Having a really bad day....

[dtuleya]

First of all, DS (14) had to have an endoscopy because he's had undiagnosed abdominal pain since March (off and on). The pediatric gastroenterologist (sp?) is pretty sure he has Crohn's disease. We have no family history. DS said that when he came out of anesthesia the first thing he thought was, "I hope they don't tell me there is nothing wrong with me." He's been told that it is stress related and it's all in his head. I even grabbed onto this theory and told him several weeks ago that he needed stress management techniques, not more tests. I cringe every time I recall those "discussions" with him. We're waiting on biopsy results and have to do a colonoscopy in a week.

Then DS (9) who has APD (Auditory Processing Disorder) failed a health test. We studied with him (DH & I) and knew he didn't understand the information. It's a non-graded course, but still we are heart broken because he tries his hardest, sometimes he just doesn't "get" the information being taught. He is usually a solid B student. We've haven't had him formally diagnosed, but several SLPs (Speech/Language Pathologist) and our own research has pointed to that direction. We were just ready to get him tested, but our oldest son's condition has totally overshadowed the testing scheduling.

I'm sorry, guess I just need a shoulder to cry on. We were supposed to be on a train to NYC to celebrate our 15th wedding anniversary (Sept. 10), but DH and I just couldn't bear to leave. Our hearts just weren't into it.

I look around me at times to the people who complain about such things as their children not qualifying for the "gifted" programs at school or not making the starting lineup and have to bite my tongue. I know the old saying that you're not given more than you can handle, but at this moment I'm wondering why my children have to bear the burden of these things and not me.

 

[pumba]

but some where I read that it is okey to vent and also ask for a hug.....so here is a big one to you and your hubby on your anniversary and to your two children who I know you love with all your hearts.....

 

[lisajl]

Hugs to you and your family. So sorry to hear all this news.

When my son was having "processing problems" I just wanted to put a name to whatever he had.

I hope they can find what the problem is, so he can get on the road to recovery.

Lisa

 

[nativetxn]

{{{HUGS}}} sweetie. You sure have a lot on your plate.

I sure hope your son doesn't have Crohn's and I've said a little prayer for him. Hopefully they can get this all better with medication and diet.

I don't know anything about the auditory processing disorder. I know I would be feeling pretty overwhelmed if I was in your shoes, though. I hope they can find a way to help him with this.

You should always come to the community board when you need to vent or just need to talk. We're always here for you, you know, and we really do care.

Katholyn

 

[Piglet]

Hugs and prayers for you and your family. I know exactly how you feel. My DD (6 1/2yo) was born with Glycogen Storage Disease and on top of that has Reflux, and the meds she takes causes her headaches.

It is a constant guilt trip for us parents and it is horrible to watch your child suffer and have to endure so much. I have a very hard time seeing parents (even relatives) with their kids and how they take them for granted.

My DD has had numerous Endo's, Upper GI's, and the like and it isn't fun to have to watch your child go through that. I can remember the first time they put her under, I cried and cried.

Praying that you get a diagnosis quickly for your DS and can begin treating his stomach problem. Hugs and prayers also for your other DS, hoping you can find some way to make things easier on him.

Melinda

 

[HauntedMansionGeek]

Oh dear, big big BIG hugs for you.

We have a daughter that struggled with so many things....and it was tremendously difficult and heartwrenching to see and hear all the other parents talk about their childrens accomplishments.
Our daughter wanted so badly to do well, and it just never happened, no matter how much help we had for her.

Lots of people know how you're feeling......and you should know that this beautiful world of ours is filled with young adults of all skill levels........young adults who are good citizens, kind people and who are successful in other ways...even though they struggled in school!

While I'm not glad that your other child is ill, at least you might have an actual reason to pinpoint what has been going on with him. You can go from there and at least figure out a treatment instead of wondering IF something is even wrong.

*many many hugs for you tonite*

Happy belated anniversary....I hope you find time to go out and celebrate this weekend. You'll be glad you did.

 

[Dan Murphy]

So sorry, Denise, to hear of the things the boys are going through. Always so tough when the kids have problems, aches, illnesses, or anything not good. As parents, we sure do want the best. My prayers are with them both, and you both also. Hoping the results prove something mild and not serious. And true, we are not given more than we can handle. Hugs, Denise.

Dan

 

[Jeafl]

Sending out big hugs and good thoughts to you. Hopefully your son can start to be treated right away. Nothing is worse than watching a child in pain. I'll keep you all in my prayers.

 

[CRB#33]

I'm so sorry all this is weighing on you and your children. I hope that both of your children are able to overcome these obstacles very quickly. You sound like a terrific mom.

{{HUGS}}

 

[CathyCanada]

Here's a BIG HUG for you, Denise, you are dealing with a lot right now!!!!!

But take heart in the knowing what the issues are. Better to know than not know and then you can figure out how to deal with them.

My Mom has ulcerative colitis (in the Crohn's family) so I know what you are dealing with. Don't beat yourself up about trying to help your son based on a wrong diagnosis. Talk to him and I am sure he will understand. Medication will be a godsend and I know he will be fine.

As for your younger guy, once he gets the CAP testing (I think that is the one?) and a diagnosis, the teachers will be more understanding and perhaps find a way to test your son in a way that is "fair" to him. Give him an extra hug and applaud his attempts to do his best. Give him one from me too!!

A belated Happy Anniversary. I know this has been a rough week, but later on, be sure to celebrate it, it IS important to be a good couple to be good parents. Don't lose sight of that and take care of yourself. It WILL get better and I will stop preaching to you now!
CC

 

[FreshTressa]

That is too bad. I really feel for you having to go through all this today. And your poor son. I hope there is something they can do to help him. Chron's disease is a pretty yucky thing to have.


And motivation is 95% of success in life, so, it sounds like since your younger is trying really hard at school, everything should work out fine in that area. Grades aren't everything. It takes all types and your child will find his place where he excels.

Now, I hope you get some good news tomorrow! And keep us posted how they are doing.

 

[Planogirl]

Geesh, this an awful lot to have to deal with. I hope that you get some good news soon.

By the way, I agree with CathyCanada. Be sure to celebrate each other when you feel up to it.

 

[binny]

(((Denise)))

I have one on each end of the spectrum. My oldest is a Mensa and my youngest has CAPD too. ( My middle child is in the middle lol)

It so hard when I see Cam do things and wonder if Karissa will have half that amount of understanding.


At the same time Im proud of all of them for the things theyve accomplished!

I hope your older ds is able to find some relief and they figure out whats wrong.

As parents I think we could just spend our days being comsumed by guilt, we cant let happen though. You did what you thought was best and went with what you had. WHo quted someone here the other day? It went something like " You did the best you could and now that you know better you will do better" Im probably way off on that but it was the general idea


I will keep your family in my prayers.

If you ever need to talk feel free to PM me. it helps sometimes when you have someone else whos going through (C) APD to talk with.

 

[Loubon]

Hang in there. Your heart and priorities are in the right place and NYC will still be ready and waiting for you when you are in a better frame of mind.

 

[Eiblis]

no advice here just wanted to send ((((((hugs)))))) and thoughts to you all

 

[Gette88]

{{HUGS}}

I truly hope things start looking up for you and your family. Please remember you have alot of support here on the community board and alot of people pulling for you.

 

[Boots]

{{{{{{HUGS}}}}}} We are always here for you!!!

 

[helenabear]

I am so sorry to hear that you are going through so much right now {{{hugs}}} to you and your family

 

[Snowysmom]

I'm sorry this is all happening at once. My older DS had abdominal pain at the same age. He had tests done (not a colonoscopy) and everything was negative. When he was 16, he had laryngospasms that cut off his breathing for 1-2 minutes. He was diagnosed with severe acid reflux. It had damaged his larynx. He now takes prilosec and no longer has the abdominal pain or laryngospasms. His larynx was healed in 6 weeks. I asked the gastroenterologist if the acid reflux could have been related to the pains when he was 14 and he said "maybe." It might be worth looking into. My son does not handle stress well and is a type A personality which may or may not be a factor. I hope things go better for your younger son. Take care.

Candy

 

[browneyes]

{{hugs}}

When will you know the results?