Dis Breast Cancer Survivors - GAGWTA!

Status
Not open for further replies.
:flower1: ~~~***GAGWTA sistas***~~~:flower1:

suzadrew- I'm sorry you are going through this...I think regardless of your results, the timing for your Disney Cruise is perfect! I had my lumpectomy done the day after I came home from Disney, and we had an awesome time! I hope you get good results! :wizard:

Snow!!! you guys, that is crazy! :crazy:It was in the 40's and windy here today, I tried to hang out at the soccer field, but ended up begging off...I was freezing! :cold: Hubby is such a trooper, he stayed for both games... :love:
:grouphug:
 
Lessa of Pern said:
I've got three sisters -- they do all the cooking at the holidays. they enjoy it.

I'm planning my treatment around the holiday -- I had the flu one year during Thanksgiving and couldn't eat, and wound up wallowing in self pity. not going to let that happen this year if I can help it.

Becca's health class is doing "Baby Think It Over". that's where the kids get to brig home a doll that's programmed to cry in the middle of the night. Becca has her doll tonight, which means I'm temorarily a "grandma"...

Lessa, :grouphug: :grouphug: I remember thinking my neuropathy was never going to go away, but eventually it does. Took a good while, I'm sorry. Hang in there. LOL over your "grandchild."
 
Snappy....just sent you a PM regarding Dr. Allen! I found him...come on down!

Suzadrew....sorry you had to find us. Take care in the next few days. It'll seem like a lifetime. Hang in there.

I forgot whose Mom is making the chemo decision..... I had a lot of agressive treatment and didn't really want it (well, part of me didn't) but the more I thought about it the more I realized I really did want to do everything possible to be sure this beast doesn't come back. So I did it. It sucked, but it had a finite ending. I often times related it to being pregnant...remembering how I never thought those 9 months would pass, but they did....and the chemo months passed and the radiation months passed and I'm OK now!

I also can't remember who had the large tumor (4cm). (see, if I was still having chemo I could blame "chemo-brain!" LOL) Mine was invasive and was 5cm. I had a mastectomy and was going to have immediate reconstruction by way of implant/expenders, but then they decided to add radiation to my regimen and I opted have the expanders out, since it wasn't a great idea to have radiation with expanders or implants (although it is done fairly often, I decided not to). So I waited andjust had a DIEP in June. It's been great. I'm having part 2 of the DIEP over Christmas break.

To all my GAGWTA sistas.... sorry I've been MIA for awhile. It's been very busys here with work and band stuff. I'm able to *glance* at the DISboards for like 5 minutes here and there and only get to the stuff on Page One, if that! I'm hoping things will calm down soon, but it's usually a downhill rush from Oct. until Jan. around here! We'l be off again next weekend for the big State band competition. Our band has never finished higher than 5th I think, but they're undefeated in all competitions this year and Grand Champions of all, so hopes are (guardedly) high for this year! I'll be sure to post!

PLUS, I had a nasty fall Thursday night (in the band room, in front of 200 students!) and messed up both knees and both ankles. UGH! OW! Went to school anyway on Friday because it was a big peprally and my class had earned a special party. Just walked very little and very slowly. Basically my feet have not touched the floor since about 4pm Friday afternoon! Had to miss the big homecoming game/show at DS's high school, though. :(

So that's my update! I'll try to keep up better!
Beth
 
Beth, nice to "see" you! Hope you're feeling better soon - hang in there! :grouphug:

Yes, snow! Accumulating - can you believe it?? :confused3 We were supposed to go to an outdoor Halloween party tonight, it was cancelled. I'm stuck with 6 dozen cookies, better get them out of here... :rolleyes1 Tomorrow it's supposed to be 60 degrees so it won't last - but still, not ready for this at all.

LOL, Laura, also froze on the soccer field this morning. ;) How much longer to summer? :hourglass :sunny:
 

Snow? Really?

We are cool and dry. It is heaven after the heat in September and early October.

DH decided the last exterior paint job we paid for was inferior, (I secretly think he was too heavy handed when he pressure washed) so he has turned into a driven man. He is sanding every nook and cranny, and we have a lot of high overhang areas too on our big old porch.

We should end up with the best paint job on record. The cool weather is a real boon. I am in charge of paint selection. I have no future as a painter

Thanks Beth, I sent you a pm back. :teeth:

Linda, sorry about your DH's truck. It really hurts when a brand new vehicle gets clobbered. Thank God he was not hurt.

Suzadrew, sorry you are dealing with the waiting thing. I have had good luck getting immediate results from mammograms, there is always a radiologist to read it around. My sister did have to wait at her breast center, the doc only came in twice a week to read mammograms. It is the mammo and the ultrasound you are waiting for results on, right?

Laura, I think I remember seeing that Arimidex can contribute to bone loss.
I am pretty sure about that, I am sensitive to that issue since osterporosis runs in my family, it already shows up on my bone density tests and xrays.
I don't think I personally would take it for that reason only.

I can't wait till Monday and Trick or Treat.

GAGWTA!!
 
Welcome Suzadrew! Wish you didn't have reason to join us, but we're glad you're here. I usually am gung ho for getting things done right away. But I have to admit that I put off my cancer surgery for over a week. They wanted to schedule me for right about the time I would start my period. All I could think of was limited use of both arms (I had a mastectomy and a reduction on the other side). It was one thing to be a little helpless normally, but that time of the month, I just couldn't do it. My doc said that I'd probably had cancer for over a year. A couple of weeks couldn't make that much difference if it made me feel better. Personally, I think a cruise could be good medicine for you, if you want to go ahead and go. Nothing will take this off your mind, but if anything can help Disney can! And if you ever need someone to talk to, I'm only a PM away.
 
Beth...nice to see you here....hope your "ouchies" heal quickly!!

No snow here in central NH today, though we were forecast to have a mix of rain/snow this afternoon :confused3 . Yesterday I decided to put off a visit down to MAssachusetts until tomorrow, after talking to my mom ...she said "No no, don't come, it's going to be terrible out". Then I went to the weather channel and saw the forecast, so I did what my mom told me ;)
When I got up this morning it was a chilly but beautiful autimn morning! :sunny: I puttered about (am home alone all weekend...DH on a hunting trip up north where it's colder and snowier ;) ) and decided to go for a walk since it was so nice...got the James Taylor Live CD in the walkman, earmuffs and mittens and did close to 3 miles. :cool1:

It did get very cloudy and had that steely gray "snow sky" this afternoon but no precipitation here at all! My sister over on the NH coast had snow squalls and misty rain. And my brother on the south shore of Boston reported snow accumulating down there! I was out at sunset doing errands and the clouds had started to clear, making for a beautiful colored sky...really spectacular!

Had to pick up more candy for Monday...somehow the glass pumpkin of candy corn that I filled early this month is empty... and the oldest grandbaby (4 yrs old) is going to be expecting to have some when he comes to Trick or Treat ;)

Suzadrew...hope the thread did not overwhelm you :grouphug:
 
the "grandchild" went back to the health teacher -- and my child is out partying. actually, both girls are out at parties.

and I'm dealing with side effect tonight. had chemo thursday night. doctor reduced my chemo dose because of the neuropathy, also gave me a drug to take. it's helping. he also wants me to se a podiatrist because I hurt my foot...

but the good news is...

my last cycle of chemo will be november 16! and after that, it's just monitoring! :teeth:
 
GAGWT y'all!

Newbie checking in again. Want to thank y'all for recommending the Susan Love "Breast Book" (also picked up Breast Cancer for Dummies, as my oncology appt. was moved up, so I needed a 1-day crash course for questions!). I've been busy devouring them and it's helped tremendously in understanding BC and its myriad options, treatments and (my personal nemesis!!) the dreaded "medical terminology". :confused3

I'm at the beginning of my journey (found out 2-1/2 wks. ago), so have nowhere near the experience & expertise of the regular ladies. But perhaps my recent similar experiences can help out MNSusan & suzadrew with their early concerns.

MNSusan: Scary stuff - I was also a bit alarmed at the speed in progression from mammo to ultrasound to biopsy, but in retrospect it gave me less time to worry. My biopsy was also on a Friday, so I was warned the weekend would delay things a bit & only heard the results the following Wednesday (to give you a heads-up). My news was "no-so-good", but I'm hoping you'll dodge the bullet - hang in there and keep us posted.

In any event, "things" have slowed down a bit while I consult surgeons, oncologists & plastic surgeons while I make my decision.

suzadrew: Like others mentioned, they may want to do a biopsy next. I had a core biopsy & for "chicken" me, it was a surprisingly easy, relatively painfree procedure. I agree, it's a personal decision as to postponing your cruise, but I'd also tend to think a week's delay won't mean too much. After all - I found out about Damian (my hidden 4" cm tumor) 2-1/2 weeks ago & am still consulting & making decisions.

Ironic how our lives here revolve around Disney: I moved to FL last year - my SIL aka best friend had made plans months ago to visit. All this ca-ca arose immediately before her visit. She, DH & I still went to Epcot's F&WF the day following "the bad news" as planned and had a blast! IMHO, there's nothing like Disney to take your mind off of "things" for a short while. It was even a bit inspiring - I want to make sure I get back there for the F&WF next year!

Have a great weekend, ladies!

Denise
 
:hourglass ~~~***GAGWTA sistas***~~~ :hourglass

(did you remember to "fall back"?)

Beth- Ouch! I hope your injuries heal quickly! :flower3:

Lessa- Congrats on getting your date set! There will be a party, right?!? :teeth: I'm still living with my neuropathy from Taxol, in fact the Remicade seems to be making it more noticable. Typing is getting harder and I'm very clutzy, even more than usual! My doc said to watch it because he had one patient who had to stop because of MS symptoms. :sad2:

Denise- Yes, it's the crash course you never wanted to sign up for, Cancer 101! :rotfl: I think as a "newbie" you're a great one to give advice! Some of the details fade over time, and with chemo brain. :upsidedow I'm big on making plans to be here for next year...it's worked for me so far! :Pinkbounc

Snappy Laurie- I've read that Femara is the drug that they usually put people on who have completed 5yrs of Tam., though is normally done within 3 months of that time and it's been over a year for me. :confused3 My onc never said there was a time frame, she was just waiting for menopause to hit. Are you taking anything for your bones? I'm on Actonel until I get off the steroids because it can cause bone loss. My parents are the oldest relatives in my family, they all died young. As far as I know there's not any osteoperosis in the family tree.

It had been so warm here until we went to Disney, and of course it was warm in FL until the hurricane blew in autumn. I'm not ready for the cold weather! I took my youngest to get little pumpkins and gourds yesterday and the garden shop we go to has a huge Christmas shop that was up and running so we got hot drinks and strolled through... :goodvibes Now I'm thinking about baking cookies. Christmas is the only thing I like about winter!
 
Good Morning & GAGWTA

I went through the first 10 pages last night which was hard because there are lots of side links I read too. I definetly learned some had some laughs and a lot of tears. I look forward to the continued reading of the pages over the next few days.

To all the warm welcomes. Thank you. It's amazing how much a simple hug (even a cyber one) helps sometimes. :grouphug:

Denisem - I am so so sorry that the beast found you. I wish you all the strength you need, and more, to get through your recovery.
 
GAGWTA! :sunny:

Big change here from yesterday, sun is out and it's a beautiful fall day. This time of year the weather here can turn on a dime. It reminds me of when my twins were born in mid October, I was in the hospital for 10 days. When I went in it was 70 degrees out and sunny. Ten days later when I was ready to go home, it was in the 30s, like a winter day. :cold: Couldn't believe it when I walked out the door.

I love the fall season but I get a little sad when summer's over. Oh well, we're busy solidifying plans for our February cruise with friends so it's keeping summer close for me. I booked our airfare the other day, that was :crazy: We've been waiting for SWA to release February fares - I guess most of New England was as well. :rolleyes: Well within a few hours the busiest days were gone right before my eyes!! I had booked ours but our friends were a tad late booking and missed the flights. Being the travel agent of the group :teeth: I then spent the next few days futsing around with fares and flights, etc... Finally I managed to get them a good price and flight times almost the same as ours, but we won't be on the same flight home (yet ;) ). I do like the fact that you can do this with SWA and don't mind the legwork, but I learned a lesson that if you're going on a prime week if you want to fly together you need to book them all at once. Oh well, I'll get it right next year (good thing my fee is low - they'll be buying me lots of Bahama Mamas and BBCs for sure). :rotfl:

Did I mention to you guys that one of the Dis-ers on our cruise meet thread is in the Walt Disney Suite on the Magic? :cloud9: We gently suggested he might like to host our cruise meet in there ;) so he is!! :cheer2: That's something special to look forward to. Seeing our friends' excitement is fun, too. They've never cruised before and have really gotten into the spirit of things. Now that our flight and resort is booked, my next project is finding tuxes for the guys with Mickey Mouse ties and cummerbunds, that ought to be fun. ::MickeyMo And we already have our outfits for Pirate Night, we tried them out at MNSSHP and they were a hit! All 10 of us have similar outfits so it should make for some good pictures. pirate:

Thanks for listening to my cruise planning, it started my day off in a nice way! :boat:
 
I like the Dummies book series as well. I bought the BC for Dummies, too, at the same time I bought the Love book and I was so glad I did. I found the Love book to be informative yet very scary when I was relating my own case to the wording in the book (maybe it was because as a nurse I think I "knew too much"). I was very overwhelmed reading it for the first time. I would put it down and read the Dummy book instead, somehow it was less frightening to me. I still keep the Love book as a reference but my true desire was to burn it after my treatment was over. :rotfl:

I was in Borders the other day and was looking for a book for my DD (on puberty, LOL, since she's asking questions) and I couldn't help but notice all the Breast Cancer books. I don't usually read them but I did pick up and browse through a copy of Dr Carolyn Kaelin's book on Breast Cancer. She is a highly regarded Breast Surgeon from my hospital who two years ago found herself on the other end of the knife when she herself got breast cancer at age 42. (My own case was diagnosed shortly after hers and she was nice enough to talk to me several times despite being in treatment and on leave herself). It is a very interesting perspective from the other side of the bed. Personally, I find her inspiring. Two years ago, she was on many news and Chronicle type shows here in NE since her case was so unique and ironic (her husband is an oncologist at Dana Farber Cancer Insitute). She handled herself with dignity and has been a role model for all of us, but especially for the medical community, who sometimes need to hear what it's like on the other side of the bed themselves (I know it's given me a whole new perspective, that's for sure). At any rate, that's kind of an interesting and informative book.

At the time of my diagnosis, I read everything I could possibly get my hands on about BC in order to learn what I was dealing with. For me, it was one of the most difficult aspects of the whole experience, very overwhelming. It's necessary in order to make informed choices and understand what is a pretty complicated disease. But for me anyway, there came a time when I had to stop reading. I read what I must now, but I don't spend a whole lot of time reading cancer information, it keeps it a little too close at a time when I'm trying to move away from it. I do like to read research studies now (which help me understand what I can do to help myself) and I enjoy researching things for others, but for the most part I prefer to read other things.

I bought Scrapbooking for Dummies the other night, that's about my speed now. :tilt:
 
Linda and densiem, odd that you two mention the BC of dummies book. I stopped by Barnes and Nobles yesterday to pick up the Odyssey for DD15's English class and gravitated to the women's health section. I did not know about the dummies book for BC, ended up reading part of the chapter on reconstruction. I am going to look for Dr. Kaeolin's book, Linda. As you said, I would think someone who has seen it from both sides would have a unique perspective. I have been trading emails with an acquaintance who lives in NJ who had breast reduction (not breast cancer), and who also has assisted at breast reduction surgeries and has patients who have previously had this done. She has helped me enormously with my questions concerning having this done on my remaining breast. It is like she is objective and personal both at the same time.

You are wonderful with researching for us on this thread. You and Laura both are the sources for me.

Linda, I am glad you worked out the flights, albeit with much effort. What a great time y'all will have at the cruise meet in the Walt disney suite. Pictures, please!!!! :earsboy:

Lessa, did the dolls cry all night long? I attended a two night camping trip when my daughter was in 6th grade, and a number of the girls had these dolls for the weekend. Several of the girls basically couldn't deal with the crying. Not sure what kept us from sleeping in the communal cabin, the dolls, the girls yelling at each other to quiet the dolls, or the blasted cots we had to sleep in. Never again.

Glad to hear the end of chemo is within sight. :grouphug:

Laura, I am not on anything for bones yet except 1500 calcium citrate daily. When I went to a orthopedic guy about 10 days ago he told me to be sure to have a repeat bone density scan two years after the first on (August 2004). I think if it show a change I'll go on meds. Many of my female relatives on my mother's side have lived a long time, but all have suffered with bone loss. My mom has been on meds since age 70. I guess cancer trumps osterporosis though if you have to take something that hurts your bones to save your life.

Ann, your description on NH autumn mornings and snow skies were poetic.
I am afraid here we are still cutting and watering the grass. At least we are not raking leaves yet, they are just starting to fall.

Think a good thought for DH's family today. They are all meeting just about now (9am Central time) at my MIL's house in Lakeview to see if they can uncover valuables, heirloom stuff, silver, whatever. They tried to round up what is left of the strong types in the family (everyone is aging so). The furniture was all thrown down helter skelter, blocking closets and entryways, including the fridge, so they need some muscle to move the big stuff out of the way. There are a couple of his dad's things my DH wants (his father died in 1978, a few months before we married). I hope he is successful. It is a beautiful, cool day (70's) so they should be able to stay in the house longer than on previous forays into the moldy muck. Sorry I keep bringing up the whole Katrina business. There are some bright spots. His sister house nows has A/C again, which along with the dehumidfiers, should continue to help dry out things. DH's nephew are also trying to line contractors to do the recovery work in there, so DH should not have to continue to go down there every weekend. She is back to work now too, so her health insurance is secure (she is a heart attack survivor, so insurance was important).

I also hear some of insurance companies are settling on flood coverage, especially State Farm in certain zip codes. Some are settling for the policy max sight unseen, others like DH's relatives, are busy documenting contents.
This baffles me in my MIL's zip because every house in that area had 10 feet of water. Maybe it is the out of town adjusters. :confused3
I urge everyone to document contents before the castastrophe, it is much harder after the fact to remember everything you HAD.

Can't end on that note. I am checking SW as well, Linda, they have resumed limited flights between New Orleans to Orlando, one of just a few destinations out of N.O. Chalk this up to being therapeutic? Anyway, I have a credit with SW that is burning a whole in my pocket and will expire anyway in a few months, along with my AP's. I see a trip in my future, maybe solo, or just with DD9. My teens have lost their enthusiasm for Disney. It's ok with me, they are expensive to travel with anyway. Now where did I stash my Bonine?
 
LOL, Laurie, you go for it, girl!! :banana: Please don't apologize for talking about Katrina and it's afteraffects. It was a huge crisis for you and your family, and we're here to listen. :grouphug: Prayers for your family that you find what you're looking for and that nobody injures themselves moving everything. I can't even imagine what you've gone through, you all deserve some respite. A trip for you and your DD9 sounds perfect! :sunny:
 
good grief my last post was long, I am gonna give myself carpal tunnel syndrome for good measure. as pop daddy would say, it was too sexy.

think I'll try for shorter sentences and no caps. ha!
 
you'd have to ask my daughter how often the doll cried...I shut my door and slept through the whole thing...

of course, someday, when it's a real grandchild...different story.

I'm taking neurontin for the neuropathy...not sure if it's the drug or the chemo that's making me sleepy today.
 
Now I would SWEAR I was here a little earlier and posted...but I don't see it :confused3 so let's try again...


Lessa of Pern said:
...I shut my door and slept through the whole thing...
Alright! good for you! :teeth:

snappy...don't apologize for talking about the continued impact of Katrina!
Oh and I have been noticing great SWA prices for early December..
there are lots of DISers going to WDW the first week in December and I'd love to go for a solo weekend but keep pushing that out of my mind since DH and DD and I leave on the 19th for our Xmas trip ;)

I too want to offer my deep appreciation for Linda and Laurabelle for all the research and encouragement....and to allon this thread - survivors, supporters, and those going through a scare that turns out benign ...I appreciate the thoughts and contributions of all!!

And those who call yourselves "newbies"...I hereby declare that you are only a "newbie" for one post- your first one! :wizard:

Anyone hear/see Chris (cruise04) lately?
And Laurajean...I wonder if she's doing/started radiation?

well....a nice autumn weekend is ending...back to work tomorrow....I'm not waiting up to see if the Patriots can beat Buffalo ;) I'll have to wait til the morning!

Also, wanted to show you a couple of pics from the Making Strides Walk here a coupel of weeks ago...there is a small permanent "Garden of Hope" at the city sports complex/fields where the walk started...it was so beautiful with the fall mums for the Walk....
f1ab5ed5.jpg


The plaque says "Dedicated to all those lives touched by breast cancer"
f1ab5d67.jpg
 
Status
Not open for further replies.


Receive up to $1,000 in Onboard Credit and a Gift Basket!
That’s right — when you book your Disney Cruise with Dreams Unlimited Travel, you’ll receive incredible shipboard credits to spend during your vacation!
CLICK HERE


New Posts







DIS Facebook DIS youtube DIS Instagram DIS Pinterest DIS Tiktok DIS Twitter DIS Bluesky

Back
Top Bottom