ThistleMae - so sorry you are dealing with the health issues again. I hope the dr. comes up with a good testing plan so you can get the answers you need and get to the bottom of this once and for all. I am sure it is worrisome and frustrating to you. Wishing you all the best. Its goof you have the reunion trip to look forward to.
kittylady -
for the last chemo! I will have to read your trip report. Wishing you all the best with the rads and it sounds like you will be having another great trip in the near future! Disney is a great happy place for sure!!
Laurie - a trip to NYC in the fall sounds fun. At least the weather will be cooler. Hoping Irma stays far away from you for sure!
Well I had my endo visit. It went pretty well.
My sono was clear so that will be the new baseline. My dexa scan showed bone growth in my one hip so that was really good but when I had that test I had to turn and felt a pop in my rib area. I was so miserable and in pain. I even took 2 leftover pain pills I had from my surgery. She ordered rib xrays and they were normal. I still have a soreness in my whole L chest area. I am already going to my pcp as a regular visit sept. 11, so I will ask her opinion. My one blood test was not good so that will possibly require a med adjustment and I have to have another blood test in a month. She also didnt like what the pathology report said. It was pretty vague and contained the mm versus cm mistake. So she said this is not right since its your permanent record so she is calling the pathologist in NYC this week and will get back to me. There was/is also the issue with them not stating about the rare and aggressive variant I have so we shall see.
We talked about testing and she said 6 months sonos and yearly pet scans. I asked her about the radiation of pet scans since I already had such a high dose of rai radiation the first time. Even the new rad. onc. I had say wow, that was alot of radiation. I am just trying to lower my risk of a secondary cancer which they said we are to leukemia or more at a risk sigh.
One thing that blew me away was that she said before you went to surgery I called my colleague at MD Anderson about you. I wanted to make sure I did all I could do for you before I sent you off to surgery. Wow, I couldnt believe she did that for me and that is of course the top thy ca hosp. in the us.
Talked to dh in France and Italy. Ds3 and I are talking about going to food and wine soon, we shall see. Ds1 will probably have his hip replacement surgery at HSS in NYC on sept. 27 hopefully.
GAGWTA. Thinking of you all.
