Dealing w/meltdowns in DW

Christine43

Mouseketeer
Joined
Mar 9, 2007
Messages
246
Hi, how do the rest of you, parents of autistic children, deal with meltdowns in DW? We leave on our third trip in exactly two weeks and my son (10) is going thru a very bad phase. He's yelling, hitting, taking off, crying etc. This is handled at home and at school and if we're in a store or somewhere we leave but how about DW??? I'm going with him, his twin and my 15 yr. daughter and I'm debating about taking her and Perry back to the hotel room and then coming back to the park with the other twin or all of us staying for a while depending on the time. I'll try a time out with breathing exercises first but frankly, those aren't working out too well lately. He was put on Abilify yesterday and I'm hoping that will help him because the poor kid is just miserable and we're all so upset and stressed out, I'm not totally looking forward to this trip. I actually broke down at the drs. yesterday and I never do that. He sees his behavioral psych. today too and I'm hoping he'll have some ideas but any input at all will be very appreciated. I've even thought of not bringing him but I don't think I can do that to him. Thanks for listening. Christine
 
I'm so sorry your family is going through this difficult time! It must be hard on all of you.

One thing you mentioned was taking your sons and daughter back to the resort - but would you really leave your daughter behind in the room with your autistic son? Why not send her to the park with your other 10 yr old, so that they could enjoy some time together in the park?

Also, if your son is small enough, rent a double stroller in the parks for him. You can also request a GAC to use the stroller in line. That way, maybe the hardness of the stroller will soothe him, and the stoller can block out some of the overstimulation he might experience.
 
Sorry sorry to hear you are stressed but perhaps I can offer some advise. I am fortunate that my son does not have that many meltdowns, and if he does it is only because he wants a prize any prize. Obessive/Compulsive! I would treat WDW they same way you would in a store. Remove him from the environment. I would also have to agree to not leave him behind with your 15yr old. Take frequent breaks, bring ear plugs, a favorite toy. Try to eliminate things that you know will cause a melt down. If you need to go back to the resort take a break and go to the pool as a family. Make taking a break a positive experience. Try not to show that you are stressed. He will know and it will be worse.

Like my son for example, has to get some type of a prize everytime he goes into any store that has toys or he screams and cries profusely if he doesn't. Partially it's my fault, I have been appeasing him for years mainly out of guilt that he is Autistic and I do not want people staring at us and feeling embarrassed. So what I did in WDW is I only did gift shops one day. I removed him from the situation. I told him only one prize and do not ask again. But if I went back the next day it would be the same situation a total meltdown.

Perhaps his new meds will help you as well. It takes a good two weeks to see a difference.
 
I know you probably really don't want to do this, but have you thought of postponing the trip until things calm down with your son? I know that's a very hard decision to make and it seems unfair to the other kids. But if you're actually dreading the trip, do you really want to take it right now?

My son has Asperger's and we just did WDW for the first time last year when he was 11. We thought about doing it a few years ago, but his behavior was still too unpredictable so we decided to wait. We live in CA so he had at least four trips to Disneyland under his belt before we flew all the way to Florida. There were a few little meltdowns at WDW, but thankfully, nothing major.

I really hope the new medication helps. If postponing the trip is not an option, at least make sure your expectations are realistic. You may be able to spend just a few hours a day in a park before he goes into overload. You may end up spending more time relaxing at your hotel and less time being on the go. If you don't stick to your schedule, don't sweat it. Just enjoy the time with your family and do what needs to be done to help your son have the best time he can. I hope it all works out for you!:)
 

Would it be less stressful if you planned on starting the day together and then your DD and your other son split off and go ride the rides at their own pace and you and your other son take things at his pace. You could meet for lunch or dinner. It may avoid the meltdowns if he isn't being rushed from line to line or made to keep walking if he really wants to stop and look at something for 20 minutes. Everyone may be happier and there will definitely be less stress. It is great that you have an older child who can help with your other son while you concentrate more on the other.
 
I would agree with Schmeck. Especially if your daughter is fairly responsible and has a cell phone, she and her 10yo brother should be able to do fine in the parks by themselves if needed.

One thing I would impress upon her is if she has any problems at all in one of the parks when you are not there go to any Cast Member who is in Costume (Uniform) wearing a Disney Name Tag and ask for assistance.
 
I'm also sorry you're going through this. This is among my many fears as my son gets older (he's only 3 now). He has meltdowns pretty frequently due to some obsessive/compulsive impulses and I can't imagine how much worse they will be when he's 10 if it does not improve now!

From what I've gathered on my own research, as well as from VERY frequent trips to Disneyland with my autistic son, here's what I can advise:

-prior to leaving on your trip, sit your son down and explain best that you can that the "rules" are the same at WDW than at home. (reiterate "the rules" if he needs reminding)

-allow your daughter and other son to go off on their own in the parks, if your daughter (and you) feel that she is comfortable with that. Talk to your daughter BEFORE the trip, explain that there may be times where your autistic son needs to be removed from the situation, and at those times, you will ask her for help with the other son. Will you be the only adult there? I assume so, based on your first post. Work out a plan with your daughter, so that she can take the other child off a.s.a.p. so you can get down to dealing with your son without the distraction of giving instructions, figuring out a meeting place, etc. Leave her prepared at all times to be on her own with your other son. Make sure she always has a room key for the hotel, a fully charged cell phone, some money, etc. I'm sure she will MUCH prefer the freedom to experience WDW with her younger brother in the midst of a meltdown than being a babysitter in the hotel room. At her age, I had been going off on my own with my sisters at WDW for several YEARS. It's easy enough to use the WDW transportation within the property.

-if your son has a meltdown, deal with it IMMEDIATELY. As in, find the first bench and park him down on it. Either send your other kids to get a snack, go on a ride, use the bathroom, or give them a couple hours to themselves. If you are in line for a ride, get out of line. If you're eating, leave the restaurant to at least go into the entrance area of the restaurant to be away from other guests. Firmly sit him down and try your hardest to just get him to calm down first, then explain that his behavior is not going to be tolerated here just as it is not at home.

-once your son is calm, ask him what would make the day better for HIM. Would he like to go back to the hotel or stay where he is? Give him two choices. I find that this works WONDERS for my son when he melts down in public. I ask him "do you want to go home or stay here?" If he says "stay here", then I tell him that we will stay as long as he behaves properly. If he does "x" one more time, we're leaving. Be serious and FOLLOW THROUGH, even on vacation. You just need to maintain consistency on vacation as you do at home.

I'm sure you know what works and what doesn't for your son. While it is important to maintain consistency on vacation, make sure you recognize that vacation is a very different experience than being home, so you have to adjust your EXPECTATIONS accordingly. Expect more negative behaviors, expect more melt downs...WDW is highly stimulating, tiring, and exciting. TYPICAL children and adults have a hard time maintaining normalcy during a WDW trip, so you have to expect it to be that much harder for your autistic son to deal. Make sure you have something that is familiar to him from home, be it a video game system, book, CD/mp3 player, etc. that he can turn to when he feels overloaded. Bring it with you to the parks every day so if need be, he can use it.

Good luck and let us know how it turns out!
 
I'm so sorry your family is going through this difficult time! It must be hard on all of you.

One thing you mentioned was taking your sons and daughter back to the resort - but would you really leave your daughter behind in the room with your autistic son?

Hi, I would be really apprehensive about letting her wander around in the park with the other twin. I forgot to mention it but he has Asberger's Syndrome. Thanks, Christine
 
Hi, thank you for all your responses. Depending on how things go at Disney, I may let my daughter take twin #2 while I sit with twin #1 as he calms down and keep in touch via cells. Or we will all go back to the hotel together for a rest. The meds. do seem to be helping, he's been much calmer without being stupified. Postponing the trip is simply not an option due to money and time constraints. This is our third visit and he's been fine in the past and hopefully, this one will be a success too. Thanks again for your help.
 
I have a ds12 with asperger's and abilify was a godsend when he was first put on it 3 years ago - the change in him just over a few days was incredible! Just recently we added seroquel and the combo seems to do "ok". We are also dealing with him being a pre-teen and all that goes with that - don't even get me started on his sensory issues with his, uhm, well, uhm, private area! (..that's something for you to look forward to..:eek: )

We are regular Disney visitors and he has had his share of meltdowns at the parks. Dh & I usually have to split up as we also have a dd8 and it is often best when we each take a kid and go our separate ways. Not much of a "family" vacation, but it's what works. Ds wants to go to the lego store in DTD and dd wants to ride BTMR as many times in a row as we can - there are times when neither wants to do what the other wants.

One of the best things that has worked for ds at Disney is pin trading. He gets obsessed with them and it gives him something to do no matter where we go since there are always cast members willing to trade. It also gives him good practise in social situations as he has to approach cm's and ask to see their pins. Ds was about your sons age when he really got into the trading. (as an aside, if that is a route you want to go I have a good online place to buy - let me know if you want the name!) Ds also has to EARN the pins we give him every day with good behavior.

You may even want to put a behavior chart together with things he can easily accomlish every day - get dressed without issue, brush your teeth, read, whatever else he can SUCCEED at - ds' psychiatrist suggested the chart to use with ds and it works for him as the goals are easy enough to accomplish - and we also throw in some "harder" ones but he sees a lot of checkmarks for the easier ones and that makes him feel better.

Good luck! I do know what you are going through. We were finally able to transfer ds out of public school (which was a nightmare for him) into a different program where right now there are only 6 kids and 2 teachers in his classroom and they know how to deal with kids like him. But right now he is in a cycle where EVERY morning before his ride shows up the collar on his t-shirt is all of a sudden too tight and he is tugging on it, or he has "privates" issues. We know that it is his anxiety showing, but it is hard to break him of that cycle. Every day is a challenge!

Oh, and I am also in MA! SE MA by RI...

Jill
 
Jill, thank you and everyone else for the kind responses, I do appreciate it. My son is going thru some of the same sensory issues in particular too. I guess we'll try to split up although I really am nervous about my 15 yr. old walking around alone with a 10 yr. old but maybe it'll be ok. I'm a single mother so my options are limited.
I think your idea of pin trading is a good idea. We have a few but have never been too much into it. Maybe it will keep him amused.
Thanks for telling me about your experiences with Abilify too. He was on Seraquel (sp?) a couple of years ago and in his case, it turned him into a zombie. I'm glad it's working out for you, every kid is different. Perry's twin has AS and they have an older brother w/AS I've gotten very familiar with meds and behavioral therapy etc.
It was interesting that you're in MA and you got your son into private placement because I had them both eval'd this summer and I am trying to get private placement for Perry with the same teacher/student ratio your son is in. Please feel free to PM me if you want to chat about it. Thanks again, I was definitely in a rough spot a few days ago but I think it will all work out. Christiine
 
Jill, thank you and everyone else for the kind responses, I do appreciate it. My son is going thru some of the same sensory issues in particular too. I guess we'll try to split up although I really am nervous about my 15 yr. old walking around alone with a 10 yr. old but maybe it'll be ok. I'm a single mother so my options are limited.
I think your idea of pin trading is a good idea. We have a few but have never been too much into it. Maybe it will keep him amused.
Thanks for telling me about your experiences with Abilify too. He was on Seraquel (sp?) a couple of years ago and in his case, it turned him into a zombie. I'm glad it's working out for you, every kid is different. Perry's twin has AS and they have an older brother w/AS I've gotten very familiar with meds and behavioral therapy etc.
It was interesting that you're in MA and you got your son into private placement because I had them both eval'd this summer and I am trying to get private placement for Perry with the same teacher/student ratio your son is in. Please feel free to PM me if you want to chat about it. Thanks again, I was definitely in a rough spot a few days ago but I think it will all work out. Christiine


Christine,

You have a lot on your plate as a single Mom GB you!!!!
 
. (as an aside, if that is a route you want to go I have a good online place to buy - let me know if you want the name!) Jill

May I have the website. I would like to get ASD son 9 into this. How does it work and how do you start?
 
Christine - I sent you a pm! :)

For anyone who would like the site for pins:

http://www.pincastle.com/Disney-Pin-Trading-Lots-Disney-Pins_268.aspx

I got the name from the trading site here on the DIS and have ordered from them 2x and got great, quick service. If you buy in bulk you end up paying just over $3/pin whereas they are $6.95 and up at the parks.

Pin trading is simple and lots of fun! Kids like to wear the lanyards around their neck with their pins available for trade attached. They can approach any cm and ask to see their pins and trade one of their own for one of the cm's. Ds likes to find different series/groups - different trips have been the buses, monorails, stitch, etc. It gives him something to focus on and keep his attention. If I sense a meltdown coming on I can re-direct him to seek out cm's. A warning tho - pin collecting/trading is not cheap and it can be highly addictive! We are working on getting ours on corkboard so we can display them around the house.

Jill
 
Many, many good tips on here! My 13 year old has Aspergers. We are no longer having meltdowns with him, but with our 5 year old who has a lot of other medical/behavioral issues.

As the mom of a 15 year old DD too, I would also advise not to leave her back at the hotel with your son if he has a meltdown. Even the most mature 15 year old will feel some resentment towards her brother if he is the reason she is at the hotel with him and not at Disney.

I would suggest lots and lots of breaks, taking it nice and slow at the parks, and immediately trying to ward off a meltdown before it grows to big to control. If he's into video games, bring a gameboy or something similar to keep him busy in lines.

We had our son involved with pins, but he became obsessed with them! It got so bad that he was walking through Epcot crying because he regreted a trade he had made and could not find the cast member to trade back. We found great deals on Ebay for the pins, buying them in bulk. It didn't matter what pins they were, since the kids traded for what they really wanted.

~Jennifer

mom to Ashley, 15
Jacob, 13 (Aspergers)
Joe, 5 (Neurofibromatosis with brain tumors, global delays and ADHD)
and Jace, 2
 
Hi, just wanted to let everyone who responded know that Perry is doing very well on his Abilify and the meltdowns have become significantly less of a problem. I think he's going to have another positive and happy experience in DW which is a huge relief to all of us. Life in our house is not simple and there are no easy answers. I am a single mom and my three boys are all on the spectrum and there have been a ton of compromises and sacrifices. Any sacrifices on any of the children's part has been rewarded triple fold and I don't want anyone to walk away from this thinking that I have ever made my daughter pay the price for her brothers' disabilities. If she had to help me at all in DW, which I was trying very hard to avoid, she was getting a day at DQ , which I originally had no intention of visiting, while the twins stayed with a sitter from the hotel because this is a vacation for all of us. This is a vacation in every sense of the word for us as life can be very stressful sometimes but we still manage to be a happy, close knit family and DW has become a joyful, magical and safe place for us. Thanks again for all your suggestions and help and the pats on the back. I truly appreciate it. Christine
 














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