell you what he had for lunch - he was 5 at the time). Plus, he has to go back for re-evaluations.

In my opinion, this kind of intensive testing would help to "weed out" rather than "include".

I can't describe it - I'm not having a very "sharp" day ;) - but, I disagree.
 
But see I think that is the issue I have as a casual observer with the upswing in the number of cases. If you test someone long enough you will discover an issue.

Sometimes, when the tool you have is a hammer you treat every problem as a nail.

Ya but it's not like they are going through one test and saying "nothing there" and moving on to the next. If he had passed through any of the steps proving he was NT in that area the entire diagnostic process would have stopped. It's not like he would have passed, then they would have looked anyways.
 
But see I think that is the issue I have as a casual observer with the upswing in the number of cases. If you test someone long enough you will discover an issue.

Sometimes, when the tool you have is a hammer you treat every problem as a nail.

Look, you obviously don't get it. And, you should fall on your knees and thank whatever power you acknowledge with all your being that you don't get it. You ARE a 'casual observer', perhaps not an observer at all as you seem to have no understanding of autism. The reason the testing has become so rigorous is that many children with autism can be treated successfully if the details of their disability are correctly laid out -NOT because people are reaching for a diagnosis for an ill behaved child. Again, you are SO LUCKY that you do not have any understanding of the issue because it's a nightmare for the families who do. Count me in that group.
 
You know what? Explaining Autism to people is like beating a dead horse.This is something that will never be understood, unless it happens to you. No matter how you say it, some people are just not going to "get" it. Their way and train of thought is right and that's how it goes.
So, I will continue to take my daughter places and have people look at me as if i were the worst parent in the world when she has a bad day, and I will continue to have people say "there's no way she has autism" whenever they see her for a little on a good hour.
At this point it doesn't matter, I'll do what I have to and to all that aren't affected, say and think what you want.
I would like to say to the Freedom of Speech thing..where is the line? I don't appreciate racial remarks and I don't appreciate people calling Autistic kids, brats or anything else. Both are things that are not chosen. So, why does one get pulled off of the air and not the other? In my opinion, Freedom of Speech should be say anything, or make sure it's appropriate.
Doesn't matter to me, but I'd say we should pick one and stick to it.
 
I know what you're going through and my one son who was diagnosed at age 3 with autism, couldn't express what he felt for years. He's been in special programs since then and has made a lot of progress, but if Micheal Savage was to know my son for even a short while, he would realise how wrong he is. Still to this day at age 11 it hard to know what bothers my son at times. He talks to us in his own special way, but it's almost like my wife and I have to be detectives to figure out what is going on. I know his mood patterns quite well by now and can somewhat anticipate what going to happen, but it can still be frustrating at times. He's in his own world and I worry about him and wonder what his life be like when I'm no longer alive.

OMG, I can so relate to the "playing detective" part. It does get frustrating. ::yes:: DH and I have the same worries as you do too.

What's wrong with wanting our kids to reach their full potential? Shouldn't every parent want that?

I really do not see what she said that is so wrong.

I can't speak for her, but I can relate based on what I'd be feeling given the same situation - and I think she meant that the other mom doesn't even realize how lucky she is. It's something we're faced with when we take DS to therapy - when we witness some of the other children :sad1: - we difinately leave counting our blessings!!
 
Look, you obviously don't get it. And, you should fall on your knees and thank whatever power you acknowledge with all your being that you don't get it. You ARE a 'casual observer', perhaps not an observer at all as you seem to have no understanding of autism. The reason the testing has become so rigorous is that many children with autism can be treated successfully if the details of their disability are correctly laid out -NOT because people are reaching for a diagnosis for an ill behaved child. Again, you are SO LUCKY that you do not have any understanding of the issue because it's a nightmare for the families who do. Count me in that group.

You know what? Explaining Autism to people is like beating a dead horse.This is something that will never be understood, unless it happens to you. No matter how you say it, some people are just not going to "get" it. Their way and train of thought is right and that's how it goes.
So, I will continue to take my daughter places and have people look at me as if i were the worst parent in the world when she has a bad day, and I will continue to have people say "there's no way she has autism" whenever they see her for a little on a good hour.
At this point it doesn't matter, I'll do what I have to and to all that aren't affected, say and think what you want.
I would like to say to the Freedom of Speech thing..where is the line? I don't appreciate racial remarks and I don't appreciate people calling Autistic kids, brats or anything else. Both are things that are not chosen. So, why does one get pulled off of the air and not the other? In my opinion, Freedom of Speech should be say anything, or make sure it's appropriate.
Doesn't matter to me, but I'd say we should pick one and stick to it.

ITA with both posts. And while I may never get through to folks who have no experience with the disability - if I can get through to at least one person, they in turn might get through to someone and so on - then my son might have an easier time at some point in his life.

That is why I "beat the dead horse" so to speak. :grouphug: hugs to all who are dealing with this, either personally or with their kids. :grouphug:
 
OMG, I can so relate to the "playing detective" part. It does get frustrating. ::yes:: DH and I have the same worries as you do too.



I can't speak for her, but I can relate based on what I'd be feeling given the same situation - and I think she meant that the other mom doesn't even realize how lucky she is. It's something we're faced with when we take DS to therapy - when we witness some of the other children :sad1: - we difinately leave counting our blessings!!

Posters keep saying 'you don't know. You shouldn't judge.'

It seems to me a tad hypocritical not to make the same allowances for everyone.
 
So here is what is on the putz's (isn't it great that this is unfiltered?) web site. Along with a link to his legal defense fund.:happytv: It's ironic that he tries to come off as a disability rights crusader.

The Autism Controversy

My comments about autism were meant to boldly awaken parents and children to the medical community's attempt to label too many children or adults as "autistic."

Just as some drug companies have overdiagnosed "ADD" and "ADHD" to peddle dangerous speed-like drugs to children as young as 4 years of age, this cartel of doctors and drug companies is now creating a national panic by overdiagnosing "autism, for which there is no definitive medical diagnosis!

Many children are being victimized by being diagnosed with an "illness" which may not exist, in all cases. Just a few weeks ago doctors recommended dangerous anti-cholesterol drugs for children as young as 2 years of age! Without any scientific studies on the possible dangers of such drugs on children, corrupt doctors made this controversial, unscientific recommendation.

Increasingly, our children are being used as profit centers by a greedy, corrupt medical/pharmaceutical establishment. As the brother of a severely disabled person who suffered and died in a New York "snake-pit" of a "mental hospital," I know first-hand what true disability is.

To permit greedy doctors to include children in medical categories which may not be appropriate is a crime against that child and their family. Let the truly autistic be treated. Let the falsely diagnosed be free.

Michael Savage
http://michaelsavage.wnd.com/?pageId=1126

Yeap, it's them greedy doctors . . . must be feeding their internet and Disney addictions!?
 
Is autism the illness du jour?

Gee, I hope so! Maybe that means my 9 year old DS was falsely diagnosed, he actually could have a real, two-way conversation with us and has just been faking it all these years......playing us and the system. Wow, he's a smart kid! What a relief!:cool1:
 
Posters keep saying 'you don't know. You shouldn't judge.'

It seems to me a tad hypocritical not to make the same allowances for everyone.

:confused3 I'm confused by what you mean. I have a typically developing child - so you could say I know "both sides".

I totally don't know what you mean by hypocritical. :confused3

I think in your mirror you see "mountain" - in mine, I see "molehill" ;)

Back to the debate at hand....
 
You know what? Explaining Autism to people is like beating a dead horse.This is something that will never be understood, unless it happens to you. No matter how you say it, some people are just not going to "get" it. Their way and train of thought is right and that's how it goes.
So, I will continue to take my daughter places and have people look at me as if i were the worst parent in the world when she has a bad day, and I will continue to have people say "there's no way she has autism" whenever they see her for a little on a good hour.
At this point it doesn't matter, I'll do what I have to and to all that aren't affected, say and think what you want.
I would like to say to the Freedom of Speech thing..where is the line? I don't appreciate racial remarks and I don't appreciate people calling Autistic kids, brats or anything else. Both are things that are not chosen. So, why does one get pulled off of the air and not the other? In my opinion, Freedom of Speech should be say anything, or make sure it's appropriate.
Doesn't matter to me, but I'd say we should pick one and stick to it.

There are so many clear thoughts on this thread from those affected by autism, I hate to quote just one.

For those of you who are so clear that it's a trivial disorder that's overdiagnosed, obviously you haven't been touched by autism. Good for you. Perhaps you know someone with cancer, or heart disease, or diabetes, or bipolar disorder, etc. How would you feel if someone who hadn't been touched by those started ranting about how they're overdiagnosed, and people are just weak, or brats instead. Do you have a grain of empathy? Or are you going to continue to be an armchair expert?

Sometimes, we just need to admit we don't know everything. Instead of spouting off with an uneducated opinion, why don't you do some research? Ask questions.

There's a saying, "if you've met one person with autism, you've met one person with autism". This disorder manifests itself in so many ways. A kid who's sensory system overloads fast can't tolerate loud noises, flourescent lights, etc. A kid who's system is under-responsive is the one banging his head against the wall to gain sensory input, however inappropriate. The one thing they both have in common is they have a VERY hard time regulating their own senses. Can you even imagine what it's like to live like that?
 
:confused3 I'm confused by what you mean. I have a typically developing child - so you could say I know "both sides".

I totally don't know what you mean by hypocritical. :confused3

I think in your mirror you see "mountain" - in mine, I see "molehill" ;)

Back to the debate at hand....

It's very simple, everyone has their struggles and they are just that their struggles. No else is entitled to judge whether they are truly struggling or not.

The poster that I quoted seemed to feel the woman was not entitled to be dissappointed by her son's grades. I want to know why. Because he doesn't have autism she should just be happy? I don't get that. Her concerns are silly because they're not deemed serious enough by some who has it worse (in their minds)?
 
It's very simple, everyone has their struggles and they are just that their struggles. No else is entitled to judge whether they are truly struggling or not.

The poster that I quoted seemed to feel the woman was not entitled to be dissappointed by her son's grades. I want to know why. Because he doesn't have autism she should just be happy? I don't get that. Her concerns are silly because they're not deemed serious enough by some who has it worse (in their minds)?

You can keep going on and on about a non-issue, but it's just that - a non-issue.

The way I read the post - the poster didn't berate her friend. And, BTW, her friend "got it", and admitted that she was grateful for her child being who he is (not what he doesn't have).

I'm sick of these threads turning into an "us" vs. "them" debate. And quite frankly, by pursuing this poster and this non-issue - I think you're doing so to...:stir: . If her friend didn't take offense - why should you. I'm sure her friend has a greater insight to her motivation and intent. :sad2:
 
You can keep going on and on about a non-issue, but it's just that - a non-issue.

The way I read the post - the poster didn't berate her friend. And, BTW, her friend "got it", and admitted that she was grateful for her child being who he is (not what he doesn't have).

I'm sick of these threads turning into an "us" vs. "them" debate. And quite frankly, by pursuing this poster and this non-issue - I think you're doing so to...:stir: . If her friend didn't take offense - why should you. I'm sure her friend has a greater insight to her motivation and intent. :sad2:

She judged this other woman. People are screaming on this thread about being judged. While there are degrees of difference, it's still the same thing.

Pot stirring? :rolleyes: Whatever. Doesn't change the fact that I cannot stand when people say or imply that someone else is not entitled to their own feelings because they don't have it bad enough.
 
I suspect there are a lot of sick kids out there. But I KNOW there are a lot of kids that play their parents and play the system.

Wow, just wow. I have worked in our school district's preschool classroom for children with autism, have taught in several classes with children on the spectrum, and have worked in a special ed Head Start room in which half the children had autism. If you saw the kids who are diagnosed, you would know that nobody is "playing their parents". When a child cannot talk, cannot grasp the concept of different colors, cannot handle even a simple change in routine, it is not "playing the parents".

But see, all the kids on every level of the spectrum need the help they receive. Maybe someday the name of the diagnosis will change, but he needs of the child won't. There are some that say that Aspergers isn't really on the spectrum, but a different disorder all together. I don't care what it's eventually called, as long as the children involved get the help they need.

Your argument about the needs of the children on the milder end of the spectrum taking away from the needs of the children on the more severe end is a flawed one. It wasn't too long ago that children on the more severe end would have been denied an education completely. They would have been institutionalized or simply ignored. That was wrong, and it would also be wrong to deny that children on the more mild end need help too.

One of the greatest advancements (IMO) is the fact that we now recognize it as a spectrum. Yes, years ago children with Asperger's were just "odd", but that meant they never got the help they needed. Children with Asperger's do not understand social cues and need intensive intervention. Many children with Asperger's are not capable of abstract thinking. Try using figurative language with a child on the spectrum- many take everything literally, and that is one reason we have to do such extensive training with things like figurative language.

It is these students who used to fall through the cracks. I taught a boy with diangosed Apserger's, and the kids treated him like crap. We worked with him on his social skills, but he had problems in everything I described above. He would get frustrated when he didn't understand something, and would cry. The kids in that class would make fun of him and ask why he couldn't act like everyone else. Thank God he was diagnosed, with services he will learn those social skills and abstract thoughts and figurative language that trip him up.

I do too, it used to be a 1 in 10,000 kids diagnosis, and now its 1 in 4?:confused3 Just like ADHD, my 25 year old DS was diagnosed, at 8 and heavily medicated, however he had the stamina to say: 'Hey Mom, I don't want to take ALL this medication." (at age 16) I said OK, and guess what? He is able to fly across the world and back to Afghanistan, and have NO problems "listening to directions" and gets home safe everytime.;) :thumbsup2 Yea, I agree its the "new Disease" of the 2000's....I wonder what will be next?:confused3


1:4, and you got that number from where?

Autism does not bring money into schools. School funding is a complex issue, and most special educatin programs are underfunded. If a school has enough special ed children (typically 30), then they count as a break out group for NCLB. This meanst that the children in that population, who typically function below grade level, must perform on grade level on standardized tests. If those students do not, the school gets sanctioned and loses funding. It's in the schools best interest to have fewer children receiving services.

Services are expensive, and huge problem for schools is not having enough money to pay for them. Many children do not receive services because the schools have no money. One of the reasons the special education program in my area is so good is because of the university. Every fall we have a Professional Development School in which we (the grad students) teach half a day and take classes the other half. We are introduced as new staff and we are one extra person in the classroom who is up to date on the latest interventions and research. We are no cost to the school, which means they can spend that money elsewhere. It is a great benefit to the school. People from surrounding districts actually move here because their home districts cannot or will not pay for services because of budgetary reasons. So the more special ed children in a school, the bigger the drain on resources. Schools lose money in special ed, not gain it.
 





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