Fibromyalgia Thread

My DH working on PHD to become Proff. His teaching is so much less stressful than mental health. I know he will miss the adreniline moments, I know I did, but it will be nice to settle down. A career servie firm just rated professor in the top 5 least stressful jobs. We hope so:) Congrats on the career change:thumbsup2

Not only less stressful, but just as valuable as being in mental health. I know my profs have made all the difference in the world during these three years I have been in school. What they have shown me and taught me have been invaluable and could not have imagined being where I am if it were not for them.

All of my profs are amazing, and I have learned all very different things from each. :hug::teacher:
 
LOL:rotfl: on DM my mother has no awarness skills and hates for anyone to be happy. When we went to WDW I called and left a message on her phone the day we left and said we would not be answering our phones because DH surprised me with a little trip. We gave her no details because she would have said something to try to ruin it.Truely a misery loves company kind of gal. We all call her Eyeore and she doesnt mind or get it :lmao:. You have my sympathies:hug:

Looks like two years ago your self concious was trying to tell you something. Wish mine had I was completely in denile until the day I was put out of work. :sad2: Hope you are feeling a little less overwhelmed this week. My DH took two days in a hotel and SEEMS to have chilled a bit. He cant wait for Dec. 16th!

Dec 16th is my freedom day too. I cannot wait. Last Christmas me and DS went to WDW. It was the best t hing ever but so tiring to go back to school. I did not tell my mom we went as she misses me so much, but I finally told her and hoped that she would understand that me and my DS needed to have a visit to WDW> I think she understood. I may go and visit her this summer if finances allow. I have not seen her for 7 years. The average is 5 but last visit was very very stressful for both my DS and me.

This break, I plan on doing nothing, excpet cleaning my house.

Growing up, I used to think my mom was just bitter and miserable but the last ten years, she has steadily declined and it was very clear that she was very ill. While I love my mom, it is very hard to deal with her, but I don't see her often as she is in British Columbia and I am in Ontario. That is a blessing in some ways, though, as it would be very difficult to have her so near me. Her state has been better in the last year as she is in an open home type setting that is monitored by nurses and she sees her dr regularly, so I should go while she is doing fairly well.

My friends think I should go to Disney again though for my own sanity. It will be hard to see her, but I should go again. If my mother could deal with the crowds I wuold tell her to meet us at Disney. :)
 
Dec 16th is my freedom day too. I cannot wait. Last Christmas me and DS went to WDW. It was the best t hing ever but so tiring to go back to school. I did not tell my mom we went as she misses me so much, but I finally told her and hoped that she would understand that me and my DS needed to have a visit to WDW> I think she understood. I may go and visit her this summer if finances allow. I have not seen her for 7 years. The average is 5 but last visit was very very stressful for both my DS and me.
This break, I plan on doing nothing, excpet cleaning my house.

Growing up, I used to think my mom was just bitter and miserable but the last ten years, she has steadily declined and it was very clear that she was very ill. While I love my mom, it is very hard to deal with her, but I don't see her often as she is in British Columbia and I am in Ontario. That is a blessing in some ways, though, as it would be very difficult to have her so near me. Her state has been better in the last year as she is in an open home type setting that is monitored by nurses and she sees her dr regularly, so I should go while she is doing fairly well.

My friends think I should go to Disney again though for my own sanity. It will be hard to see her, but I should go again. If my mother could deal with the crowds I wuold tell her to meet us at Disney. :)

I know exactly what you mean. I need to go back too. It has been 7 years. After 42 years I'm learning to put myself and my DH and kids first so we will go back to WDW on this great deal and if we can go back in the summer. I have realized when I take them into consideration not only do I lose but so do my kids. LAst trip my oldest DD begged to come back even though we stayed at a beachhouse blocks from the ocean! Its sad but they have never put me first and it has only been the last few years that I realized that no matter what I do I cannot win their love. They are too self absorbed in a variety of ways. I had a conversation with my DF recently and he didn't remember that I managed to gradute from college in three years despite working full time, taking care of DH1 while he was sick, in remission, then dying from Hodgkins disease then leukemia. How do you not remember that your 20 something daughter was mature enough to do that literally all by herself?I'm not bashing my family they did the best they know how but I finally got "when people show you who they are believe them!"


My family has come here several times but I find that when they are on my turf their "issues" Dm, DF, DSM are much more manageable. When I go home there are three families all with very different and major disfunctions. Which was good in that as a kid I thought they were all nuts:rotfl:. I have my own and truely unique disfuctions to pass on to my kids! My family is much more lovable from a distance. I can enjoy a nice conversation and when it goes south find a diplomatic way to get off. Visiting is a lagistic (3 state) and emotional nightmare. Not good for FMS as you know.My trip to WDW was the first time I truely made a clean break without feeling guilty. It only too 41yrs and a husband with a Psych background to convince me it was OK:rotfl2: I'm not took hard headed.

I'm with your friends go to Disney then to Mom's for long weekend:thumbsup2. Ask yourself a year from now will she appreciate the time you sacrificed with DS? If yes see her first. If no WDW then quicke trip back home . I realize as our parents get older these decisions can have consequences but your sons not going to be home much longer either. For those of us who care about everone its a no win situation in the guilt department:guilty: Thats MHO for what its worth.:hug:
 
I know exactly what you mean. I need to go back too. It has been 7 years. After 42 years I'm learning to put myself and my DH and kids first so we will go back to WDW on this great deal and if we can go back in the summer. I have realized when I take them into consideration not only do I lose but so do my kids. LAst trip my oldest DD begged to come back even though we stayed at a beachhouse blocks from the ocean! Its sad but they have never put me first and it has only been the last few years that I realized that no matter what I do I cannot win their love. They are too self absorbed in a variety of ways. I had a conversation with my DF recently and he didn't remember that I managed to gradute from college in three years despite working full time, taking care of DH1 while he was sick, in remission, then dying from Hodgkins disease then leukemia. How do you not remember that your 20 something daughter was mature enough to do that literally all by herself?I'm not bashing my family they did the best they know how but I finally got "when people show you who they are believe them!"


My family has come here several times but I find that when they are on my turf their "issues" Dm, DF, DSM are much more manageable. When I go home there are three families all with very different and major disfunctions. Which was good in that as a kid I thought they were all nuts:rotfl:. I have my own and truely unique disfuctions to pass on to my kids! My family is much more lovable from a distance. I can enjoy a nice conversation and when it goes south find a diplomatic way to get off. Visiting is a lagistic (3 state) and emotional nightmare. Not good for FMS as you know.My trip to WDW was the first time I truely made a clean break without feeling guilty. It only too 41yrs and a husband with a Psych background to convince me it was OK:rotfl2: I'm not took hard headed.

I'm with your friends go to Disney then to Mom's for long weekend:thumbsup2. Ask yourself a year from now will she appreciate the time you sacrificed with DS? If yes see her first. If no WDW then quicke trip back home . I realize as our parents get older these decisions can have consequences but your sons not going to be home much longer either. For those of us who care about everone its a no win situation in the guilt department:guilty: Thats MHO for what its worth.:hug:

I know, I totally know what you are saying. Yet, I feel that although everytime I go see my mother it brings back all her issues of being with my Dad. She resents the fact that he remarried and had kids and she never did. In all fairness to her, he was an *** to her, but in his defence he knew he could never make her happy. He was right, she is not happy, I believe that is what has caused her mental state to deteriorate to bi-polar.

Obviously there is more to it than that, but she is always the victim. And her bitterness comes back everytime I go see her. She does not see that I appreciate all she did for me. She raised me till I was 16 while my father was out partying. They separated when I was 5. But through her bitterness she does not see that I appreciate her, she thinks I idolize my father. Ha, my father refused to help me ever again financially if I went to Disney last year.

I told him, I do not know if I will be able to walk for much longer, or what is wrong with me, so I am going while my son and I can take advantage. He has always told me to wait for everything. Wait till my son gets older so I can date, wait till my son gets older to get a job, wait till I pay off college to go on vacation, wait wait, wait.

Now I am a 40 year old single mom who hasn't dated in many many years, cause I was always trying to better myself, always working. Now I feel like it's too late to find someone to get married, and I am sick. I was really worried when they t hought I had Lupus cause I thought what the hell did I wait for?? To get sick?? That is also what prompted me to go back to college, that I never did what I wanted to all along, cause I didn't have the courage.

SO I told my Dad, sorry you feel that way, I am not waiting any more. Don't help me ever again but just because I am a single mom, and not rich, does not mean I cannot go on vacation. Besides, I have not needed his help financially for years. My dad has a maid, house paid for, car paid for, and does not get my life. He never will. So I have not asked for his help since. and will not, even if my child and I are starving, I would not ask him for help. And my Dad says it is not my job to worry about my mom, but she is ill and I will always worry about her. But my grandma is there to help take care of her, but I don't know what will happen to my mom when she goes.

My mom understood why I went to Disney even though she misses me so much. Bless her. But she is at the other end of Canada, so it's not as easy to go for a weekend. I wish, then it would be no question, I would do Disney in a heartbeat. It's almost a quick Disney trip what it would cost me. And although it will be painful and stressful, I will try to go to Disney next year I hope or the year after.

Ahh...sorry for the long long vent, Now that you all now me very well, can you tell all that ticks me off. I say love your family, but live for yourself. :love:

I think we all have similar stories, we all have fibro, not an easy thing. We have all had to adjust our lives accordingly. This has taught me though, don't wait till tomorrow to be happy or go on that vacation, etc etc cause tomorrow might never come. I think I would not have gone to Disney for a second time with my son, or gone back to college if I had not gotten sick. Do it today!!!:grouphug:

Stephanie
 

Stephanie totally understand:hug:

As far as dating goes the good men who will stand by you appreciate a strong woman who keeps their sense of humor when they are down. One thing I will say about Education and Social work fields is that the men are much more open to what life throws in a woman's way. You will not need to be so focused on your son as these years pass and you know what you want. Perfect set up to meet Mr almost perfect :woohoo:
 
Yeah, I am not worried, I am just saying, I fell into that waiting trap. Now it's not so much an issue. My focus is school and getting a better job that I love. And then if it happens, great, if not, great.

HA HA. I am not looking to get married, just a guy to go to Disney with!! :banana: Or move to Florida with me. :cool1:
 
Yeah, I am not worried, I am just saying, I fell into that waiting trap. Now it's not so much an issue. My focus is school and getting a better job that I love. And then if it happens, great, if not, great.

HA HA. I am not looking to get married, just a guy to go to Disney with!! :banana: Or move to Florida with me. :cool1:

Yep if he doesn't like Disney and staying up late throw him back!!:rotfl:
If you cant find something at Disney to love you must be a miserable person!
 
Yep if he doesn't like Disney and staying up late throw him back!!:rotfl:
If you cant find something at Disney to love you must be a miserable person!

LOL You got that right for sure!! Oh and one more, you forgot -- he has to cook me dinner. :lmao:
 
LOL--I must have missed quite a few posts but I TOTALLY agree with the sentiment of the foregoing posts! He's not worth it if he can't love Disney!

As for me, I have been a busy girl and dealing with a flare on top of it. Of course, I guess I can't complain because my 'busy' is Disney related--was at Disneyland last Saturday for a puzzle/quest/scavenger hunt thingie. It was HOT (weather wise). But we had a lot of fun.

Now I'm double-packing--for this weekend--another trip to Disneyland with a few of my Dis Diva friends, and then the following week my Mom and I leave for WDW!!!!! We ship our luggage, so have to have it done and to Fed Ex by this Thursday!!!! So I am doing laundry and trying to figure out what to wear on both trips.

I am so lucky--I have great friends who are house/dog/cat-sitting for me while I'm gone. I am truly blessed--and try to remember that when I wake up in the a.m. in pain!

I hope everyone is doing well and I'll try to catch up later!@

Cheryl
 
LOL--I must have missed quite a few posts but I TOTALLY agree with the sentiment of the foregoing posts! He's not worth it if he can't love Disney!

As for me, I have been a busy girl and dealing with a flare on top of it. Of course, I guess I can't complain because my 'busy' is Disney related--was at Disneyland last Saturday for a puzzle/quest/scavenger hunt thingie. It was HOT (weather wise). But we had a lot of fun.

Now I'm double-packing--for this weekend--another trip to Disneyland with a few of my Dis Diva friends, and then the following week my Mom and I leave for WDW!!!!! We ship our luggage, so have to have it done and to Fed Ex by this Thursday!!!! So I am doing laundry and trying to figure out what to wear on both trips.

I am so lucky--I have great friends who are house/dog/cat-sitting for me while I'm gone. I am truly blessed--and try to remember that when I wake up in the a.m. in pain!

I hope everyone is doing well and I'll try to catch up later!@

Cheryl


I am coming to live with you so I can hide in your luggage. :beach:
 
LOL--I must have missed quite a few posts but I TOTALLY agree with the sentiment of the foregoing posts! He's not worth it if he can't love Disney!

As for me, I have been a busy girl and dealing with a flare on top of it. Of course, I guess I can't complain because my 'busy' is Disney related--was at Disneyland last Saturday for a puzzle/quest/scavenger hunt thingie. It was HOT (weather wise). But we had a lot of fun.

Now I'm double-packing--for this weekend--another trip to Disneyland with a few of my Dis Diva friends, and then the following week my Mom and I leave for WDW!!!!! We ship our luggage, so have to have it done and to Fed Ex by this Thursday!!!! So I am doing laundry and trying to figure out what to wear on both trips.

I am so lucky--I have great friends who are house/dog/cat-sitting for me while I'm gone. I am truly blessed--and try to remember that when I wake up in the a.m. in pain!

I hope everyone is doing well and I'll try to catch up later!@

Cheryl

Will you adopt me??? PLEEEEZE!

Have a great time!
 
SOOO tired the last few days. Droped kids off for school then straight to bed. Slept til 1pm!!!! Now I've been up since 4 am when my DD5 woke me up. Now can't stop thinking-worrying about things.

Sending pain free vibes,sleep and pixie dust to all!
 
Sorry double posted from phone.figured out how to edit but not remove.

Sending pain free vibes,sleep and pixie dust to all!
 
SOOO tired the last few days. Droped kids off for school then straight to bed. Slept til 1pm!!!! Now I've been up since 4 am when my DD5 woke me up. Now can't stop thinking-worrying about things.

Sending pain free vibes,sleep and pixie dust to all!

:hug:
 
Subbing as my sister has Fibromyalgia. I like to keep up on new treatments and what people are doing. :)
 
SOOO tired the last few days. Droped kids off for school then straight to bed. Slept til 1pm!!!! Now I've been up since 4 am when my DD5 woke me up. Now can't stop thinking-worrying about things.

Sending pain free vibes,sleep and pixie dust to all!

I am so sorry and hope that you are feeling better really soon.

Just curious, is the time turn around a symptom of this? I have noticed that a lot of us have a hard time sleeping at night but could drop to sleep for hours during the morning and early afternoon. I haven't seen this on any info the docs have passed along but do find it rather funny that a lot of you are experiencing the same sleep patterns as I do.

Hoping everyone is having a pain free day!

Hugs to everyone!

Ronda
 
I am so sorry and hope that you are feeling better really soon.

Just curious, is the time turn around a symptom of this? I have noticed that a lot of us have a hard time sleeping at night but could drop to sleep for hours during the morning and early afternoon. I haven't seen this on any info the docs have passed along but do find it rather funny that a lot of you are experiencing the same sleep patterns as I do.

Hoping everyone is having a pain free day!

Hugs to everyone!

Ronda

I have never heard it quoted that the turn around is, however, lack of quality sleep is definately. I think what happens is, eventually after so long without a good sleep during normal times, that eventually, our bodies just get so tired that we have to nap.

If I sit down for a min to rest, there comes a point in the day where my eyes just start shutting and I nap not always by choice, sometimes only for 10 mins though, but I fall into a deep enough sleep that I am apparantly talking in my sleep after about two mins. My son yells at me for it, cause he can't hear the tv. :happytv:

I am trying tofight my way out of that sleep pattern of 3 - 12 from when my son was sick. My body wants to stay up till at least 3 or 4 am which makes it difficult to get thru school the next day. :eek: You would think the next night would be an earlier night but not so.

I really think there is something to this 3 am thing. I find that when I am about to experience a big flare, the sleep goes out the window, even with my meds.

Does anyone else find disturbance in their sleep before or during a flare?

BTW I handwrote 6 pages of my exam today and I aced it on 3 hours sleep!:banana:
 
SOOO tired the last few days. Droped kids off for school then straight to bed. Slept til 1pm!!!! Now I've been up since 4 am when my DD5 woke me up. Now can't stop thinking-worrying about things.

Sending pain free vibes,sleep and pixie dust to all!

I hope you can get some sleep soon. :wizard: And I hope you can stop worrying- thinking about things too :hug:
 
And I hope you can stop worrying- thinking about things too :hug:[/QUOTE]

Thanks for the good thoughts and Hugs Bright eyes and ireland_nicole and Ronda :thumbsup2. I am still so tired. Everyday this week went straight to bed when the kids got to school and slept all day:sad2:. The kind of sleep where you try to wake yourself up and you just cant get your body to respond. For me I think it is my new Fibro-PMS thing. This has been happening on?off for the past two years when I'm out 7 -10 away from my cycle. I would rather deal with the pain. I can fight through the pain, how do you fight falling asleep sitting up? The last few days I cant even fight it from 8pm-3 am my prime awake time. Now my son is home with what looked like the flu. He has sll the symptoms but they are very mild. Maybe it is a 24hr bug. I hope so because he has a Boy Scout camping trip and I dont want him to miss it.

Rhonda I have seen this with everyone I know with FMS-CFIDS. Its like our bodies become nocturnal. I know I have mentioned this before but alzymers patients have sundown syndrome where they are much more active and symptoms worse from say 3pm to late morning. I wonder if a part of the brain that is misfiring with them is also involved in our nocturnal tendencies?:. I am still so tired. Everyday this week went straight to bed when the kids got to school and slept all day:sad2:. The kind of sleep where you try to wake yourself up and you just cant get your body to respond. For me I think it is my new Fibro-PMS thing. This has been happening for the past two years when I'm out 7 -10 away from my cycle. I would rather deal with the pain. I can fight through the pain, how do you fight falling asleep sitting up? The last few days I cant even fight it from 8pm-3 am my prime awake time.

Bright eyes Congrats on the exam party: I know how you have been stressing about all that work.

ireland_nicole How are you holding up I know you were a little stressed out awhile back. The job hunt still on? How are your kids doing?

I was going to ask Cheryl how she is doing. We all know how she is doing since she is in WDW:woohoo:. She didnt even let Brighteyes hitch a ride in her luggage or adopt me in time to go. Thats a firend for ya;)
 
Subbing as my sister has Fibromyalgia. I like to keep up on new treatments and what people are doing. :)

Rachel :welcome:

If you look back several pages you will find information on some of the medications some of us are trying. A NPR link to a story they did linking a virus to the disease ( I plan to be tested my next Dr. visit) can be found on pg 13. :surfweb:A medication I had never heard about until a week ago pg 14. Posters results of sleep studies etc is mixed in with alot of stories and support so it may take some time to ferret it out. Don't hesitate to aks us anything everone here is GREAT:thumbsup2
 












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