Dis Breast Cancer Survivors Part III - GAGWTA!

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Also here is a question. The one mom who I saw in the hosp. the lst time after I found out how bad the cancer was etc. and we hugged and cried, just had a lumpectomy and now I see she is having radiation versus chemo. What would that mean ? .

Well, I would think that that is a good thing. If she isn't having chemo, I would guess it is because her cancer had not spread to the lymph nodes, which would be great news. The radiation is used to kill any remaining cells that might still be local near her lumpetctomy. After having had both, I will say that radiation was a breeze compared to chemo.....still an awful thing to go through, but not nearly as devastating.

How did your DH's doctor's appt go today?



Now I gotta go find that puppy scratching thread. Is it on the CB?

How 'bout pictures of the puppy. I remember how cute he is from earlier ones you posted.

Yeah, that thread is is on the CB, but it has gone from bad to worse. :rolleyes:

I'll have to get some pictures up on photobucket.....got lots of them stuck in my camera just waiting to get out! :laughing:

I'm off to the grocery store....need to stock up on all kinds of things. Seems weird how we always manage to run out of the odd stuff (like salt and baking soda) all at the same time!

I hope you all have a great day! GAGWTA!! :goodvibes
 
That is so great, Cheryl. :goodvibes It is amazing how much joy a pet can bring into our lives. I cannot imagine not having a dog. My dogs have always been a huge part of who I am. It's funny, I'm not a tattoo person and have never wanted one, ever, but I told my DH last week I decided that if I ever got one, it would be of a German Shepherd, and I would probably put it over my heart. I've had six of them and I still miss the five who are gone. My current girl is by my side every second that I am home, unless she's out with DH or the kids. My little buddy. :love2:

Yeah, my guy is sleeping on my lap as we speak! :lmao:
 
here is a question. The one mom who I saw in the hosp. the lst time after I found out how bad the cancer was etc. and we hugged and cried, just had a lumpectomy and now I see she is having radiation versus chemo. What would that mean ?

Well, I would think that that is a good thing. If she isn't having chemo, I would guess it is because her cancer had not spread to the lymph nodes, which would be great news. The radiation is used to kill any remaining cells that might still be local near her lumpetctomy. After having had both, I will say that radiation was a breeze compared to chemo.....still an awful thing to go through, but not nearly as devastating.
In addition to Cheryl's response, I'll add that usually it means that the cancer is either a) non-invasive, or b) small and invasive, hormone receptor positive, and not yet spread to the lymph nodes (that they're aware of). In the past, if the cancer was invasive, bam, you got chemo. Now, even if it's invasive, they're trying to determine which cancers can safely be treated with surgery and radiation alone, since chemotherapy is not without risk, and they alway have to do a benefit/risk analysis with every case. But it's kind of an educated guessing game. (Here in Boston at MGH they've started taking this concept one step further and actually study the genes of the cancer to see not only what it's made up of, but what chemo it will respond to (or not), etc. It's expensive and if insurance won't cover it, people have to pay out of pocket.)

Chemo is designed to kill any invasive cells that left the original site and traveled distally to other organs where they can grow later on, a process called metastasis. Mets is what people with cancer die from. So I think it would be a tough decision, if you do have invasive cancer, to decide to forego the chemo based on thinking your cancer probably hasn't metastasized and you'll be fine without it. I think my inclination would be to take it as insurance anyway (which is what the treatment would have been just 4 or 5 years ago), but I can't say with absolute certainty as I've not been in that situation and there certainly are risks, for instance to the heart, when you do get chemo. (And being a nurse probably makes you more cautious as you see things that most people don't normall see on a routine basis.)

I would not have been a candidate for not having chemo anyway as my cancer was hormone receptor negative (a different animal than most BCs) and I was node positive, which bought me four extra doses of chemo in addition to the standard four. I also had radiation (and can feel its effects on me today).

Good news for people with non-invasive cancer is that there is almost a 100% cure rate with surgery and radiation alone. For invasive cancers, the waters get a little murkier, though survival rates certainly have improved over the past decade, fortunately for us.

I don't think I mentioned that one of my closest care givers was recently diagnosed with BC herself. Ironic, as she was the person from my medical team who sent me cards and called me when I was in treatment. Funny how life is. (I wonder if this was somehow a Godwink?)
 
Thanks for all the good advice everyone. Tomorrow is the big day for my mom. I just wish I could stop crying today.... Patrick Swayze's death has really bothered me. I was just hoping that someone could actually beat the odds...

Anyway, if you can spare a prayer of two tomorrow please do. My mom's name is Susan.

Thanks!
 

Good afternoon ladies

TruBlu - Prayers for your mom tomm. and that she would have a successful surgery

Linda and Cheryl - Thanks for the info

I am sure I will post later. I am STILL waiting for the dr. to call. The girl said he has to come to the hosp. and look at my ct scan and then call me back. Um, I didint want to argue with her either but even dh said we both saw him look at someones ct scan on the computer.They can just pull it up on the screen etc. I hope he calls back today, maybe after he is done with the normal patients like after 5 etc. I am getting a little anxious for sure. Dh and I went for his dr. visit. We actually could have went into Dr. M. office around the corner to see etc. but dh was pressed for time. He did so so. They are going to do an echo on him. Ds21 took the tv in. They said it should be fixed in a few days, Alice he drove all the way to farmingdale. They could have sent someone to the house but I said no as I freak out with repair guys etc. So hopefully tv time will be back to normal in a few days. Sanity will return for the ds.

GTAGWTA. Blessings to you all.
 
I would not have been a candidate for not having chemo anyway as my cancer was hormone receptor negative (a different animal than most BCs) and I was node positive, which bought me four extra doses of chemo in addition to the standard four. I also had radiation (and can feel its effects on me today).

Wow, Linda, that, as always, was such a great explaination! I love the way you always give us lots of details in easy to understand language......must be the nurse in you! :thumbsup2 So, about that part I bolded - if you don't mind - can you explain what effects you mean? I've been blaming some strange sensations on the surgery, but now I'm wondering if maybe I should be blaming the radiation.
 
Thanks for the information Snappy! I am seeing Dr. Spiegel in Houston. I live there so I do not have to travel. Hubby is staying home with me the first week and then I have other family near by. I am hoping to be back at work (at least part time) after 4 weeks. Keep your fingers crossed.
 
Thanks for all the good advice everyone. Tomorrow is the big day for my mom. I just wish I could stop crying today.... Patrick Swayze's death has really bothered me. I was just hoping that someone could actually beat the odds...

Anyway, if you can spare a prayer of two tomorrow please do. My mom's name is Susan.

Thanks!

I'll keep her in my prayers.

And, as long as mom isn't around, don't worry about the crying. It's the best therapy I know. It's cheaper and a whole lot less potentially harmful than drinking or punching walls.

And LOTS of us DO beat the odds. You simply don't hear about us on the radio. This thread is living proof of that!

Pea, thanks for the explanation. I swear, I learn more here than anywhere else!!!
 
Laurie.....finally got a couple pictures on photobucket. I don't use that site enough to be very proficient at it. Try as I might, I never could figure out how to reduce the size.

But, heeeerrrrrrrr's Charlie!

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The second one is my DH playing with him with his stuffed duck. It's about the same size as he is, and it's pretty darn funny to watch him run across the room with it! :lmao:
 
OK, let's try aggain, keep losing the post !

GAGWTA and belated birthday wishes! We celebrated 5 of our 7 grandkids' birthdays Sunday, all had August and Sept birthdays ...8.7.6.5.4!!
DD's 23rd was the 8th. It's also a bittersweet time...my mom's birthday is/was the 20th...she'd be 83 this years but died 2 years ago on the 25th. And a year ago on the 22nd I lost a dear old friend who would have been 70 this year on the 13th.

Ah well....fall is still my favorite season...I love the change in weather, the leaves, the mums, the pumpkins and apples and cornstalks!

It's so nice to see old friends here, and new...and I am always thinking of you all!

TruBlu...sending special prayers and hugs for you and your mom. :hug:
 
Back again ladies

Cheryl - Charlie is so cute.

Tracey - I will say prayers for your mom

I wish we could have a pet but with ds asthma its out of the question.

Well, I am back to square 1, nowhere. Dh called for me. The lady said she cant tell him any info. He said its because of HIPPA. I actuallly thought I always sign papers to tell dh as I cant talk welll sometimes. We will see about that some other time. Anyway she did tell dh the results wont be ready till at least tomm. morning at the earliest. Gheesh. Well I am going to PT with Mr. Coffee tomm. so that will keep my mind off of it. I know dh wants to know because he has to go around the world..Yup!! The trip I dread. He will go to England, Siberia, China, New Zeland, San Francisco and then home so far. At least 1 guy is going with him. He is planning the last week of oct. lst of nov. if all goes well. Thurs. Dr. M. operates all day and I dont know about friday, but friday I am taking ds19 to the ent surgeon so maybe I can find out something if I see the np etc. Hmm, whats the saying, no news is good news, :) I was crying before I was so stressed out worrying about it. I wasnt but I asked dh if he kept pushing me to call because of his trip etc. I know he also wants to plan the disney va. in dec. too etc. After stressing, I decided to pray. Much better!!

GTAGWTA - Thinking of you all.
 
Mellissa - we are only about 3 1/2 months out now from WDW. I'm really hoping we can meet even for a short visit. Hope your DD is settling into school and feeling better about it.

Barbara, I'm getting excited. We're now flying, so my dates in Florida have actually changed a little. We're getting there sooner and leaving a bit later. :thumbsup2 I'm looking forward to a meet and greet with you, too.

DD is settling in. She's still coming home on weekends, but she's making lots of friends. She also got word that she's going to be in the school's fall opera this year, so she's excited about that. Classes are going well, so I think it's just a matter of time before all is well. As her stress levels go down, her SPD is much easier to deal with.

I had been having horrible foot pain since chemo and tomoxofin. Anyhow, my oncologist had little to no sympathy for me and sent me to the podiotrist. He put me on a vitamin supplement that helps with nuropothy and it WORKS.

You know, I hadn't thought about it, but my terrible foot pain started after I was taking Tamoxifen. I wonder if that could be what started it? I didn't do chemo. I always just assumed that I got it from my mom whose feet hurt too. I live in Crocs because they're the only shoes that I can stand for any length of time. I'd love to know more. What is the supplement you are taking?

Sorry I haven't been around much. DH had an infected tooth and was in a lot of pain. Then before he could get over that, he got some sort of bug. He ended up flat on his back for a week. Then he shared the bug. DD and I both came down with it the same day. Luckily, we didn't get hit as hard and we both continued to function, just felt horrible.

I'm a little late, but post surgery, I wore loose gowns. I didn't want to deal with pants if I could help it. I had a reduction on one side and mastectomy on the other, so both arms were sore. Pulling pants up and down was not at all fun those first few days. After that, I didn't mind it as much.

Prayers said for everyone here. GAGWTA!
 
Good evening ladies

Melissa - Good to see you!! That is so great about your dd in the opera. My cousin is obsessed with seeing operas and she even goes to Europe to see them, especially when her other cousin is in one of the venues etc. One of ds friends sister is 25 and she is an opera singer too. I have only listened to her sing christian music though. I bet your dd will do a great job and glad you and your dh and feeling beter too.

Well no news from Dr. M. I went to physical therapy today. I swear there are some old folks there who shouldnt even be there, They are doing leg curls etc. The therapist spends no time whatsoever with them for a whole hour etc. Um, I must look pathetic compared to them. I just sit in a chair and do my exercises. Well I decided instead of waiting by the phone all day for Dr. M. to call I went and got myself a haircut. I look and feel better. Tomm. I guess I will try again and leave a message. I will call the girl who is in the actual hosp. as I know he is operating tomm. Hmm, maybe he will pop up there and see her sometime, but I am not holding my breath, My Plan B is to get a hold of my favorite np on friday when I take ds to the ent as she works for Dr. M. some of the time too and see what she says to do etc.

GTAGWTA. Thinking of you all.
 
Just wanted to let everyone know that my mom is doing great!!! :goodvibes She didn't even have any trouble with nausea this time - which has never happened before. When I left her tonight she had eaten a small amount of solid food and wasn't hurting much at all. She even walked a lap around the nurses station with me before I left. :cheer2: I'm so glad that awful cancer is out of her body.
 
lovemarypoppis, hoping you get the test results back soon and that they come out ok

Trublu good for your mom, that is great news


I go for my biopsy tomorrow, then the waiting game begins. I have stress upon stress going here right now. Not all of it to do with the biopsy.
 
GAGWTA all!

Hugs to all my sistas!

Still riding my roller coaster. The medication I'm on is doing a bit too good of a job now and I'm having adrenal insufficiency episodes which are horrible! I get splitting headaches where all my teeth hurt, all the nerves in my head get inflamed and my head just pounds along with nausea that I have to combine phenergan and zofran to combat. Plus the dizziness, gotta love the dizziness. But I have energy! I have pep! I have desire to do things! And all that is good. I actually cleaned the bathroom the other day, I haven't done that in a very, very long time. So I have to make the decision to stay on it and risk adrenal crisises and have to take tons of meds every day to keep me out of it or stop taking it and go back to being fatigued constantly and basically living the life of a slug. At this point, I don't know which option is better. Both have pros and cons. I'm waiting for my endo to set up an appointment.

I'm a little down too because I guess depression is one of my hallmark things about being in a higher cortisol state, which I am right now. That combined with the rainy, gloomy weather and knowing that it's going to be this way for the next 9 months has got me down.

BUT, I did buy the Toy Story Mania game for my Wii today, so I'll start playing that. It's based on the ride so I think it'll be really fun. I also bought nice bright lime green wastebaskets for my bathrooms here and fuschia towels. Once I'm "healthy" again (as healthy as I'll ever get...) I want to paint my house in lime green, purple, and fuschia. Nice happy colors, so when stuff is on sale I'm tyring to pick it up now to get ready.

Hugs to everyone waiting for results, going through procedures, etc...
 
Just wanted to let everyone know that my mom is doing great!!! :goodvibes She didn't even have any trouble with nausea this time - which has never happened before. When I left her tonight she had eaten a small amount of solid food and wasn't hurting much at all. She even walked a lap around the nurses station with me before I left. :cheer2: I'm so glad that awful cancer is out of her body.


Glad the surgery went well and that your mom is up walking. I am positive that your presence at the hospital and caring for her throughout this is giving her the extra boost she needs.

Thanks for keeping us posted. Please continue to do that as you can and give her my best.
 
Monique, good luck with your biopsy today. I hope you sail through it with no discomfort and get the best of news. . . benign!!

Honugirl, I am glad you are having a spurt of energy but the side effects are scary. It sounds like a double edged sword but I have to salute you for balancing all this. Your strength is evident and inspiring!!

Merry, I sure hope you are feeling better! I am glad your daughter is settling in at school. The hardest semester is that first one.

Our WDW Seoptember trip is history. I cancelled yesterday. I can tell DH is relieved as he did not want to disappoint me but things are just critical for him at work.

We may reschedule for early November, it is slightly possible, to try and catch the tail end of Food and Wine. DH's boss said he would pay for the vacation, which would be great as everything is going to cost more in November, our annual passes have to be renewed and the resort cost will be more.

If we can't make it this year, I will just save my Southwest credits for next year. There is always next year, right?

DH is being so sweet. He is encouraging me to go work out with him as he got me a locker so I don't have to lug my stuff around. I need to go today.

I need more hours in the day and more energy. I did have a Massage envy massage Tuesday during their breast cancer fund raiser. I was able to schedule the same girl who has done massages on me twice before, she is wonderful. I even got the Massage envy pink ribbon shirt with another donation. I am thinking of wearing it to work today and then to the gym. Free advertising for massage envy.

We started something new. DD13 wants to attend mass at 6 am on Wednesdays with a handful of her friends and some great kids fromthe high school youth group. We went for the first time yesterday. I have to say it was a great day to start the day but I was pretty spent by 8:30 last night.

I hope the little group of her friends keeps this up. They get to go have coffee or milk wth beignets (Louisiana powdered sugar covered doughnuts) after mass and before school starts. It will dovetail nicely with the Come Lord Jesus program the eight graders participate in, also on Wednesdays. It will start in October (I am one of the returning leaders). It might help me to as I am worried about having enough energy to pull off being a leader again. Maybe going to mass will give me inspiration

GAGWTA to all of you!!
 
Good afternoon ladies

Tracey - Glad to hear your moms surgery went well and that she is up and around. She is so blessed to have such a caring dd as you in her life.

Monique - Praying you are home being pampered and that your biopsy went well and that you will not have too much pain. Hoping the results will come back with great news for you

Lisa - Hope you get your med balancing act straightened out. You inspire me to keep on going when it gets tough. Oh and how was the toy story game so I can tell ds 17.

Laurie - wow, what an amazing way to start your day. That is sweet that your dd wants to go to the mass and I hope you have a great year with your class too.

Laura - hope you are healing each day

Now in honor of Laurie and Lisa, who loves Bingo, we are all going to play bingo right now, so grab your cards. Ready..?? The lst number called is O7, no not B7, but O7, oh yes ladies...Dr. M. called me and we had a little chat and its operation #7 this year for me. He said right now the ct scan looks good and the graft is intact but it will eventually turn into a hernia again, sigh, sigh. So I said when can we do the surgery, he said, when you are feeling up to it, call the office and make an appt. He said 2 days in the hosp. max, and this time, no draining wound, Yippee, he is sewing the whole thing right up. I just forgot to ask the or time in hours etc. So I call to make the appt. and I get the wonderful red haired lady, I say, I know you are the lady with red hair right. Well that nice lady got me right in this tuesday instead of waiting 2 weeks etc. Yippee!! Recovery time - 2 months. So somehow between physical therapy, dh around the world trip and wanting to go to disney I have the fit the operation in. Oh and yest. Dh got a gold watch for being there 25 years. His boss didnt mention his accomplishments, just said he made a great um, Santa, at the christmas party etc. So glad dh is leaving that dept. His boss is such a jerk. Toom, I see Mr. Coffee and go with ds to the ent.

GTAGWTA, Thinking of you all.
 
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