I came upon this site tonight. I read each post and now have tears rolling down my cheecks. I do not have any advice or wisdom to share. I just wanted to say my heart breaks for you and tonight I will say a prayer.
Last May the specialist told us our DD was coming to the end of her life. To make a long story short he "jumped the gun" so to speak and thought her brain was getting worse. After 2 weeks of testing we received the news it was not that at all. This all took place during Mothers day last year. The worst Mothers day ever.