Dis Breast Cancer Survivors Part III - GAGWTA!

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GAWTA, Ladies!! :flower3:

Just wanted to say I am thinking of you all! Sending lots of hugs and well wishes to everyone dealing with tests, surgeries, balancing meds, etc! :hug::wizard:
 
TruBlu that is great to hear about your mom! continued prayers

Continued prayers for everyone actually.... Hugs!
 
Back from my biopsy, it was kind of freaky but better then the dentist. The thibg I didn't like was the lady rubbing my shoulder believe it or not. They did it in a mobile unit which was weird. Like a bloodmobile thing or something.

She said something about removing calcifications which I take to mean good news. The results will be in in 7 to 10 days but I am feeling like I am ok.

Hugs to everyone.
 
Monique....glad to hear it all went ok. The waiting is the worst part, just keep in mind that the odds are in your favor! :hug:

TruBlu....that's great that your mom is doing so well! :yay:

Laurie....sorry to hear you needed to cancel your trip, but it sounds like you still might get to go in November so that's nice. Hopefully it will all work out. :wizard:

LMP....sounds like you've got quite a full plate. Seven surgeries - yikes! I hope you can still manage to get your trip squeezed in. pixiedust:

honugirl....how's that Toy Story Mania game? Sounds like a blast! :upsidedow

Merry....have you ever tried Keen shoes? I swear by them. They look a little funky, but they are the most comfortable things ever. I get mine from Zappos.com, so easy. They are the only shoes I've worn in the past 3 years. :thumbsup2

JSK & Ann....hello! :wave2:

I'm off now to make peach shortcake....yummy! I got some very nice peaches today, so it should be really good.

GAGWTA!!! :goodvibes
 

I did not know where you were going with the bingo theme, LMP. You are a hoot!

Monique, let us know when you get your results. Keeping my fingers crossed for you!! I am sure you are glad the test is behind you.

This is sure an active thread right now. I love that! Thanks to all of you for joining this thread and sticking with us. I can't wait to get home from work and check in or check in when I have my coffee ready in the morning!

GAGWTA!
 
Just a quick hello - DH and I are going shopping today for home stuff for our renovation. We are hoping to actually get started soon. (I know it's been a very long time coming! :faint: )

I wanted to answer the questions about radiation. The residual effects I have are some skin changes as well as changes to the tissue/muscle below the skin surface. It's "different" than it was before, and different from the other side. I also have some pain in the entire area that was irradiated (breast, chest up past clavicle, to neck, and axillary/underarm area). But the thing that worries me the most is that sometimes when I laugh really hard, I get this stabbing sensation deep down in the area under my arm which I believe is the small area of my lung that was caught. It literally takes my breath away, but thankfully only lasts a few seconds. It's strange to watch if someone's with me, especially if it's a stranger who then gets this look watching me twitch and squirm: :eek: "Don't mind me, my lung just gets a little funny since radiation"! :scared1: LOL (I have spoken to the doc about it and she says it can be related to some scarring and that it's not uncommon. Yay.)

The other thing I have since my surgery is a seroma that's now permanent in there. It still hurts a lot. It started out as a hematoma after the surgery (lumpectomy - who ever said that's an easy surgery?? Does anyone remember the "banana" under my arm I used to have to go in to have drained with a huge needle every few days?? Not to mention I had 3rd degree burns from radiation - maybe it's just me. Figure lmp will like hearing that it's not just her who has funky, PIA things happen ;) ) and nothing could be done about it, ie removal, as it wouldn't heal while I was getting chemo. So it stayed and has morphed into this "thing". It's not only painful - I can barely sleep on that side, my favorite side to sleep on, and have to prop a pillow under my chest in order to take pressure off it in order to get moderately comfortable - but mammograms and MRIs have to be read extra carefully to be sure it hasn't changed or there's nothing else (ca) hiding in there; same with clinical exams, you can see the "deep in thought" look on practitioners' faces as they're feeling around. Oy.

Hey, OT, but did any of you see that Mary Travers died of what they're calling "complications from chemo"? I'd like to know specifically what they mean by that. But it's hard to get specifics (the kind I want to see) from the media. If anyone sees it, will you post it? I wonder if she had cardiomyopathy. :guilty: I hope not.

Wow, this was an uplifting post. :rolleyes1

Hugs to all. Thinking and praying for all those undergoing testing and surgery. Even if I don't post, I still read and keep everyone in my thoughts and prayers.

GAGWTA :flower3:
 
It is uplifting in a way, Linda. Information is powerful! You know how I am!!!

I did not remember anything about a banana under the arm. Is the lymph node removal also a factor?

Did Mary Travers have breast cancer?

Have fun shopping for house stuff! How about some pictures?

I am bringing Snappy in for a followup after her wound care last week. One of my co workers wants me to bring her in to the office for a visit. I jsut don't know if Snappy will like it there.

How is middle school going?
 
Mary Travers had Leukemia... but succumbed to the side effects of one of the chemo treatments she was undergoing
 
I did not remember anything about a banana under the arm. Is the lymph node removal also a factor?
Yes, it was from the lymph node dissection. The fluid build up felt like I had a banana under there. With full mastectomy, that's what you get those lovely drains for. With partial mastectomy (aka lumpectomy), you get none. But I think you should, actually. Instead of draining continuously, the fluid for me built up and every couple of days for a week or two I had to go up to the surgeon's office to have the fluid drained with a needle. I think I would have preferred drains (though I know those are no picnic, either).

Yes, she had leukemia treatment I believe in 2005. But nobody's been specific about what these effects from chemo were.

Middle school is great. Kids love it. We had a nice open house the other night and met all their teachers. It's been a nice transition. :thumbsup2

I don't think we're anywhere near pictures yet. The builder's finally available and is getting plans firmed up and starting permits, etc. Very exciting! I found our kitchen countertops yesterday and brought home a sample and all of us loved them so DH and I went and bought them today. I also saw a beautiful furniture set for our new room on clearance so I bought it! I admired it last spring but this worked out better. I said to the guy, "There goes my new camera lens and winter vacation" and he chuckled.
 
Here is a picture from England I though I would share with you all. That is mom's hand putting an unlit candle in for Miss Lee... after I lit a candle for you all (bottom left candle).

653545583_HYDGJ-L.jpg
 
Good evening ladies

Yah, I know its late

Lisa - wow I read your thread, Be careful sista!!

Linda - Sounds like you are off to a great renovation start

Sha - The candle picture is beautiful. Bless you.

Alice - How is school going?? My ds is taking the oct. sat again

Candy - Know you are enjoying your trip

Well I had the PT visit with Mr. Coffee today. I found out the old people there, at least the fit ones, just go there for a wellness program for $30 bucks a month!! Wow, I have to pay $30 a copay for EACH visit!! I really dont think Mr. Coffee spends that much hands on time with me. If I got about 5 minutes that was lucky. I heard him say they are opening a new office, but its too far away, a 2nd office. I think.? Closer to ds school. I found out why the bald guy is SO good. He works the outpatient dept. at one of the hospitals, not by me though. I will definetely try to get him again, but it will mean much later on times like in the aftternoon to evening. Took ds to the ent surgeon. He actually drove. He is doing as well as can be expected. I got some freebie advice, yeah!! I showed him what I could do in PT and he said keep working on it. He said he has another lady who is having the same problems like me after the neck dissection. I wanted to say to him something about a support group etc. He is going to a conference. I wanted to say somethig like try to find out about my rare stuff etc. Is that too wierd to ask?? He didnt like the sound of my voice and asked when I was going to the other dr. I told him oct. and he said , good. So I know he was concerned. I also told him I was having another surgery with Dt. M. I saw his look about that, like you gotta be kidding me.

GTAGWTA. Blessings to you all.
 
Hi ladies!

Yet another drive-by. Those first weeks of school are so hectic!! And 2 parent Orientation nights this week have me wiped out! But it's all good-- just typical start-of-the-year stuff, nothing having to do with anything medical.

The scar on my neck is healing nicely-- it's getting to where it's not the first thing I notice when I look in the mirror.

At Orientation the other night, someone recognized me from my waitressing days in a local Irish pub over 20 years ago. (thank God it was as a waitress, not a patron!) We were laughing about it the next day, and someone said how wonderful it was that I looked the same. My reply was that, after a **** job and a neck job, who wouldn't???

GAWTA and best wishes to all of you! You're always in my thoughts and prayers, even when things are too hectic for much computer time.
 
GAGWTA!

Laurie...DH had the weater channel or news or something on a few minutes ago and hollered to me to check on my "Baton Rouge friend" because of a tornado spotted yesterday?? He said it didn't touch down but wonders if you saw it! :eek:

Sha...I love that pic and thank you for the candle lighting :hug:

Linda...the redecorating sounds fun!! :thumbsup2

I did not have severe side effects from my radiation and both rad onc and surgeon still remark 4 years later at my "wonderful results, cosmetically" :confused3 The skin and tissue effects are not as drastic or noticeable as some other patients I guess. I do often wonder though, about the twinges/pains on that side ....and of course some of you remember my spontaneous pneumothorax which was on the treated side about a year and a half after the end of my treatment. They all said it wasn't in any way connected, but rather unusual for a middle aged white female. Course my sister had onewithin a year afterwards so I guess the excuse is genetics, and hers was on the opposite side of her phyllodes.

Have a wonderful fall weekend...I have a YC "Farmer's Market" tart burning and it smells divine!!
 
Yes, those spontaneous ptxs in you and your sister really leave me :scratchin Ann. I'm glad your effects from radiation are minimal. Other than sleeping and that rare issue of pain with laughter, I really have no major complaints. (Hey, we're here to tell about it, right?)

I went by a Farmer's Market yesterday and almost went in, but I was so pressed for time I had to pass it up. Love them, though. I did buy some new Halloween decorations, though, even though I have quite a few already. :rotfl: Can't resist.

Hey, everyone, FYI - I bought some Disney Halloween decorations at Walgreen's yesterday. They had a big size Mickey pumpin (with ears and all, that lights up) and smaller size Boo Mickey light up ghosts (like the ones from MNSSHP). I'm sure the manager thought I was a little strange when I spotted them as I was talking to him. I was like this: :yay: LOL

Sha, thank you so much for lighting a candle for us in England. I got a big lump in my throat when I saw your picture and read your post. Even though I've never been there, there's something about England that I love. (Probably because my favorite books ever are by James Herriot.) A friend I work with is from Yorkshire and there now, she knows I love it took my address down to send me something. Can't wait to see what it is! :goodvibes
 
You know, it's funny. Until I checked in here today, it never occurred to me that those occasional sudden pains were the result of radiation. But every once in a while I just get a moment of sharp pain in my chest-- 2 or 3 seconds-- and then it's gone. It's not bad enough to make me stop what I'm doing, but it certainly is noticeable.

Again, thanks to all the wisdom in this thread!!

Oh, and check out the Oct. Good Housekeeping. There's an excerpt from a book written by a woman who had breast cancer-- a thank you to a friend who helped her through it. Predictably enough, it moved me to tears.
 
It was the least I could do for you ladies.. and that was the first of several that I lit. I didnt take pictures of them all. I really do need to work on all my photos but posted some I didnt have to edit on FB. Will get them to my smugmug site soon enough.
 
Wow....here all along I've been blaming the surgery and not the radiation! My main problem is sleeping too, as my affected side is also my favorite sleeping side. I try to put my arm up under my head, but it just feels too "stretched" and pulls and hurts. Somehow I always manage to roll back over in my sleep to my favorite side and wake up each and every time in pain. PIA. I haven't noticed any lung/breathing/laughing problems, so I'm glad about that!

I hope everyone is having a good weekend! It's a beautiful day here, I'm headed outside.

GAGWTA!!! :goodvibes
 
Good evening ladies

Wow, I didnt know my one question about chemo versus radiation would have such a response!!!

:hug: to you all with all the side effects you are having to deal with.

Of course, ingestable radiation is in a class all by itself. You just get totally bombed all at once. I got the maximum dose allowed so far and I was nauseous for about 2 days and the 3rd day a little. I think the worst effects were on the digestive system for the week.

All my pain is from post op stuff, probably scar tissue the dr. said. I guess when he cuts out half the side of your nexk its to be expected. Its a constant 8, never gets better and he really doesnt seem to care etc. I am awake more than asleep etc. Can never find a comfortable spot etc.

It was a beutiful day here and I went with dh to pick up the ds fixed tv. Wow

Alice - You can tell I am pretty pathetic when I though it was great to drive with dh to the pc richard place in farmingdale:)

Please pray for Alyssa. She is not doing well at all. The biopsy showed a mild rejection of her new heart and worse, her colonscopy showed some very abnormal things which they are waiting for preliminary results from on Mon.

GTAGWTA. Thinking of you all.
 
Hi Ladies :wave2:

Hope you all had a good week end

So who here is getting a regular flu shot and maybe the other one too??? I have never gotten a regular one but I am thinking of it. Here is a question for Sha or Linda - would my pcp give me a regular flu shot and a B12 shot at the same time? I am trying to avoid paying 2 seperate copays and just have one visit with the pre op, flu shot and B12 shot all at once, especially since I am not so fond of my pcp. Do you think the dr. would even do all this stuff at once?

Tonight is meet the teacher night for ds. Oh, It will be our last one. Also, proud mom brag, ds21 is going to be the Varsity basketball coach at his old HS. Wow, he is the youngest coach in the league I think. So of course dh and I want to go to all the home games we can etc.

Tomm. is physical therapy and the visit with the surgeon, so say a prayer that all would go well and we can get a good surgery date etc.

GTAGWTA. Blessings to you all.
 
Good afternoon sistas

I am going to pull a Candy and call out everyone with her call she used for Lisa...hooty who, where are you sistas??? :)

Tracey - I hope your mom is healing and you are healing too as well as your ds

Laura - Hope you are healing day by day too

Alice - thought of you at our meet the teacher night last night. Dh had to go to pre-calc and I went to spanish 4.

Monique - I pray the news you hear will be good news

Lisa - hope the karate is going well

Candy - I hope the vacation is just great

Laurie - I also agree with your comment about healthcare, that if you need anything done, get it done now!! I cant comment on what the nurse said today.

Well I dont want to be a thread killer, so I will pretend like someone is here having a conversation with me...

Sista - How is it going lmp?
Lmp - Thanks for asking. Its going pretty well. I went to therapy today and I got the bald guy instead of Mr Coffee...yeah!! Lucky Me!. He is so much more better than Mr. Coffee!! He spent about 15 min. one on one with me.

Sista- and then what happened? Well dh took me to the surgeon. He said the hernia is coming back, oh yippee!! NOT!, so the surgery is scheduled for...Nov. 11TH. if dh trip gets cancelled then it will be after Oct. 12 as Dr. M is going away for a week. Good News..This willL be done laprascopically as he is afraid of another infection if he cuts me open etc. The bad thing is he said alot of people complain about alot of post op pain. I also talked to the nurse about how I will feel by Dec 8 etc. She said I should be o.k. for the trip. Didnt say where. Dh I told her will push me in the wheelchair. In the meantime I am not suppose to lift anything heavy etc. etc. Of course they said things could go from bad to worse in a short amount of time, I just hope that doesnt happen while he is away etc.

GTAGWTA. Thinking of you all.
 
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