Fibromyalgia Thread

[EDuke98080]

LOL, your heating pads sound so nice, but I am also fighting perimenopause and hot flashes from the savella!

I think I am headed that way soon! LOL

 

[Indiana Rose Lee]

I think I am headed that way soon! LOL

Well, it is an interesting roller coaster ride!

 

[Tinker'n'Fun]

 

[brighteyes]

Hi Y'all; just wanted to check in w/ ya. Pain is tolerable; thankfully it doesn't get cold here except for a few weeks, but pretty achy due to a lot of rain (although we're in a major draught, so I'm ok w/ the achiness LOL).

I'm under a fair bit of stress at the minute which isn't helping; DH has thankfully kept his job so far, but evryone had to take a 25% pay cut over a year ago; couple that with 3 extended hospitalizations (2 for 1 kid, 1 for DH) and the fact that most of the kids therapies aren't covered... well, suffice it to say, we went from being ok financially to being 25k in debt. I've been seriously looking for work for 3 months, but so far haven't found anything. It looks like I'm going to have to go full time just to find something. At least I interviewed yesterday for a job that might work; it's a computer job at a nurses salary working 10-7 and I can work from home after 6 months. At this point I'm hoping I get it as we could be debt free (except for mortgage) again after about 6 months. DH says that if I want to quit after that it's ok. I'm just so frustrated; there are a lot of jobs I know I can't physically do, heck even the one I used to love (I was a Hospice nurse, but can't lift that much anymore or manage being on call through the night)... I guess I'm just having a pity party moment, so I appreciate you indulging me and I promise I'll get up now, put on my big girl pants, and get back to appreciating the fact that I'm still here.

Well for anyone pity parties are sometimes in order. I hope that if you get this job -- and that it will work for you. I understand that dilemma, needing a job you can do.

I was just speaking about this such thing today, regarding therapy, etc for children with special needs and how do parents do it??

Sometimes we have so many things on our plates that it is hard to put on our big girl pants. It sounds very stressful for you. I hope things improve and that you start to feel better soon. I don't believe that you are having a pity party. Sometimes things suck and we just have to say it.

We are here to listen and support you.

 

[ireland_nicole]

Well for anyone pity parties are sometimes in order. I hope that if you get this job -- and that it will work for you. I understand that dilemma, needing a job you can do.

I was just speaking about this such thing today, regarding therapy, etc for children with special needs and how do parents do it??

Sometimes we have so many things on our plates that it is hard to put on our big girl pants. It sounds very stressful for you. I hope things improve and that you start to feel better soon. I don't believe that you are having a pity party. Sometimes things suck and we just have to say it.

We are here to listen and support you.

Thanks, I really apreciate it. I didn't get the job, but the recruiter said hopefully the next one... apparently positions open up anywhere from weeks to a couple of months apart. So the good news is, I don't have to work on Monday- which is great, because I have two teacher conferences, an ARD meeting, an appt. w/ a new psychiatrist for DD, and she starts hippotherapy... had no idea how I was going to manage if I was working on Monday, so that's covered. The bad news, of course, is no money. I did a wedding cake last weekend, have a birthday cake next, and am making friends a couple of halloween outfits for their kids, so that will bring in some, plus I'm giving a friend sewing lessons and I'm thinking about selling some of my old gold from boyfriends in high school and stuff so we have Christmas money. I'm sure we'll figure something out

In the meantime, thank you guys for your prayers and well wishes. I appreciate the pixie dust and am sending pain free vibes to all of you fibro sisters.

 

[EDuke98080]

Last night was pretty much the same. I finaly fell asleep around 3am, and DH woke me at 6:30 to take him to work. I came home, did stuff around the house and took a nap from 10:30 - 12:00. I feel terrible this afternoon. Hopefully I will be tired tonight. If not, tomorrow I will have to sleep in and try again another time.

I am sorry you felt so horrible after getting up early. The same thing happens to me and no matter how tired I am I get to sleep around 3. I like your signature things - had a breast biopsy in July - everyine needs to have their mamos. Thanks for the reminder!

 

[Tinker'n'Fun]

 

[tiggspring]

Hi Guys!

Should be making 2nd cake but wanted to check in instead. Thanks for asking about the cake. I'm hoping to figure out how to post picks today and let you see.

DH just sent me an article from NPR that points to a retrovirius as the cause for Chronic fatigue syndrom. Since many of us have the dual diagnosis of CFDS and FM thought you might want to take a look. http://www.npr.org/templates/story/story.php?storyId=113613955 I

I was lucky a few days this week and fell asleep early and slept all night!!!! Blissfully unaware of my pain all night. Lost 2 lbs too! Last night Dh needed to go to bed really early so I fell asleep on the couch now my neck hurts. Hopefully tonight when I can be in bed watching TV I will have another great night sleep. I'm really hoping this a new normal sleep cycle because my body clock has been fighting me ever since we got back from WDW in May. Like most of you my body likes to sleep somwhere between 3am and 11am.

 

[tiggspring]

I'm under a fair bit of stress at the minute which isn't helping; DH has thankfully kept his job so far, but evryone had to take a 25% pay cut over a year ago; couple that with 3 extended hospitalizations (2 for 1 kid, 1 for DH) and the fact that most of the kids therapies aren't covered... well, suffice it to say, we went from being ok financially to being 25k in debt. I've been seriously looking for work for 3 months, but so far haven't found anything. It looks like I'm going to have to go full time just to find something. At least I interviewed yesterday for a job that might work; it's a computer job at a nurses salary working 10-7 and I can work from home after 6 months. At this point I'm hoping I get it as we could be debt free (except for mortgage) again after about 6 months. DH says that if I want to quit after that it's ok. I'm just so frustrated; there are a lot of jobs I know I can't physically do, heck even the one I used to love (I was a Hospice nurse, but can't lift that much anymore or manage being on call through the night)... I guess I'm just having a pity party moment, so I appreciate you indulging me and I promise I'll get up now, put on my big girl pants, and get back to appreciating the fact that I'm still here.

Ireland Nicole. Sorry sorry to hear about you stresses I think all of us have been or are currently where you are now. Money is difficult here too. We had mold problems that required us to move and Bat problems that required rabies shots a few years back. My DH began teaching at a local University to make extra income, then began doing supervision on the side and occasionally works for attorneys and does public speaking on the side when a new bill comes in. I'm not sure how he manages the 80+hours he is now working and doing class work for a PhD. It really drives me crazy that I can't get out and work. We left New England so he could be home with me and the kids. But as you know Ireland its not just the medical bills, it the gas to get there, unexpected meals out, babysitting etc. Last year DH and I had 20 Dr and medical procedures between us (he has glaucoma) and most times a day out for a procedure was $150 for childcare for three kids etc and that was before our co pay! We know that the PHD is key if we are ever going to get out of this mess and have the kids go to college but we miss him terribly. Helping with college is out since we have never been able to get ahead because of medical bills. If he gets a Professor job then kids go to school free and as long as he can speak he can work. Speaking-teaching is much easier than mental health and pays better too. It seems he may never really retire. Now the IRS has refigured our taxes for the last several years and it looks like we are $10,00+ in debt to them because he worked so hard to get us caught up. I find myself dreaming about the IRS! (at least dreaming means I'm really sleeping ) The whole situation is so frustrating Hopefully when I work on our taxes this week I will find out they are wrong but i'm almost afraid to look with all his different income sources and deductions it a big job and we could not afford a accountant the last several years but should be able to next year

On the one hand it is good to know that we are all in the same boat. At least we know its not our fault. On the other hand sometimes it feels like all of us that deal with medical issues are all on the titanic!

Sounds like you are a great mom and wife. Juggling your kids medical issues as well as your own all the while looking for work. Hang in there we are all pulling for you

Sending Pain free vibes and pixie dust to you all

 

[tiggspring]

On a lighter note here is Nathan's Stormtrooper cake. It would have looked better if I used fondent instead of regular icing but my kids hate fondent.
Also a little off topic but for those of you who might be planning a trip to WDW I got a 7 days for 5 promotion in my email this week!

 

[ireland_nicole]

Ireland Nicole. Sorry sorry to hear about you stresses I think all of us have been or are currently where you are now. Money is difficult here too. We had mold problems that required us to move and Bat problems that required rabies shots a few years back. My DH began teaching at a local University to make extra income, then began doing supervision on the side and occasionally works for attorneys and does public speaking on the side when a new bill comes in. I'm not sure how he manages the 80+hours he is now working and doing class work for a PhD. It really drives me crazy that I can't get out and work. We left New England so he could be home with me and the kids. But as you know Ireland its not just the medical bills, it the gas to get there, unexpected meals out, babysitting etc. Last year DH and I had 20 Dr and medical procedures between us (he has glaucoma) and most times a day out for a procedure was $150 for childcare for three kids etc and that was before our co pay! We know that the PHD is key if we are ever going to get out of this mess and have the kids go to college but we miss him terribly. Helping with college is out since we have never been able to get ahead because of medical bills. If he gets a Professor job then kids go to school free and as long as he can speak he can work. Speaking-teaching is much easier than mental health and pays better too. It seems he may never really retire. Now the IRS has refigured our taxes for the last several years and it looks like we are $10,00+ in debt to them because he worked so hard to get us caught up. I find myself dreaming about the IRS! (at least dreaming means I'm really sleeping ) The whole situation is so frustrating Hopefully when I work on our taxes this week I will find out they are wrong but i'm almost afraid to look with all his different income sources and deductions it a big job and we could not afford a accountant the last several years but should be able to next year

On the one hand it is good to know that we are all in the same boat. At least we know its not our fault. On the other hand sometimes it feels like all of us that deal with medical issues are all on the titanic!

Sounds like you are a great mom and wife. Juggling your kids medical issues as well as your own all the while looking for work. Hang in there we are all pulling for you

Sending Pain free vibes and pixie dust to you all

Oh gosh, honey I'm so sorry for what you're going though. Dealing with the IRS is such a nightmare scenario. Funny, my DH has glaucoma too. My husband used to work the kind of hours of your DH, but thankfully, in his current job he's home a lot more which is a God send. Part of me is relieved that someone else can understand the financial pressures and constnat feeling like you're sinking under the debt, but mostly I really wish no one else had to deal with all of this. Sending you pain free vibes, and hopes of another good night of sleep- stay off the couch!

On a lighter note here is Nathan's Stormtrooper cake. It would have looked better if I used fondent instead of regular icing but my kids hate fondent.
Also a little off topic but for those of you who might be planning a trip to WDW I got a 7 days for 5 promotion in my email this week!

Awesome job!!! I am crossing my fingers that that promotion heads our way, too... The cake looks great!

 

[tiggspring]

LOL Thanks!

I was just told on another Thread that the promo is on the WDW web page. Also my travel agent was able to book us for the Poly in May. Its good on all levels although the promo says just budget. Also my agent said that she thinks it will go back to 7 for 4 and she will just slide us over when it does. Dont know if we will be able to go but we can always cancel but you cant get the deal if you wait. Hope this helps you go. We decided last year after only 2 vacations in 10 years that the bills will always be there but we never know how much time we've got and the kids..well they dont stop growing just because the bills come in.

Have a great weekend!

 

[tiggspring]

Just checked and WDW site is not posting this offer. It is good for april through June 2010. Here is a post I made on another thread.


http://www.disboards.com/showthread.php?p=33893762#post33893762

 

[tiggspring]

It's me again. Made it through another birthday. Today was a beautiful day. We went to a local festiville then had Katies party. Here is the cake you asked me to share. ireland_nicole how did yourr cakes come out? Please post some pix!

 

[brighteyes]

Wholly yummy!!!!! Well apparently I am having trouble sleeping now. It is 2:24 am and am wondering if I should start yet another paper. LOL I don't think I will....

Yummy cakes, those all look awesome! I want to eat them all up!!

Well I missed one of my Thanksgiving dinners the other day cause my son was really wearing on my last nerve on Friday night to the point I was in tears. So I called my Dad and told him he needed to take my son away before I had a nervous breakdown. He said yes --- I think he could tell I was on the edge. So I had a peaceful day until he came home grumbling again.

And now my DS is too sick to be annoying, I have been catering to him all day, High fever Really high, cough, etc. So not sure if I will make it to my Dad's Thanksgiving dinner tomorrow.

The bright side is that my DS is too sick to argue with me about nothing which is allowing me to regain my sanity.

Hope you all have a good day tomorrow. The best day that you can

 

[EDuke98080]

The cakes are awesome! What talent you have! Thanks for sharing them. I am so sorry for the financial difficulties that people are experiencing these days. It is such a hard time for many. Glad you booked that trip, sometimes ithelps to have something to look forward to. Hope everyone has a good sleep and pain free day tomorrow.

 

[tiggspring]

The cakes are awesome! What talent you have! Thanks for sharing them. I am so sorry for the financial difficulties that people are experiencing these days. It is such a hard time for many. Glad you booked that trip, sometimes ithelps to have something to look forward to. Hope everyone has a good sleep and pain free day tomorrow.

Thanks for the complement , you too brighteyes! I always see all the flaws. My husband thinks I'm crazy when I say they are "ok". They were yummy. It was my DMIL chocolate cake recipe which everyone always insists on but it crumbs up when you frost it. Because these two cakes were 3D it meant they took 4 lbs of frosting each decorate!!! Major sugar rush. I had to scrape off some of the frosting so my kids wouldn't be going nuts for the week.

Alas the fun was not meant to last. At 11pm Sunday we heard a loud crash and then our two "supposedly sleeping" kids running down the stairs. My DS decided he wanted to reach something and climbed his 4 ft high bookcase. When the shelves came crashing down he was left with a 10inx8inch scrape on his chest/abdomen and he caught the corner of the bookcase with his left side full force. Needless to say we packed everyone up and rushed to the closest children's hospital an hour away. Our hospital here stinks I actually filed a complaint against them just before my DD was born and within a month the state had sanctioned them! Their children's unit primarily medivacs to the children's hospital anyway and our insurance says the local hospital is out of network soo...off we went. I worked med/surg for ten years so I wasn't worried too much but he definitely needed to be checked out before morning. He is fine. very lucky though. It would have been much worse if we didn't have all bookcases and chests straped to our walls! He has a very high pain threshold so he was even doing gymnastics today! I however needed to sleep all day today to makeup for the disruption. Luckily that seems to have done the trick!

Ahh the adventures of parenthood!Hope everyone had a great weekend!

Sending pain free vibes and pixie dust to all

 

[EDuke98080]

Just checking in with my fibro buddies..... how are all of you faring this week? It's cold in MA and I'm feeling it!

Stay warm and pain free!

 

[Tinker'n'Fun]

 

[EDuke98080]

Just checking in also. Went for my monthly Drs. visit and he put me on a new sleeping med. Not sure what it is yet since he forgot to give me the script and they had to call it in. Its not a narcotic, so I am assuming it is an antidepressant with sleepiness as a side effect...

All else looked okay and he gave me an antibiotic for sinuses and refilled all other drugs.

I am going away for the weekend to college shop with my daughter, hopefully it won't be too much, except we are looking in NYC and that never means an easy trip with shopping and all.

Hope your sinuses feel better. I found college visits exhausting when my daughter was looking. Too much to absorb. We went to NYU to look and Fordham. The little shops around NYU were fun to poke around in. I hope you enjoy the weekend and the time with your daughter too. I chuckled when my email showed a new post - I thought I was the only one still awake. Time to shut off the light and try to sleep.