Exhausted from parenting/ASD children/Welcome to Schmolland!

(kampfirekim)I think they all trip and fall on the spectum during puberty! I know I did! The angel appeared and said "Fear not! This too shall pass!" Three days for cursing? Sounds like my 7th grade year...which my mom still only refers to as "The Dark Year". Sounds like something out of Star Wars...like I joined the dark side of the force or something!

I loved this kampfirekim! It explains why my mild DS son became severe to me during year 14 and 15! Those are definately our "dark years" (love that expression)! He is now 17 and doing much better but I'm still not over it! I think I'll be battle scarred for life it was that bad!:scared1:

I saw a T-shirt that summed it up for me. It said: "Go ahead and stare, you may cure my autism and then we can work on YOUR social skills!"
I love this! I saw one that had a big arrow pointing to the side that said "I'm with neurotypical"! Ha!

I may do that anyway! Cheetos, kookaid and TV for 2 weeks sounds like a winner to me! Let's put in on the Schmollish restaurant menu!
I second this!!!
 
Oh my goodness ladies... you all are having a rough week... Hugs all around...:grouphug:

Now I feel bad whining about Mase and the chicken dilema yesterday... today went much better...

I do have a question for the Mom's of older than 10 Aspies... is everything in your house a "five alarm"? Any little mishap is a "five alarm" emergency here... and then panic sets in and there is no turning back.... we run in circles and cover our eyes and try to get as far away as possible...

Please send some advice my way... this is probably the most frustrating thing for me right now... the "flight response".... :sad2:
 
Ireland Nicole...I think your dd is my ds's twin. He is 10 also and we've managed to not lose any teeth yet to his lack of brushing. Its to the point now where I threaten to do it for him and he gets it done. Let's just say mom isn't very gentle when she has to do it for him! :lmao: I am the same way about him looking normal and people thinking its bad parenting. I hate that feeling. I was reading your post to my mom and she reminded me of the time she snapped at a NT idiot.

DS needs to be cocooned when he is stressing or when he is in a stressful environment. So one day we were at Busch Gardens and he was riding in the stroller and my youngest DS was on my hip in a carrier so I could push the stroller. DS was 4 at the time. My mom was following behind us in her scooter and she heard these two old biddies and the one said, "That's ridiculous that kid is too big to be in a stroller." My mom's response was, "Oh so you know all about autism do you?" :lmao: The women started sputtering and stammering and took off with a hastily mumbled "sorry".

I don't blame you for giving the libarian grief for her comments. That was just wrong on her part. I hope the rest of your day gets better. :hug: oh and have a drink I KNOW its 5 o'clock somewhere!

My J, my oldest, got upset about something stupid last night and started crying. I knew that it wasn't about cub scouts so I had to start playing 20 questions until I came up on the right answer. I asked him if he was worried about his SOL tests (end of year tests) that are this week. He said yes and burst into tears. :guilty: So we had to have a talk about the tests and how his routine will change for a few days and all the other things that go along with it. But after we got that out I understood why he had been under the playroom table all afternoon and why he was under the blanket while playing his DS. He was trying to deal with the stress. So I had to email the teachers and let them know that if he suddenly dives for cover in one of the cabinets or under his desk they'll know why! :lmao: Oh man I should have reminded them that if he starts barking at them he won't bite! His bark is worse than his bite!

The end of the school year is so rough for all kids and even worse for our spectrumy kids. We finally get them into a good routine and then we turn around and snatch it all out from under them! Good times!

Hugs to all,
Daisy
 

Oh my goodness ladies... you all are having a rough week... Hugs all around...:grouphug:

Now I feel bad whining about Mase and the chicken dilema yesterday... today went much better...

I do have a question for the Mom's of older than 10 Aspies... is everything in your house a "five alarm"? Any little mishap is a "five alarm" emergency here... and then panic sets in and there is no turning back.... we run in circles and cover our eyes and try to get as far away as possible...

Please send some advice my way... this is probably the most frustrating thing for me right now... the "flight response".... :sad2:

I know what you mean, I read some of the stories here and feel bad for complaining about my mild ASD kiddos!

Mine are over 10 years old and I can't say they have a "flight response" but they definately don't evaluate stress appropriately. When things don't go well they break instead of bending and compromising. I've had to talk them down from situations where I think "This is ridiculously unnecessary!"
 
Thanks ladies!! I am going to do my research on sibling support groups and books, he knows his brother is autistic and he will say it to anyone who asks why he isn't talking "Preston can't talk because he's aw-tist-tic" :rotfl: but I don't know if he has a full grasp on it because he asked if our dog Toto was autistic too and when I said no he asked "Then why can't he talk?", so I will work more on that
We don't have much time alone together, Preston gets home an hour after him and thats the most time we have alone, but in July P has ESY and Ty has no school so we'll have lots of mommy and first born baby time lol
oh he came in my room last night and slept, I was zonked out and had no idea but nobody ended up on the floor this time.. guess he learned :laughing:
LOL at the sibling at the support group who complained about the NT sibling than the ASD one

Kat77-- Preteens are scary.. :lmao:

Nicole thats ridiculous that the school librarian would have the nerve to try to lecture you about something they should've been watching better, and you're right all they had to say was thank you not start any drama or teach u library standards... ugh! I don't think its fair that your child is compared to NT children it doesn't matter how "normal" she appears, a doctor diagnosed her and people need to respect that..
 
Daisy&Max, I loved your mom's comment about the stroller! That's what is so hard about ASD...they LOOK so normal! Years ago my friend had cards printed up that she gave out to onlookers that said "Congratulations. You've just experienced autism." Then the card explained what autism was. This was a long time ago when most people hadn't even heard of it.
 
I know what you mean, I read some of the stories here and feel bad for complaining about my mild ASD kiddos!

Mine are over 10 years old and I can't say they have a "flight response" but they definately don't evaluate stress appropriately. When things don't go well they break instead of bending and compromising. I've had to talk them down from situations where I think "This is ridiculously unnecessary!"

Mase has two t-shirt that we had the word "Intense" printed on the front... that is the one word that describes every part of him... Intense happiness, intense anger, intense silliness, intense fear, intense joy, intense frustration... there is no in between and the last few days I have been exhausted by these extremes... I do think it is the end of the school year doing it... we will be done in a few days, thank goodness... :banana::cool1::banana:

I just would like to know how to help him not have those "ridiculously unnecessary" times... I do feel bad for him because to him those emotions are so real AND necessary... how do you "turn down the volume?" :confused:
 
I am the same way about him looking normal and people thinking its bad parenting. I hate that feeling. I was reading your post to my mom and she reminded me of the time she snapped at a NT idiot.

DS needs to be cocooned when he is stressing or when he is in a stressful environment. So one day we were at Busch Gardens and he was riding in the stroller and my youngest DS was on my hip in a carrier so I could push the stroller. DS was 4 at the time. My mom was following behind us in her scooter and she heard these two old biddies and the one said, "That's ridiculous that kid is too big to be in a stroller." My mom's response was, "Oh so you know all about autism do you?" :lmao: The women started sputtering and stammering and took off with a hastily mumbled "sorry".
So I had to email the teachers and let them know that if he suddenly dives for cover in one of the cabinets or under his desk they'll know why! :lmao: Oh man I should have reminded them that if he starts barking at them he won't bite! His bark is worse than his bite!

Hugs to all,
Daisy
Your mom sounds like a woman after my own heart! I've been known to react in similar ways...Once at the zoo, DS was in a full blown, all out, record breaking, Schmollish flag waving melt down. We were both down on the asphalt by a curb....not good at all! Two busybodies were seated at an outdoor table and completely turned their chairs around to get a better look at our plight. You wanna talk about steam comin' outta your ears! KFK was HOT! So just like a 4 year old child, I stared back.....I bulged my eyes at them and continued to stare until they were sooooo uncomfortable they could only blush and turn their chairs back around! Now I can take someone giving us a second look...I'd probably do the same if I saw such a ruckus taking place, but turning your chairs around so you can REALLY stare...Good grief! :sad2: KFK is not shy about giving it back when someone is THAT far out of line. ;)

His bark is worse than his bite......:lmao:

Daisy&Max, I loved your mom's comment about the stroller! That's what is so hard about ASD...they LOOK so normal! Years ago my friend had cards printed up that she gave out to onlookers that said "Congratulations. You've just experienced autism." Then the card explained what autism was. This was a long time ago when most people hadn't even heard of it.

I love the card idea. It would get the point across and raise awareness at the same time. Definitely a better approach than my four year old response at the zoo! :laughing: (but I still don't feel bad about it at all.) ;)
 
I've had the opposite problem. DS would be doing something in a public place like at a restaurant meal with my parents and their friends---I'm sure I'm not the only one who has had to leave a huge tip because of all the rice or noodles on the floor at the end of the meal---and DS would start pouring salt all over the table. I would be very firm in telling him no and my dad's friend would start telling me how I was too strict and you have to let kids be kids, blah, blah, blah. The fact is that this was a behavior DS could control. He would only do it when the meal was dragging and he was bored. From my perspective, DS had enough "distinctive" behaviors without being the kid making noise and pouring salt all over everything as well. I took my dad's friend aside, explained that my son has autism and that I try to make him blend as much as he is capable of and that I felt the salt pouring was something DS could control. We spoke for about a half hour and I explained the challenges of raising an ASD kid. I thought this guy finally got it.

Two months later, we went out to dinner with my family and this couple again at my parents' yacht club. DS started with the same behaviors, I scolded him and Dad's friend comments on how I'm always "too hard" on my kid. Now, I just refuse to eat dinner with that guy. I think his table manners are much worse than my boy's! And,yes, over time, I taught DS to behave properly---more or less--- at the table.

I have a friend who has an ASD daughter. Their plane was delayed for hours on their way to WDW. Predictably, their little girl had a meltdown. Some guy told my friend, "If that was my kid, I'd smack her." My friend said, "Really? Does your child have autism?" Stony silence. People need to think before they speak.
 
I've had the opposite problem. DS would be doing something in a public place like at a restaurant meal with my parents and their friends---I'm sure I'm not the only one who has had to leave a huge tip because of all the rice or noodles on the floor at the end of the meal---and DS would start pouring salt all over the table. I would be very firm in telling him no and my dad's friend would start telling me how I was too strict and you have to let kids be kids, blah, blah, blah. The fact is that this was a behavior DS could control. He would only do it when the meal was dragging and he was bored. From my perspective, DS had enough "distinctive" behaviors without being the kid making noise and pouring salt all over everything as well. I took my dad's friend aside, explained that my son has autism and that I try to make him blend as much as he is capable of and that I felt the salt pouring was something DS could control. We spoke for about a half hour and I explained the challenges of raising an ASD kid. I thought this guy finally got it.

Two months later, we went out to dinner with my family and this couple again at my parents' yacht club. DS started with the same behaviors, I scolded him and Dad's friend comments on how I'm always "too hard" on my kid. Now, I just refuse to eat dinner with that guy. I think his table manners are much worse than my boy's! And,yes, over time, I taught DS to behave properly---more or less--- at the table.

I have a friend who has an ASD daughter. Their plane was delayed for hours on their way to WDW. Predictably, their little girl had a meltdown. Some guy told my friend, "If that was my kid, I'd smack her." My friend said, "Really? Does your child have autism?" Stony silence. People need to think before they speak.

I NEARLY FLAMED WHEN I READ YOUR POST! SINCE THERE IS NO FLAMING ALLOWED IN SCHMOLLAND I RESTRAINED MYSELF!!!!

What a busy body! Did anyone in your family speak up in your defense? Sure, kids need to be kids, but bad behavior needs to be corrected at any age....THAT'S HOW THEY LEARN! Parenting 101. You did great in pulling that guy aside for a little pow wow. You're a better woman than I. After the second time, I probably would have told him to zip it and mind his own business! Never going to dinner w/him again goes w/out saying. Yes, his manners were much worse than your DS's and a little chit chat with dad regarding his friend might be in order.

I don't know what I'd do or say if someone said to me that my child should be "smacked". :confused3 I hope I never get the chance to find out. There could be bloodshed! :laughing: It's funny how people will back down when you don't let their rudeness go unchecked. :rolleyes:

BTW, congrats on your successfully teaching the proper table manners. We're still working on it, so if there are any lurkers out there....think twice before making a comment on someone else's parenting skills, you just never know what they're going through! ;) As I have often said, those judging me should get on their knees and thank God that their child is not on the spectrum! What wouldn't I give for my DS to be "typical"? After taking DS to Buddy Baseball and now Buddy Soccer, his autism is becoming much more obvious to me as I see him alongside other s/n kids. It's getting harder and harder to keep my chin up. I feel like crying right now in fact, but I won't because it will not change one thing.

On that note, I would just like to say to all my Schmolland friends....be encouraged! We have been entrusted with something very special. If God will not allow anymore to come upon us than we can bear....then we must all be pretty great! Love all you gals, and guys! :grouphug:
 
Yesterday in the Schmollish suburb of Vinlandia there was a furor.
The Chief Residents big brother Mr. S. had an appt. w/ a Dr. Since my DH was at work I had to take Chief Resident along with.
All was well until Mr. S had his turn to go and chat w the Dr.
Chief Resident asked Mr. S. if he could use Mr. S's DSi.
Well, Mr. S. makes most of the rules about his DSi (after all he saved his allowance for over 6 months to buy it himself) and said "no."
Cue tantrum! Chief Resident had a fit and a half. For a good 20 minutes he ranted and raved, screamed, pinched, stomped and whimpered piteously. Luckily the environment we were in (psych offices) were kinda used to that kind of thing. They let me carry my son into an unoccupied office to deal with Chief Resident in private.
Thing is, I'm not sure if this was a bad event or a good one. In the past Chief Resident's tantrum would usually go into meltdown mode and he'd just be crazy upset without rhyme or reason. This time he was on topic through the entire event... *shakes head* He's getting too big to handle easily. After it lulled I almost triggered another event because he asked me to pick him up and carry him. I said to him, "NO, sweetie..." He's 80 lbs now! I can't lug that around!!!! Luckily he accepted just sitting in my lap and cuddling for a bit. He always needs a little cuddle when the storm ends.
 
I do have a question for the Mom's of older than 10 Aspies... is everything in your house a "five alarm"? Any little mishap is a "five alarm" emergency here... and then panic sets in and there is no turning back.... we run in circles and cover our eyes and try to get as far away as possible...

Please send some advice my way... this is probably the most frustrating thing for me right now... the "flight response".... :sad2:

It does get better! A lot of things used to be "five alarm" around here, but now that DS is 17 he has calmed down quite a bit, and has learned to deal with a lot of things that he couldn't handle before.

Rain is a good example. It's a natural occurrence, that used to send him into a howling, flapping, screeching, cowering mess. Over the years he has learned to deal with raindrops touching him, and now he just complains about it. But no more meltdowns over rain - thank God! The meltdowns started to get milder when was 14, and it's now a lot better. :) He also stopped trying to run away from it, and has learned not to take off when panic sets in.

I used containment, having him try to focus on me when going into meltdown mode, sometimes rubbing his shoulders, things like that. Even distraction worked to a certain degree. Repetition was key to getting him calmed down for us. Sometimes that's all I would do all day - a lot of calming down.

I hope this helps. :)
 
Toodycat...I have had people, including family, tell me that I'm too strict or that I'm not letting them be kids for years. I get so blasted sick and tired of it and they don't seem to "get" that my kid has to function in the real NT world. The things they do are not acceptable in this society and it is my job to make sure they know how to handle it. I've explained to these people about the autism but they don't seem to really understand what I'm up against or what my kids are up against. Oh and KFK I want to cry all the time about this kind of stuff. I try to tell myself that I got these kids for a reason but sometimes I truly wonder if I'm the right person for them.

Brightsy...:hug: I'm sorry you had the meltdown yesterday. I think they are so much worse in public. I hate them at home, but I REALLY hate them in public. I don't know how to not be embarassed when they act like that.

KFK...my mom is good about saying things to people who are rude. She lacks her filter when it comes to people like that. She has no problem telling someone off if they need it. I just get embarassed and run the other direction.

Well, since we are discussing meltdowns I'll tell you about the war in our little part of Schmolland. My two goons got into a fight on the school bus yesterday afternoon with each other. Although, it was encouraged by a NT boy on the bus who is just a little butthead, but it still wasn't acceptable. My youngest, with said encouragement, bit the oldest two times on the arm and brought blood to the surface. The elder, not to be outdone, grabbed his little bro and bit the top of his head and left a mark. I guess height was an advantage for the oldest. Their consequences for this included no scouts and no outside with their friends. Well, DS10 had already lost his ds privledges that morning because he was playing with it instead of eating breakfast.

He is already stressed about today's testing and he just blew up last night. He was mad about his consequences for the fighting and then when I reminded him he couldn't play with his DS he went through the roof. He was screaming that I hate him and I don't love him and that he hates me...blah blah blah. You know the drill. So I stayed super duper calm and sent him to his room since he wouldn't listen to reason. He came out after 3 minutes and started again. So i sent him back again. He came back out and said since I hated him he was running away. He opened the door and went outside. I told him to shut the door behind himself. He had no shoes on and I know how he is about his feet and the concrete or pavement would keep him in the yard so I wasn't concerned that he'd actually do it.

After 10minutes of him wandering around the front yard I called him in the house and he refused. Again with the i hate him/he hates me thing. So I calmly told him I would call the police if he refused to come in. This lasted about 5 minutes with me holding my cell waiting to hit the send button if need be. I had no qualms with calling the police because I can't fight him. Finally he came and kept it up. I stayed calme for the over an hour this kept up but I finally lost it and started screaming back at him that if he wanted to leave he could go, I'd find a new house for him, and he could go. I literally had him backed into a corner while I ranted...about 45 seconds worth of rant. And then I turned around and stomped off (my own KFK version of the 4 year old). He crawled under a table and hid for about 15 minutes and then came out of it he sweetest, most loving child you have ever seen. I felt bad for yelling but I had had enough of that and couldn't take another minute of it.

Geez that's a friggin novella there! Sorry about that. If you didn't read it all, it can be summed up this way...Schomalland was hell last night until mom got ugly. :rotfl:

I'll be back later, I have a question to ask of you other Schmollanders.

Daisy
 
My 10+ aspie (14) is pretty calm most of the time, but if something does set him off, the results can be exciting (and usually completely irrational). After our strange pizza parlor meltdown of several weeks ago, we actually requested to visit the same pizza parlor last night and were good as gold.

I don't get a lot of 'bad parent' looks and comments (at least not anymore), but we have been asked if he's autistic with a fair amount of frequency. I always give polite answers to any civil enquiry. Many people who don't ask will clearly recognize that there's something not quite usual going on. It bothers me sometimes, especially as he's so capable, but most of these people clearly mean to be kind, and while he does not need a kids cup, and will probably not order off the children's menu, he would love one of those balloons, and some crayons would be nice too.

As I posted before, there's a suspicion that he has a chomosomal overgrowth syndrome (Soto's) and there is something subtly "off" about his face, which paired with the low tone and the substantial size of the crayon-wielding, sandcastle building individual adds up for most people. I suspect that the first thought that enters their heads is not that he's got a 4.0 and reads at a 12th grade level though.
 
You know, Daisy&Max, it doesn't say it in the parenting books but I think every child needs to see mom go completely psycho at least once!:lmao:

I'm sorry you had a rough night!:hug:

Kampfirekim, I feel on the verge of tears when I'm around NT kids, too. I try not to compare but it's so easy to do. Sometimes I just can't take it and retreat into my little cave and not go to all the functions that I used to. That's not a healthy way to handle it so I'm glad you're staying involved! :hug: to you too!

Hang in there today my Schomolland neighbors and dear friends! We can do this!!!
 
I NEARLY FLAMED WHEN I READ YOUR POST! SINCE THERE IS NO FLAMING ALLOWED IN SCHMOLLAND I RESTRAINED MYSELF!!!!
I think many here can appriciate the differnce between DEFENDING SCHMOLLAND and flaming. ;) Don't mess with our little Schmutch (or parenting of them)!

On that note, I would just like to say to all my Schmolland friends....be encouraged! We have been entrusted with something very special. If God will not allow anymore to come upon us than we can bear....then we must all be pretty great! Love all you gals, and guys! :grouphug:
:thumbsup2 Ofcourse, I often say this little prayer to Him:
:littleangel: Heavenly Father, PLEASE don't trust me so much. Help me through today and forgive me for my ungrateful thoughts. Amen! :littleangel:
 
:thumbsup2 Ofcourse, I often say this little prayer to Him:
:littleangel: Heavenly Father, PLEASE don't trust me so much. Help me through today and forgive me for my ungrateful thoughts. Amen! :littleangel:[/QUOTE]

Kat77, that's a great little prayer! Thanks for sharing:)
 
:grouphug: Oh Daisy, :grouphug:
Your guy needs one of those Intense shirts MommatoMase mentioned. You are definately the right Mama, don't beat yourself up!
One of my best friends has two boys on the spectrum with one whom must sunbathe underneath the "intense" beam. He's a challenge on a cloudy day, I do not know how she holds it together. I would flip out several times daily :scared1: if this were the norm for us (which proves to me, we truly are not given more than we can handle....most days!).

I have a great intolerance for those little N/T snots who encourage bad things between kids, especially btwn those with SN. I'm crazy enough that I purposly position myself near them on class trips just to correct their nastiness for the day. They usually keep clear of my kids afterwards. Unfortunately this only works until about 5th grade... after that, it's just creepy for Mama to fight battles and the kids will recognise it as such.
:hug:,
Kathie
 
:grouphug: Oh Daisy, :grouphug:
Your guy needs one of those Intense shirts MommatoMase mentioned. You are definately the right Mama, don't beat yourself up!
One of my best friends has two boys on the spectrum with one whom must sunbathe underneath the "intense" beam. He's a challenge on a cloudy day, I do not know how she holds it together. I would flip out several times daily :scared1: if this were the norm for us (which proves to me, we truly are not given more than we can handle....most days!).

I have a great intolerance for those little N/T snots who encourage bad things between kids, especially btwn those with SN. I'm crazy enough that I purposly position myself near them on class trips just to correct their nastiness for the day. They usually keep clear of my kids afterwards. Unfortunately this only works until about 5th grade... after that, it's just creepy for Mama to fight battles and the kids will recognise it as such.
:hug:,
Kathie

Thanks Kat77...at least his intense days are fewer and farther between. Yesterday was the worst one in probably 4 or 5 months. Normally they only last 15 or 20 minutes. As for the right mom...I don't know, yesterday it was unusal for me to keep my cool for that long. I swear teaching special need middle schoolers sucks all the life out of me and so by the time i get home I don't have what I need for my guys. I try but it is hard. I tried really hard this morning to make sure we didn't have any conflicts since he has state testing today and I want him to do well. So that took some patience. His teeth shouldn't rot today! LOL

I agree about the NTs causing trouble, its like they see an opportunity to cause hate and discontent so they take it but leave themself free of consequence. I'm thinking that if this kid ever tries to come to my house to play with my kids he'll be told what I think of his behavior.

Daisy
 













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