Fibromyalgia Thread

Warning this is a little long even for me.:lmao:

Since we have all been dealing with flares for one reason or another I was wondering what tricks everyone has come up to make life easier. He is a list of some of the things I do:

I have a pair of "grippers" on every floor of my house so I can pick up and reach things without killing myself.

DH bought me a hot wax treatment set up so I can warm up my hands and feet

I used to do 30 day gourmet freezer meals with a friend. Every month we would switch off cooking multiple chicken or beef meal then freeze them . once we swapped we would have 16 to 20 meals put up in our freezers for days when we couldn't cook. I buy 20 lbs of chicken or beef on BOGO and save a ton on groceries too. I was able to do this alone last Sept and didn't worry about cooking till DEC. I find this very hard to do alone though.

Did you know that you can cook a whole frozen chicken and it comes out perfect? :banana:I had to do this with a turkey one thanksgiving one year when the turkey didn't unthaw and found out from butter ball you can cook it frozen. this is great when I cant cook but have plenty of time at home to cook the chicken. I always use a meat thermometer when I do this.

I bet most of you use crock pots

This past spring we bought my brain..oh I mean phone. DH and I both have blackberries and have the calendar set up so he can send me his appointments and I can do the same. each appointment has an alarm so I don"t forget....sometime still do LOL Also this year I use the kitchen timer and phone alarm clock to remember to get the Kids etc. I get a little lost with time and If something distracts me well I might not meet the bus which for the next five years I have to meet at 6:45am, 8:30am 3pm and 4:15pm. Our bus stop in 1 1/2 miles away and it all wooded and we have a bear! The bus co. thinks my kids should walk even in the winter. I think they are NUTS!!! DH does first trip most days thank God!!:worship:

I have a basket that fits on my stairs that I'm supposed to use to bring things up and down. Thing is I always overfill it then leave it there..

I found these great socks at JC Penney that have arch support built in which feel really good on my feet. they were in the men's dept. When my feet really hurt those crazy colored, shaggy type socks that are in the Jr section are warm and really lite.

Just started puting my vitamins in little bags. sort them out in muffin tins and then use the tin liner to just slide the pills in the bags. I tried to use those pill containers but many of the pills would absorb humidity. I never can consitanty do these pills week to week. heres hoping this helps us stay on track with suppliments! Why didnt I think of that before?

I have 3 slaves...ah Kids DD fold laundry, DS puts away dishes and DD picks up shoes and things on the floor since she is still short!! Did I really admit to this? :rotfl::rotfl::rotfl:

I used to have a Nanny when I could afford it. She would watch the kids and do dishes, fold laundry:laundy: and anything else she could fit in while I slept upstairs. She is a good family friend now. We have tried several times in the last year or so to replace her but nobody wants to work. My DD 10 does a better job with the laundry and DS does better job putting away dishes. I don't expect perfection just adequate.

Any other ideas everyone:idea:?

Sending pain free vibes:goodvibes and pixie dust to all pixiedust:
 
Hey Brighteyes how you doing today?:flower3: Since you love your heating pad like I do did you know that Walmart sells an extra long one that is almost the size of a body pillow. I got mine last year and I use every inch!

Cosine4 Glad to hear you have something that is working for you. That must be very encouraging!:thumbsup2

Indiana Rose lee
I absolutely HATE all that financial stuff and the stress it causes. Don't envy you in that process. Hope all goes as you plan! I cant imagine a day without pain either. But I do fondly remember what it was like after I was headache free for the first time in 2 years. I danced around my living room and felt like I was flying. I think it would be like that for a day or two! At least my headaches now may last several days but not several years!!! That was really awful:scared1:

Welcome Tinkerbean!!!!:welcome:

Looks like you and I are in the same place in our live re age/kids/dh and fibro. Your kids are just a little older than mine. I'm so sorry to hear about your Mom. That must have been so hard for you.

Sending pain free vibes :goodvibes and pixie dust to all pixiedust:

OMG!!! Really????!!!!!!!!!!!!!!!:dance3::dance3::banana::banana::banana: Before I get too happy I should check my Walmart. I am in Canada! We might not have it here. I will check right after school tomorrow. I was just telling my friend that they need to invent a body sized electric heating pad!!

I am feeling better now, can move and walk without it being excruciating. I missed two days of my school placement. I knew I would probably be sorting and folding big bins of donated clothing so I knew there was no way I could handle that.

Welcome everyone!!! :cheer2:

Now I have to work on a paper I have due in two days.

Night all. Have the best day you can!!!
 
Bright eyes your responce to the heating pad made me
:lmao::rotfl2::rotfl::rotfl::rotfl2::lmao:

Just did a quick check for you online. If you go to walmart site or amazon you can buy them for $19- $25 us dollars which should be a discount to you with our economy! They are called King size and are about 24 inches long. I typed in extra large and found them. ENJOY!!!!:cool1:
 
Be carful just noticed some are only 18 inches long not 24.Some smaller ones have massage.MMMMMM
 

Be carful just noticed some are only 18 inches long not 24.Some smaller ones have massage.MMMMMM


Awwww...darnit!!!!!!!!! After thinking about it all day at school, and running my errands after school and rushing to get home to re-start my paper for the third time so I can finish it tonight I TOTALLY FORGOT! :guilty:

Well maybe if I have a good portion of it done early enough I will sneak out. I am pretty tired though, so first I will need a nap. My eyes are shutting as I type!!

I also wanted to see if they have any good food scales there, otherwise I may just order them both of amazon. Would I have to pay duty on that,and would it be a lot??

I am trying to decide between the Biggest Loser scale or a WeightWatchers scale. HA can you tell I am on a health kick?

Just pray for me please that this lasts until at least I get my elliptical put together. :worship:

Have a good day all. :banana::wizard:
 
Popped in to moan and groan. It's rained and rained and rained and I HURT. I've been so lucky the past five months and now UGH! I've had two social events in the last five days( and did I mention nonstop rain?) I've overdone it and I'm exhausted. It stinks.
 
Popped in to moan and groan. It's rained and rained and rained and I HURT. I've been so lucky the past five months and now UGH! I've had two social events in the last five days( and did I mention nonstop rain?) I've overdone it and I'm exhausted. It stinks.

I really hope you feel better. I know how it sucks. I just came out of a three day painful flare. Rest up if you can, and know that we are all sending pixie dust. (or LOTS of meds, if that doesn't work)
Rain does seem to have an effect on me too, does it for anyone else??

Take care, and get better sooon. :wizard::hug:
 
TLSnell1981

I dont know where you live but I'm with you. Had a good day until about 3pm it went from about 60% humidity to 97 right now!!!:scared1: add to it that my super smart son came home with a 57 and my little one some point over the week emptied her ballet bag so we coulnd find her shoes until her class was over and this eve just....:headache: I'd do anything to get out of my skin if you know what I mean. ...Well feel a little better getting it out.

Hang in there TLSnell1981

Sending pain free vibes:goodvibes and pixie dust to all!pixiedust:
 
WOOOO HOOOOO!!!!!!!!!!!!:dance3::dance3::banana::banana::rotfl2::rotfl2::cool1::yay:

Ok so I may be a LITTLE bit overexcited, I just completed my first paper of the year. It was an easy one, but I did start it over three times. But I only checked it three times. I have a little OCD when it comes to papers. I procrastinate, (which I did this time too. :rolleyes1) but I only checked it three times and I am leaving it. That is a record for me. HA HA

I hope I get a good mark. It is a little longer - but oh well. This is big for me - usually I leave it so last minute I am really up all night, or am checking it for hours and hours. This time I am not, in an effort not be OCD about my marks. So pray it works out for me. popcorn::popcorn::

Have the best day you can. :wizard:
 
I am taking Social Services. It's a two year program, so I am in my last year. But I did an extra year before that to increase my chances of being accepted into the program.

It is not hard, cause I love the material, but it is A LOT of work. But I don't want to be a counsellor or therapist, or social worker but want to work in the school system.

I was always wanting to be working with children in some aspect. Last year I had the chance to work in a classroom with kids who had mostly behavioural issues. They were pretty high functioning kids.

I was scared away from it a few years ago because a lady who is an Educational Assistant told me she spends most of her days holding down children who are having behavioural issues. She works with a lot of children who are autistic. Then someone else told me that is not what should be happening, and that she must not be doing a good job with her kids. So that scared me off working with autistic children. I did not want to be judgmental I just didn't know anything about it.

I have since met a few children with autism and they are just kids, nothing to be scared of. I just want to learn more about it, because I know that every child on the spectrum is different.

Sorry to go on so long, I just am so excited to be done school and hopefully get a job!!! I could also work as a child/youth worker in a school. :banana:
 
I really hope you feel better. I know how it sucks. I just came out of a three day painful flare. Rest up if you can, and know that we are all sending pixie dust. (or LOTS of meds, if that doesn't work)
Rain does seem to have an effect on me too, does it for anyone else??

Take care, and get better sooon. :wizard::hug:

TLSnell1981



Hang in there TLSnell1981

Sending pain free vibes:goodvibes and pixie dust to all!pixiedust:

Thanks ya'll. It's always good to have folks who understand.... It's nice to have a support system.

Best wishes to everyone!:goodvibes:goodvibes
 
Tsnell,

are you feeling any better today?? have you tried using a heating pad?? I just went and bought an xlarge on thanx to the advice of tiggspring. what do you do when you get a bad flare to help you through the pain. Not that anything can really ease it until it lessens on it's own.

anyway, I hope you are feeling better soon. you will find me on these boards more as I procrastinate with homework. :rolleyes1
 
Do I have a heating pad? I have 'em in every size, shape and color!:lmao: I normally have massages regularly, but I haven't had the time. DD hasn't been able to drive, so.... I'm going for a B12 tomorrow....they usually help some.
 
Hi All! Great thread. I have had fibro for years and recently found that eliminating gluten from my diet has led to an amazing imporvement in my pain level. (Also completly eliminated the stomach aches I have had for 30+ years) One of the things I have found is that people with Celiac disease have a high rate of fibro and that improves when gluten is eliminated. worth looking into if anyone also has any gastrointestinal symptoms too.

Does anyone have any suggestions for help settling down at night to get to sleep at a decent hour?

Thanks! Erika
 
Hi All! Great thread. I have had fibro for years and recently found that eliminating gluten from my diet has led to an amazing imporvement in my pain level. (Also completly eliminated the stomach aches I have had for 30+ years) One of the things I have found is that people with Celiac disease have a high rate of fibro

Thanks! Erika

Hmmm....it's funny, in an odd way. I've noticed how much my diet can affect my fibro and Celiacs seem to keep coming up in conversations. Maybe, somebody's trying to tell me something? I guess, it couldn't hurt checking into it.
 
Hi

Does anyone have any suggestions for help settling down at night to get to sleep at a decent hour?

Thanks! Erika

About 30 - 40 mg of amitryptyline a few hours before bed. :cool1: Before I started taking that I would only sleep for an hour at a time. Very frustrating.

But I still don't get to sleep at a decent hour, but once I do I am out like a light.

Sorry I couldn't be of more help.
 
I wish I knew of a way to sleep better--if you find one let me know~

LOL!
 
It is very comforting to know there are others out there like me although I don't wish this one anyone. Sometimes the pains make me so frustrated wondering if there is something else wrong? Get really tired of trying to do something like yard work or a longer walk and then to suffer for weeks after makes me feel useless. I just hate it! Ok vent over - thanks for listening :goodvibes It is better than it has been since they found the Celiac and the gluten is eliminated so I am lucky for that! Does anyone else own stock in Icey Hot? I never leave home without a stick of it (in a baggie as it will melt in the car). DH says I smell like a walking Icey Hot Stick EW! Als o the not sleeping thing works well for EMH at the Parks when they start at midnight LOL.
 
Welcome newbies! Can't make it fancy tonight since I'm posting from my phone and can't get smilies to work this way.:-(

Erika
Melatonin helps me and I lose weight! The downside is if I take it for more than a few days my leg pain is awful.Maybe becuase I sleep so soundly I don't move. I haven't taken it since May because if I take things too long they stop working. Planning to start it again soon so I can lose the weight I've gained since we returned from WDW.I crashed when we got home and gained my usual 15-20lbs!

Brighteyes glad you found the extra lg pads up there in Canada! I was wondering do you get messages etc covered in Canada? I would love to try accupunture,massage and pressure point therapy but can't afford it and last time I checked it wasn't covered by insurance.

Pain free vibes and pixie dust to all!
 












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