Emma's Make A Wish Trip....June 15-21,2009

Cake is good the next day too....Yah I am eating a real healthy breakfast..
Em had left over Pizza...guess we are practicing for next week...I can't wait....it is great because we are in Orlando by 11...so we should be able to do something on Monday too...maybe just hand out at the pool and eat ice cream...
 
I love the pictures from the party! I can't believe your trip will be here so soon!

I do have an off topic question for you. I noticed she was wearing her braces with her crocs. Does the doctor let you do this? We see Tyler's orthopedic doctor in two weeks and we think he is going to have to go to full time braces rather than just at night. He lives in his crocs and doesn't like his tennis shoes so if this were an option it would be great!
 
Great pictures from a great party! Congrats!!!

Any cake left? I love me some cake!

I know you didn't ask me but....My daughter is in her AFOs full time and she does wear Crocs a lot. Her PT (and ortho for that matter) says if she didn't have her braces on then the Crocs would be a no no. However the braces are giving all the support so the Crocs are fine. Hopefully your doc feels the same!
 

She just wears the crocs around the house as slippers, she has a leg length difference though so if she wears them to much her back starts to hurts..

There is some cake left it is so good...I ate part of the tree/Volcano today for breakfast....love that chocolate...
 
Can you send a piece of the cake to Kentucky? I'm sure it'll make it here in good shape. :laughing:

can you tell it's been awhile since I've had birthday cake? :)
 
We leave tomorrow..and are all very excited....her is a picture of Emma from the wedding this weekend! She did SUCH a good job....and we all had a great time...

Wedding031.jpg
 
She is BEAUTIFUL!!!! I hope you all have a wonderful time! Let Mickey know we will be there soon! :lmao: I can't wait to swap trip reports!

Mary Anne
 
Oh she looks beautiful in her dress. I hope you have a wonderful trip. Enjoy and take great notes and report back. We are still waiting patiently (well you know)for our dates. MAW told us at the end of May we should have our dates in a few weeks so we are still waiting. After reading everyones stories it sure makes me even more excited for those dates.

Take Care and Enjoy!!!
 
OK, so I know that while I am writting this that you are already on your way, but I wanted to tell you this anyway. I hope you have a great trip and can't wait to real your TR and the tons of pictures (those are always my favorite part) when you get back.popcorn::
 
Hope you're all having a blast on your trip! Emma looks so beautiful in the wedding photo. :lovestruc
 
I'm so gonna have to read your TR, I have NF1 as well. I'm the most affected of anyone in my family and now they think that I have MS and that there's some sort of link between NF and MS. Bleh. Reading your TR will give me some hope, I know it!
 
Sorry that you may have MS also, my Great Grandma had MS but we think my mom was a mutation of the NF...I have it and then Miss Emma has it worse then any of the rest of us. We have a strong family history of auto-immune disorders so I have been curious about connections between the two. Enjoy the report we had a great time.
 












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