Hypospadia

[maedelken]

My son has hypospadia and a smaller sized *****. I am sooooooo scared. I am scared for his physical health and for his mental health when he gets older. He was 5 weeks early and 4 weeks old right now. I am heart broken (i guess more so bc of hormones). My whole pregnancy was stressful (quad screen at 16 weeks came back 1 in 150 for downs). We did a chromosome test at 1 week but haven't got results yet. All our doctors say he doesn't have DS (no physical traits.) Now all this stuff to worry about ugh plus I have four other kids and my husband travels a lot. I feel like bad news is always delivered when he is away. Got an app today and guess what he is away. I feel like I am losing my mind and feel guilty bc I am not enjoying him like I feel I should. The worrying is getting in the way. I need a doctor to tell me everything will be ok. Has anyone else went thorough anything like this. Please help.

 

[maedelken]

oops sorry didn't know that I couldn't use that word i am sure people can figure out what i am talking about. Justt looking for some peace of mind.

 

[cm8]

My son has hypospadia and a smaller sized *****. I am sooooooo scared. I am scared for his physical health and for his mental health when he gets older. He was 5 weeks early and 4 weeks old right now. I am heart broken (i guess more so bc of hormones). My whole pregnancy was stressful (quad screen at 16 weeks came back 1 in 150 for downs). We did a chromosome test at 1 week but haven't got results yet. All our doctors say he doesn't have DS (no physical traits.) Now all this stuff to worry about ugh plus I have four other kids and my husband travels a lot. I feel like bad news is always delivered when he is away. Got an app today and guess what he is away. I feel like I am losing my mind and feel guilty bc I am not enjoying him like I feel I should. The worrying is getting in the way. I need a doctor to tell me everything will be ok. Has anyone else went thorough anything like this. Please help.

sent you a PM

 

[SueM in MN]

oops sorry didn't know that I couldn't use that word i am sure people can figure out what i am talking about. Justt looking for some peace of mind.

That's OK.
You uses it because it fit the subject, not because you were trying to bypass the word filter.

Since this is not about WDW, I am going to move it to our disABILITIES Community Board where it will be on topic.

 

[Kat77]

I do not have any medical advice to offer but wanted to give you this:

 

[Stellapedia]

It's become more common lately. Depending on how high up it is, it might not even need surgical correction. Contrary to popular US assumptions, it does NOT require a circumcision (and is corrected without circumcision in near every other country). See several different urologists and don't rush into anything. Kids can easily live with hypospadias as long as they can pass urine. As he is older and his ***** is near adult size, it might require correction depending on the area of the defect, but if he can pass urine without pain or reflux, there is no need to do anything NOW.
And those little things grow, as long as they're left alone. Some are bigger, some are smaller, but just because a kid is small now doesn't mean he will be as an adult. Calm down, mama. He's got 20 years to learn to use it, all he needs to do with it now is pee.

 

[dyna]

My 3 yr old gson was born with hypospadia an cordia(sp) not only was his pee hole off center but also he was all twisted up like a pigs tail too. So at 15 months he had a operation to fix both. Thank goodness for insurance that in an out same day surgery came to 13,000 he is fine now.

It was very scary for us too as it turned out it was a quick easy surgery once he was old enough to get it done.

 

[quasar4legs]

Have sent you a PM.

Quasar

 

[peemagg]

My nephew was born with the same issue his hole in the wrong place (he actually had 2. One where it belonged and one underneath), they replummed him when he was about 8 months old. He is just fine now and you would never know there was ever a issue. In fact after he had the surgery I thought he looked more funny after. I was used to the old way he looked by then. LOL!

 

[katml14]

My son has it and my nephew also has it- they were born 3 weeks apart. They both went to see a urologist and we were told that it wasn't a big deal. I wouldn't worry about it too much, if it is a severe case it can be fixed with surgery. Not trying to downplay anything, but try not to worry.

 

[princess jackson]

I understand, DS needs corrective surgery when he is a year old for the same condition. I'm so scared for him, even though he won't know much about it.

 

[campbellus]

My son (now 14 1/2) was also born with Hypospadia, as well as a variety of other things, including a 22q11.2 chromosome deletion.
His was a mild case, but I concur with a previous poster who said to get more than one opinion. If it is really a concern, they will do surgery to correct it. IF it is mild, then it will be fine.
I had all those same concerns that you do-but now 14 years later I can say...there is no certainly that just because it is noticeably smaller now than it should be, that it won't turn out just fine.
My son's is just fine now and his dad will tell you that it turned out within normal size range and the Hypospadias was mild enough that we just had to teach him to aim properly.
Have the wisdom to change the things within your power to change, and let the rest go. Good luck to you!!