Dis Breast Cancer Survivors Part IV - GAGWTA

Mrs. Incredible - sorry things are rough for you. Linda and Thistle Mae gave you some great advice. These ladies are the best. I try to distract myself too. Mostly reading and I find that helps my brain focus too

kittylady - thinking of you and and prayers for your mil

Well guess who we got a nice e mail from. None other than Dr. P the surgeon. I am really impressed with this guys follow up. He said he likes how my neck looks and he will see us on the 24th.

Yest at church people were saying that I looked good. Hmm, I must have been looking pretty bad before and no one wanted to say anything lol.

This is actually the first time I am actually feeling more like me since the surgery, so its taken over a month so we shall see.

I was thinking of an oct. trip to food and wine but now dh says he has to go to South Korea for a week and that is not counting the travel days back and forth and all the prep days he will need ahead of time, sigh. I have a feeling I will be kissing that trip goodbye so I will see. He said he will accommodate me and make it work some how lol .After all of this I need a vacation sometime.

GAGWTA
I had to laugh when you said people said you looked good, and how bad you must have looked before! You have a great attitude, and your husband sounds precious. Make going to Disney a priority...it definitely will take your mind off things, and you can plan like crazy...be obsessed...it helps...lol!
 
Hello, ladies! Sorry I've been AWOL. I've just had a lot going on. The good news is that my endoscopy showed a hiatal hernia. I'll take it! The doctor put me on 40 mg Nexium a day. it is helping. Oncologist appointment went well. All in all, life is good.

You are all in my thoughts and prayers!
Thank god for hiatal hernia's! Who knew...LOL!
 
Wow I hadn't realized how long it's been since I checked in here...sorry ladies.

LMP: Hang in there!
Thistle: Hoping for good results for you!
Mrs. I: Sorry about the hair struggles...ugh! I know what you mean about spending the money and thinking it could have been for nothing. :(

************************

Thanks to all of you for the good thoughts for our family. Last week was a tough one...as was the week prior. My MIL finally lost her battle with kidney cancer on the morning of July 4th and as sad as that was, we take solace knowing her struggles are over. I lost an uncle who also had a long term illness just two days later. So last week was: Mon: MIL Viewings/Visitation for MIL, Tues: MIL Funeral with repast at our house, Wed: Unwind, Thur: Funeral for my uncle and back to work on Friday.

Yesterday was chemo #2 of 4 for me and I'm beginning my hair shed/loss process now so it remains to be seen if the cold cap will be successful. Definitely have much thinner hair. Managing with bandanas and cloth headbands for now. Today will be neulasta and we'll go from there. Only 2 more of these sessions to go...and then the fun of radiation will begin next.

Thinking of all you waiting on results, happy for those who have had positive news. The waiting is so much worse than the news itself sometimes. :(
 
kittylady - :hug::hug: so sorry for your losses.
Sending you my deepest sympathy, prayers and thoughts.
 

Well I might of spoke too soon about feeling better because today I noticed my neck starting to get red again above one part of the scar line.

Dh came home for lunch and I asked him to look at it and he said he noticed it too. sigh. I am glad we are going to the surgeon on Monday and will take a picture if its something mild so he can see it if it sticks around. They say a picture is worth a thousand words!

Now dh has informed me he has to do a bunch of travel. The trip to South Korea but that is not till Oct. but now he has to go to the west coast and then he is doing a combined trip to France and Milan, Italy, gosh. Somewhere in between all this I have 3 tests and 2 more dr. visits. If we pull off a food and wine trip I think it will be a miracle lol.

GAGWTA. Have a great week end everyone.
 
Well we never did get to the surgeon on Monday. It was a terrible rain storm and we just started out and made it 4 exits and then we had tire trouble. Tow truck, ds2 picking me up, and dh waiting at the tire place for a while and then ds1 got him later etc. What a mess, I called and cancelled and rebooked and they told me he is on vacation for the next 3 weeks so I dont go back to the surgeon until Aug. 21.

Now August will be really busy because the endo wants to see me on the 30th because she said she likes to see all the patients 2 months post op. So now for her I have to get blood work, sonogram for a new baseline and then a DEXA scan too.

Add into that that dh has to go to Milan, Italy, and then France and then to his usual Calif and Washing. state. also prepping stuff to go to South Korea in Oct.

Somehow we hopefully can get a vacation in there sometime too.

GAGWTA. Have a great week end everyone. Hope everyone is doing well.Thinking of you all.
 
Dear Maryanne!! I am so sorry I have been gone so long and missed your ordeal and sending prayers for you! I am sending them double time now! Life has been very hectic for us! We had our dear sons daughters staying with us for a whole month, and our oldest daughter and her 3 little ones moved back in with us full time at the end of April. we are helping her with her return to school in sept to become a care aid in yhe hospital. Its a first step in her working her way into nursing, and we know she can do it as long as she does not go back to her partner who is mentally abusive and manipulative. I am happy to say she has returned to God again and the difference in her is amazing! She looks so happy now, it is such a relief! It is after midnight so need to stop for now but will come back soon now that life is more stable! GAGWTA!
 
Well we never did get to the surgeon on Monday. It was a terrible rain storm and we just started out and made it 4 exits and then we had tire trouble. Tow truck, ds2 picking me up, and dh waiting at the tire place for a while and then ds1 got him later etc. What a mess, I called and cancelled and rebooked and they told me he is on vacation for the next 3 weeks so I dont go back to the surgeon until Aug. 21.

Now August will be really busy because the endo wants to see me on the 30th because she said she likes to see all the patients 2 months post op. So now for her I have to get blood work, sonogram for a new baseline and then a DEXA scan too.

Add into that that dh has to go to Milan, Italy, and then France and then to his usual Calif and Washing. state. also prepping stuff to go to South Korea in Oct.

Somehow we hopefully can get a vacation in there sometime too.

GAGWTA. Have a great week end everyone. Hope everyone is doing well.Thinking of you all.
Well, you're definitely not bored! When are you going to Disney?
 
Dear Maryanne!! I am so sorry I have been gone so long and missed your ordeal and sending prayers for you! I am sending them double time now! Life has been very hectic for us! We had our dear sons daughters staying with us for a whole month, and our oldest daughter and her 3 little ones moved back in with us full time at the end of April. we are helping her with her return to school in sept to become a care aid in yhe hospital. Its a first step in her working her way into nursing, and we know she can do it as long as she does not go back to her partner who is mentally abusive and manipulative. I am happy to say she has returned to God again and the difference in her is amazing! She looks so happy now, it is such a relief! It is after midnight so need to stop for now but will come back soon now that life is more stable! GAGWTA!
You do have a lot on your plate, but it sounds like things ate on the upswing.
 
LMP, thinking of you. Thistlemae, thinking of you too. Let us know what you learn. We always like good news, too.

Anyone heard from Janet/Smileyface?
Hi there! life got crazy...er... lol! sometimes I am pretty sure, grown children are a lot harder than toddlers!!! I owe you an email :(
 
I'm doing the Dignicap. I am 5 days past my second dose of Taxotere/Cytoxan. I have hair but probably down to about 30%. I had very thick hair to begin wit. I am hoping it stops sooon otherwise the cost and the pain and discomfort will be for nothing :(
I am another survivor who went old school and lost all my very long hair! and eyebrows and lashes! lol, It was a bit traumatic when it first happened, but I found it very liberating, and comfortable, and mine also grew back in, at first pure white and curly, and then slowly back to the way it was. in fact it started growing back before I was even finished the 2nd type of chemo I was on :) I am saying a prayer for your recovery.
 
I'm having the worst time. :( I am five week past my last chemo and my hair is still coming out in clumps. I spent $1800 to cold cap and endured hours of discomfort and cold and while I still have hair it's still depressing. I have a huge bald spot that goes from ear to ear over the top of my head and only a small bit of hair left by my forehead to "comb back" to try and hide the bald. I have nothing left on the sides so I look like Christopher Lloyd except with some hair by my forehead. The hair I do have left though in the back is still shedding every time I comb. In clumps not even just random hairs. I know I should be happy I have hair but I put so much hope into cold capping that I am disappointed.

On top of that I just can't seem to bounce back from chemo plus I started rads already, 8 down, 27 left to go :( I am tired, I have neuropathy(sp) in my toes and my muscles HURT. Every day my arms and legs feel like I was exercising the day before even if all I did was relax. I can barely walk with the aches, the toes and the complete lack of energy and the tired some get from rads isn't even supposed to hit yet, the Oncologist said after next week i should start to see some symptoms. Great - this is going to get worse? I feel better than the first week right after Chemo but I thought I'd bounce back a bit better than this.

I'm just done in mentally because of this. There is not even a single day where I have felt close to the old me. The past 5 months has done so much damage that I wonder if I will ever feel like I did again. Sorry to be so negative but nobody else gets this. They placate and try and spin it positively but there's nothing positive about having cancer.
I do know exactly how you are feeling. I think they don't tell you how bad it can be or it might scare you away. There were many times all I could do was take pain medication and cry and wonder how I was going to get through it all. I also suffered with leg pain so badly! it took a good couple of years for it to really to away, and even now when I sit for too long, it is painful to get moving again. But I am here! and generally doing pretty darn good, and one day so will you be! :) We left for Disneyland 3 days after my last chemo treatment, and while I could not do as much as I wanted to, it was a soul soothing trip, and really helped my mentally. When I got back it was to discover my cancer had come back and I was rushed into a 2nd surgery, they felt it was because the first surgeon left too narrow of a margin. then about 3-4 weeks after that surgery I did radiation. That's when I really noticed the pain in my legs, and being so tired. But again, only about 3 weeks after I was done that, we flew down to Disneyland with our 5 and 7 year old grand daughters! again, couldn't do as much as before but we still had an awesome time and made memories we talk about now, 6 years later when they are 11 and 13! Hang in there! And crying is good for you! chemicals from being sad are released in our tears, and it helps!
 
Hello, ladies! Sorry I've been AWOL. I've just had a lot going on. The good news is that my endoscopy showed a hiatal hernia. I'll take it! The doctor put me on 40 mg Nexium a day. it is helping. Oncologist appointment went well. All in all, life is good.

You are all in my thoughts and prayers!
That is good news! I have one of those too! along with a condition called achalasia. I deal with symptoms rather that have surgery because I have had 2 major and 8 minor procedures done through the years and just do not want to have any more surgery! lol
 
Wow I hadn't realized how long it's been since I checked in here...sorry ladies.

LMP: Hang in there!
Thistle: Hoping for good results for you!
Mrs. I: Sorry about the hair struggles...ugh! I know what you mean about spending the money and thinking it could have been for nothing. :(

************************

Thanks to all of you for the good thoughts for our family. Last week was a tough one...as was the week prior. My MIL finally lost her battle with kidney cancer on the morning of July 4th and as sad as that was, we take solace knowing her struggles are over. I lost an uncle who also had a long term illness just two days later. So last week was: Mon: MIL Viewings/Visitation for MIL, Tues: MIL Funeral with repast at our house, Wed: Unwind, Thur: Funeral for my uncle and back to work on Friday.

Yesterday was chemo #2 of 4 for me and I'm beginning my hair shed/loss process now so it remains to be seen if the cold cap will be successful. Definitely have much thinner hair. Managing with bandanas and cloth headbands for now. Today will be neulasta and we'll go from there. Only 2 more of these sessions to go...and then the fun of radiation will begin next.

Thinking of all you waiting on results, happy for those who have had positive news. The waiting is so much worse than the news itself sometimes. :(
I am sorry you are going through such loss during this hard time. Our dear son, the father of our 4 beautiful grand daughters, was killed in a workplace accident just 3 weeks after my first breast cancer surgery and a week before I was supposed to start chemo. my husband who worked for the same company was the first aid attendent, and even though he was injured as well, tried to perform cpr on our son. 2011 was the very worst year of my life and there were plenty of times during chemo I was so sick I was sure I was going to die, and part of me wanted to :( but I knew I had to fight to be here to help our 2 daughters and our sons dear daughters through the next several years living without him. My husband is on a life time pension now, and we have had a lot to adjust to. Because of our sons death right then, we knew life is never garunteed! and I made my bucket list and we proceeded to get through it! The only thing we have not done is make a trip to England. I don't think I can cope with the very long plane flight, just flying to Hawaii nearly did me in! I got so sick and my lymphadema in my arm and side really kicked up! We will see, maybe one day I will get brave enough!
 
You do have a lot on your plate, but it sounds like things ate on the upswing.
Life is like a roller coaster, when it's going up you know there will be a drop sometime! but when you are plummeting you know it won't last forever! I pray I have used up all my really bad things happening quota for my lifetime now, but you never know! so I try to enjoy something every day, even if it's only a good cup of coffee in the morning! lol! oh and yay for the good news!!! :)
 
smiley - so glad to see you post and you are such a good mom to help out your dd. I am sure your grandkids bring you alot of joy too even though I am sure you and your dh have your hands full with them, but its such a blessing for sure.

Well in another chapter of my will this summer ever end because its just been such a doozy...
I now have an upper respiratory infection. I think ds3 got this from the hosp as he was sick for a while too. I went to the pcp and she feels its viral and does not want to give me any antibiotics and she said to call her tues or wed if it is not better or gets worse and then she will give me antibiotics sigh.

So in the meantime I am just taking some coricidin hbp, vicks, halls and hot tea and chicken soup at times. The worst is my voice when I wake up is barely there, She heard that its very raspy at times and it feels like my trachea is so tight in the morning. She feels that is because of the surgery and the cold virus settling there???

I just want to feel better. I still need to do all these tests this month so I better get better soon

Ds3 said 40 nurses quit in the emergency room, omg!! He helped out the other day. They all have to rotate to help at times.

Hope everyone is doing well. GAGWTA
 
I am sorry you are going through such loss during this hard time. Our dear son, the father of our 4 beautiful grand daughters, was killed in a workplace accident just 3 weeks after my first breast cancer surgery and a week before I was supposed to start chemo. my husband who worked for the same company was the first aid attendent, and even though he was injured as well, tried to perform cpr on our son. 2011 was the very worst year of my life and there were plenty of times during chemo I was so sick I was sure I was going to die, and part of me wanted to :( but I knew I had to fight to be here to help our 2 daughters and our sons dear daughters through the next several years living without him. My husband is on a life time pension now, and we have had a lot to adjust to. Because of our sons death right then, we knew life is never garunteed! and I made my bucket list and we proceeded to get through it! The only thing we have not done is make a trip to England. I don't think I can cope with the very long plane flight, just flying to Hawaii nearly did me in! I got so sick and my lymphadema in my arm and side really kicked up! We will see, maybe one day I will get brave enough!

OMG I'm so sorry to read about your son. That's heartbreaking. Plus your husband as well. I hope one day you get your trip to England too! Glad you are around to help your daughters and granddaughters as well.
 
smiley - so glad to see you post and you are such a good mom to help out your dd. I am sure your grandkids bring you alot of joy too even though I am sure you and your dh have your hands full with them, but its such a blessing for sure.

Well in another chapter of my will this summer ever end because its just been such a doozy...
I now have an upper respiratory infection. I think ds3 got this from the hosp as he was sick for a while too. I went to the pcp and she feels its viral and does not want to give me any antibiotics and she said to call her tues or wed if it is not better or gets worse and then she will give me antibiotics sigh.

So in the meantime I am just taking some coricidin hbp, vicks, halls and hot tea and chicken soup at times. The worst is my voice when I wake up is barely there, She heard that its very raspy at times and it feels like my trachea is so tight in the morning. She feels that is because of the surgery and the cold virus settling there???

I just want to feel better. I still need to do all these tests this month so I better get better soon

Ds3 said 40 nurses quit in the emergency room, omg!! He helped out the other day. They all have to rotate to help at times.

Hope everyone is doing well. GAGWTA


Oh my goodness...an infection, just what you needed. Hope you are feeling well again soon!
 
I hope you feel better soon, lmp. Take care of yourself! :flower3:

Things must've been pretty horrid for 40 nurses to just up and quit! :faint:
 












Receive up to $1,000 in Onboard Credit and a Gift Basket!
That’s right — when you book your Disney Cruise with Dreams Unlimited Travel, you’ll receive incredible shipboard credits to spend during your vacation!
CLICK HERE






DIS Facebook DIS youtube DIS Instagram DIS Pinterest DIS Tiktok DIS Twitter DIS Bluesky

Back
Top Bottom